The 20 Best GM1 Gangliosidosis Doctors Near Me

Find the Top GM1 Gangliosidosis Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 648 doctor with experience in GM1 Gangliosidosis. Of these, 514 are Experienced, 115 are Advanced, 17 are Distinguished and 2 are Elite.

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648 providers found
    Elite in GM1 Gangliosidosis
    Medical Genetics
    Elite in GM1 Gangliosidosis
    Medical Genetics
    Referral may be required
    111 Michigan Ave Nw, 
    Washington, DC 
    Languages Spoken:
    English

    Cynthia Tifft is a Medical Genetics provider practicing medicine in Washington, Washington, D.c.. Dr. Tifft is rated as an Elite provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Sandhoff Disease, Gangliosidosis, GM1 Gangliosidosis, and Tay-Sachs Disease.

    Elite in GM1 Gangliosidosis
    Pediatric Neurology
    Elite in GM1 Gangliosidosis
    Pediatric Neurology
    Referral may be required

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
    Languages Spoken:
    English

    Maria Acosta is a Pediatric Neurologist practicing medicine in Silver Spring, Maryland. Dr. Acosta is rated as an Elite provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Neurofibromatosis, Sandhoff Disease, and Autism Spectrum Disorder.

    Experienced in GM1 Gangliosidosis
    Family Medicine
    Experienced in GM1 Gangliosidosis
    Family Medicine

    Tower Health Medical Group Family Medicine - West Lawn

    2209 Quarry Dr, Ste C34, 
    West Lawn, PA 
    Languages Spoken:
    English
    Offers Telehealth

    Charles Givens is a primary care provider, practicing in Family Medicine in West Lawn, Pennsylvania. Dr. Givens is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Lung Metastases. Dr. Givens is board certified in American Board Of Family Medicine.

    Learn about our expert tiers
    Distinguished in GM1 Gangliosidosis
    Pediatrics | Medical Genetics
    Distinguished in GM1 Gangliosidosis
    Pediatrics | Medical Genetics
    Referral may be required

    M Health Fairview Explorer Pediatric Specialty Clinic

    12th Flr, East Bld 2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Chester Whitley is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Minneapolis, Minnesota. Dr. Whitley is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A), and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Whitley is board certified in Clinical Genetics And Genomics: American Board Of Medical Genetics And Genomics, 1984 and Clinical Biochemical Genetics: American Board Of Medical Genetics And Genomics, 1984. Dr. Whitley is currently accepting new patients.

    Advanced in GM1 Gangliosidosis
    Pediatrics | Internal Medicine
    Advanced in GM1 Gangliosidosis
    Pediatrics | Internal Medicine
    Referral may be required

    Primary Care Limestone

    4512 Kirkwood Highway, Suite 300, 
    Wilmington, DE 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Poorwa Kenkre is a primary care provider, practicing in Pediatrics and Internal Medicine in Wilmington, Delaware. Dr. Kenkre is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Infant Hyperglycemia, GM1 Gangliosidosis, High Cholesterol, and Type 2 Diabetes (T2D). Dr. Kenkre is currently accepting new patients.

    Experienced in GM1 Gangliosidosis
    Pediatric Pulmonology
    Experienced in GM1 Gangliosidosis
    Pediatric Pulmonology
    Referral may be required

    University Hospitals

    11100 Euclid Ave, 
    Cleveland, OH 
    Languages Spoken:
    English
    Accepting New Patients

    Ross Myers is a Pediatric Pulmonologist practicing medicine in Cleveland, Ohio. Dr. Myers is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. His clinical expertise encompasses Cystic Fibrosis, Asthma, GM1 Gangliosidosis, and Secondary Immunodeficiency (SID). Dr. Myers is currently accepting new patients.

    Experienced in GM1 Gangliosidosis
    Experienced in GM1 Gangliosidosis
    Referral may be required

    University Hospitals

    11100 Euclid Ave, 
    Cleveland, OH 
    Languages Spoken:
    English
    Accepting New Patients

    Erin Frank is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Frank is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. Her clinical expertise encompasses GM1 Gangliosidosis, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Delayed Growth, and Cerebral Hypoxia. Dr. Frank is currently accepting new patients.

    Distinguished in GM1 Gangliosidosis
    Distinguished in GM1 Gangliosidosis
    Referral may be required

    Radiology Regional Center P A

    14551 Hope Center Loop Ste 100, 
    Fort Myers, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Zeynep Vardar is a Radiologist practicing medicine in Fort Myers, Florida. Dr. Vardar is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Sandhoff Disease, Arteriovenous Malformation, and Thrombectomy. Dr. Vardar is currently accepting new patients.

    Distinguished in GM1 Gangliosidosis
    Distinguished in GM1 Gangliosidosis
    Referral may be required
    Advanced Course, 
    Nagaoka, JP 

    Yoshiyuki Suzuki practices practicing medicine in Nagaoka, Japan. Mr. Suzuki is rated as a Distinguished expert by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses GM1 Gangliosidosis, Gangliosidosis, Fabry Disease, and Gaucher Disease.

    Distinguished in GM1 Gangliosidosis
    Medical Genetics | Pediatrics
    Distinguished in GM1 Gangliosidosis
    Medical Genetics | Pediatrics
    Referral may be required
    10 Center Drive Msc 1851, Bldg. 10, Room 10c-103, Nhgri, Nih, 
    Bethesda, MD 
    Languages Spoken:
    English

    William Gahl is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Bethesda, Maryland. Dr. Gahl is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Oculocutaneous Albinism Type 2, Hermansky-Pudlak Syndrome, Oculocutaneous Albinism Type 1, Oculocutaneous Albinism, and Deep Brain Stimulation.

    Distinguished in GM1 Gangliosidosis
    Distinguished in GM1 Gangliosidosis
    Referral may be required
    Porto Alegre, RS, BR 

    Roberto Giugliani practices practicing medicine in Porto Alegre, Brazil. Mr. Giugliani is rated as a Distinguished expert by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Acid Sphingomyelinase Deficiency (ASMD), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), and Bone Marrow Transplant.

    Distinguished in GM1 Gangliosidosis
    Distinguished in GM1 Gangliosidosis
    Referral may be required
    Hannover, NI, DE 

    Rouven Wannemacher practices practicing medicine in Hannover, Germany. Wannemacher is rated as a Distinguished expert by MediFind in the treatment of GM1 Gangliosidosis. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses GM1 Gangliosidosis and Gangliosidosis.

    Distinguished in GM1 Gangliosidosis
    Distinguished in GM1 Gangliosidosis
    Referral may be required
    Florence, IT 

    Amelia Morrone practices practicing medicine in Florence, Italy. Ms. Morrone is rated as a Distinguished expert by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), Brachydactyly Mononen Type, Mucopolysaccharidosis Type 4A (MPS IVA, Morquio Syndrome Type A), and PMM2-Congenital Disorder of Glycosylation.

    Distinguished in GM1 Gangliosidosis
    Distinguished in GM1 Gangliosidosis
    Referral may be required

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
    Experience:
    17+ years
    Languages Spoken:
    English

    Debra Regier is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. She has been practicing medicine for over 17 years. Dr. Regier is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Cantu Syndrome, Malonyl-CoA Decarboxylase Deficiency, and Hyperlysinemia.

    Distinguished in GM1 Gangliosidosis
    Distinguished in GM1 Gangliosidosis
    Referral may be required
    Graz, AT 

    Martin Thonhofer practices practicing medicine in Graz, Austria. Mr. Thonhofer is rated as a Distinguished expert by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses GM1 Gangliosidosis, Gangliosidosis, Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), and Brachydactyly Mononen Type.

    Distinguished in GM1 Gangliosidosis
    Distinguished in GM1 Gangliosidosis
    Referral may be required
    Kagoshima, JP 

    Osamu Yamato practices practicing medicine in Kagoshima, Japan. Mr. Yamato is rated as a Distinguished expert by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Gangliosidosis, GM1 Gangliosidosis, Tay-Sachs Disease, and Sandhoff Disease.

    Distinguished in GM1 Gangliosidosis
    Distinguished in GM1 Gangliosidosis
    Referral may be required
    Florence, IT 

    Anna Caciotti practices practicing medicine in Florence, Italy. Ms. Caciotti is rated as a Distinguished expert by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), GM1 Gangliosidosis, Gangliosidosis, and Brachydactyly Mononen Type.

    Distinguished in GM1 Gangliosidosis
    Distinguished in GM1 Gangliosidosis
    Referral may be required
    Kagoshima, JP 

    Akira Yabuki practices practicing medicine in Kagoshima, Japan. Yabuki is rated as a Distinguished expert by MediFind in the treatment of GM1 Gangliosidosis. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Gangliosidosis, GM1 Gangliosidosis, Tay-Sachs Disease, and Aminoaciduria.

    Distinguished in GM1 Gangliosidosis
    Distinguished in GM1 Gangliosidosis
    Referral may be required
    9 Jinsui Rd, 
    Guangzhou, CN 

    Sichi Liu practices practicing medicine in Guangzhou, China. Liu is rated as a Distinguished expert by MediFind in the treatment of GM1 Gangliosidosis. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Carnitine-Acylcarnitine Translocase Deficiency, GM1 Gangliosidosis, Gangliosidosis, and Adrenoleukodystrophy (ALD).

    Distinguished in GM1 Gangliosidosis
    Distinguished in GM1 Gangliosidosis
    Referral may be required
    Yonago, JP 

    Katsumi Higaki practices practicing medicine in Yonago, Japan. Mr. Higaki is rated as a Distinguished expert by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, GM1 Gangliosidosis, and Reticulohistiocytoma.

    Showing 1-20 of 648

    Last Updated: 09/26/2026

    What is the definition of GM1 Gangliosidosis?

    GM1 gangliosidosis is an inherited disorder that destroys nerve cells (neurons) in the brain and spinal cord. This condition can be classified as one of three major types based on the age at which signs and symptoms first appear. However, the signs and symptoms of these three types can overlap, leading some researchers to believe that GM1 gangliosidosis occurs on a spectrum instead of as three distinct types.

    When should I see a GM1 Gangliosidosis doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a GM1 Gangliosidosis doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank GM1 Gangliosidosis doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by GM1 Gangliosidosis doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a GM1 Gangliosidosis doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. 

    Why is it important to get a second opinion from a different GM1 Gangliosidosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a GM1 Gangliosidosis doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my GM1 Gangliosidosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my GM1 Gangliosidosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female GM1 Gangliosidosis doctors near me?

    Look for the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a GM1 Gangliosidosis doctor that offers video calls?

    Look for the filter feature on the left-side of the GM1 Gangliosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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