The 20 Best Facioscapulohumeral Muscular Dystrophy (FSHD) Doctors Near Me in Rochester, NY

Find the Top Facioscapulohumeral Muscular Dystrophy (FSHD) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 8 doctor with experience in Facioscapulohumeral Muscular Dystrophy (FSHD) near Rochester, NY. Of these, 6 are Experienced and 2 are Elite.

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8 providers found
    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Neurology
    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Neurology

    Office

    601 Elmwood Ave # 673, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Rabi Tawil is a Neurologist practicing medicine in Rochester, New York. Dr. Tawil is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Spinal Muscular Atrophy (SMA), Limb-Girdle Muscular Dystrophy Type 2C, and Limb-Girdle Muscular Dystrophy Type 2I.

    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Chad Heatwole is a Neurologist practicing medicine in Rochester, New York. Dr. Heatwole is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Facioscapulohumeral Muscular Dystrophy (FSHD).

    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)

    Monroe Community Hospital

    435 E Henrietta Rd, 
    Rochester, NY 
     (3.0 miles away)
    Languages Spoken:
    English

    Annette Medina is a primary care provider, practicing in Geriatrics in Rochester, New York. Dr. Medina is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Her clinical expertise encompasses Severe Acute Respiratory Syndrome (SARS), COVID-19, Facioscapulohumeral Muscular Dystrophy (FSHD), and Relapsing Multiple Sclerosis (RMS).

    Learn about our expert tiers
    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)

    Office

    601 Elmwood Ave # 1, 
    Rochester, NY 
     (0.4 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Johanna Hamel is a Neurologist practicing medicine in Rochester, New York. She has been practicing medicine for over 17 years. Dr. Hamel is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Spinal Muscular Atrophy (SMA).

    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Family Medicine
    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Family Medicine

    Internal Medicine-Alexander Park

    222 Alexander St Ste 5000, 
    Rochester, NY 
     (1.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Charles N Ippolito is a primary care provider, practicing in Family Medicine in Rochester, New York. Dr. N Ippolito is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Maturity Onset Diabetes of the Young, Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Endoscopy.

    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Charles Thornton is a Neurologist practicing medicine in Rochester, New York. Dr. Thornton is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Phillip Mongiovi is a Neurologist practicing medicine in Rochester, New York. Dr. Mongiovi is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 3, and Peripheral Neuropathy.

    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Emma Ciafaloni is a Neurologist practicing medicine in Rochester, New York. Dr. Ciafaloni is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Thymectomy.

    Showing 1-8 of 8

    Last Updated: 04/28/2026

    What is the definition of Facioscapulohumeral Muscular Dystrophy (FSHD)?

    Facioscapulohumeral muscular dystrophy is a condition that causes muscle weakness and loss of muscle tissue that gets worse over time.

    When should I see a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor near Rochester, NY?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor near Rochester, NY?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Facioscapulohumeral Muscular Dystrophy (FSHD) doctors near Rochester, NY?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Facioscapulohumeral Muscular Dystrophy (FSHD) doctors near Rochester, NY?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor near Rochester, NY?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Facioscapulohumeral Muscular Dystrophy (FSHD) doctor search results page. 

    Why is it important to get a second opinion from a different Facioscapulohumeral Muscular Dystrophy (FSHD) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor near Rochester, NY?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Facioscapulohumeral Muscular Dystrophy (FSHD) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Facioscapulohumeral Muscular Dystrophy (FSHD) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Facioscapulohumeral Muscular Dystrophy (FSHD) doctors near Rochester, NY?

    Look for the filter feature on the left side of the Facioscapulohumeral Muscular Dystrophy (FSHD) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor that offers video calls?

    Look for the filter feature on the left-side of the Facioscapulohumeral Muscular Dystrophy (FSHD) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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