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    Last Updated: 10/30/2025

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    MediFind found 180 doctor with experience in Freeman-Sheldon Syndrome. Of these, 149 are Experienced, 29 are Advanced and 2 are Distinguished.

    Location
    LocationClose
    180 providers found
      Distinguished in Freeman-Sheldon Syndrome
      Distinguished in Freeman-Sheldon Syndrome
      Daejeon, KR 

      Jihyun Park practices in Daejeon, Republic of Korea. Ms. Park is rated as a Distinguished expert by MediFind in the treatment of Freeman-Sheldon Syndrome. Her top areas of expertise are Freeman-Sheldon Syndrome, Arthrogryposis Multiplex Congenita, Congenital Contractures, Pneumonia, and Gastrostomy.

      Distinguished in Freeman-Sheldon Syndrome
      Internal Medicine
      Distinguished in Freeman-Sheldon Syndrome
      Internal Medicine

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Hans Kim is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Kim is rated as a Distinguished provider by MediFind in the treatment of Freeman-Sheldon Syndrome. His top areas of expertise are Greig Cephalopolysyndactyly Syndrome, Hypertrichosis-Acromegaloid Facial Appearance Syndrome, Craniofacial-Deafness-Hand Syndrome, and Ascher Syndrome. Dr. Kim is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Robert Smigiel
      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      Wroclaw, DS, PL 

      Robert Smigiel practices in Wroclaw, Poland. Mr. Smigiel is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. His top areas of expertise are Hypotonia, Esophageal Atresia, Tracheoesophageal Fistula, and Filippi Syndrome.

      Learn about our expert tiers
      Experienced in Freeman-Sheldon Syndrome
      Internal Medicine
      Experienced in Freeman-Sheldon Syndrome
      Internal Medicine

      Bethany Medical

      Kernersville, NC 
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Pankaj Kumar is a primary care provider, practicing in Internal Medicine in Kernersville, North Carolina. Dr. Kumar has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Freeman-Sheldon Syndrome. His top areas of expertise are Genital Warts, Leptospirosis, Visceral Larva Migrans, Endoscopy, and Gallbladder Removal. Dr. Kumar is currently accepting new patients.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      Seoul, KR 

      Seong-woong Kang practices in Seoul, Republic of Korea. Kang is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. Their top areas of expertise are Freeman-Sheldon Syndrome, Cramp-Fasciculation Syndrome, Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      Seoul, KR 

      Han Cho practices in Seoul, Republic of Korea. Cho is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. Their top areas of expertise are Freeman-Sheldon Syndrome, Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, and Primary Lateral Sclerosis.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      Seoul, KR 

      Won Choi practices in Seoul, Republic of Korea. Mr. Choi is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. His top areas of expertise are Cramp-Fasciculation Syndrome, Freeman-Sheldon Syndrome, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Gastrostomy.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      Chinese Academy Of Medical Sciences And Peking Union Medical College, 
      Beijing, CN 

      Xue Zhang practices in Beijing, China. Zhang is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. Their top areas of expertise are Dyschromatosis Universalis Hereditaria, Split Hand Foot Malformation, Freeman-Sheldon Syndrome, and Brachydactyly.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      Wroclaw, DS, PL 

      Maria Sasiadek practices in Wroclaw, Poland. Ms. Sasiadek is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. Her top areas of expertise are Freeman-Sheldon Syndrome, Chromosome 7p Deletion, Chromosome 20 Trisomy, and Schizencephaly.

      Advanced in Freeman-Sheldon Syndrome
      Family Medicine
      Advanced in Freeman-Sheldon Syndrome
      Family Medicine

      Galion Community Hospital

      955 Bucyrus Rd, 
      Galion, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Mark Wood is a primary care provider, practicing in Family Medicine in Galion, Ohio. Dr. Wood is rated as an Advanced provider by MediFind in the treatment of Freeman-Sheldon Syndrome. His top areas of expertise are Pneumonia, High Potassium Level, Anemia, Pericarditis, and Cardiac Ablation. Dr. Wood is currently accepting new patients.

      Advanced in Freeman-Sheldon Syndrome
      Family Medicine
      Advanced in Freeman-Sheldon Syndrome
      Family Medicine

      Unity Health Network LLC

      4465 Darrow Rd, 
      Stow, OH 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Joseph Chase is a primary care provider, practicing in Family Medicine in Stow, Ohio. Dr. Chase is rated as an Advanced provider by MediFind in the treatment of Freeman-Sheldon Syndrome. His top areas of expertise are Pfeiffer Syndrome, Charlie M Syndrome, Hypertrichosis-Acromegaloid Facial Appearance Syndrome, and Deafness Craniofacial Syndrome. Dr. Chase is currently accepting new patients.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      New Delhi, DL, IN 

      Sandeep Sehrawat practices in New Delhi, India. Mr. Sehrawat is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. His top areas of expertise are Freeman-Sheldon Syndrome, Radial Nerve Dysfunction, Arthrogryposis Multiplex Congenita, Congenital Contractures, and Hip Replacement.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      Tokyo, JP 

      Kyosuke Takahashi practices in Tokyo, Japan. Mr. Takahashi is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. His top areas of expertise are Diabetic Hyperglycemic Hyperosmolar Syndrome, Diabetic Ketoacidosis, Idiopathic Dilatation of the Pulmonary Artery, and Freeman-Sheldon Syndrome.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      Northampton, ENG, GB 

      Jennifer Hague practices in Northampton, United Kingdom. Ms. Hague is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. Her top areas of expertise are Freeman-Sheldon Syndrome, Mosaicism, Costello Syndrome, Syndrome of Inappropriate Antidiuretic Hormone Secretion (SIADH), and Gastrostomy.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      19, Eastern Hospital Road, 
      Causeway Bay, HEA, HK 

      Ching Leung practices in Causeway Bay, Hong Kong Special Administrative Region. Leung is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. Their top areas of expertise are Chromosome 9p Deletion, Freeman-Sheldon Syndrome, Neurofibromatosis Type 2 (NF2), and Neurofibromatosis.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      Great George Street, 
      Leeds, ENG, GB 

      Katherine Pettinger practices in Leeds, United Kingdom. Ms. Pettinger is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. Her top areas of expertise are Freeman-Sheldon Syndrome, Premature Infant, Cerebral Palsy, and Langerhans Cell Histiocytosis.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Marcello Scala practices in London, United Kingdom. Mr. Scala is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. His top areas of expertise are Focal or Multifocal Malformations in Neuronal Migration, Achalasia Microcephaly Syndrome, Microcephaly, and Hypotonia.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      Poznan, WP, PL 

      Karolina Matuszewska practices in Poznan, Poland. Ms. Matuszewska is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. Her top areas of expertise are Freeman-Sheldon Syndrome, Crouzon Syndrome, Split Hand Foot Malformation, and Smith-Lemli-Opitz Syndrome.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      Nagoya, JP 

      Aiji Boku-Sato practices in Nagoya, Japan. Boku-Sato is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. Their top areas of expertise are Burning Mouth Syndrome, Freeman-Sheldon Syndrome, Spondyloepiphyseal Dysplasia, Spondyloepiphyseal Dysplasia Congenita, and Endoscopy.

      Advanced in Freeman-Sheldon Syndrome
      Advanced in Freeman-Sheldon Syndrome
      Peking Union Medical College, 
      Beijing, CN 

      Shan Li practices in Beijing, China. Li is rated as an Advanced expert by MediFind in the treatment of Freeman-Sheldon Syndrome. Their top areas of expertise are Osteogenesis Imperfecta, Freeman-Sheldon Syndrome, Distal Arthrogryposis, and Distal Arthrogryposis Type 6.

      Showing 1-20 of 180

      Last Updated: 10/30/2025

      What is the definition of Freeman-Sheldon Syndrome?

      Freeman-Sheldon syndrome (also known as Freeman-Burian syndrome) is a condition that primarily affects muscles in the face and skull (craniofacial muscles) and can often affect joints in the hands and feet. The condition is characterized by abnormalities known as contractures, which result from permanent tightening of muscles, skin, tendons, and surrounding tissues, and restrict movement of the affected body part. In Freeman-Sheldon syndrome, contractures in the face lead to a distinctive facial appearance including a small mouth (microstomia) with pursed lips, giving the appearance of whistling. For this reason, Freeman-Sheldon syndrome is sometimes called "whistling face syndrome." Other facial features common in this condition include a chin dimple shaped like an "H" or "V" and unusually deep folds in the skin between the nose and the corners of the mouth (nasolabial folds).

      When should I see a Freeman-Sheldon Syndrome doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Freeman-Sheldon Syndrome doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Freeman-Sheldon Syndrome doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Freeman-Sheldon Syndrome doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Freeman-Sheldon Syndrome doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Freeman-Sheldon Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Freeman-Sheldon Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Freeman-Sheldon Syndrome doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Freeman-Sheldon Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Freeman-Sheldon Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Freeman-Sheldon Syndrome doctors near me?

      Look for the filter feature on the left side of the Freeman-Sheldon Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Freeman-Sheldon Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Freeman-Sheldon Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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