The 20 Best Erdheim-Chester Disease Doctors Near Me in Florida, US

Find the Top Erdheim-Chester Disease Experts and Specialists

The 20 Best Erdheim-Chester Disease Doctors in Florida, US

Last Updated: 02/22/2026

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MediFind found 150 doctor with experience in Erdheim-Chester Disease near Florida, US. Of these, 113 are Experienced, 36 are Advanced and 1 are Elite.

Location
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150 providers found
    Elite in Erdheim-Chester Disease
    Radiology
    Elite in Erdheim-Chester Disease
    Radiology

    Mayo Clinic Hospital In Florida

    4500 San Pablo Rd S, 
    Jacksonville, FL 
    Languages Spoken:
    English

    Jason Young is a Radiologist in Jacksonville, Florida. Dr. Young is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Rosai-Dorfman Disease, Erdheim-Chester Disease, Interstitial Lung Disease, and Primary Lymphoma of the Brain.

    Arun Nagarajan
    Experienced in Erdheim-Chester Disease
    Hematology Oncology
    Experienced in Erdheim-Chester Disease
    Hematology Oncology

    Egil And Pauline Braathen Center/Maroone Cancer Center

    2950 Cleveland Clinic Boulevard, 
    Weston, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Arun Nagarajan is a Hematologist Oncology provider in Weston, Florida. Dr. Nagarajan is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Colorectal Cancer, Familial Colorectal Cancer, Lynch Syndrome, Cholangiocarcinoma (Bile Duct Cancer), and Liver Embolization.

    Experienced in Erdheim-Chester Disease
    Internal Medicine
    Experienced in Erdheim-Chester Disease
    Internal Medicine

    Professional Health Care Of Pinellas LLC

    6502 Park Blvd N, 
    Pinellas Park, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Hazem Al is a primary care provider, practicing in Internal Medicine in Pinellas Park, Florida. Dr. Al is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Necrosis, Peptic Ulcer, Pneumonia, Gastrostomy, and Endoscopy. Dr. Al is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Moffitt International Plaza

    4101 Jim Walter Blvd, 
    Tampa, FL 
    Languages Spoken:
    English

    Arthur Parsee is a Radiologist in Tampa, Florida. Dr. Parsee is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Lymphofollicular Hyperplasia, Pancreatic Adenoma, Neuroendocrine Tumor, and Pleurisy.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Mount Sinai Medical Center

    4300 Alton Rd, 
    Miami Beach, FL 
    Languages Spoken:
    English

    John Didovic is a Radiologist in Miami Beach, Florida. Dr. Didovic is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Retroperitoneal Inflammation, Gallbladder Disease, Multisystem Inflammatory Syndrome in Children (MIS-C), Sclerosing Mesenteritis, and Gastrostomy.

    Experienced in Erdheim-Chester Disease
    General Practice
    Experienced in Erdheim-Chester Disease
    General Practice

    Mega Medical Center Corp.

    8700 W Flagler St Ste 150, 
    Miami, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Oricel Aguiar is a primary care provider, practicing in General Practice in Miami, Florida. Dr. Aguiar is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Hypertensive Heart Disease, Pediatric Myocarditis, Enlarged Liver, and Diabetic Neuropathy.

    Experienced in Erdheim-Chester Disease
    Radiology
    Experienced in Erdheim-Chester Disease
    Radiology

    Mount Sinai Medical Center

    4300 Alton Rd, 
    Miami Beach, FL 
    Languages Spoken:
    English

    Ivy Salom is a Radiologist in Miami Beach, Florida. Dr. Salom is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Scrotal Swelling, Boils, Carbuncle, and Folliculitis.

    Experienced in Erdheim-Chester Disease
    Neuroradiology
    Experienced in Erdheim-Chester Disease
    Neuroradiology

    Radiology Associates Of Florida Office

    10000 Bay Pines Blvd, 
    Bay Pines, FL 
    Languages Spoken:
    English

    Ritu Shah is a Neuroradiologist in Bay Pines, Florida. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Hepatocerebral Degeneration, Cerebellar Degeneration, CAPOS Syndrome, and Cerebellar Multiple System Atrophy.

    Experienced in Erdheim-Chester Disease
    Neuroradiology
    Experienced in Erdheim-Chester Disease
    Neuroradiology

    Cedars Healthcare Group LTD.

    1400 NW 12th Ave, 
    Miami, FL 
    Experience:
    44+ years
    Languages Spoken:
    English

    Rita Bhatia is a Neuroradiologist in Miami, Florida. Dr. Bhatia has been practicing medicine for over 44 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Meningioma, Stroke, Relapsing Multiple Sclerosis (RMS), and Radiation Induced Meningioma.

    Experienced in Erdheim-Chester Disease
    Neuroradiology
    Experienced in Erdheim-Chester Disease
    Neuroradiology

    Jackson Health System

    1611 NW 12th Ave, 
    Miami, FL 
    Languages Spoken:
    English

    Natalya Nagornaya is a Neuroradiologist in Miami, Florida. Dr. Nagornaya is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Meningioma, Stroke, Normal Pressure Hydrocephalus, and Chronic Rhinosinusitis with Nasal Polyps (CRSwNP).

    Experienced in Erdheim-Chester Disease
    General Practice
    Experienced in Erdheim-Chester Disease
    General Practice

    Medical Consultants Of Florida LLC

    7229 W Oakland Park Blvd Ste 103, 
    Lauderhill, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Ronel Desrosiers is a primary care provider, practicing in General Practice in Lauderhill, Florida. Dr. Desrosiers is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Osteomyelitis in Children, Type 2 Diabetes (T2D), Hyperthyroidism, and High Cholesterol.

    Experienced in Erdheim-Chester Disease
    Internal Medicine
    Experienced in Erdheim-Chester Disease
    Internal Medicine

    Palm Springs Internal Medicine

    180 JFK Dr Ste 260, 
    Atlantis, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Manuel Bornia is a primary care provider, practicing in Internal Medicine in Atlantis, Florida. Dr. Bornia is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Middle East Respiratory Syndrome (MERS), Type 2 Diabetes (T2D), Nephrosclerosis, and Renovascular Hypertension. Dr. Bornia is currently accepting new patients.

    Experienced in Erdheim-Chester Disease
    Internal Medicine
    Experienced in Erdheim-Chester Disease
    Internal Medicine

    MDVIP - Winter Park, FL

    255 N Lakemont Ave Ste 100, 
    Winter Park, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Matthew Newberg is a primary care provider, practicing in Internal Medicine in Winter Park, Florida. Dr. Newberg is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are High Potassium Level, High Cholesterol, Sitosterolemia, and Familial Hypertension. Dr. Newberg is currently accepting new patients.

    Experienced in Erdheim-Chester Disease
    Internal Medicine
    Experienced in Erdheim-Chester Disease
    Internal Medicine

    Dr. Michael A Blum DO

    1111 SE Federal Hwy Ste 330, 
    Stuart, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Blum is a primary care provider, practicing in Internal Medicine in Stuart, Florida. Dr. Blum is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Necrosis, Lung Metastases, Renovascular Hypertension, Endoscopy, and Ureteroscopy. Dr. Blum is currently accepting new patients.

    Experienced in Erdheim-Chester Disease
    General Practice
    Experienced in Erdheim-Chester Disease
    General Practice

    Orlando Family Medical Inc

    931 W Oak St Ste 103, 
    Kissimmee, FL 
    Languages Spoken:
    English

    Ana Rivera is a primary care provider, practicing in General Practice in Kissimmee, Florida. Dr. Rivera is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Obesity, Obesity in Children, Food Allergy, and Sitosterolemia.

    Advanced in Erdheim-Chester Disease
    Internal Medicine
    Advanced in Erdheim-Chester Disease
    Internal Medicine

    Office

    339 Cypress Pkwy Ste 110, 
    Kissimmee, FL 
    Languages Spoken:
    English

    Miriam Rivera is a primary care provider, practicing in Internal Medicine in Kissimmee, Florida. Dr. Rivera is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Multiple Symmetric Lipomatosis, Gracile Syndrome, Erdheim-Chester Disease, and Dihydropyrimidine Dehydrogenase Deficiency.

    Advanced in Erdheim-Chester Disease
    Internal Medicine
    Advanced in Erdheim-Chester Disease
    Internal Medicine

    Dr. Mark G. Brooks

    10000 W Colonial Dr Ste 187, 
    Ocoee, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mark Brooks is a primary care provider, practicing in Internal Medicine in Ocoee, Florida. Dr. Brooks is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Type 2 Diabetes (T2D), Heart Murmurs, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Brooks is currently accepting new patients.

    Advanced in Erdheim-Chester Disease
    General Practice
    Advanced in Erdheim-Chester Disease
    General Practice

    Conviva Orange City

    876 Saxon Blvd, 
    Orange City, FL 
    Experience:
    10+ years
    Languages Spoken:
    English
    Offers Telehealth

    Gabriel Ortiz is a primary care provider, practicing in General Practice in Orange City, Florida. Dr. Ortiz has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Multiple Symmetric Lipomatosis, Dihydropyrimidine Dehydrogenase Deficiency, Erdheim-Chester Disease, and Fumarase Deficiency.

    Advanced in Erdheim-Chester Disease
    Internal Medicine
    Advanced in Erdheim-Chester Disease
    Internal Medicine

    Pavan K Anand MD PA

    599 Tamiami Trl N Ste 210, 
    Naples, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Pavan Anand is a primary care provider, practicing in Internal Medicine in Naples, Florida. Dr. Anand is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Cytochrome C Oxidase Deficiency, Mitochondrial Complex V Deficiency, High Cholesterol, and Abdominal Obesity Metabolic Syndrome.

    Advanced in Erdheim-Chester Disease
    Family Medicine
    Advanced in Erdheim-Chester Disease
    Family Medicine

    Office

    1533 Sunset Dr Ste 200, 
    Coral Gables, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Charles Yanes is a primary care provider, practicing in Family Medicine in Coral Gables, Florida. Dr. Yanes is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Scott Syndrome, Stormorken Syndrome, Multiple Symmetric Lipomatosis, and Fumarase Deficiency.

    Showing 1-20 of 150

    Last Updated: 02/22/2026

    What is the definition of Erdheim-Chester Disease?

    Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

    When should I see an Erdheim-Chester Disease doctor in Florida, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Erdheim-Chester Disease doctor in Florida, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Erdheim-Chester Disease doctors in Florida, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Erdheim-Chester Disease doctors in Florida, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Erdheim-Chester Disease doctor in Florida, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

    Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Erdheim-Chester Disease doctor in Florida, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Erdheim-Chester Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Erdheim-Chester Disease doctors in Florida, US?

    Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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