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    Last Updated: 01/09/2026

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    MediFind found 17 doctor with experience in L1 Syndrome near Rochester, NY. Of these, 17 are Experienced.

    Location
    LocationClose
    17 providers found
      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Eric Logigian is a Neurologist in Rochester, New York. Dr. Logigian is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Meige Syndrome, Drug Induced Dyskinesia, and Multifocal Motor Neuropathy.

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      David Herrmann is a Neurologist in Rochester, New York. Dr. Herrmann is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Charcot-Marie-Tooth Disease, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, and Spinal Muscular Atrophy with Arthrogryposis.

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      The Unity Hospital Of Rochester

      158 Orchard St, 
      Rochester, NY 
       (1.2 miles away)
      Languages Spoken:
      English

      Nithyanandini Namassivaya is a Physiatrist in Rochester, New York. Dr. Namassivaya is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Stroke, Hemiplegia, Spasticity, and Spastic Paraplegia Type 5A.

      Learn about our expert tiers
      Experienced in L1 Syndrome
      Geriatrics | Internal Medicine
      Experienced in L1 Syndrome
      Geriatrics | Internal Medicine

      St Johns Health Care Corporation

      150 Highland Ave, 
      Rochester, NY 
       (1.8 miles away)
      Languages Spoken:
      English

      Heather Sobel is a primary care provider, practicing in Geriatrics and Internal Medicine in Rochester, New York. Dr. Sobel is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Dementia, Pericarditis, Vascular Dementia, and Anemia.

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      University Of Rochester

      738 Library Rd, 
      Rochester, NY 
       (2.1 miles away)
      Languages Spoken:
      English

      Emma Ciafaloni is a Neurologist in Rochester, New York. Dr. Ciafaloni is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Thymectomy.

      Experienced in L1 Syndrome
      Pediatric Hematology Oncology
      Experienced in L1 Syndrome
      Pediatric Hematology Oncology
      601 Elmwood Ave, Box 635, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Barbara Asselin is a Pediatric Hematologist Oncology provider in Rochester, New York. Dr. Asselin is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Leukemia, Adult T-Cell Leukemia, and L1 Syndrome.

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Lawrence Samkoff is a Neurologist in Rochester, New York. Dr. Samkoff is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Multiple Sclerosis (MS), Encephalitis, Rasmussen Encephalitis, and Anti-NMDA Receptor Encephalitis.

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      University Of Rochester

      601 Elmwood Ave, Box 684, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Benzi Kluger is a Neurologist in Rochester, New York. Dr. Kluger is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Parkinson's Disease, Movement Disorders, Supranuclear Ophthalmoplegia, Progressive Supranuclear Palsy Atypical, and Gastrostomy.

      Experienced in L1 Syndrome
      Pediatrics | Internal Medicine
      Experienced in L1 Syndrome
      Pediatrics | Internal Medicine

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Michael Gavin is a primary care provider, practicing in Pediatrics and Internal Medicine in Rochester, New York. Dr. Gavin is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Fragile XE Syndrome, Fragile X Syndrome, Chondrodystrophy, and Mevalonate Kinase Deficiency.

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      University Of Rochester

      601 Elmwood Ave, Box 684, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Douglas Fetkenhour is a Physiatrist in Rochester, New York. Dr. Fetkenhour is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Stroke, Paraplegia, Opisthotonos, and Muscle Spasms.

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      University Of Rochester

      601 Elmwood Ave, Box 684, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jean Nickels is a Physiatrist in Rochester, New York. Dr. Nickels is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Stroke, Cerebral Palsy, Paraplegia, and Spastic Diplegia Infantile Type.

      Experienced in L1 Syndrome
      Anesthesiology | Neurology
      Experienced in L1 Syndrome
      Anesthesiology | Neurology
      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      John Markman is an Anesthesiologist and a Neurologist in Rochester, New York. Dr. Markman is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Neuralgia, Chronic Pain, Drug Induced Dyskinesia, Rhizotomy, and Laminectomy.

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome
      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Alrabi Tawil is a Neurologist in Rochester, New York. Dr. Tawil is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Spinal Muscular Atrophy (SMA), Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Limb-Girdle Muscular Dystrophy Type 1B.

      Experienced in L1 Syndrome
      Internal Medicine
      Experienced in L1 Syndrome
      Internal Medicine

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Matthew Brockway is a primary care provider, practicing in Internal Medicine in Rochester, New York. Dr. Brockway is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Protein S Deficiency.

      Experienced in L1 Syndrome
      Nurse Practitioner | Neurology
      Experienced in L1 Syndrome
      Nurse Practitioner | Neurology
      601 Elwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Amy Luce is a Nurse Practitioner specialist and a Neurologist in Rochester, New York. Ms. Luce is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Multifocal Motor Neuropathy, Chronic Inflammatory Demyelinating Polyneuropathy, Myasthenia Gravis, and Sensorimotor Polyneuropathy.

      Experienced in L1 Syndrome
      Internal Medicine
      Experienced in L1 Syndrome
      Internal Medicine

      University Of Rochester

      2400 S Clinton Ave, Bldg H, 
      Rochester, NY 
       (3.2 miles away)
      Languages Spoken:
      English

      Andrew Kane is a primary care provider, practicing in Internal Medicine in Rochester, New York. Dr. Kane is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are VIPoma, Somatostatinoma, Maturity Onset Diabetes of the Young, and High Cholesterol.

      Experienced in L1 Syndrome
      Geriatrics | Internal Medicine
      Experienced in L1 Syndrome
      Geriatrics | Internal Medicine

      The Unity Hospital Of Rochester

      1561 Long Pond Rd, Suite 414, 
      Rochester, NY 
       (5.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Paul Katz is a primary care provider, practicing in Geriatrics and Internal Medicine in Rochester, New York. Dr. Katz is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Prolidase Deficiency, Peripheral Neuropathy, Dementia, and COVID-19. Dr. Katz is currently accepting new patients.

      Showing 1-17 of 17

      Last Updated: 01/09/2026

      What is the definition of L1 Syndrome?

      L1 syndrome describes a group of conditions that primarily affect the nervous system and occur almost exclusively in males. These conditions vary in severity and include, from most severe to least, X-linked hydrocephalus with stenosis of the aqueduct of Sylvius (HSAS), MASA syndrome, spastic paraplegia type 1, and X-linked complicated corpus callosum agenesis.

      When should I see a L1 Syndrome doctor near Rochester, NY?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a L1 Syndrome doctor near Rochester, NY?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank L1 Syndrome doctors near Rochester, NY?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by L1 Syndrome doctors near Rochester, NY?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a L1 Syndrome doctor near Rochester, NY?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the L1 Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different L1 Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a L1 Syndrome doctor near Rochester, NY?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my L1 Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my L1 Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female L1 Syndrome doctors near Rochester, NY?

      Look for the filter feature on the left side of the L1 Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a L1 Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the L1 Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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