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    Last Updated: 01/09/2026

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    MediFind found 39 doctor with experience in Erdheim-Chester Disease near New York, US. Of these, 34 are Experienced, 4 are Advanced and 1 are Elite.

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    39 providers found
      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease

      Memorial Neurology Group

      160 E 53rd St, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Eli Diamond is a Neurologist in New York, New York. Dr. Diamond is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Glioblastoma, Astrocytoma, Brain Tumor, and Awake Craniotomy.

      Experienced in Erdheim-Chester Disease
      Hematology | Transplant Surgery | Hematology Oncology
      Experienced in Erdheim-Chester Disease
      Hematology | Transplant Surgery | Hematology Oncology

      Memorial Hematology Lymphoma Group

      530 E 74th St, 
      New York, NY 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Hamza Hashmi is a Hematologist and a Transplant Surgeon in New York, New York. Dr. Hashmi is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Relapsed Refractory Multiple Myeloma (RRMM), Multiple Myeloma, Smoldering Multiple Myeloma, Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Hashmi is currently accepting new patients.

      Samir Alkabie
      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease

      Northwell Health Physician Partners Neurology At Lenox Hill

      130 East 77th Street, Black Hall, 8th Floor, 
      New York, NY 
      Experience:
      10+ years
      Languages Spoken:
      English
      Offers Telehealth

      Samir Alkabie is a Neurologist in New York, New York. Dr. Alkabie has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Encephalitis, Optic Neuritis, Transverse Myelitis, and Neuromyelitis Optica.

      Learn about our expert tiers
      Experienced in Erdheim-Chester Disease
      Family Medicine
      Experienced in Erdheim-Chester Disease
      Family Medicine

      Mount Sinai Doctors-West 14TH Street

      226 W 14th St, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Gary Palatucci is a primary care provider, practicing in Family Medicine in New York, New York. Dr. Palatucci is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Cirrhosis, Familial Combined Hyperlipidemia, Xanthoma, and Genital Herpes.

      Experienced in Erdheim-Chester Disease
      Family Medicine
      Experienced in Erdheim-Chester Disease
      Family Medicine

      Icahn School Of Medicine At Mount Sinai Cvi Center For Health At Mt Si

      234 E 85th St, 
      New York, NY 
      Experience:
      10+ years
      Languages Spoken:
      English
      Offers Telehealth

      John Wei is a primary care provider, practicing in Family Medicine in New York, New York. Dr. Wei has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Sitosterolemia, Vitamin D Deficiency, High Cholesterol, and Hyperhidrosis.

      Advanced in Erdheim-Chester Disease
      Family Medicine
      Advanced in Erdheim-Chester Disease
      Family Medicine
      33 Montauk Hwy, 
      Quogue, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Lewis Anreder is a primary care provider, practicing in Family Medicine in Quogue, New York. Dr. Anreder is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Anemia, Lung Metastases, Muscle Atrophy, and Post-Traumatic Epilepsy.

      Advanced in Erdheim-Chester Disease
      Advanced in Erdheim-Chester Disease

      Mskcc Radiology Group

      1275 York Ave, 
      New York, NY 
      Languages Spoken:
      English

      Vaios Hatzoglou is a Radiologist in New York, New York. Dr. Hatzoglou is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Lymphofollicular Hyperplasia, Rosai-Dorfman Disease, and Meningioma.

      Advanced in Erdheim-Chester Disease
      Internal Medicine
      Advanced in Erdheim-Chester Disease
      Internal Medicine

      Healthcare Medical Services PLLC

      224 Franklin Ave, Suite B3, 
      Hewlett, NY 
      Languages Spoken:
      English

      Hanan Miller is a primary care provider, practicing in Internal Medicine in Hewlett, New York. Dr. Miller is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Vascular Dementia, Opsoclonus-Myoclonus Syndrome, Dihydropyrimidine Dehydrogenase Deficiency, and Gracile Syndrome.

      Advanced in Erdheim-Chester Disease
      Advanced in Erdheim-Chester Disease

      Health Point Medical P.C.

      3065 Brighton 7th St, Suite 2, 
      Brooklyn, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Irina Korneeva-Vladimirsky is a primary care provider, practicing in Family Medicine in Brooklyn, New York. Dr. Korneeva-Vladimirsky is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Vulvovaginitis, Brugada Syndrome, Postural Orthostatic Tachycardia Syndrome (POTS), and Short QT Syndrome.

      Experienced in Erdheim-Chester Disease
      Family Medicine
      Experienced in Erdheim-Chester Disease
      Family Medicine
      11 Beverly Rd, 
      Great Neck, NY 
      Languages Spoken:
      English

      Martin Edelstein is a primary care provider, practicing in Family Medicine in Great Neck, New York. Dr. Edelstein is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Macroamylasemia, Fumarase Deficiency, Multiple Symmetric Lipomatosis, and Erdheim-Chester Disease.

      Experienced in Erdheim-Chester Disease
      Family Medicine
      Experienced in Erdheim-Chester Disease
      Family Medicine
      2616 S Ave, 
      Wappingers Falls, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Edward Schneider is a primary care provider, practicing in Family Medicine in Wappingers Falls, New York. Dr. Schneider is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are SVC Obstruction, May Thurner Syndrome, Hypertension, Familial Hypertension, and Bone Marrow Aspiration.

      Experienced in Erdheim-Chester Disease
      Nuclear Medicine | Radiology
      Experienced in Erdheim-Chester Disease
      Nuclear Medicine | Radiology
      19 Bradhurst Ave, Suite 1200, 
      Hawthorne, NY 
      Languages Spoken:
      English

      Christopher Riedl is a Nuclear Medicine specialist and a Radiologist in Hawthorne, New York. Dr. Riedl is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Gastric Lymphoma, Neuroendocrine Tumor, Cerebellar Degeneration, and Wandering Spleen.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease

      Great Lakes Medical Imaging LLC

      3085 Harlem Rd, Suite 150, 
      Cheektowaga, NY 
      Languages Spoken:
      English

      Mark Welch is a Radiologist in Cheektowaga, New York. Dr. Welch is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Ascites, Vertigo, Chronic Cough, and Tenosynovitis.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease

      Memorial Neurology Group

      160 E 53rd St, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Elena Pentsova is a Neurologist in New York, New York. Dr. Pentsova is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Glioma, Astrocytoma, Glioblastoma, Brain Tumor, and Bone Marrow Aspiration.

      Experienced in Erdheim-Chester Disease
      Family Medicine
      Experienced in Erdheim-Chester Disease
      Family Medicine

      Community Care Physicians PLLC

      939 Route 146, Suite 810, 
      Clifton Park, NY 
      Languages Spoken:
      English

      Stephen Kuehn is a primary care provider, practicing in Family Medicine in Clifton Park, New York. Dr. Kuehn is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Obesity, Pelvic Floor Dysfunction, Dihydropyrimidine Dehydrogenase Deficiency, and Gracile Syndrome.

      Experienced in Erdheim-Chester Disease
      Interventional Radiology | Radiology
      Experienced in Erdheim-Chester Disease
      Interventional Radiology | Radiology

      New York University

      259 1st St, 
      Mineola, NY 
      Languages Spoken:
      English
      Accepting New Patients

      Umairullah Lodhi is an Interventional Radiologist and a Radiologist in Mineola, New York. Dr. Lodhi is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Pleurisy, Pleural Effusion, Ascites, and Fibroadenoma. Dr. Lodhi is currently accepting new patients.

      Experienced in Erdheim-Chester Disease
      Radiology | Nuclear Medicine
      Experienced in Erdheim-Chester Disease
      Radiology | Nuclear Medicine

      Memorial Nuclear Medicine Group

      1101 Hempstead Tpke, 
      Uniondale, NY 
      Experience:
      18+ years
      Languages Spoken:
      English

      Jeeban Das is a Radiologist and a Nuclear Medicine provider in Uniondale, New York. Dr. Das has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Urachal Cyst, Urachal Cancer, Pneumomediastinum, Lymphoid Hyperplasia, and Small Bowel Resection.

      Experienced in Erdheim-Chester Disease
      Internal Medicine
      Experienced in Erdheim-Chester Disease
      Internal Medicine
      120 Hobart St, 
      Utica, NY 
      Languages Spoken:
      English

      Syed Aziz is a primary care provider, practicing in Internal Medicine in Utica, New York. Dr. Aziz is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Syndrome of Inappropriate Antidiuretic Hormone Secretion (SIADH), Low Potassium Level, and Magnesium Deficiency.

      Experienced in Erdheim-Chester Disease
      Radiology | Nuclear Medicine
      Experienced in Erdheim-Chester Disease
      Radiology | Nuclear Medicine

      Mskcc Radiology Group

      650 Commack Rd, 
      Commack, NY 
      Languages Spoken:
      English

      Jan Grimm is a Radiologist and a Nuclear Medicine provider in Commack, New York. Dr. Grimm is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are ALK-Positive Non-Small Cell Lung Cancer, Lymphoid Hyperplasia, Lymphofollicular Hyperplasia, and Gastroesophageal Junction Cancer.

      Experienced in Erdheim-Chester Disease
      Internal Medicine
      Experienced in Erdheim-Chester Disease
      Internal Medicine

      Icahn School Of Medicine At Mount Sinai

      17 E 102nd St, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Aida Vega is a primary care provider, practicing in Internal Medicine in New York, New York. Dr. Vega is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Sitosterolemia, High Cholesterol, Macroamylasemia, and Glucocorticoid-Remediable Aldosteronism.

      Showing 1-20 of 39

      Last Updated: 01/09/2026

      What is the definition of Erdheim-Chester Disease?

      Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

      When should I see an Erdheim-Chester Disease doctor in New York, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Erdheim-Chester Disease doctor in New York, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Erdheim-Chester Disease doctors in New York, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Erdheim-Chester Disease doctors in New York, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Erdheim-Chester Disease doctor in New York, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

      Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Erdheim-Chester Disease doctor in New York, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Erdheim-Chester Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Erdheim-Chester Disease doctors in New York, US?

      Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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