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    Last Updated: 10/30/2025

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    MediFind found 130 doctor with experience in GM1 Gangliosidosis near The United States. Of these, 90 are Experienced, 33 are Advanced, 4 are Distinguished and 3 are Elite.

    Location
    LocationClose
    130 providers found
      Elite in GM1 Gangliosidosis
      Medical Genetics
      Elite in GM1 Gangliosidosis
      Medical Genetics
      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Cynthia Tifft is a Medical Genetics provider in Washington, Washington, D.c.. Dr. Tifft is rated as an Elite provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Sandhoff Disease, Gangliosidosis, GM1 Gangliosidosis, and Tay-Sachs Disease.

      Elite in GM1 Gangliosidosis
      Pediatric Neurology
      Elite in GM1 Gangliosidosis
      Pediatric Neurology
      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Maria Acosta is a Pediatric Neurologist in Washington, Washington, D.c.. Dr. Acosta is rated as an Elite provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Neurofibromatosis, Sandhoff Disease, and Autism Spectrum Disorder.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in GM1 Gangliosidosis
      Pediatrics | Medical Genetics
      Elite in GM1 Gangliosidosis
      Pediatrics | Medical Genetics

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chester Whitley is a Pediatrics specialist and a Medical Genetics provider in Minneapolis, Minnesota. Dr. Whitley is rated as an Elite provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), and Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A). Dr. Whitley is currently accepting new patients.

      Learn about our expert tiers
      Raymond Y. Wang
      Distinguished in GM1 Gangliosidosis
      Medical Genetics
      Distinguished in GM1 Gangliosidosis
      Medical Genetics
      1201 West La Veta Avenue, 
      Orange, CA 
      Languages Spoken:
      English

      Raymond Wang is a Medical Genetics provider in Orange, California. Dr. Wang is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Pompe Disease, and Adenoidectomy.

      Experienced in GM1 Gangliosidosis
      Pediatrics | Pulmonary Medicine
      Experienced in GM1 Gangliosidosis
      Pediatrics | Pulmonary Medicine

      University Hospitals Medical Group Inc

      11100 Euclid Ave, 
      Cleveland, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Ross Myers is a Pediatrics specialist and a Pulmonary Medicine provider in Cleveland, Ohio. Dr. Myers is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Asthma, Cystic Fibrosis, GM1 Gangliosidosis, and Asthma in Children. Dr. Myers is currently accepting new patients.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis

      University Hospitals Medical Group Inc

      11100 Euclid Ave, 
      Cleveland, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Erin Frank is a Pediatrics provider in Cleveland, Ohio. Dr. Frank is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Delayed Growth, and Cerebral Hypoxia. Dr. Frank is currently accepting new patients.

      Distinguished in GM1 Gangliosidosis
      Medical Genetics | Pediatrics
      Distinguished in GM1 Gangliosidosis
      Medical Genetics | Pediatrics
      10 Center Drive Msc 1851, Bldg. 10, Room 10c-103, Nhgri, Nih, 
      Bethesda, MD 
      Languages Spoken:
      English

      William Gahl is a Medical Genetics specialist and a Pediatrics provider in Bethesda, Maryland. Dr. Gahl is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Oculocutaneous Albinism Type 2, Hermansky-Pudlak Syndrome, Oculocutaneous Albinism Type 1, Oculocutaneous Albinism, and Deep Brain Stimulation.

      Distinguished in GM1 Gangliosidosis
      Distinguished in GM1 Gangliosidosis

      Children's Hospital

      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Debra Regier is a Pediatrics provider in Washington, Washington, D.c.. Dr. Regier is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Cantu Syndrome, Malonyl-CoA Decarboxylase Deficiency, and Hyperlysinemia.

      Distinguished in GM1 Gangliosidosis
      Internal Medicine
      Distinguished in GM1 Gangliosidosis
      Internal Medicine
      2014 Washington St, 
      Newton, MA 
      Languages Spoken:
      English

      Christopher Zoppo is a primary care provider, practicing in Internal Medicine in Newton, Massachusetts. Dr. Zoppo is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. His top area of expertise is GM1 Gangliosidosis.

      Rebecca Kuenzler
      Advanced in GM1 Gangliosidosis
      Neuromusculoskeletal Medicine
      Advanced in GM1 Gangliosidosis
      Neuromusculoskeletal Medicine

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
      Experience:
      31+ years
      Languages Spoken:
      English
      Offers Telehealth

      Rebecca Kuenzler is a Neuromusculoskeletal Medicine provider in Cleveland, Ohio. Dr. Kuenzler has been practicing medicine for over 31 years and is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy (SMA), and Spinal and Bulbar Muscular Atrophy.

      Poorwa I. Kenkre
      Advanced in GM1 Gangliosidosis
      Pediatrics | Internal Medicine
      Advanced in GM1 Gangliosidosis
      Pediatrics | Internal Medicine

      Primary Care Limestone

      4512 Kirkwood Highway, Suite 300, 
      Wilmington, DE 
      Languages Spoken:
      English
      Offers Telehealth

      Poorwa Kenkre is a primary care provider, practicing in Pediatrics and Internal Medicine in Wilmington, Delaware. Dr. Kenkre is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Infant Hyperglycemia, GM1 Gangliosidosis, High Cholesterol, and Type 2 Diabetes (T2D).

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis

      Neurology Consultants Of Dallas - Allscripts

      8390 Lyndon B. Johnson Freeway, Suite 1000, 
      Dallas, TX 
      Languages Spoken:
      English, Latin, Spanish
      Accepting New Patients

      Steven Gerhardt is a Neurologist in Dallas, Texas. Dr. Gerhardt is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Stroke, Distal Median Nerve Dysfunction, Foot Drop, and Common Peroneal Nerve Dysfunction. Dr. Gerhardt is currently accepting new patients.

      Advanced in GM1 Gangliosidosis
      Neuroradiology
      Advanced in GM1 Gangliosidosis
      Neuroradiology
      9000 Rockville Pike, Building 10/1c351, 
      Bethesda, MD 
      Languages Spoken:
      English

      Eva Baker is a Neuroradiologist in Bethesda, Maryland. Dr. Baker is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Sandhoff Disease, Chediak-Higashi Syndrome, and Neurofibromatosis.

      Advanced in GM1 Gangliosidosis
      Advanced in GM1 Gangliosidosis

      Mayo Clinic Health System-Northwest Wisconsin Region Inc

      1400 Bellinger St, 
      Eau Claire, WI 
      Languages Spoken:
      English, Filipino, Mandarin
      Accepting New Patients
      Offers Telehealth

      Joannabelle Cosiquien is a primary care provider, practicing in Family Medicine in Eau Claire, Wisconsin. Dr. Cosiquien is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Diabetic Nephropathy, Macroamylasemia, and Type 2 Diabetes (T2D). Dr. Cosiquien is currently accepting new patients.

      Advanced in GM1 Gangliosidosis
      Medical Genetics | Pediatrics
      Advanced in GM1 Gangliosidosis
      Medical Genetics | Pediatrics

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Joshua Baker is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Baker is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Ornithine Transcarbamylase Deficiency, Urea Cycle Disorders (UCD), Acid Sphingomyelinase Deficiency (ASMD), and Propionic Acidemia.

      Advanced in GM1 Gangliosidosis
      Neurology | Pulmonary Medicine
      Advanced in GM1 Gangliosidosis
      Neurology | Pulmonary Medicine

      Mayo Clinic Health System-Northwest Wisconsin Region Inc

      1400 Bellinger St, 
      Eau Claire, WI 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Timothy Young is a Neurologist and a Pulmonary Medicine provider in Eau Claire, Wisconsin. Dr. Young is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Distal Median Nerve Dysfunction, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), and Spinal and Bulbar Muscular Atrophy. Dr. Young is currently accepting new patients.

      Advanced in GM1 Gangliosidosis
      Advanced in GM1 Gangliosidosis

      Ilm Medical Care PLLC

      128 Beach 115th St, 
      Rockaway Park, NY 
      Languages Spoken:
      English

      Marcel Benoit is a Nephrologist in Rockaway Park, New York. Dr. Benoit is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are High Potassium Level, GM1 Gangliosidosis, Necrosis, and Low Potassium Level.

      Advanced in GM1 Gangliosidosis
      Nurse Practitioner
      Advanced in GM1 Gangliosidosis
      Nurse Practitioner

      Cora Health Services, Inc.

      7015 Beracasa Way, Cora Physical Therapy W Bo, 
      Boca Raton, FL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kettia Alusma-Hibbert is a Nurse Practitioner in Boca Raton, Florida. Ms. Alusma-Hibbert is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Muscle Spasms, Relapsing Multiple Sclerosis (RMS), and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease. Ms. Alusma-Hibbert is currently accepting new patients.

      Advanced in GM1 Gangliosidosis
      Advanced in GM1 Gangliosidosis
      4570 Childrens Pl, 
      Saint Louis, MO 
      Languages Spoken:
      English

      Daniel Ory is a Cardiologist in Saint Louis, Missouri. Dr. Ory is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Niemann-Pick Disease, GM1 Gangliosidosis, Lysosomal Acid Lipase Deficiency, and Sandhoff Disease.

      Advanced in GM1 Gangliosidosis
      Neuromusculoskeletal Medicine | Neurology
      Advanced in GM1 Gangliosidosis
      Neuromusculoskeletal Medicine | Neurology

      Icahn School Of Medicine At Mount Sinai

      1000 10th Ave, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Shanna Patterson is a Neuromusculoskeletal Medicine specialist and a Neurologist in New York, New York. Dr. Patterson is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Peripheral Neuropathy, Cramp-Fasciculation Syndrome, and Gangliosidosis.

      Showing 1-20 of 130

      Last Updated: 10/30/2025

      What is the definition of GM1 Gangliosidosis?

      GM1 gangliosidosis is an inherited disorder that destroys nerve cells (neurons) in the brain and spinal cord. This condition can be classified as one of three major types based on the age at which signs and symptoms first appear. However, the signs and symptoms of these three types can overlap, leading some researchers to believe that GM1 gangliosidosis occurs on a spectrum instead of as three distinct types.

      When should I see a GM1 Gangliosidosis doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a GM1 Gangliosidosis doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank GM1 Gangliosidosis doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by GM1 Gangliosidosis doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a GM1 Gangliosidosis doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. 

      Why is it important to get a second opinion from a different GM1 Gangliosidosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a GM1 Gangliosidosis doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my GM1 Gangliosidosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my GM1 Gangliosidosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female GM1 Gangliosidosis doctors in The United States?

      Look for the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a GM1 Gangliosidosis doctor that offers video calls?

      Look for the filter feature on the left-side of the GM1 Gangliosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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