The 20 Best Fibrous Dysplasia Doctors Near Me

Find the Top Fibrous Dysplasia Experts and Specialists

The 20 Best Fibrous Dysplasia Doctors Near Me

Last Updated: 02/22/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 5225 doctor with experience in Fibrous Dysplasia. Of these, 4804 are Experienced, 344 are Advanced, 57 are Distinguished and 12 are Elite.

Location
LocationClose
5,225 providers found
    Elite in Fibrous Dysplasia
    Pediatric Endocrinology
    Elite in Fibrous Dysplasia
    Pediatric Endocrinology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
    Languages Spoken:
    English

    Vivian Szymczuk is a Pediatric Endocrinologist in Silver Spring, Maryland. Dr. Szymczuk is rated as an Elite provider by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Fibrous Dysplasia, Osteitis Fibrosa, Mccune-Albright Syndrome, Nerve Decompression, and Tenotomy.

    Roland D. Chapurlat
    Elite in Fibrous Dysplasia
    Elite in Fibrous Dysplasia

    CHU Edouard Herriot

    Lyon, FR 

    Roland Chapurlat practices in Lyon, France. Mr. Chapurlat is rated as an Elite expert by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Postmenopausal Osteoporosis, Osteoporosis, Fibrous Dysplasia, Tissue Biopsy, and Hip Replacement.

    Edward C. Hsiao
    Elite in Fibrous Dysplasia
    Endocrinology
    Elite in Fibrous Dysplasia
    Endocrinology

    Endocrinology Clinic At Parnassus

    400 Parnassus Ave., Suite A-550, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Edward Hsiao is an endocrinologist who specializes in metabolic bone diseases, such as severe osteoporosis and osteogenesis imperfecta, and other bone disorders. He also cares for patients with calcium, phosphorous, vitamin D, and parathyroid hormone disorders. He has particular interests in fibrodysplasia ossificans progressiva (a condition in which bone gradually replaces muscle and other connective tissues) and fibrous dysplasia/McCune-Albright syndrome (a disorder that causes fibrous tissue to develop in bones). E. Hsiao's current research interests center on understanding how hormones and signaling pathways control human bone formation. His laboratory uses advanced cellular, genetic, and bioengineering tools to identify key pathways that could be targeted for disease therapies. He is also involved in clinical research to develop better diagnostic and treatment strategies for patients with bone diseases. E. Hsiao earned his medical degree and a doctorate in molecular biology and genetics from the Johns Hopkins School of Medicine, where he also completed a residency in internal medicine. He completed fellowship training in diabetes, endocrinology and metabolism at UCSF. E. Hsiao is a member of the Endocrine Society and American Society for Bone and Mineral Research. In addition, he actively works with patient support groups through the Fibrous Dysplasia Foundation and International Fibrodysplasia Ossificans Progressiva Association, and the International Clinical Council on FOP. E. Hsiao serves as director of UCSF's fellowship program in diabetes, endocrinology and metabolism. He has received the March of Dimes Basil O'Connor Starter Scholar Research Award and the Doris Duke Clinical Scientist Development Award, as well as research grant funding from the National Institutes of Health. In his free time, Hsiao enjoys reading, the outdoors and photography. Dr. Hsiao is rated as an Elite provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Fibrous Dysplasia, Osteitis Fibrosa, Mccune-Albright Syndrome, Rhizomelic Syndrome, and Hip Replacement.

    Learn about our expert tiers
    Elite in Fibrous Dysplasia
    Elite in Fibrous Dysplasia
    Leiden, ZH, NL 

    Bas Majoor practices in Leiden, Netherlands. Majoor is rated as an Elite expert by MediFind in the treatment of Fibrous Dysplasia. Their top areas of expertise are Fibrous Dysplasia, Osteitis Fibrosa, Mccune-Albright Syndrome, Precocious Puberty, and Bone Graft.

    Elite in Fibrous Dysplasia
    Elite in Fibrous Dysplasia
    Leiden, ZH, NL 

    Natasha Dijkstra-Appelman practices in Leiden, Netherlands. Ms. Dijkstra-Appelman is rated as an Elite expert by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Fibrous Dysplasia, Mccune-Albright Syndrome, Osteitis Fibrosa, Parathyroidectomy, and Hormone Replacement Therapy (HRT).

    Elite in Fibrous Dysplasia
    Elite in Fibrous Dysplasia
    Rome, IT 

    Mara Riminucci practices in Rome, Italy. Ms. Riminucci is rated as an Elite expert by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Fibrous Dysplasia, Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Osteitis Fibrosa, Mccune-Albright Syndrome, and Bone Marrow Transplant.

    Elite in Fibrous Dysplasia
    Elite in Fibrous Dysplasia
    Science And Technology Park Of Crete, 100 N. Plastira Str, 
    Irakleion, ESYE43, GR 

    Georgios Papadakis practices in Irakleion, Greece. Mr. Papadakis is rated as an Elite expert by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Fibrous Dysplasia, Melorheostosis, Erdheim-Chester Disease, Osteitis Fibrosa, and Thyroidectomy.

    Elite in Fibrous Dysplasia
    Elite in Fibrous Dysplasia
    Leiden, ZH, NL 

    Neveen Hamdy practices in Leiden, Netherlands. Ms. Hamdy is rated as an Elite expert by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Fibrous Dysplasia, Osteitis Fibrosa, Mccune-Albright Syndrome, and Albright's Hereditary Osteodystrophy.

    Elite in Fibrous Dysplasia
    Elite in Fibrous Dysplasia
    Rome, IT 

    Alessandro Corsi practices in Rome, Italy. Mr. Corsi is rated as an Elite expert by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Fibrous Dysplasia, Osteitis Fibrosa, Mccune-Albright Syndrome, and Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome).

    Elite in Fibrous Dysplasia
    Elite in Fibrous Dysplasia
    Leiden, ZH, NL 

    Maartje Meier practices in Leiden, Netherlands. Meier is rated as an Elite expert by MediFind in the treatment of Fibrous Dysplasia. Their top areas of expertise are Mccune-Albright Syndrome, Osteitis Fibrosa, Fibrous Dysplasia, and Hypophosphatemia.

    Elite in Fibrous Dysplasia
    Elite in Fibrous Dysplasia
    5 Place D'Arsonval, 
    Lyon, FR 

    Deborah Gensburger practices in Lyon, France. Ms. Gensburger is rated as an Elite expert by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Fibrous Dysplasia, Osteitis Fibrosa, Mccune-Albright Syndrome, and Skeletal-Extraskeletal Angiomatosis.

    Elite in Fibrous Dysplasia
    Elite in Fibrous Dysplasia
    Rome, IT 

    Cristina Remoli practices in Rome, Italy. Ms. Remoli is rated as an Elite expert by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Fibrous Dysplasia, Osteitis Fibrosa, Mccune-Albright Syndrome, and Osteolysis Syndrome Recessive.

    Experienced in Fibrous Dysplasia
    Radiology | Pediatric Radiology
    Experienced in Fibrous Dysplasia
    Radiology | Pediatric Radiology

    St. Christopher's Pediatric Associates Radiology - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Webb is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Choroid Plexus Cyst, Familial Porencephaly, Arachnoid Cysts, and Aseptic and Alopecic Nodules of Scalp (AANS).

    Experienced in Fibrous Dysplasia
    Internal Medicine
    Experienced in Fibrous Dysplasia
    Internal Medicine

    ETSU Physicians & Associates- Internal Medicine

    325 N State Of Franklin Rd, Fl 2, 
    Johnson City, TN 
    Languages Spoken:
    English

    . Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Chronic Kidney Disease, End-Stage Renal Disease (ESRD), Hypothyroidism, Thrombectomy, and Pacemaker Implantation.

    Experienced in Fibrous Dysplasia
    Experienced in Fibrous Dysplasia

    State Of Franklin Healthcare Associates- Comprehensive Breast Center

    818 Sunset Dr, Ste 100, 
    Johnson City, TN 
    Languages Spoken:
    English

    . Dr. Kohne is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. His top areas of expertise are Osteopenia, Melorheostosis with Osteopoikilosis, Melorheostosis, and Visceromegaly.

    Distinguished in Fibrous Dysplasia
    Pediatric Endocrinology
    Distinguished in Fibrous Dysplasia
    Pediatric Endocrinology

    Office

    30 Rockville Pike, 
    Bethesda, MD 
    Languages Spoken:
    English

    Rachel Gafni is a Pediatric Endocrinologist in Bethesda, Maryland. Dr. Gafni is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Autosomal Dominant Hypocalcemia, Osteomalacia, Osteitis Fibrosa, Malnutrition, and Hormone Replacement Therapy (HRT).

    Distinguished in Fibrous Dysplasia
    Endocrinology
    Distinguished in Fibrous Dysplasia
    Endocrinology

    Office

    400 Parnassus Ave Ste 550, 
    San Francisco, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Kelly Wentworth is an Endocrinologist in San Francisco, California. Dr. Wentworth is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Fibrous Dysplasia, Mccune-Albright Syndrome, Osteitis Fibrosa, and Rhizomelic Syndrome.

    Distinguished in Fibrous Dysplasia
    Endocrinology
    Distinguished in Fibrous Dysplasia
    Endocrinology

    Office

    8641 Wilshire Blvd Ste 210, 
    Beverly Hills, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Sheila Haji is an Endocrinologist in Beverly Hills, California. Dr. Haji is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Fibrous Dysplasia, Postmenopausal Osteoporosis, Osteoporosis, and Hyperparathyroidism.

    Tina C. Loven
    Experienced in Fibrous Dysplasia
    Neurosurgery
    Experienced in Fibrous Dysplasia
    Neurosurgery

    St. Christopher's Hospital For Children Global Neuroscience Institute

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Loven is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Cerebellum Agenesis Hydrocephaly, Increased Head Circumference, Sunken Fontanelles, and Plagiocephaly.

    Wei Shaw
    Experienced in Fibrous Dysplasia
    Radiology
    Experienced in Fibrous Dysplasia
    Radiology

    West Reading Radiology Associates

    301 S 7th Ave, Suite 135, 
    West Reading, PA 
    Languages Spoken:
    English

    . Dr. Shaw is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. Her top areas of expertise are Gas Bloat Syndrome, CAPOS Syndrome, Fibrous Dysplasia, and Galactocoele.

    Showing 1-20 of 5,225

    Last Updated: 02/22/2026

    What is the definition of Fibrous Dysplasia?

    Fibrous dysplasia is a bone disease that destroys and replaces normal bone with fibrous bone tissue. One or more bones can be affected.

    When should I see a Fibrous Dysplasia doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fibrous Dysplasia doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Fibrous Dysplasia doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fibrous Dysplasia doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fibrous Dysplasia doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fibrous Dysplasia doctor search results page. 

    Why is it important to get a second opinion from a different Fibrous Dysplasia doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fibrous Dysplasia doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fibrous Dysplasia doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fibrous Dysplasia doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fibrous Dysplasia doctors near me?

    Look for the filter feature on the left side of the Fibrous Dysplasia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fibrous Dysplasia doctor that offers video calls?

    Look for the filter feature on the left-side of the Fibrous Dysplasia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy