The 20 Best Erdheim-Chester Disease Doctors Near Me in Michigan, US

Find the Top Erdheim-Chester Disease Experts and Specialists

The 20 Best Erdheim-Chester Disease Doctors in Michigan, US

Last Updated: 02/22/2026

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MediFind found 48 doctor with experience in Erdheim-Chester Disease near Michigan, US. Of these, 43 are Experienced and 5 are Advanced.

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48 providers found
    Allison J. Fabian
    Advanced in Erdheim-Chester Disease
    Family Medicine
    Advanced in Erdheim-Chester Disease
    Family Medicine

    Corewell Health Enhanced Primary Care - Wyoming

    6105 Wilson Avenue Southwest, Suite 204, 
    Wyoming, MI 
    Experience:
    19+ years
    Languages Spoken:
    English

    Allison Fabian is a primary care provider, practicing in Family Medicine in Wyoming, Michigan. Dr. Fabian has been practicing medicine for over 19 years and is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Dihydropyrimidine Dehydrogenase Deficiency, Fumarase Deficiency, Gracile Syndrome, and Erdheim-Chester Disease.

    Experienced in Erdheim-Chester Disease
    Radiology
    Experienced in Erdheim-Chester Disease
    Radiology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Edith Sella is a Radiologist in Ann Arbor, Michigan. Dr. Sella is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Chronic Cough, Lung Nodules, ALK-Positive Non-Small Cell Lung Cancer, and Ganglioneuroblastoma.

    Experienced in Erdheim-Chester Disease
    Neuroradiology
    Experienced in Erdheim-Chester Disease
    Neuroradiology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Mohannad Ibrahim is a Neuroradiologist in Ann Arbor, Michigan. Dr. Ibrahim is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Stroke, Cerebellar Degeneration, Relapsing Multiple Sclerosis (RMS), and WT1-Related Wilms Tumor Syndromes.

    Learn about our expert tiers
    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Leslie Quint is a Radiologist in Ann Arbor, Michigan. Dr. Quint is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Chronic Cough, Synovial Sarcoma, Rhabdomyosarcoma Embryonal, and Undifferentiated Pleomorphic Sarcoma.

    Advanced in Erdheim-Chester Disease
    Internal Medicine
    Advanced in Erdheim-Chester Disease
    Internal Medicine

    AM Urgent Care PLC

    13031 Conant St, 
    Hamtramck, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Ali Mahmood is a primary care provider, practicing in Internal Medicine in Hamtramck, Michigan. Dr. Mahmood is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Andersen-Tawil Syndrome, Thyrotoxic Periodic Paralysis, Hypokalemic Periodic Paralysis, and Hyperkalemic Periodic Paralysis.

    Advanced in Erdheim-Chester Disease
    Family Medicine
    Advanced in Erdheim-Chester Disease
    Family Medicine

    University Of Michigan Health-West (Hudsonville)

    3912 32nd Ave, 
    Hudsonville, MI 
    Languages Spoken:
    English

    Colin Herd is a primary care provider, practicing in Family Medicine in Hudsonville, Michigan. Dr. Herd is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Gracile Syndrome, Dihydropyrimidine Dehydrogenase Deficiency, and Fumarase Deficiency.

    Advanced in Erdheim-Chester Disease
    Family Medicine
    Advanced in Erdheim-Chester Disease
    Family Medicine

    Livonia Health Center

    20321 Farmington Rd, 
    Livonia, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Toshiaki Wakai is a primary care provider, practicing in Family Medicine in Livonia, Michigan. Dr. Wakai is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Dihydropyrimidine Dehydrogenase Deficiency, Gracile Syndrome, Erdheim-Chester Disease, and Fumarase Deficiency.

    Advanced in Erdheim-Chester Disease
    Family Medicine
    Advanced in Erdheim-Chester Disease
    Family Medicine

    Comstock Park Health Center

    4200 Division Ave N, 
    Comstock Park, MI 
    Languages Spoken:
    English

    Gary Sackett is a primary care provider, practicing in Family Medicine in Comstock Park, Michigan. Dr. Sackett is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Type 2 Diabetes (T2D), Pustules, Familial Combined Hyperlipidemia, and Xanthoma.

    Gregory H. Hessler
    Experienced in Erdheim-Chester Disease
    Family Medicine
    Experienced in Erdheim-Chester Disease
    Family Medicine

    Hessler Wellness

    3149 Logan Valley Road, 
    Traverse City, MI 
    Experience:
    42+ years
    Languages Spoken:
    English
    Accepting New Patients

    Gregory Hessler is a primary care provider, practicing in Family Medicine in Traverse City, Michigan. Dr. Hessler has been practicing medicine for over 42 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Peripheral Neuropathy, Prolidase Deficiency, Homocystinuria, and Methylmalonic Acidemia with Homocystinuria. Dr. Hessler is currently accepting new patients.

    Samantha A. Mcbee
    Experienced in Erdheim-Chester Disease
    Family Medicine
    Experienced in Erdheim-Chester Disease
    Family Medicine

    Corewell Health Family Medicine - 8333 Felch St

    8333 Felch Street, 
    Zeeland, MI 
    Experience:
    27+ years
    Languages Spoken:
    English
    Offers Telehealth

    Samantha Mcbee is a primary care provider, practicing in Family Medicine in Zeeland, Michigan. Dr. Mcbee has been practicing medicine for over 27 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Obesity in Children, Generalized Anxiety Disorder (GAD), Type 2 Diabetes (T2D), and Seasonal Affective Disorder (SAD).

    Brett C. Erickson
    Experienced in Erdheim-Chester Disease
    Family Medicine
    Experienced in Erdheim-Chester Disease
    Family Medicine

    Corewell Health Enhanced Primary Care - Wyoming

    6105 Wilson Avenue Southwest, Suite 204, 
    Wyoming, MI 
    Experience:
    12+ years
    Languages Spoken:
    English
    Accepting New Patients

    Brett Erickson is a primary care provider, practicing in Family Medicine in Wyoming, Michigan. Dr. Erickson has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Sitosterolemia, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Erickson is currently accepting new patients.

    Brittany M. Ramirez
    Experienced in Erdheim-Chester Disease
    Family Medicine
    Experienced in Erdheim-Chester Disease
    Family Medicine

    Corewell Health Family Medicine - 8333 Felch St

    8333 Felch Street, 
    Zeeland, MI 
    Experience:
    8+ years
    Languages Spoken:
    English

    Brittany Ramirez is a primary care provider, practicing in Family Medicine in Zeeland, Michigan. Dr. Ramirez has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Gracile Syndrome.

    Lauren Z. Blenman
    Experienced in Erdheim-Chester Disease
    Family Medicine
    Experienced in Erdheim-Chester Disease
    Family Medicine

    Corewell Health Enhanced Primary Care - Wyoming

    6105 Wilson Avenue Southwest, Suite 204, 
    Wyoming, MI 
    Experience:
    12+ years
    Languages Spoken:
    English
    Offers Telehealth

    Lauren Blenman is a primary care provider, practicing in Family Medicine in Wyoming, Michigan. Dr. Blenman has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Generalized Anxiety Disorder (GAD), Premature Ovarian Failure, Infertility, and Seasonal Affective Disorder (SAD).

    Benedict L. Go
    Experienced in Erdheim-Chester Disease
    Internal Medicine
    Experienced in Erdheim-Chester Disease
    Internal Medicine

    Ben Go, MD PC

    14720 King Road, Suite B, 
    Riverview, MI 
    Experience:
    36+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Benedict Go is a primary care provider, practicing in Internal Medicine in Riverview, Michigan. Dr. Go has been practicing medicine for over 36 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Cholangiocarcinoma (Bile Duct Cancer), Type 1 Diabetes (T1D), Arthritis, Glucocorticoid-Remediable Aldosteronism, and Colonoscopy. Dr. Go is currently accepting new patients.

    Kenneth B. Gallmore
    Experienced in Erdheim-Chester Disease
    Internal Medicine
    Experienced in Erdheim-Chester Disease
    Internal Medicine

    Corewell Health Hospitalist - Farmington Hills

    28050 Grand River Avenue, 
    Farmington Hills, MI 
    Experience:
    29+ years
    Languages Spoken:
    English

    Kenneth Gallmore is a primary care provider, practicing in Internal Medicine in Farmington Hills, Michigan. Dr. Gallmore has been practicing medicine for over 29 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Apoplexy, Heart Attack, Anemia, Gastrostomy, and Endoscopy.

    Ryan E. Wissner
    Experienced in Erdheim-Chester Disease
    Family Medicine
    Experienced in Erdheim-Chester Disease
    Family Medicine

    Corewell Health Family Medicine - 8333 Felch St

    8333 Felch Street, 
    Zeeland, MI 
    Experience:
    12+ years
    Languages Spoken:
    English
    Accepting New Patients

    Ryan Wissner is a primary care provider, practicing in Family Medicine in Zeeland, Michigan. Dr. Wissner has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Sciatica, Generalized Anxiety Disorder (GAD), Scoliosis, and Familial Hypertension. Dr. Wissner is currently accepting new patients.

    Catherine A. Kim
    Experienced in Erdheim-Chester Disease
    Internal Medicine
    Experienced in Erdheim-Chester Disease
    Internal Medicine

    Corewell Health Internal Medicine - 4069 Lake Dr SE

    4069 Lake Drive Southeast, Suite 315, 
    Grand Rapids, MI 
    Experience:
    16+ years
    Languages Spoken:
    English
    Offers Telehealth

    Catherine Kim is a primary care provider, practicing in Internal Medicine in Grand Rapids, Michigan. Dr. Kim has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and High Cholesterol.

    Philip M. Waalkes
    Experienced in Erdheim-Chester Disease
    Family Medicine
    Experienced in Erdheim-Chester Disease
    Family Medicine

    Corewell Health Family Medicine - 8333 Felch St

    8333 Felch Street, 
    Zeeland, MI 
    Experience:
    29+ years
    Languages Spoken:
    English
    Offers Telehealth

    Philip Waalkes is a primary care provider, practicing in Family Medicine in Zeeland, Michigan. Dr. Waalkes has been practicing medicine for over 29 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Type 2 Diabetes (T2D), Hypothyroidism, Obesity in Children, and Glucocorticoid-Remediable Aldosteronism.

    Leah R. Vanenk
    Experienced in Erdheim-Chester Disease
    Family Medicine
    Experienced in Erdheim-Chester Disease
    Family Medicine

    Corewell Health Family, Lnternal And Pediatric Medicine - Rockford

    8501 Meadow Creek, 
    Rockford, MI 
    Experience:
    12+ years
    Languages Spoken:
    English
    Offers Telehealth

    Leah Vanenk is a primary care provider, practicing in Family Medicine in Rockford, Michigan. Dr. Vanenk has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Generalized Anxiety Disorder (GAD), Obesity in Children, Seasonal Affective Disorder (SAD), Obesity, and Intrauterine Device Insertion.

    Katherine A. Skurski
    Experienced in Erdheim-Chester Disease
    Family Medicine
    Experienced in Erdheim-Chester Disease
    Family Medicine

    Corewell Health Family Medicine - Cutlerville

    80 68th Street Southeast, Suite 202, 
    Grand Rapids, MI 
    Experience:
    13+ years
    Languages Spoken:
    English

    Katherine Skurski is a primary care provider, practicing in Family Medicine in Grand Rapids, Michigan. Dr. Skurski has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Seasonal Affective Disorder (SAD), Generalized Anxiety Disorder (GAD), Obesity in Children, and Hyperhidrosis.

    Showing 1-20 of 48

    Last Updated: 02/22/2026

    What is the definition of Erdheim-Chester Disease?

    Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

    When should I see an Erdheim-Chester Disease doctor in Michigan, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Erdheim-Chester Disease doctor in Michigan, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Erdheim-Chester Disease doctors in Michigan, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Erdheim-Chester Disease doctors in Michigan, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Erdheim-Chester Disease doctor in Michigan, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

    Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Erdheim-Chester Disease doctor in Michigan, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Erdheim-Chester Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Erdheim-Chester Disease doctors in Michigan, US?

    Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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