The 20 Best GM1 Gangliosidosis Doctors in The United States
Find the Top GM1 Gangliosidosis Experts and Specialists
Children's National Hospital
Maria Acosta is a Pediatric Neurologist practicing medicine in Silver Spring, Maryland. Dr. Acosta is rated as an Elite provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Neurofibromatosis, Sandhoff Disease, and Autism Spectrum Disorder.
Cynthia Tifft is a Medical Genetics provider practicing medicine in Washington, Washington, D.c.. Dr. Tifft is rated as an Elite provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Sandhoff Disease, Gangliosidosis, GM1 Gangliosidosis, and Tay-Sachs Disease.
Raymond Wang is a Medical Genetics provider practicing medicine in Orange, California. Dr. Wang is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Pompe Disease, and Adenoidectomy.
Office
Eva Baker is a Radiologist practicing medicine in Bethesda, Maryland. Dr. Baker is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Sandhoff Disease, Neurofibromatosis, and RASopathies.
Tower Health Medical Group Family Medicine - West Lawn
. Dr. Givens is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Lung Metastases. Dr. Givens is board certified in American Board Of Family Medicine.
Johns Hopkins Outpatient Center
Dr. Adam Hartman is an Adjunct Associate Professor of Neurology and Pediatrics at Johns Hopkins School of Medicine. He focuses on treating children with epilepsy, with an emphasis on those whose seizures have not been adequately controlled with medication. He evaluates and manages patients in his clinic who may be candidates for epilepsy surgery, including those with Rasmussen syndrome, brain malformations, and perinatal strokes. Patients who may not be surgery candidates due to inborn errors of metabolism (particularly mitochondrial disorders) also are a special interest for Dr. Hartman. Dr. Hartman is currently a Physician at NINDS/NIH, serving as a Program Director in the Division of Clinical Research. Previously, Dr. Hartman was the Associate Program Director for the Pediatric Neurology Residency at Johns Hopkins Hospital. He also was the Co-Director of the Neurology Intensive Care Nursery and an Attending Physician on the Pediatric Neurology Inpatient Service at Johns Hopkins Hospital. Dr. Hartman’s prior laboratory work was funded by National Institute of Neurological Disorders and Stroke (NIH), Technology Development Corporation (State of Maryland), a Johns Hopkins University School of Medicine Clinician Scientist Award, the Pakula Family, and the Becker Family. Dr. Hartman received his medical degree from Northwestern University Medical School. After completing his residency in Pediatrics in the National Capital Uniformed Services Pediatric Residency Program (National Naval Medical Center, Walter Reed Army Medical Center), he served as a general pediatrician in the US Navy for five years (the last as division head of general pediatrics at Naval Medical Center San Diego). He completed his residency in pediatric neurology and a fellowship in clinical neurophysiology/pediatric epilepsy, both at Johns Hopkins. Dr. Hartman is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Hemimegalencephaly, Seizures, Epilepsy, and Increased Head Circumference. Dr. Hartman is board certified in American Board Of Psychiatry And Neurology.
Cleveland Clinic Main Campus
Rebecca Kuenzler is a Neuromusculoskeletal Medicine provider practicing medicine in Cleveland, Ohio. She has been practicing medicine for over 32 years. Dr. Kuenzler is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 54 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy (SMA), and Spinal and Bulbar Muscular Atrophy. Dr. Kuenzler is board certified in American Board Of Psychiatry And Neurology, 2005.
Primary Care Limestone
Poorwa Kenkre is a primary care provider, practicing in Pediatrics and Internal Medicine in Wilmington, Delaware. Dr. Kenkre is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Infant Hyperglycemia, GM1 Gangliosidosis, High Cholesterol, and Type 2 Diabetes (T2D).
Inova Children's Cardiology - Shady Grove
Christopher Jordan is a Pediatric Cardiologist practicing medicine in Rockville, Maryland. He has been practicing medicine for over 18 years. Dr. Jordan is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses GM1 Gangliosidosis, Patent Ductus Arteriosus, Total Anomalous Pulmonary Venous Return, and Ventricular Septal Defects.
Fairview Express Care
Chester Whitley is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Minneapolis, Minnesota. Dr. Whitley is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A), and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Whitley is currently accepting new patients.
William Gahl is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Bethesda, Maryland. Dr. Gahl is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Oculocutaneous Albinism Type 2, Hermansky-Pudlak Syndrome, Oculocutaneous Albinism Type 1, Oculocutaneous Albinism, and Deep Brain Stimulation.
Children's National Hospital
Debra Regier is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Regier is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Gangliosidosis, GM1 Gangliosidosis, Cantu Syndrome, and Maple Syrup Urine Disease.
Office
Christopher Zoppo is a primary care provider, practicing in Internal Medicine in Newton, Massachusetts. Dr. Zoppo is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses GM1 Gangliosidosis.
Saint Lukes Roosevelt Hospital Lab
Shanna Patterson is a Neurologist practicing medicine in New York, New York. Dr. Patterson is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Peripheral Neuropathy, Cramp-Fasciculation Syndrome, and Gangliosidosis.
UMass Memorial Children's Medical Center
Behroze Vachha is a Neuroradiologist practicing medicine in Worcester, Massachusetts. Dr. Vachha is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Pediatric Low-Grade Glioma (pLGG), Cavernous Sinus Thrombosis, and ALK-Positive Non-Small Cell Lung Cancer.
Maija-riikka Steenari is a Neurologist and a Pediatric Neurologist practicing medicine in Orange, California. Dr. Steenari is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Dihydrolipoamide Dehydrogenase Deficiency, PEPCK 1 Deficiency, Autosomal Recessive Congenital Methemoglobinemia, and Pyruvate Carboxylase Deficiency. Dr. Steenari is currently accepting new patients.
Boston Children's Hospital
Catherine Ross is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Ross is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, and 15q11.2 Microdeletion.
Sunrise Hospital And Medical Center
Daniel Noriega is a Pediatrics provider practicing medicine in Las Vegas, Nevada. Dr. Noriega is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Respiratory Syncytial Virus (RSV) Infection, GM1 Gangliosidosis, Shaken Baby Syndrome, and Cerebral Hypoxia.
Brighton Center For Specialty Care
Born in South India (Andhra), but growing up in Flushing, Queens in New York, Dr. Gadepalli has found a home in Ann Arbor. He completed his undergraduate education at Rensselaer Polytechnic Institute in Troy, NY and medical school at Albany Medical College in Albany, NY. His general surgical residency was at Morristown Memorial Hospital in Morristown, NJ. While in training, he obtained an MBA through the University of Phoenix Online program concentrating on Health Care Management. His educational accolades included Resident Teacher of the Year awards twice during residency, culminating in being a Finalist for the Resident Award for Exemplary Teaching, in 2007, given by the American College of Surgeons. He completed a Masters in Health and Health Care Research at the Institute for Health Policy and Innovation, in the North Campus Research Center.At University of Michigan, Dr. Gadepalli completed fellowships in both Surgical Critical Care and Pediatric Surgery and is board certified in General Surgery, Critical Care and Pediatric Surgery. He is the Daniel H. Teitelbaum, MD Collegiate Professor in the Department of Surgery. His clinical practice encompasses all aspects of pediatric surgery, including minimally invasive surgery, non-cardiac thoracic surgery, neonatal surgery, hepatobiliary and pancreatic surgery, surgical oncology, abdominal, colorectal and genitourinary abnormalities, trauma and critical care. His unique background allows expertise in the critical care needs of the surgical neonatal and pediatric populations, including the use of extracorporeal membrane oxygenation (ECMO) in children.On a personal note, he has 4 children, from elementary to high school, who keep him well grounded and up-to-date on all the newest trends. As a 90s kid, he enjoys hip hop music and dancing with his daughters and his son, who is working on becoming an Eagle Scout. He loves to play pick-up basketball and watch movies, such as StarWars, Harry Potter and the Avengers series. Dr. Gadepalli is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Omphalocele, Tracheoesophageal Fistula, Donnai-Barrow Syndrome, Appendectomy, and Ileostomy.
Greenwood Genetic Center– Charleston
Sara Cathey is a Medical Genetics provider practicing medicine in Charleston, South Carolina. Dr. Cathey is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Aspartylglucosaminuria, Mucolipidosis Type 4, Fucosidosis, and Sialidosis. Dr. Cathey is currently accepting new patients.
Last Updated: 04/28/2026







