The 20 Best Fibrous Dysplasia Doctors Near Me in Pennsylvania, US

Find the Top Fibrous Dysplasia Experts and Specialists

The 20 Best Fibrous Dysplasia Doctors in Pennsylvania, US

Last Updated: 02/22/2026

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MediFind found 70 doctor with experience in Fibrous Dysplasia near Pennsylvania, US. Of these, 61 are Experienced and 5 are Advanced.

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70 providers found
    Experienced in Fibrous Dysplasia
    Radiology | Pediatric Radiology
    Experienced in Fibrous Dysplasia
    Radiology | Pediatric Radiology

    St. Christopher's Pediatric Associates Radiology - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Webb is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Choroid Plexus Cyst, Familial Porencephaly, Arachnoid Cysts, and Aseptic and Alopecic Nodules of Scalp (AANS).

    Wei Shaw
    Experienced in Fibrous Dysplasia
    Radiology
    Experienced in Fibrous Dysplasia
    Radiology

    West Reading Radiology Associates

    301 S 7th Ave, Suite 135, 
    West Reading, PA 
    Languages Spoken:
    English

    . Dr. Shaw is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Gas Bloat Syndrome, CAPOS Syndrome, Fibrous Dysplasia, and Galactocoele.

    Paul A. Gardner
    Advanced in Fibrous Dysplasia
    Neurosurgery
    Advanced in Fibrous Dysplasia
    Neurosurgery

    UPMC Neurological Institute - Presbyterian

    200 Lothrop Street, A402 UPMC Presbyterian, 
    Pittsburgh, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Gardner is the Peter J. Jannetta Endowed Chair of neurological surgery at the University of Pittsburgh School of Medicine and director of the Center for Skull Base Surgery. He specializes in endoscopic endonasal skull base surgery, pituitary tumors, Neuroendoport brain surgery, and vascular neurosurgery. Dr. Gardner is rated as an Advanced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Chordoma, Pituitary Tumor, Meningioma, Endoscopic Transnasal Transsphenoidal Surgery, and Nerve Decompression.

    Learn about our expert tiers
    Carl H. Snyderman
    Advanced in Fibrous Dysplasia
    Otolaryngology
    Advanced in Fibrous Dysplasia
    Otolaryngology

    University Ear Nose And Throat Specialists

    203 Lothrop Street, Suite 300, 
    Pittsburgh, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Carl H. Snyderman, MD, is a professor in the department of otolaryngology at the University of Pittsburgh School of Medicine and codirector of the UPMC Center for Skull Base Surgery. He specializes in otolaryngology-head and neck surgery, and cranial base surgery. Dr. Snyderman is rated as an Advanced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Cerebrospinal Fluid Leak, Olfactory Neuroblastoma, Sinus Cancer, Endoscopy, and Nerve Decompression.

    Steven Lietman
    Experienced in Fibrous Dysplasia
    Orthopedics
    Experienced in Fibrous Dysplasia
    Orthopedics

    Geisinger Medical Center - Orthopaedics And Sports Medicine

    100 North Academy Avenue, 
    Danville, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Lietman is a board-certified and fellowship-trained adult reconstruction specialist. His clinical interests include total knee/hip replacement, total knee/hip reconstruction and revision, and musculoskeletal tumors. Dr. Lietman earned his medical degree from Dartmouth College. He completed his residency at Johns Hopkins University. Dr. Lietman completed fellowships in orthopaedic oncology at Boston Children's Hospital and at Massachusetts General Hospital. He is certified by the American Board of Orthopaedic Surgery. Dr. Lietman is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Osteoarthritis, Sciatica, Fibrous Dysplasia, Knee Replacement, and Hip Replacement.

    Thomas R. Bowen
    Experienced in Fibrous Dysplasia
    Experienced in Fibrous Dysplasia

    Geisinger Medical Center - Orthopaedics And Sports Medicine

    100 North Academy Avenue, 
    Danville, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    "Thomas R. Bowen, MD, is chief of Orthopaedic Oncology for the Geisinger Musculoskeletal Institute and an orthopaedic surgeon at Geisinger Medical Center. Dr. Bowen earned his medical degree from Jefferson Medical College in Philadelphia, Pa. He continued his orthopaedic residency at Geisinger Medical Center and then proceeded to Massachusetts General Hospital and Boston Children's Hospital for fellowship training in orthopaedic oncology. Dr. Bowen is board certified in orthopaedic surgery by the American Board of Orthopaedic Surgery. He is a fellow of the American Academy of Orthopedic Surgery and the prestigious American Orthopaedic Association. Dr. Bowen’s clinical interests include tumors of the musculoskeletal system (bone, cartilage, muscle, tendon, and peripheral nerves). He specializes in limb-preserving surgery for malignant tumors, as well as minimally invasive treatments for benign tumors and bone cysts. He cares for children and adults with tumors of the musculoskeletal system.|“Today, patients are healthier and living longer than ever before. I routinely see patients for follow-up visits who may not have survived only a decade ago. Now, they’re able to attend graduations, take vacations and watch their grandchildren grow up. Helping make those milestones possible is a part of what makes being a surgeon so worthwhile.”|In his personal life, Dr. Bowen is a native of Wilmington, Del., and a private airplane pilot, instrument rated, single engine land. His favorite movie is ""The Right Stuff.""". Dr. Bowen is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Bone Tumor, Ewing Sarcoma, Rhabdomyosarcoma Embryonal, Bone Marrow Aspiration, and Hip Replacement.

    Nitin Kapoor
    Experienced in Fibrous Dysplasia
    Hematology Oncology
    Experienced in Fibrous Dysplasia
    Hematology Oncology

    UPMC Hillman Cancer Center

    350 Bonar Avenue, 
    Waynesburg, PA 
    Languages Spoken:
    English, Hindi
    Accepting New Patients
    Offers Telehealth

    Nitin Kapoor, DO, is a hematologist/medical oncologist at UPMC Hillman Cancer Center. He specializes in general hematology and oncology disorders. Dr. Kapoor is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Familial Colorectal Cancer, Colorectal Cancer, Childhood Iron Deficiency Anemia, Parathyroidectomy, and Hormone Replacement Therapy (HRT).

    Amanda L. Stapleton
    Experienced in Fibrous Dysplasia
    Pediatric Otolaryngology
    Experienced in Fibrous Dysplasia
    Pediatric Otolaryngology

    Pediatric Ear Nose And Throat In Sewickley

    2599 Wexford Bayne Road, 
    Sewickley, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Amanda Stapleton, MD, is a pediatric otolaryngologist and endoscopic sinus and skull base surgeon at UPMC Children’s Hospital of Pittsburgh. Dr. Stapleton is certified in otolaryngology and head and neck Surgery by the American Board of Otolaryngology Head and Neck Surgery. She is director of the Center for Sinonasal and Rhinology Disorders and fellowship director for the Pediatric Otolaryngology Fellowship Program at UPMC Children’s. She is also associate professor of otolaryngology at the University of Pittsburgh School of Medicine. She received her medical degree from the State University of New York at Buffalo School of Medicine and completed her residency at UPMC. Dr. Stapleton completed two fellowship training programs after residency. She completed her first fellowship in pediatric otolaryngology at UPMC Children’s, followed by a fellowship in open and endoscopic skull base surgery at the Center for Cranial Base Surgery at UPMC. Dr. Stapleton’s clinical interests include pediatric endoscopic sinus surgery, pediatric skull base surgery, pediatric chronic sinusitis and allergic rhinitis, and pediatric Cystic Fibrosis. She conducts translational research studying the microbiome of the pediatric sinonasal cavity with her colleagues at the University of Pittsburgh School of Medicine. She has published numerous articles in peer-reviewed journals and is a member of the American Academy of Otolaryngology-Head and Neck Surgery, American Board of Otolaryngology, American Society of Pediatric Otolaryngology, American Rhinologic Society, American Academy of Otolaryngic Allergy, AAO-HNS Rhinology & Allergy Education Committee, and the AAO-HNS Rhinology & Paranasal Sinus Committee.View the full list of Dr. Stapleton's publications on PubMed. Dr. Stapleton is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Sinusitis, Otitis Media with Effusion, Fibrous Dysplasia, Myringotomy, and Adenoidectomy.

    Meghan Wilson
    Experienced in Fibrous Dysplasia
    Pediatric Otolaryngology
    Experienced in Fibrous Dysplasia
    Pediatric Otolaryngology

    Associated Otolaryngologists Of Pennsylvania

    875 Poplar Church Road, Suite 320, 
    Camp Hill, PA 
    Languages Spoken:
    English

    Meghan Wilson, MD, specializes in otolaryngology. She practices at Specialty Care ENT-UPMC and is affiliated with West Shore, Community Osteopathic, and UPMC Pinnacle Harrisburg. Dr. Wilson completed her fellowship program at Children's Hospital of Philadelphia and Lenox Hill Hospital - GME and residency program and medical school at Louisiana State University-LSU School of Medicine. Dr. Wilson is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Jones Syndrome, DFNB1, Infant Hearing Loss, Thyroidectomy, and Parathyroidectomy.

    Georgios Zenonos
    Experienced in Fibrous Dysplasia
    Experienced in Fibrous Dysplasia

    UPMC Neurological Institute - Presbyterian

    200 Lothrop Street, A402 UPMC Presbyterian, 
    Pittsburgh, PA 
    Languages Spoken:
    English, Greek
    Accepting New Patients
    Offers Telehealth

    Dr. Zenonos became the associate director of the UPMC Center for Cranial Base Surgery in July 2019 after receiving extensive formal subspecialization in his field. He is one of a handful of board-certified neurosurgeons to have completed two fellowships in skull base surgery. At the University of Pittsburgh, one fellowship focused on endoscopic and minimally invasive approaches, and the other centered on complex open skull base approaches. His fellowship at the University of Miami was on complex cranial and cerebrovascular neurosurgery. Dr. Zenonos is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Chordoma, Meningioma, Olfactory Neuroblastoma, Gamma Knife Radiosurgery, and Cerebral Artery Bypass Surgery.

    David T. Fernandes
    Experienced in Fibrous Dysplasia
    Experienced in Fibrous Dysplasia

    UPMC Neurological Institute - Mercy

    1350 Locust Street, Suite 300, 
    Pittsburgh, PA 
    Languages Spoken:
    English, Portuguese, Spanish
    Accepting New Patients
    Offers Telehealth

    David T. Fernandes-Cabral, MD, specializes in neurosurgery. He practices at UPMC Neurological Institute - Mercy. Dr. Fernandes-Cabral received his medical degree from Universidad Central de Venezuela José María Vargas School of Medicine and completed his residency and fellowship at the University of Pittsburgh School of Medicine. Dr. Fernandes is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Brain Stem Cancer, Central Pain Syndrome, Posterior Fossa Tumor, Cerebral Cavernous Malformation, and Endoscopy.

    Anish G. Ghodadra
    Experienced in Fibrous Dysplasia
    Interventional Radiology
    Experienced in Fibrous Dysplasia
    Interventional Radiology

    Interventional Radiology-Shadyside

    5230 Centre Avenue, 
    Pittsburgh, PA 
    Languages Spoken:
    English
    Offers Telehealth

    Anish Ghodadra, MD, is an interventional radiologist board-certified by the American Board of Radiology. He is the founder and medical director of the UPMC 3D Printing Program and is an associate professor at the University of Pittsburgh School of Medicine and the School of Bioengineering. He received his medical degree from the Cleveland Clinic Lerner College of Medicine at Case Western Reserve University and completed his residency at UPMC, followed by his fellowship at Yale New Haven Hospital. Dr. Ghodadra is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Cholangiocarcinoma (Bile Duct Cancer), Retroperitoneal Fibrosis, Fibrous Dysplasia, Mastoidectomy, and Vertebroplasty.

    Thomas O. Willcox
    Experienced in Fibrous Dysplasia
    Otolaryngology
    Experienced in Fibrous Dysplasia
    Otolaryngology

    Jefferson Otolaryngology (ENT) - Honickman Center

    1101 Chestnut Street, Floor 16, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Thomas Willcox is an Otolaryngologist in Philadelphia, Pennsylvania. Dr. Willcox is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Acoustic Neuroma, Infant Hearing Loss, DFNB1, Jones Syndrome, and Gastrostomy. Dr. Willcox is currently accepting new patients.

    Experienced in Fibrous Dysplasia
    Experienced in Fibrous Dysplasia

    University Of Penn-Medical Group

    3400 Civic Ctr Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Offers Telehealth

    Mona Al Mukaddam is an Endocrinologist in Philadelphia, Pennsylvania. Dr. Al Mukaddam is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Osteoporosis, Postmenopausal Osteoporosis, Juvenile Primary Osteoporosis, Hypothyroidism, and Fasciotomy.

    John A. Paglia
    Experienced in Fibrous Dysplasia
    Orthopedics | Sports Medicine
    Experienced in Fibrous Dysplasia
    Orthopedics | Sports Medicine

    Mountain Valley Orthopedics

    100 Wheatfield Drive, Suite 2, 
    Milford, PA 
    Languages Spoken:
    English

    Community involvement | I’m a fellow of the American Academy of Orthopedic Surgeons. Also, I serve as the chief of the Department of Orthopedics at Lehigh Valley Hospital–Pocono. | Personal interests | I enjoy spending time with my family. Dr. Paglia is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Synovial Osteochondromatosis, Tendinitis, Osteoarthritis, and Synovitis.

    Marc R. Rosen
    Experienced in Fibrous Dysplasia
    Otolaryngology
    Experienced in Fibrous Dysplasia
    Otolaryngology

    Jefferson Otolaryngology (ENT) - Honickman Center

    1101 Chestnut Street, Floor 16, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Marc Rosen is an Otolaryngologist in Philadelphia, Pennsylvania. Dr. Rosen is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Sinusitis, Cerebrospinal Fluid Leak, Pituitary Tumor, Endoscopic Transnasal Transsphenoidal Surgery, and Septoplasty. Dr. Rosen is currently accepting new patients.

    Scot A. Brown
    Experienced in Fibrous Dysplasia
    Orthopedics
    Experienced in Fibrous Dysplasia
    Orthopedics
    33 South 9th Street, Suite 1220, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Scot Brown is an Orthopedics provider in Philadelphia, Pennsylvania. Dr. Brown is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Desmoid Tumor, Congenital Generalized Fibromatosis, Infantile Myofibromatosis, Hip Replacement, and Knee Replacement. Dr. Brown is currently accepting new patients.

    Experienced in Fibrous Dysplasia
    Experienced in Fibrous Dysplasia

    Temple Faculty Practice Plan Inc

    3401 N Broad St, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Sarah Fenerty is a Radiologist in Philadelphia, Pennsylvania. Dr. Fenerty is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Visceromegaly, Fibrous Dysplasia, Non-Alcoholic Fatty Liver Disease, Progressive Familial Intrahepatic Cholestasis Type 2, and Osteotomy.

    Experienced in Fibrous Dysplasia
    Experienced in Fibrous Dysplasia

    Temple University Hospital

    3401 N Broad St, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Alyssa Goldbach is a Radiologist in Philadelphia, Pennsylvania. Dr. Goldbach is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Fibrosing Mediastinitis, Galactocoele, Breast Lump, Rosai-Dorfman Disease, and Osteotomy.

    Experienced in Fibrous Dysplasia
    Pediatric Radiology
    Experienced in Fibrous Dysplasia
    Pediatric Radiology

    Penn Medicine Lancaster General Health

    555 N Duke St, 
    Lancaster, PA 
    Experience:
    17+ years
    Languages Spoken:
    English

    Matthew Winfeld is a Pediatric Radiologist in Lancaster, Pennsylvania. Dr. Winfeld has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Baker Cyst, Synovial Osteochondromatosis, Achilles Tendon Rupture, and Gallbladder Disease.

    Showing 1-20 of 70

    Last Updated: 02/22/2026

    What is the definition of Fibrous Dysplasia?

    Fibrous dysplasia is a bone disease that destroys and replaces normal bone with fibrous bone tissue. One or more bones can be affected.

    When should I see a Fibrous Dysplasia doctor in Pennsylvania, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fibrous Dysplasia doctor in Pennsylvania, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Fibrous Dysplasia doctors in Pennsylvania, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fibrous Dysplasia doctors in Pennsylvania, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fibrous Dysplasia doctor in Pennsylvania, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fibrous Dysplasia doctor search results page. 

    Why is it important to get a second opinion from a different Fibrous Dysplasia doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fibrous Dysplasia doctor in Pennsylvania, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fibrous Dysplasia doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fibrous Dysplasia doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fibrous Dysplasia doctors in Pennsylvania, US?

    Look for the filter feature on the left side of the Fibrous Dysplasia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fibrous Dysplasia doctor that offers video calls?

    Look for the filter feature on the left-side of the Fibrous Dysplasia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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