The 20 Best Erdheim-Chester Disease Doctors Near Me in Minnesota, US

Find the Top Erdheim-Chester Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 19 doctor with experience in Erdheim-Chester Disease near Minnesota, US. Of these, 13 are Experienced, 3 are Elite, 2 are Advanced and 1 are Distinguished.

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19 providers found
    Elite in Erdheim-Chester Disease
    Elite in Erdheim-Chester Disease

    MN - Cancer Hematology

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Jithma Abeykoon is a Hematologist practicing medicine in Rochester, Minnesota. Dr. Abeykoon is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Waldenstrom Macroglobulinemia, Reticulohistiocytoma, Histiocytosis, Tissue Biopsy, and Bone Marrow Transplant.

    Elite in Erdheim-Chester Disease
    Hematology
    Elite in Erdheim-Chester Disease
    Hematology

    MN - Cancer Hematology

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Mithun Shah is a Hematologist practicing medicine in Rochester, Minnesota. Dr. Shah is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Histiocytosis, Reticulohistiocytoma, Acute Myeloid Leukemia (AML), Bone Marrow Transplant, and Bone Marrow Aspiration.

    Elite in Erdheim-Chester Disease
    Elite in Erdheim-Chester Disease

    HealthPartners Frauenshuh Cancer Center

    3931 Louisiana Ave S, 
    Saint Louis Park, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Gordon Ruan is an Oncologist practicing medicine in Saint Louis Park, Minnesota. Dr. Ruan is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Reticulohistiocytoma, Histiocytosis, Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, and Bone Marrow Aspiration.

    Learn about our expert tiers
    Distinguished in Erdheim-Chester Disease
    Distinguished in Erdheim-Chester Disease

    MN - Neuro MS

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    William Tobin is a Neurologist practicing medicine in Rochester, Minnesota. Dr. Tobin is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Tumefactive Multiple Sclerosis, Cerebelloparenchymal Disorder 3, Multiple Sclerosis (MS), and Erdheim-Chester Disease.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Mayo Psychiatry & Psychology TRTMT Ctr

    1216 2nd St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Jerome Breen is a Radiologist practicing medicine in Rochester, Minnesota. Dr. Breen is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Spontaneous Coronary Artery Dissection (SCAD), Gracile Syndrome, Multiple Symmetric Lipomatosis, Dihydropyrimidine Dehydrogenase Deficiency, and Cardiac Ablation.

    Advanced in Erdheim-Chester Disease
    Family Medicine
    Advanced in Erdheim-Chester Disease
    Family Medicine

    Hutchinson Health Clinic

    3 Century Ave SE, 
    Hutchinson, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Abby Labounty is a primary care provider, practicing in Family Medicine in Hutchinson, Minnesota. Dr. Labounty is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Erdheim-Chester Disease, Gracile Syndrome, Multiple Symmetric Lipomatosis, Dihydropyrimidine Dehydrogenase Deficiency, and Intrauterine Device Insertion.

    Advanced in Erdheim-Chester Disease
    Family Medicine
    Advanced in Erdheim-Chester Disease
    Family Medicine

    Whittier Clinic Pharmacy

    2810 Nicollet Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Susan Haddow is a primary care provider, practicing in Family Medicine in Minneapolis, Minnesota. Dr. Haddow is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Bloom Syndrome, Urticaria Pigmentosa, Fumarase Deficiency, and Gracile Syndrome.

    Experienced in Erdheim-Chester Disease
    Hematology | Oncology | Hematology Oncology
    Experienced in Erdheim-Chester Disease
    Hematology | Oncology | Hematology Oncology

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients

    William Hogan is a Hematologist and an Oncologist practicing medicine in Rochester, Minnesota. Dr. Hogan is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Acute Myeloid Leukemia (AML), Graft Versus Host Disease (GvHD), Chronic Myelomonocytic Leukemia (CMML), Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Hogan is currently accepting new patients.

    Experienced in Erdheim-Chester Disease
    Nuclear Medicine
    Experienced in Erdheim-Chester Disease
    Nuclear Medicine

    Office

    600 Hennepin Ave Ste 350, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Brian Mullan is a Nuclear Medicine provider practicing medicine in Minneapolis, Minnesota. Dr. Mullan is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Melorheostosis, Melorheostosis with Osteopoikilosis, Osteopenia, and Primary Lymphoma of the Brain.

    Experienced in Erdheim-Chester Disease
    Hematology
    Experienced in Erdheim-Chester Disease
    Hematology

    MN - Cancer Hematology

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Mark Litzow is a Hematologist practicing medicine in Rochester, Minnesota. Dr. Litzow is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Acute Myeloid Leukemia (AML), Leukemia, Acute Lymphoblastic Leukemia (ALL), Bone Marrow Transplant, and Bone Graft.

    Experienced in Erdheim-Chester Disease
    Internal Medicine
    Experienced in Erdheim-Chester Disease
    Internal Medicine

    Mayo Clinic-Rochester

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Nehaal Ahmed is a primary care provider, practicing in Internal Medicine in Rochester, Minnesota. Dr. Ahmed is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses IgG4-Related Disease, Panhypopituitarism, Histiocytosis, Splenectomy, and Stent Placement.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    MN - Cancer

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Katherine Smith is an Oncologist practicing medicine in Rochester, Minnesota. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her clinical expertise encompasses Metastatic Uveal Melanoma, Melanoma, Erdheim-Chester Disease, Non-Small Cell Lung Cancer (NSCLC), and Bone Marrow Transplant.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Office

    600 Hennepin Ave Ste 350, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Anne-marie Sykes is a Radiologist practicing medicine in Minneapolis, Minnesota. Dr. Sykes is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Lung Nodules, Fibrosing Mediastinitis, Ganglioneuroblastoma, Cholangiocarcinoma (Bile Duct Cancer), and Endoscopy.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Mayo Clinic-Rochester

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Thomas Hartman is a Radiologist practicing medicine in Rochester, Minnesota. Dr. Hartman is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Lung Nodules, Interstitial Lung Disease, Pulmonary Fibrosis, ALK-Positive Non-Small Cell Lung Cancer, and Tissue Biopsy.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    MN - Cancer Hematology

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Sameer Parikh is a Hematologist practicing medicine in Rochester, Minnesota. Dr. Parikh is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Chronic B-Cell Leukemia (CBCL), Chronic Lymphocytic Leukemia (CLL), Richter Syndrome, Bone Marrow Aspiration, and Tissue Biopsy.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    MN - Cancer

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Patrick Mcgarrah is an Oncologist practicing medicine in Rochester, Minnesota. Dr. Mcgarrah is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Neuroendocrine Tumor, Metastatic Insulinoma, Pancreatic Islet Cell Tumor, and Glucagonoma.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Mayo Clinic Hospice

    1000 1st Dr NW, 
    Austin, MN 
    Languages Spoken:
    English

    Moussab Damlaj is a Hematologist practicing medicine in Austin, Minnesota. Dr. Damlaj is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Classical Hodgkin Lymphoma, Hodgkin Lymphoma, Sickle Cell Disease, Hemoglobinopathy, and Bone Marrow Transplant.

    Experienced in Erdheim-Chester Disease
    Internal Medicine
    Experienced in Erdheim-Chester Disease
    Internal Medicine

    Hennepin Healthcare

    701 Park Ave, 
    Minneapolis, MN 
    Experience:
    10+ years
    Languages Spoken:
    English
    Offers Telehealth

    Ryan Jelinek is a primary care provider, practicing in Internal Medicine in Minneapolis, Minnesota. He has been practicing medicine for over 10 years. Dr. Jelinek is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His clinical expertise encompasses Frostbite, Delirium, Necrosis, and Peptic Ulcer.

    Experienced in Erdheim-Chester Disease
    Internal Medicine
    Experienced in Erdheim-Chester Disease
    Internal Medicine

    Hennepin Healthcare

    701 Park Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Brian Yablon is a primary care provider, practicing in Internal Medicine in Minneapolis, Minnesota. Dr. Yablon is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His clinical expertise encompasses Delirium, Frostbite, Sepsis, Hip Replacement, and Endoscopy.

    Showing 1-19 of 19

    Last Updated: 04/28/2026

    When should I see an Erdheim-Chester Disease doctor in Minnesota, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Erdheim-Chester Disease doctor in Minnesota, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Erdheim-Chester Disease doctors in Minnesota, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Erdheim-Chester Disease doctors in Minnesota, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Erdheim-Chester Disease doctor in Minnesota, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

    Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Erdheim-Chester Disease doctor in Minnesota, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Erdheim-Chester Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Erdheim-Chester Disease doctors in Minnesota, US?

    Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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