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    Last Updated: 02/22/2026

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    MediFind found 152 doctor with experience in Erdheim-Chester Disease near Florida, US. Of these, 115 are Experienced, 36 are Advanced and 1 are Elite.

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    LocationClose
    152 providers found
      Elite in Erdheim-Chester Disease
      Radiology
      Elite in Erdheim-Chester Disease
      Radiology

      Mayo Clinic Hospital In Florida

      4500 San Pablo Rd S, 
      Jacksonville, FL 
      Languages Spoken:
      English

      Jason Young is a Radiologist in Jacksonville, Florida. Dr. Young is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Rosai-Dorfman Disease, Erdheim-Chester Disease, Interstitial Lung Disease, and Primary Lymphoma of the Brain.

      Arun Nagarajan
      Experienced in Erdheim-Chester Disease
      Hematology Oncology
      Experienced in Erdheim-Chester Disease
      Hematology Oncology

      Egil And Pauline Braathen Center/Maroone Cancer Center

      2950 Cleveland Clinic Boulevard, 
      Weston, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Arun Nagarajan is a Hematologist Oncology provider in Weston, Florida. Dr. Nagarajan is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Colorectal Cancer, Familial Colorectal Cancer, Lynch Syndrome, Cholangiocarcinoma (Bile Duct Cancer), and Liver Embolization.

      Experienced in Erdheim-Chester Disease
      Internal Medicine
      Experienced in Erdheim-Chester Disease
      Internal Medicine

      Sole Health LLC

      7261 Sheridan St Ste 100D, 
      Hollywood, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Nelia Sanchez is a primary care provider, practicing in Internal Medicine in Hollywood, Florida. Dr. Sanchez is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Multiple Symmetric Lipomatosis, Fumarase Deficiency, Dihydropyrimidine Dehydrogenase Deficiency, Gracile Syndrome, and Gastrostomy.

      Learn about our expert tiers
      Experienced in Erdheim-Chester Disease
      Neuroradiology
      Experienced in Erdheim-Chester Disease
      Neuroradiology

      Mayo Clinic Hospital In Florida

      4500 San Pablo Rd S, 
      Jacksonville, FL 
      Languages Spoken:
      English

      Neetu Soni is a Neuroradiologist in Jacksonville, Florida. Dr. Soni is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Cat Scratch Disease, Erdheim-Chester Disease, Primary Lymphoma of the Brain, and Progressive Multifocal Leukoencephalopathy.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease

      Moffitt Cancer Center, Magnolia Campus

      12902 Usf Magnolia Dr, 
      Tampa, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Edwin Peguero is a Neurologist in Tampa, Florida. Dr. Peguero is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Posterior Fossa Tumor, Astrocytoma, Neuroepithelioma, and Atypical Teratoid Rhabdoid Tumor (ATRT).

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease

      Moffitt International Plaza

      4101 Jim Walter Blvd, 
      Tampa, FL 
      Languages Spoken:
      English

      Arthur Parsee is a Radiologist in Tampa, Florida. Dr. Parsee is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Lymphofollicular Hyperplasia, Pancreatic Adenoma, Neuroendocrine Tumor, and Pleurisy.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease

      Mount Sinai Medical Center

      4300 Alton Rd, 
      Miami Beach, FL 
      Languages Spoken:
      English

      John Didovic is a Radiologist in Miami Beach, Florida. Dr. Didovic is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Retroperitoneal Inflammation, Gallbladder Disease, Multisystem Inflammatory Syndrome in Children (MIS-C), Sclerosing Mesenteritis, and Gastrostomy.

      Experienced in Erdheim-Chester Disease
      Radiology
      Experienced in Erdheim-Chester Disease
      Radiology

      Mount Sinai Medical Center

      4300 Alton Rd, 
      Miami Beach, FL 
      Languages Spoken:
      English

      Ivy Salom is a Radiologist in Miami Beach, Florida. Dr. Salom is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Scrotal Swelling, Boils, Carbuncle, and Folliculitis.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease

      Moffitt McKinley Campus

      10920 McKinley Dr, 
      Tampa, FL 
      Languages Spoken:
      English

      Claudia Berman is a Radiologist in Tampa, Florida. Dr. Berman is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Primary Lymphoma of the Brain, Mantle Cell Lymphoma (MCL), Neuroendocrine Tumor, and Caffey Disease.

      Experienced in Erdheim-Chester Disease
      Radiology
      Experienced in Erdheim-Chester Disease
      Radiology

      Pembroke Pink Imaging LLC

      15735 Pines Blvd, 
      Pembroke Pines, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Ujas Parikh is a Radiologist in Pembroke Pines, Florida. Dr. Parikh is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Breast Lump, Galactocoele, Giant Mammary Hamartoma, and Breast Infection.

      Experienced in Erdheim-Chester Disease
      Neuroradiology
      Experienced in Erdheim-Chester Disease
      Neuroradiology

      Radiology Associates Of Florida Office

      10000 Bay Pines Blvd, 
      Bay Pines, FL 
      Languages Spoken:
      English

      Ritu Shah is a Neuroradiologist in Bay Pines, Florida. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Hepatocerebral Degeneration, Cerebellar Degeneration, CAPOS Syndrome, and Cerebellar Multiple System Atrophy.

      Experienced in Erdheim-Chester Disease
      Neuroradiology
      Experienced in Erdheim-Chester Disease
      Neuroradiology

      Cedars Healthcare Group LTD.

      1400 NW 12th Ave, 
      Miami, FL 
      Experience:
      44+ years
      Languages Spoken:
      English

      Rita Bhatia is a Neuroradiologist in Miami, Florida. Dr. Bhatia has been practicing medicine for over 44 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Meningioma, Stroke, Relapsing Multiple Sclerosis (RMS), and Radiation Induced Meningioma.

      Experienced in Erdheim-Chester Disease
      Neuroradiology
      Experienced in Erdheim-Chester Disease
      Neuroradiology

      Jackson Health System

      1611 NW 12th Ave, 
      Miami, FL 
      Languages Spoken:
      English

      Natalya Nagornaya is a Neuroradiologist in Miami, Florida. Dr. Nagornaya is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Meningioma, Stroke, Normal Pressure Hydrocephalus, and Chronic Rhinosinusitis with Nasal Polyps (CRSwNP).

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease

      Good Samaritan Medical Center

      1309 N Flagler Dr, 
      West Palm Beach, FL 
      Languages Spoken:
      English

      Asif Abdullah is a Radiologist in West Palm Beach, Florida. Dr. Abdullah is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Stroke, CAPOS Syndrome, Gallbladder Disease, and Subarachnoid Hemorrhage.

      Experienced in Erdheim-Chester Disease
      Neuroradiology
      Experienced in Erdheim-Chester Disease
      Neuroradiology

      Moffitt Magnolia Campus

      12902 Usf Magnolia Dr, 
      Tampa, FL 
      Languages Spoken:
      English

      William Erly is a Neuroradiologist in Tampa, Florida. Dr. Erly is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Radiation Induced Meningioma, Pediatric Low-Grade Glioma (pLGG), Mikulicz Disease, and Primary Lymphoma of the Brain.

      Advanced in Erdheim-Chester Disease
      Advanced in Erdheim-Chester Disease

      St Peter Medical Group Inc

      339 Cypress Pkwy, Suite 110, 
      Kissimmee, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Miriam Rivera-Irizarry is a primary care provider, practicing in Internal Medicine in Kissimmee, Florida. Dr. Rivera-Irizarry is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Multiple Symmetric Lipomatosis, Gracile Syndrome, Erdheim-Chester Disease, and Dihydropyrimidine Dehydrogenase Deficiency. Dr. Rivera-Irizarry is currently accepting new patients.

      Advanced in Erdheim-Chester Disease
      Internal Medicine
      Advanced in Erdheim-Chester Disease
      Internal Medicine
      10000 W Colonial Dr, Suite 187, 
      Ocoee, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Mark Brooks is a primary care provider, practicing in Internal Medicine in Ocoee, Florida. Dr. Brooks is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Type 2 Diabetes (T2D), Heart Murmurs, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Brooks is currently accepting new patients.

      Advanced in Erdheim-Chester Disease
      Advanced in Erdheim-Chester Disease

      Conviva Medical Center Management, LLC

      876 Saxon Blvd, 
      Orange City, FL 
      Experience:
      10+ years
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Gabriel Ortiz-Rivera is a primary care provider, practicing in General Practice in Orange City, Florida. Dr. Ortiz-Rivera has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Multiple Symmetric Lipomatosis, Dihydropyrimidine Dehydrogenase Deficiency, Erdheim-Chester Disease, and Fumarase Deficiency. Dr. Ortiz-Rivera is currently accepting new patients.

      Advanced in Erdheim-Chester Disease
      Internal Medicine
      Advanced in Erdheim-Chester Disease
      Internal Medicine

      The Moorings Incorporated

      120 Moorings Park Dr, 
      Naples, FL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Pavan Anand is a primary care provider, practicing in Internal Medicine in Naples, Florida. Dr. Anand is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Cytochrome C Oxidase Deficiency, Mitochondrial Complex V Deficiency, High Cholesterol, and Abdominal Obesity Metabolic Syndrome. Dr. Anand is currently accepting new patients.

      Advanced in Erdheim-Chester Disease
      Family Medicine
      Advanced in Erdheim-Chester Disease
      Family Medicine
      1533 Sunset Dr, Suite 200, 
      Coral Gables, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Charles Yanes is a primary care provider, practicing in Family Medicine in Coral Gables, Florida. Dr. Yanes is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Scott Syndrome, Stormorken Syndrome, Multiple Symmetric Lipomatosis, and Fumarase Deficiency. Dr. Yanes is currently accepting new patients.

      Showing 1-20 of 152

      Last Updated: 02/22/2026

      What is the definition of Erdheim-Chester Disease?

      Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

      When should I see an Erdheim-Chester Disease doctor in Florida, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Erdheim-Chester Disease doctor in Florida, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Erdheim-Chester Disease doctors in Florida, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Erdheim-Chester Disease doctors in Florida, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Erdheim-Chester Disease doctor in Florida, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

      Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Erdheim-Chester Disease doctor in Florida, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Erdheim-Chester Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Erdheim-Chester Disease doctors in Florida, US?

      Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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