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    Last Updated: 01/09/2026

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    MediFind found 64 doctor with experience in Erdheim-Chester Disease near The United Kingdom. Of these, 62 are Experienced and 2 are Advanced.

    Location
    LocationClose
    64 providers found
      Advanced in Erdheim-Chester Disease
      Advanced in Erdheim-Chester Disease
      Framlington Place, 
      Newcastle Upon Tyne, ENG, GB 

      Matthew Collin practices in Newcastle Upon Tyne, United Kingdom. Mr. Collin is rated as an Advanced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Langerhans Cell Histiocytosis, Reticulohistiocytoma, Histiocytosis, Bone Marrow Transplant, and Bone Graft.

      Advanced in Erdheim-Chester Disease
      Advanced in Erdheim-Chester Disease
      Newcastle Upon Tyne, ENG, GB 

      Paul Milne practices in Newcastle Upon Tyne, United Kingdom. Mr. Milne is rated as an Advanced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Langerhans Cell Histiocytosis, Reticulohistiocytoma, Histiocytosis, Erdheim-Chester Disease, and Bone Marrow Transplant.

      John R. Goodlad
      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease

      NHS Greater Glasgow And Clyde

      Glasgow, SCT, GB 

      John Goodlad practices in Glasgow, United Kingdom. Mr. Goodlad is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are T-Cell Lymphoma, Non-Hodgkin Lymphoma, B-Cell Lymphoma, and Cutaneous T-Cell Lymphoma (CTCL).

      Learn about our expert tiers
      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      St James's University Hospital, 
      Leeds, ENG, GB 

      Roger Owen practices in Leeds, United Kingdom. Mr. Owen is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Waldenstrom Macroglobulinemia, Multiple Myeloma, Schnitzler Syndrome, Bone Marrow Transplant, and Bone Marrow Aspiration.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Leeds, ENG, GB 

      Peter Hillmen practices in Leeds, United Kingdom. Mr. Hillmen is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Chronic Lymphocytic Leukemia (CLL), Small Lymphocytic Lymphoma (SLL), Chronic B-Cell Leukemia (CBCL), and Paroxysmal Cold Hemoglobinuria.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Edinburgh, SCT, GB 

      David Hunt practices in Edinburgh, United Kingdom. Mr. Hunt is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Hypotonia, Aicardi-Goutieres Syndrome, Multiple Sclerosis (MS), and Increased Head Circumference.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Framlington Place, 
      Newcastle Upon Tyne, ENG, GB 

      Venetia Bigley practices in Newcastle Upon Tyne, United Kingdom. Ms. Bigley is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Hyper IgE Syndrome, Autosomal Dominant Hyper IgE Syndrome, Graft Versus Host Disease (GvHD), Primary Immunodeficiency (PID), and Bone Marrow Transplant.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Infirmary Square, 
      Leicester, ENG, GB 

      Mamta Garg practices in Leicester, United Kingdom. Ms. Garg is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Multiple Myeloma, Adult Immune Thrombocytopenia, Immune Thrombocytopenic Purpura (ITP), Splenectomy, and Bone Marrow Transplant.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Cambridge, ENG, GB 

      Amir Fard-Rafati practices in Cambridge, United Kingdom. Mr. Fard-Rafati is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Cervical Myelopathy, Erdheim-Chester Disease, Acute Cerebellar Ataxia, and Non-Langerhans-Cell Histiocytosis.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Norwich, ENG, GB 

      James Brodie practices in Norwich, United Kingdom. Mr. Brodie is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, Retinal Artery Occlusion, and Reticulohistiocytoma.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      St John's Institute Of Dermatology, 
      London, ENG, GB 

      Maria Papanikolaou practices in London, United Kingdom. Ms. Papanikolaou is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Epidermolysis Bullosa, Dystrophic Epidermolysis Bullosa, Erdheim-Chester Disease, and Localized Scleroderma.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Antonia Carroll practices in London, United Kingdom. Ms. Carroll is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Primary Lateral Sclerosis, Transthyretin Amyloidosis, Familial Transthyretin Amyloidosis, and Recurrent Peripheral Facial Palsy.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Bristol, ENG, GB 

      Claire Rice practices in Bristol, United Kingdom. Ms. Rice is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Hereditary Ataxia, Bone Marrow Transplant, and Gastrostomy.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Guy's And St Thomas's NHS Foundation Trust, 
      London, ENG, GB 

      Anika Choraria practices in London, United Kingdom. Ms. Choraria is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Rosai-Dorfman Disease, Erdheim-Chester Disease, Langerhans Cell Histiocytosis, and Non-Langerhans-Cell Histiocytosis.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Glasgow, SCT, GB 

      Matthew Wilson practices in Glasgow, United Kingdom. Mr. Wilson is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are B-Cell Lymphoma, Diffuse Large B-Cell Lymphoma (DLBCL), Non-Hodgkin Lymphoma, and Mantle Cell Lymphoma (MCL).

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      London, ENG, GB 

      Roohi Chhabra practices in London, United Kingdom. Ms. Chhabra is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Prune Belly Syndrome, Chronic Kidney Disease, Erdheim-Chester Disease, and Low Sodium Level.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Manchester, ENG, GB 

      Azeem Ahmed practices in Manchester, United Kingdom. Mr. Ahmed is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Granulomatosis with Polyangiitis, Vasculitis, Acute Interstitial Pneumonia, Interstitial Lung Disease, and Hip Replacement.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Brockley Hill, 
      Stanmore, ENG, GB 

      Asif Saifuddin practices in Stanmore, United Kingdom. Mr. Saifuddin is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Chondrosarcoma, Bone Tumor, Adult Soft Tissue Sarcoma, and Chondroma.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Gloucester, ENG, GB 

      Neil Scolding practices in Gloucester, United Kingdom. Mr. Scolding is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Multiple Sclerosis (MS), Friedreich Ataxia, Hereditary Ataxia, Bone Marrow Transplant, and Gastrostomy.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Norwich, ENG, GB 

      Clare Beadsmoore practices in Norwich, United Kingdom. Ms. Beadsmoore is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Juvenile Temporal Arteritis, Melanoma, Giant Cell Arteritis (GCA), and Temporal Arteritis.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 64

      Last Updated: 01/09/2026

      What is the definition of Erdheim-Chester Disease?

      Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

      When should I see an Erdheim-Chester Disease doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Erdheim-Chester Disease doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Erdheim-Chester Disease doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Erdheim-Chester Disease doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Erdheim-Chester Disease doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

      Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Erdheim-Chester Disease doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Erdheim-Chester Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Erdheim-Chester Disease doctors in The United Kingdom?

      Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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