The 20 Best Erdheim-Chester Disease Doctors in The United Kingdom

Find the Top Erdheim-Chester Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 65 doctor with experience in Erdheim-Chester Disease near The United Kingdom. Of these, 63 are Experienced and 2 are Advanced.

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65 providers found
    Advanced in Erdheim-Chester Disease
    Advanced in Erdheim-Chester Disease
    Framlington Place, 
    Newcastle Upon Tyne, ENG, GB 

    Matthew Collin practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Mr. Collin is rated as an Advanced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Langerhans Cell Histiocytosis, Histiocytosis, Reticulohistiocytoma, Bone Marrow Transplant, and Bone Graft.

    Advanced in Erdheim-Chester Disease
    Advanced in Erdheim-Chester Disease
    Newcastle Upon Tyne, ENG, GB 

    Paul Milne practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Mr. Milne is rated as an Advanced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Langerhans Cell Histiocytosis, Reticulohistiocytoma, Histiocytosis, Erdheim-Chester Disease, and Bone Marrow Transplant.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    NHS Greater Glasgow And Clyde

    Glasgow, SCT, GB 

    John Goodlad practices practicing medicine in Glasgow, United Kingdom. Mr. Goodlad is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Non-Hodgkin Lymphoma, T-Cell Lymphoma, B-Cell Lymphoma, and Cutaneous T-Cell Lymphoma (CTCL).

    Learn about our expert tiers
    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Leeds, ENG, GB 

    Peter Hillmen practices practicing medicine in Leeds, United Kingdom. Mr. Hillmen is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Chronic Lymphocytic Leukemia (CLL), Small Lymphocytic Lymphoma (SLL), Chronic B-Cell Leukemia (CBCL), and Paroxysmal Cold Hemoglobinuria.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    St James's University Hospital, 
    Leeds, ENG, GB 

    Roger Owen practices practicing medicine in Leeds, United Kingdom. Mr. Owen is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Waldenstrom Macroglobulinemia, Multiple Myeloma, Schnitzler Syndrome, Bone Marrow Transplant, and Bone Marrow Aspiration.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Edinburgh, SCT, GB 

    David Hunt practices practicing medicine in Edinburgh, United Kingdom. Mr. Hunt is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Bazex Syndrome, Coffin-Siris Syndrome, Multiple Sclerosis (MS), and Aicardi-Goutieres Syndrome.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Newcastle Upon Tyne, ENG, GB 

    Venetia Bigley practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Ms. Bigley is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Graft Versus Host Disease (GvHD), Hyper IgE Syndrome, Autosomal Dominant Hyper IgE Syndrome, Primary Immunodeficiency (PID), and Bone Marrow Transplant.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Infirmary Square, 
    Leicester, ENG, GB 

    Mamta Garg practices practicing medicine in Leicester, United Kingdom. Ms. Garg is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Multiple Myeloma, Adult Immune Thrombocytopenia, Immune Thrombocytopenic Purpura (ITP), Splenectomy, and Bone Marrow Transplant.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Norwich, ENG, GB 

    James Brodie practices practicing medicine in Norwich, United Kingdom. Mr. Brodie is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His clinical expertise encompasses Erdheim-Chester Disease, Retinal Artery Occlusion, Non-Langerhans-Cell Histiocytosis, and Histiocytosis.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    Amir Fard-Rafati practices practicing medicine in London, United Kingdom. Mr. Fard-Rafati is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Cervical Myelopathy, Erdheim-Chester Disease, Acute Cerebellar Ataxia, and Non-Langerhans-Cell Histiocytosis.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    St John's Institute Of Dermatology, U.K, 
    London, ENG, GB 

    Maria Papanikolaou practices practicing medicine in London, United Kingdom. Ms. Papanikolaou is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her clinical expertise encompasses Epidermolysis Bullosa, Exfoliative Dermatitis, Erythroderma, and Dystrophic Epidermolysis Bullosa.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Bristol, ENG, GB 

    Claire Rice practices practicing medicine in Bristol, United Kingdom. Ms. Rice is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Hereditary Ataxia, Bone Marrow Transplant, and Gastrostomy.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Guy's And St Thomas's NHS Foundation Trust, 
    London, ENG, GB 

    Anika Choraria practices practicing medicine in London, United Kingdom. Ms. Choraria is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her clinical expertise encompasses Rosai-Dorfman Disease, Erdheim-Chester Disease, Langerhans Cell Histiocytosis, and Non-Langerhans-Cell Histiocytosis.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    London, ENG, GB 

    Roohi Chhabra practices practicing medicine in London, United Kingdom. Ms. Chhabra is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her clinical expertise encompasses Prune Belly Syndrome, Chronic Kidney Disease, Erdheim-Chester Disease, and Low Sodium Level.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Glasgow, SCT, GB 

    Matthew Wilson practices practicing medicine in Glasgow, United Kingdom. Mr. Wilson is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses B-Cell Lymphoma, Diffuse Large B-Cell Lymphoma (DLBCL), Non-Hodgkin Lymphoma, and Mantle Cell Lymphoma (MCL).

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    Antonia Carroll practices practicing medicine in London, United Kingdom. Ms. Carroll is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Primary Amyloidosis, Primary Lateral Sclerosis, Cardiac Amyloidosis, and Transthyretin Amyloidosis.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Swindon, ENG, GB 

    Azeem Ahmed practices practicing medicine in Swindon, United Kingdom. Mr. Ahmed is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Granulomatosis with Polyangiitis, Vasculitis, Interstitial Lung Disease, and Acute Interstitial Pneumonia.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Gloucester, ENG, GB 

    Neil Scolding practices practicing medicine in Gloucester, United Kingdom. Mr. Scolding is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Friedreich Ataxia, Hereditary Ataxia, Bone Marrow Transplant, and Gastrostomy.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    203 Fulham Road, 
    London, ENG, GB 

    Ian Chau practices practicing medicine in London, United Kingdom. Mr. Chau is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Colorectal Cancer, Gastroesophageal Junction Cancer, Stomach Cancer, Hepato-Pancreato-Biliary Surgery, and Hepatectomy.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Norwich, ENG, GB 

    Clare Beadsmoore practices practicing medicine in Norwich, United Kingdom. Ms. Beadsmoore is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her clinical expertise encompasses Juvenile Temporal Arteritis, Melanoma, Temporal Arteritis, and Giant Cell Arteritis (GCA).

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 65

    Last Updated: 04/28/2026

    What is the definition of Erdheim-Chester Disease?

    Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

    When should I see an Erdheim-Chester Disease doctor in The United Kingdom?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Erdheim-Chester Disease doctor in The United Kingdom?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Erdheim-Chester Disease doctors in The United Kingdom?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Erdheim-Chester Disease doctors in The United Kingdom?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Erdheim-Chester Disease doctor in The United Kingdom?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

    Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Erdheim-Chester Disease doctor in The United Kingdom?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Erdheim-Chester Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Erdheim-Chester Disease doctors in The United Kingdom?

    Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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