The 20 Best Erdheim-Chester Disease Doctors in Netherlands

Find the Top Erdheim-Chester Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 49 doctor with experience in Erdheim-Chester Disease near Netherlands. Of these, 47 are Experienced and 2 are Advanced.

Location
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49 providers found
    Advanced in Erdheim-Chester Disease
    Advanced in Erdheim-Chester Disease

    Lumc

    Leiden, ZH, NL 

    Robert Verdijk practices practicing medicine in Leiden, Netherlands. Verdijk is rated as an Advanced expert by MediFind in the treatment of Erdheim-Chester Disease. They are also highly rated in 15 other conditions, according to our data. Their clinical expertise encompasses Uveal Melanoma, Melanoma, Melanoma of the Eye, Vitrectomy, and Corneal Transplant.

    Advanced in Erdheim-Chester Disease
    Advanced in Erdheim-Chester Disease
    Leiden, ZH, NL 

    Paul Kemps practices practicing medicine in Leiden, Netherlands. Mr. Kemps is rated as an Advanced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Histiocytosis, Reticulohistiocytoma, Langerhans Cell Histiocytosis, and Erdheim-Chester Disease.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Dordrecht, ZH, NL 

    Eric Van Bommel practices practicing medicine in Dordrecht, Netherlands. Mr. Van Bommel is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Retroperitoneal Fibrosis, Retroperitoneal Inflammation, Erdheim-Chester Disease, and Non-Langerhans-Cell Histiocytosis.

    Learn about our expert tiers
    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Dordrecht, ZH, NL 

    Tadek Hendriksz practices practicing medicine in Dordrecht, Netherlands. Hendriksz is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Retroperitoneal Fibrosis, Retroperitoneal Inflammation, Omphalocele, and Umbilical Hernia.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Nijmegen, GE, NL 

    Konnie Hebeda practices practicing medicine in Nijmegen, Netherlands. Ms. Hebeda is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses B-Cell Lymphoma, Marginal Zone Lymphoma (MZL), Non-Hodgkin Lymphoma, Rosai-Dorfman Disease, and Tissue Biopsy.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Dordrecht, ZH, NL 

    Pieter Westenend practices practicing medicine in Dordrecht, Netherlands. Mr. Westenend is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Breast Cancer, Retroperitoneal Fibrosis, Erdheim-Chester Disease, Lynch Syndrome, and Mastectomy.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Utrecht, UT, NL 

    Cor Van Den Bos-Van Den Broeck practices practicing medicine in Utrecht, Netherlands. Mr. Van Den Bos-Van Den Broeck is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Langerhans Cell Histiocytosis, Histiocytosis, Reticulohistiocytoma, and Acute Lymphoblastic Leukemia (ALL).

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Franciscus Gasthuis And Vlietland

    Schiedam, ZH, NL 

    Henk-jan Boiten practices practicing medicine in Schiedam, Netherlands. Boiten is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their clinical expertise encompasses Familial Ventricular Tachycardia, Non-Langerhans-Cell Histiocytosis, Scurvy, Histiocytosis, and Bone Marrow Aspiration.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Rotterdam, ZH, NL 

    Sanne Detiger practices practicing medicine in Rotterdam, Netherlands. Ms. Detiger is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses IgG4-Related Disease, Xanthoma, Non-Langerhans-Cell Histiocytosis, and Histiocytosis.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Amsterdam, NH, NL 

    Franciska De Vries practices practicing medicine in Amsterdam, Netherlands. Ms. De Vries is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her clinical expertise encompasses Granulomatous Hypophysitis, Xanthoma, Erdheim-Chester Disease, and Diabetes Insipidus (DI).

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Radboudumc

    Nijmegen, GE, NL 

    Jorge Andres-Dominguez practices practicing medicine in Nijmegen, Netherlands. Mr. Andres-Dominguez is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His clinical expertise encompasses Severe Acute Respiratory Syndrome (SARS), COVID-19, Erdheim-Chester Disease, and Pulmonary Tuberculosis.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Erasmus MC

    Rotterdam, ZH, NL 

    Virgil Dalm practices practicing medicine in Rotterdam, Netherlands. Mr. Dalm is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Common Variable Immune Deficiency, Primary Immunodeficiency (PID), Netherton Syndrome, and X-Linked Agammaglobulinemia.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Leiden, ZH, NL 

    Pancras Hogendoorn practices practicing medicine in Leiden, Netherlands. Hogendoorn is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Ewing Sarcoma, Bone Tumor, Ollier Disease, Osteosarcoma, and Leg or Foot Amputation.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Leiden, ZH, NL 

    Wouter Van Furth practices practicing medicine in Leiden, Netherlands. Van Furth is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. They are also highly rated in 15 other conditions, according to our data. Their clinical expertise encompasses Prolactinoma, Pituitary Tumor, Hypothalamic Tumor, Endoscopic Transnasal Transsphenoidal Surgery, and Craniectomy.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Amsterdam, NH, NL 

    Steven Pals practices practicing medicine in Amsterdam, Netherlands. Mr. Pals is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Waldenstrom Macroglobulinemia, Non-Hodgkin Lymphoma, B-Cell Lymphoma, and HIV/AIDS.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Erasmus MC

    Rotterdam, ZH, NL 

    Pim Mutsaers practices practicing medicine in Rotterdam, Netherlands. Mutsaers is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses B-Cell Lymphoma, Non-Hodgkin Lymphoma, Hypereosinophilic Syndrome, COVID-19, and Bone Marrow Transplant.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Amsterdam, NH, NL 

    Nick De Jonge practices practicing medicine in Amsterdam, Netherlands. Mr. De Jonge is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Agranulocytosis, Febrile Neutropenia, COVID-19, Aspergillosis, and Bone Marrow Transplant.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Amsterdam, NH, NL 

    Carel Van Noesel practices practicing medicine in Amsterdam, Netherlands. Van Noesel is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Anal Cancer, Langerhans Cell Histiocytosis, Histiocytosis, and Reticulohistiocytoma.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Diakonessenhuis

    Utrecht, UT, NL 

    Koen De Heer-Koene practices practicing medicine in Utrecht, Netherlands. Mr. De Heer-Koene is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses B-Cell Lymphoma, Multiple Myeloma, Chronic Lymphocytic Leukemia (CLL), and Chronic B-Cell Leukemia (CBCL).

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease
    Nijmegen, GE, NL 

    Suzanne Yzer practices practicing medicine in Nijmegen, Netherlands. Ms. Yzer is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Central Serous Chorioretinopathy, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), and Retinopathy Pigmentary Mental Retardation.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 49

    Last Updated: 04/28/2026

    What is the definition of Erdheim-Chester Disease?

    Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

    When should I see an Erdheim-Chester Disease doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Erdheim-Chester Disease doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Erdheim-Chester Disease doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Erdheim-Chester Disease doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Erdheim-Chester Disease doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

    Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Erdheim-Chester Disease doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Erdheim-Chester Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Erdheim-Chester Disease doctors in Netherlands?

    Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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