The 20 Best GM1 Gangliosidosis Doctors in The United States

Find the Top GM1 Gangliosidosis Experts and Specialists

Last Updated: 04/28/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 125 doctor with experience in GM1 Gangliosidosis near The United States. Of these, 82 are Experienced, 35 are Advanced, 6 are Distinguished and 2 are Elite.

Location
LocationClose
125 providers found
    Elite in GM1 Gangliosidosis
    Pediatric Neurology
    Elite in GM1 Gangliosidosis
    Pediatric Neurology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
    Languages Spoken:
    English

    Maria Acosta is a Pediatric Neurologist practicing medicine in Silver Spring, Maryland. Dr. Acosta is rated as an Elite provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Neurofibromatosis, Sandhoff Disease, and Autism Spectrum Disorder.

    Elite in GM1 Gangliosidosis
    Medical Genetics
    Elite in GM1 Gangliosidosis
    Medical Genetics
    111 Michigan Ave Nw, 
    Washington, DC 
    Languages Spoken:
    English

    Cynthia Tifft is a Medical Genetics provider practicing medicine in Washington, Washington, D.c.. Dr. Tifft is rated as an Elite provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Sandhoff Disease, Gangliosidosis, GM1 Gangliosidosis, and Tay-Sachs Disease.

    Distinguished in GM1 Gangliosidosis
    Medical Genetics
    Distinguished in GM1 Gangliosidosis
    Medical Genetics
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English

    Raymond Wang is a Medical Genetics provider practicing medicine in Orange, California. Dr. Wang is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Pompe Disease, and Adenoidectomy.

    Learn about our expert tiers
    Distinguished in GM1 Gangliosidosis
    Radiology
    Distinguished in GM1 Gangliosidosis
    Radiology

    Office

    9000 Rockville Pike # 1C351, 
    Bethesda, MD 
    Languages Spoken:
    English

    Eva Baker is a Radiologist practicing medicine in Bethesda, Maryland. Dr. Baker is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Sandhoff Disease, Neurofibromatosis, and RASopathies.

    Experienced in GM1 Gangliosidosis
    Family Medicine
    Experienced in GM1 Gangliosidosis
    Family Medicine

    Tower Health Medical Group Family Medicine - West Lawn

    2209 Quarry Dr, Ste C34, 
    West Lawn, PA 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Givens is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Lung Metastases. Dr. Givens is board certified in American Board Of Family Medicine.

    Advanced in GM1 Gangliosidosis
    Neurology | Pediatric Neurology
    Advanced in GM1 Gangliosidosis
    Neurology | Pediatric Neurology

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English

    Dr. Adam Hartman is an Adjunct Associate Professor of Neurology and Pediatrics at Johns Hopkins School of Medicine. He focuses on treating children with epilepsy, with an emphasis on those whose seizures have not been adequately controlled with medication. He evaluates and manages patients in his clinic who may be candidates for epilepsy surgery, including those with Rasmussen syndrome, brain malformations, and perinatal strokes. Patients who may not be surgery candidates due to inborn errors of metabolism (particularly mitochondrial disorders) also are a special interest for Dr. Hartman. Dr. Hartman is currently a Physician at NINDS/NIH, serving as a Program Director in the Division of Clinical Research. Previously, Dr. Hartman was the Associate Program Director for the Pediatric Neurology Residency at Johns Hopkins Hospital. He also was the Co-Director of the Neurology Intensive Care Nursery and an Attending Physician on the Pediatric Neurology Inpatient Service at Johns Hopkins Hospital. Dr. Hartman’s prior laboratory work was funded by National Institute of Neurological Disorders and Stroke (NIH), Technology Development Corporation (State of Maryland), a Johns Hopkins University School of Medicine Clinician Scientist Award, the Pakula Family, and the Becker Family. Dr. Hartman received his medical degree from Northwestern University Medical School. After completing his residency in Pediatrics in the National Capital Uniformed Services Pediatric Residency Program (National Naval Medical Center, Walter Reed Army Medical Center), he served as a general pediatrician in the US Navy for five years (the last as division head of general pediatrics at Naval Medical Center San Diego). He completed his residency in pediatric neurology and a fellowship in clinical neurophysiology/pediatric epilepsy, both at Johns Hopkins. Dr. Hartman is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Hemimegalencephaly, Seizures, Epilepsy, and Increased Head Circumference. Dr. Hartman is board certified in American Board Of Psychiatry And Neurology.

    Advanced in GM1 Gangliosidosis
    Neuromusculoskeletal Medicine
    Advanced in GM1 Gangliosidosis
    Neuromusculoskeletal Medicine

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    32+ years
    Languages Spoken:
    English
    Offers Telehealth

    Rebecca Kuenzler is a Neuromusculoskeletal Medicine provider practicing medicine in Cleveland, Ohio. She has been practicing medicine for over 32 years. Dr. Kuenzler is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 54 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy (SMA), and Spinal and Bulbar Muscular Atrophy. Dr. Kuenzler is board certified in American Board Of Psychiatry And Neurology, 2005.

    Advanced in GM1 Gangliosidosis
    Pediatrics | Internal Medicine
    Advanced in GM1 Gangliosidosis
    Pediatrics | Internal Medicine

    Primary Care Limestone

    4512 Kirkwood Highway, Suite 300, 
    Wilmington, DE 
    Languages Spoken:
    English
    Offers Telehealth

    Poorwa Kenkre is a primary care provider, practicing in Pediatrics and Internal Medicine in Wilmington, Delaware. Dr. Kenkre is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Infant Hyperglycemia, GM1 Gangliosidosis, High Cholesterol, and Type 2 Diabetes (T2D).

    Advanced in GM1 Gangliosidosis
    Pediatric Cardiology
    Advanced in GM1 Gangliosidosis
    Pediatric Cardiology

    Inova Children's Cardiology - Shady Grove

    14955 Shady Grove Rd, 150, 
    Rockville, MD 
    Experience:
    18+ years
    Languages Spoken:
    English
    Offers Telehealth

    Christopher Jordan is a Pediatric Cardiologist practicing medicine in Rockville, Maryland. He has been practicing medicine for over 18 years. Dr. Jordan is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses GM1 Gangliosidosis, Patent Ductus Arteriosus, Total Anomalous Pulmonary Venous Return, and Ventricular Septal Defects.

    Distinguished in GM1 Gangliosidosis
    Pediatrics | Medical Genetics
    Distinguished in GM1 Gangliosidosis
    Pediatrics | Medical Genetics

    Fairview Express Care

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Chester Whitley is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Minneapolis, Minnesota. Dr. Whitley is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A), and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Whitley is currently accepting new patients.

    Distinguished in GM1 Gangliosidosis
    Medical Genetics | Pediatrics
    Distinguished in GM1 Gangliosidosis
    Medical Genetics | Pediatrics
    10 Center Drive Msc 1851, Bldg. 10, Room 10c-103, Nhgri, Nih, 
    Bethesda, MD 
    Languages Spoken:
    English

    William Gahl is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Bethesda, Maryland. Dr. Gahl is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Oculocutaneous Albinism Type 2, Hermansky-Pudlak Syndrome, Oculocutaneous Albinism Type 1, Oculocutaneous Albinism, and Deep Brain Stimulation.

    Distinguished in GM1 Gangliosidosis
    Pediatrics
    Distinguished in GM1 Gangliosidosis
    Pediatrics

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
    Languages Spoken:
    English

    Debra Regier is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Regier is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Gangliosidosis, GM1 Gangliosidosis, Cantu Syndrome, and Maple Syrup Urine Disease.

    Distinguished in GM1 Gangliosidosis
    Internal Medicine
    Distinguished in GM1 Gangliosidosis
    Internal Medicine

    Office

    2014 Washington St # 6, 
    Newton, MA 
    Languages Spoken:
    English

    Christopher Zoppo is a primary care provider, practicing in Internal Medicine in Newton, Massachusetts. Dr. Zoppo is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses GM1 Gangliosidosis.

    Advanced in GM1 Gangliosidosis
    Advanced in GM1 Gangliosidosis

    Saint Lukes Roosevelt Hospital Lab

    1000 10th Ave, 
    New York, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Shanna Patterson is a Neurologist practicing medicine in New York, New York. Dr. Patterson is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Peripheral Neuropathy, Cramp-Fasciculation Syndrome, and Gangliosidosis.

    Advanced in GM1 Gangliosidosis
    Neuroradiology
    Advanced in GM1 Gangliosidosis
    Neuroradiology

    UMass Memorial Children's Medical Center

    55 Lake Ave N, 
    Worcester, MA 
    Languages Spoken:
    English

    Behroze Vachha is a Neuroradiologist practicing medicine in Worcester, Massachusetts. Dr. Vachha is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Pediatric Low-Grade Glioma (pLGG), Cavernous Sinus Thrombosis, and ALK-Positive Non-Small Cell Lung Cancer.

    Advanced in GM1 Gangliosidosis
    Neurology | Pediatric Neurology
    Advanced in GM1 Gangliosidosis
    Neurology | Pediatric Neurology
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Maija-riikka Steenari is a Neurologist and a Pediatric Neurologist practicing medicine in Orange, California. Dr. Steenari is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Dihydrolipoamide Dehydrogenase Deficiency, PEPCK 1 Deficiency, Autosomal Recessive Congenital Methemoglobinemia, and Pyruvate Carboxylase Deficiency. Dr. Steenari is currently accepting new patients.

    Advanced in GM1 Gangliosidosis
    Advanced in GM1 Gangliosidosis

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Catherine Ross is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Ross is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, and 15q11.2 Microdeletion.

    Advanced in GM1 Gangliosidosis
    Advanced in GM1 Gangliosidosis

    Sunrise Hospital And Medical Center

    3186 S Maryland Pkwy, 
    Las Vegas, NV 
    Languages Spoken:
    English

    Daniel Noriega is a Pediatrics provider practicing medicine in Las Vegas, Nevada. Dr. Noriega is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Respiratory Syncytial Virus (RSV) Infection, GM1 Gangliosidosis, Shaken Baby Syndrome, and Cerebral Hypoxia.

    Experienced in GM1 Gangliosidosis
    Pediatric Surgery | General Surgery
    Experienced in GM1 Gangliosidosis
    Pediatric Surgery | General Surgery

    Brighton Center For Specialty Care

    7500 Challis Rd, Entrance 1 Level 2, 
    Brighton, MI 
    Languages Spoken:
    English

    Born in South India (Andhra), but growing up in Flushing, Queens in New York, Dr. Gadepalli has found a home in Ann Arbor. He completed his undergraduate education at Rensselaer Polytechnic Institute in Troy, NY and medical school at Albany Medical College in Albany, NY. His general surgical residency was at Morristown Memorial Hospital in Morristown, NJ. While in training, he obtained an MBA through the University of Phoenix Online program concentrating on Health Care Management. His educational accolades included Resident Teacher of the Year awards twice during residency, culminating in being a Finalist for the Resident Award for Exemplary Teaching, in 2007, given by the American College of Surgeons. He completed a Masters in Health and Health Care Research at the Institute for Health Policy and Innovation, in the North Campus Research Center.At University of Michigan, Dr. Gadepalli completed fellowships in both Surgical Critical Care and Pediatric Surgery and is board certified in General Surgery, Critical Care and Pediatric Surgery. He is the Daniel H. Teitelbaum, MD Collegiate Professor in the Department of Surgery. His clinical practice encompasses all aspects of pediatric surgery, including minimally invasive surgery, non-cardiac thoracic surgery, neonatal surgery, hepatobiliary and pancreatic surgery, surgical oncology, abdominal, colorectal and genitourinary abnormalities, trauma and critical care. His unique background allows expertise in the critical care needs of the surgical neonatal and pediatric populations, including the use of extracorporeal membrane oxygenation (ECMO) in children.On a personal note, he has 4 children, from elementary to high school, who keep him well grounded and up-to-date on all the newest trends. As a 90s kid, he enjoys hip hop music and dancing with his daughters and his son, who is working on becoming an Eagle Scout. He loves to play pick-up basketball and watch movies, such as StarWars, Harry Potter and the Avengers series. Dr. Gadepalli is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Omphalocele, Tracheoesophageal Fistula, Donnai-Barrow Syndrome, Appendectomy, and Ileostomy.

    Experienced in GM1 Gangliosidosis
    Medical Genetics
    Experienced in GM1 Gangliosidosis
    Medical Genetics

    Greenwood Genetic Center– Charleston

    3520 West Montague Avenue, 
    Charleston, SC 
    Languages Spoken:
    English
    Accepting New Patients

    Sara Cathey is a Medical Genetics provider practicing medicine in Charleston, South Carolina. Dr. Cathey is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Aspartylglucosaminuria, Mucolipidosis Type 4, Fucosidosis, and Sialidosis. Dr. Cathey is currently accepting new patients.

    Showing 1-20 of 125

    Last Updated: 04/28/2026

    What is the definition of GM1 Gangliosidosis?

    GM1 gangliosidosis is an inherited disorder that destroys nerve cells (neurons) in the brain and spinal cord. This condition can be classified as one of three major types based on the age at which signs and symptoms first appear. However, the signs and symptoms of these three types can overlap, leading some researchers to believe that GM1 gangliosidosis occurs on a spectrum instead of as three distinct types.

    When should I see a GM1 Gangliosidosis doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a GM1 Gangliosidosis doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank GM1 Gangliosidosis doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by GM1 Gangliosidosis doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a GM1 Gangliosidosis doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. 

    Why is it important to get a second opinion from a different GM1 Gangliosidosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a GM1 Gangliosidosis doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my GM1 Gangliosidosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my GM1 Gangliosidosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female GM1 Gangliosidosis doctors in The United States?

    Look for the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a GM1 Gangliosidosis doctor that offers video calls?

    Look for the filter feature on the left-side of the GM1 Gangliosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    Recommended has been selected.