The 20 Best Lafora Disease Doctors Near Me in Rochester, NY

Find the Top Lafora Disease Experts and Specialists

The 20 Best Lafora Disease Doctors near Rochester, NY

Last Updated: 02/22/2026

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MediFind found 27 doctor with experience in Lafora Disease near Rochester, NY. Of these, 25 are Experienced and 2 are Advanced.

Location
LocationClose
27 providers found
    Advanced in Lafora Disease
    Neurology
    Advanced in Lafora Disease
    Neurology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Derek Bauer is a Neurologist in Rochester, New York. Dr. Bauer is rated as an Advanced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Memory Loss, Partial Seizure, and Partial Familial Epilepsy.

    Experienced in Lafora Disease
    Neurology
    Experienced in Lafora Disease
    Neurology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Deana Bonno is a Neurologist in Rochester, New York. Dr. Bonno has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Seizures, Memory Loss, Partial Seizure, and Partial Familial Epilepsy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Thomas Wychowski is a Neurologist in Rochester, New York. Dr. Wychowski is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Memory Loss, Generalized Tonic-Clonic Seizure, and Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE).

    Learn about our expert tiers
    Experienced in Lafora Disease
    Neurology
    Experienced in Lafora Disease
    Neurology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Michel Berg is a Neurologist in Rochester, New York. Dr. Berg is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Epilepsy, Memory Loss, and Generalized Tonic-Clonic Seizure.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Michael Chilungu is a Neurologist in Rochester, New York. Dr. Chilungu is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Stroke, Susac Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Gastrostomy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Trenton Tollefson is a Neurologist in Rochester, New York. Dr. Tollefson is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Lennox-Gastaut Syndrome (LGS), Memory Loss, and Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE).

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    Office

    2101 Lac De Ville Blvd Ste 1, 
    Rochester, NY 
     (4.0 miles away)
    Languages Spoken:
    English

    Allen Pettee is a Neurologist in Rochester, New York. Dr. Pettee is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Migraine, Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), and Peripheral Neuropathy.

    Advanced in Lafora Disease
    Advanced in Lafora Disease

    Department Of Neurology-Westfall Road Clinic At Clinton Crossings

    919 Westfall Rd Ste 220, 
    Rochester, NY 
     (4.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Anthony Maroldo is a Neurologist in Rochester, New York. Dr. Maroldo is rated as an Advanced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Memory Loss, Seizures, Unverricht-Lundborg Syndrome, and Lafora Disease.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    University Of Rochester Department Of Neurological

    601 Elmwood Ave # 278984278984, 
    Rochester, NY 
     (0.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Patricia Rogers is a Neurologist in Rochester, New York. Dr. Rogers is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Lennox-Gastaut Syndrome (LGS), Memory Loss, Seizures, and West Syndrome.

    Experienced in Lafora Disease
    Internal Medicine
    Experienced in Lafora Disease
    Internal Medicine

    Rochester General Hospital

    1425 Portland Ave Ste 206, 
    Rochester, NY 
     (2.3 miles away)
    Languages Spoken:
    English

    Rebecca Wadsworth is a primary care provider, practicing in Internal Medicine in Rochester, New York. Dr. Wadsworth is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Unverricht-Lundborg Syndrome, Lafora Disease, Progressive Myoclonic Epilepsy, and Dravet Syndrome.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    James Gugger is a Neurologist in Rochester, New York. Dr. Gugger is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Landau-Kleffner Syndrome.

    Experienced in Lafora Disease
    Internal Medicine
    Experienced in Lafora Disease
    Internal Medicine

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Ralph Jozefowicz is an Internal Medicine provider in Rochester, New York. Dr. Jozefowicz is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Memory Loss, Epilepsy, and Partial Familial Epilepsy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Lawrence Samkoff is a Neurologist in Rochester, New York. Dr. Samkoff is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Multiple Sclerosis (MS), Encephalitis, Anti-NMDA Receptor Encephalitis, and Rasmussen Encephalitis.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Michael Stanton is a Neurologist in Rochester, New York. Dr. Stanton is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Partial Familial Epilepsy, Congenital Insensitivity to Pain with Anhidrosis, Hereditary Sensory and Autonomic Neuropathy Type 2, and Infantile Axonal Neuropathy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Heidi Schwarz is a Neurologist in Rochester, New York. Dr. Schwarz is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Migraine, Cluster Headache, Headache, and Seizures.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    Smithkline Beecham Clinical Labs

    919 Westfall Rd, 
    Rochester, NY 
     (3.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Joseph Modica is a Neurologist in Rochester, New York. Dr. Modica is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Mitochondrial Trifunctional Protein Deficiency, Mitochondrial Complex 3 Deficiency, Coenzyme Q Cytochrome C Reductase Deficiency, and Mitochondrial Complex 1 Deficiency.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    Office

    2101 Lac De Ville Blvd Ste 1, 
    Rochester, NY 
     (4.0 miles away)
    Languages Spoken:
    English

    James Azurin is a Neurologist in Rochester, New York. Dr. Azurin is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Migraine, Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Increased Intracranial Pressure, and Pseudotumor Cerebri Syndrome.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    Department Of Neurology-Westfall Road Clinic At Clinton Crossings

    919 Westfall Rd Ste 220, 
    Rochester, NY 
     (4.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Olga Selioutski is a Neurologist in Rochester, New York. Dr. Selioutski is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Epilepsy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    Office

    919 Westfall Rd Bldg C, 
    Rochester, NY 
     (4.0 miles away)
    Languages Spoken:
    English

    Colleen Tomcik is a Neurologist in Rochester, New York. Dr. Tomcik is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Seizures, Migraine, Memory Loss, and Epilepsy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    Office

    919 Westfall Rd Bldg C, 
    Rochester, NY 
     (4.0 miles away)
    Languages Spoken:
    English

    Irene Richard is a Neurologist in Rochester, New York. Dr. Richard is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Parkinson's Disease, Movement Disorders, Tourette Syndrome, Seizures, and Gastrostomy.

    Showing 1-20 of 27

    Last Updated: 02/22/2026

    What is the definition of Lafora Disease?

    Lafora disease is an inherited, severe form of progressive myoclonus epilepsy. The condition most commonly begins with epileptic seizures in late childhood or adolescence. Other signs and symptoms include difficulty walking, muscle spasms (myoclonus) and dementia. Affected people also experience rapid cognitive deterioration that begins around the same time as the seizures. Most cases are caused by changes in either the EPM2A gene or the NHLRC1 gene and are inherited in an autosomal recessive manner.

    When should I see a Lafora Disease doctor near Rochester, NY?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Lafora Disease doctor near Rochester, NY?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Lafora Disease doctors near Rochester, NY?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Lafora Disease doctors near Rochester, NY?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Lafora Disease doctor near Rochester, NY?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Lafora Disease doctor search results page. 

    Why is it important to get a second opinion from a different Lafora Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Lafora Disease doctor near Rochester, NY?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Lafora Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Lafora Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Lafora Disease doctors near Rochester, NY?

    Look for the filter feature on the left side of the Lafora Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Lafora Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Lafora Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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