The 20 Best Erdheim-Chester Disease Doctors Near Me in Pennsylvania, US

Find the Top Erdheim-Chester Disease Experts and Specialists

The 20 Best Erdheim-Chester Disease Doctors in Pennsylvania, US

Last Updated: 02/22/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 32 doctor with experience in Erdheim-Chester Disease near Pennsylvania, US. Of these, 29 are Experienced and 3 are Advanced.

Location
LocationClose
32 providers found
    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Penn Radiology DCR

    140 Nutt Road, 
    Phoenixville, PA 
    Languages Spoken:
    English

    . Dr. Goldberg is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Visceromegaly, Lung Nodules, Emphysema, Chylous Ascites, and Prostatectomy.

    Raghava R. Veera
    Experienced in Erdheim-Chester Disease
    Oncology | Hematology | Hematology Oncology
    Experienced in Erdheim-Chester Disease
    Oncology | Hematology | Hematology Oncology

    Sidney Kimmel Comprehensive Cancer Center — Bucks

    380 North Oxford Valley Road, Suite 150, 
    Langhorne, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Raghava Veera is a Hematologist and a Hematologist Oncology provider in Langhorne, Pennsylvania. Dr. Veera is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Anal Cancer, Lynch Syndrome, Lymphofollicular Hyperplasia, and Multiple Myeloma. Dr. Veera is currently accepting new patients.

    Claudia M. Dourado
    Experienced in Erdheim-Chester Disease
    Hematology Oncology | Cardiology | Oncology
    Experienced in Erdheim-Chester Disease
    Hematology Oncology | Cardiology | Oncology

    Minerva And Fred Braemer Heart Center

    5501 Old York Road, Floor 1, 
    Philadelphia, PA 
    Languages Spoken:
    English, Portuguese
    Accepting New Patients

    Claudia Dourado is a Cardiologist and an Oncologist in Philadelphia, Pennsylvania. Dr. Dourado is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Paget Disease of the Breast, Breast Cancer, Inflammatory Breast Cancer, Liver Embolization, and Salpingo-Oophorectomy. Dr. Dourado is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Erdheim-Chester Disease
    Radiology
    Experienced in Erdheim-Chester Disease
    Radiology

    Bradford Regional Medical Center

    116 Interstate Pkwy, 
    Bradford, PA 
    Languages Spoken:
    English

    Mark Welch is a Radiologist in Bradford, Pennsylvania. Dr. Welch is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Ascites, Vertigo, Chronic Cough, and Tenosynovitis.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    GMC General Diagnostic Radiology

    100 North Academy Avenue, 
    Danville, PA 
    Experience:
    16+ years
    Languages Spoken:
    English

    William Triffo is a Radiologist in Danville, Pennsylvania. Dr. Triffo has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Boils, Carbuncle, Folliculitis, and Ureterocele.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    WellSpan Good Samaritan Hospital

    252 S 4th St, 
    Lebanon, PA 
    Languages Spoken:
    English

    Charles Ehlenberger is a Radiologist in Lebanon, Pennsylvania. Dr. Ehlenberger is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Ascites, Thyroid Nodule, Pleurisy, Gastrostomy, and Bone Marrow Aspiration.

    Experienced in Erdheim-Chester Disease
    Hematology | Oncology
    Experienced in Erdheim-Chester Disease
    Hematology | Oncology

    LG Health Physicians Hematology And Medical Oncology

    2102 Harrisburg Pike, 
    Lancaster, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Srilatha Hosur is a Hematologist and an Oncologist in Lancaster, Pennsylvania. Dr. Hosur is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Paget Disease of the Breast, Chronic Familial Neutropenia, Breast Cancer, Multiple Myeloma, and Bone Marrow Aspiration. Dr. Hosur is currently accepting new patients.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Abramson Cancer Center Perelman 4th Floor West

    3400 Civic Center Boulevard, West Pavilion, 4th Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Sunita Nasta is a Hematologist in Philadelphia, Pennsylvania. Dr. Nasta is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Non-Hodgkin Lymphoma, B-Cell Lymphoma, Hodgkin Lymphoma, Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Nasta is currently accepting new patients.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Trustees Of The University Of Pennsylvania

    3400 Spruce St, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Nicola Schieda is a Radiologist in Philadelphia, Pennsylvania. Dr. Schieda is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Renal Cell Carcinoma (RCC), Adrenal Cancer, Abdominal Cystic Lymphangioma, Prostatectomy, and Nephrectomy.

    Experienced in Erdheim-Chester Disease
    Neuroradiology
    Experienced in Erdheim-Chester Disease
    Neuroradiology

    Office

    3401 Civic Center Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Karuna Shekdar is a Neuroradiologist in Philadelphia, Pennsylvania. Dr. Shekdar is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Cortical Dysplasia, Neurofibromatosis, Craniopharyngioma, and Lhermitte-Duclos Disease.

    Experienced in Erdheim-Chester Disease
    Neuroradiology
    Experienced in Erdheim-Chester Disease
    Neuroradiology

    Children's Hospital Of Philadelphia

    3401 Civic Center Blvd, 
    Philadelphia, PA 
    Experience:
    16+ years
    Languages Spoken:
    English

    Mariam Aboian is a Neuroradiologist in Philadelphia, Pennsylvania. Dr. Aboian has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Ganglioneuroma, Meningioma, Spinal Tumor, and Erdheim-Chester Disease.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    University Of Pittsburgh Physicians, Department Of Radiology

    200 Lothrop Street, Suite 3950, 
    Pittsburgh, PA 
    Languages Spoken:
    English, Farsi

    Sina Tavakoli, MD, PhD, specializes in diagnostic radiology and is certified  by the American Board of Radiology. He practices at University of Pittsburgh Physicians, Department of Radiology and is affiliated with UPMC Mercy, UPMC East, UPMC Hamot, UPMC St Margaret, UPMC Magee-Womens Hospital, UPMC Passavant, UPMC Presbyterian, UPMC Bedford, UPMC Northwest, UPMC Shadyside, UPMC Altoona, and UPMC McKeesport. He completed his fellowship at University of Washington School of Medicine and his medical education at Tehran University of Medical Sciences. Dr. Tavakoli is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Pleural Effusion, Pleurisy, Emphysema, and Pneumomediastinum.

    Advanced in Erdheim-Chester Disease
    Internal Medicine
    Advanced in Erdheim-Chester Disease
    Internal Medicine

    Val. Koganski MD PC

    1717 Langhorne Newtown Rd Ste 402, 
    Langhorne, PA 
    Languages Spoken:
    English
    Offers Telehealth

    Valeri Koganski is a primary care provider, practicing in Internal Medicine in Langhorne, Pennsylvania. Dr. Koganski is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Methylmalonic Acidemia with Homocystinuria, Inborn Amino Acid Metabolism Disorder, Diverticular Disease, Ureteroscopy, and Endoscopy.

    Advanced in Erdheim-Chester Disease
    Internal Medicine
    Advanced in Erdheim-Chester Disease
    Internal Medicine

    Office

    2304 N Broad St, 
    Philadelphia, PA 
    Languages Spoken:
    English

    John Michel is a primary care provider, practicing in Internal Medicine in Philadelphia, Pennsylvania. Dr. Michel is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Hypertensive Heart Disease, Enlarged Liver, Pediatric Myocarditis, Nephrosclerosis, and Gastrostomy.

    Advanced in Erdheim-Chester Disease
    Family Medicine
    Advanced in Erdheim-Chester Disease
    Family Medicine

    Office

    8 Oak Grove Rd Ste 1, 
    Pine Grove, PA 
    Languages Spoken:
    English

    Stanley Gorski is a primary care provider, practicing in Family Medicine in Pine Grove, Pennsylvania. Dr. Gorski is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Retinoblastoma, Hereditary Retinoblastoma, Multiple Symmetric Lipomatosis, and Erdheim-Chester Disease.

    Joseph C. Bognet
    Experienced in Erdheim-Chester Disease
    Family Medicine
    Experienced in Erdheim-Chester Disease
    Family Medicine

    Bognet Medical Associates, PC

    1275 S Cedar Crest Blvd, Suite 5, 
    Allentown, PA 
    Languages Spoken:
    English
    Offers Telehealth

    Joseph Bognet is a primary care provider, practicing in Family Medicine in Allentown, Pennsylvania. Dr. Bognet is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Apolipoprotein C2 Deficiency, Hyperlipoproteinemia Type 5, Familial Lipoprotein Lipase Deficiency, and Androgen Insensitivity Syndrome.

    Karen G. Bucher
    Experienced in Erdheim-Chester Disease
    Family Medicine
    Experienced in Erdheim-Chester Disease
    Family Medicine

    Genesis Medical Associates Inc.- Northern Area Family Medicine

    5700 Corporate Drive, Suite 700, 
    Pittsburgh, PA 
    Languages Spoken:
    English

    Karen G. Bucher, DO, specializes and is certified in family medicine by the American Board of Family Medicine. She practices at Genesis Medical Associates Inc.- Northern Area Family Medicine and is affiliated with UPMC Passavant. Dr. Bucher completed her residency at Eglin AFB Regional Hospital and medical degree at West Virginia School of Osteopathic Medicine. Dr. Bucher is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and Seasonal Affective Disorder (SAD).

    Experienced in Erdheim-Chester Disease
    Family Medicine
    Experienced in Erdheim-Chester Disease
    Family Medicine

    Office

    8 Oak Grove Rd Ste 1, 
    Pine Grove, PA 
    Languages Spoken:
    English

    Francis Mohan is a primary care provider, practicing in Family Medicine in Pine Grove, Pennsylvania. Dr. Mohan is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are High Cholesterol, Vitamin D Deficiency, Vertigo, and Hypothyroidism.

    Experienced in Erdheim-Chester Disease
    Experienced in Erdheim-Chester Disease

    Office

    4190 City Ave Ste 315, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Katherine Galluzzi is a primary care provider, practicing in Geriatrics in Philadelphia, Pennsylvania. Dr. Galluzzi is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Chlamydia, Multiple Symmetric Lipomatosis, Dihydropyrimidine Dehydrogenase Deficiency, and Fumarase Deficiency.

    Experienced in Erdheim-Chester Disease
    Hematology | Oncology
    Experienced in Erdheim-Chester Disease
    Hematology | Oncology

    Penn Hematology-Oncology

    240 Middletown Boulevard, Suite 205, 
    Langhorne, PA 
    Languages Spoken:
    English

    Youval Katz is a Hematologist and an Oncologist in Langhorne, Pennsylvania. Dr. Katz is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Childhood Iron Deficiency Anemia, Iron Deficiency Anemia, Chronic Lymphocytic Leukemia (CLL), and Monoclonal Gammopathy of Undetermined Significance (MGUS).

    Showing 1-20 of 32

    Last Updated: 02/22/2026

    What is the definition of Erdheim-Chester Disease?

    Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

    When should I see an Erdheim-Chester Disease doctor in Pennsylvania, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Erdheim-Chester Disease doctor in Pennsylvania, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Erdheim-Chester Disease doctors in Pennsylvania, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Erdheim-Chester Disease doctors in Pennsylvania, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Erdheim-Chester Disease doctor in Pennsylvania, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

    Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Erdheim-Chester Disease doctor in Pennsylvania, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Erdheim-Chester Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Erdheim-Chester Disease doctors in Pennsylvania, US?

    Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Erdheim-Chester Disease Doctors by city