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    Last Updated: 10/30/2025

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    MediFind found 23 doctor with experience in Lafora Disease near Rochester, NY. Of these, 19 are Experienced and 4 are Advanced.

    Location
    LocationClose
    23 providers found
      Advanced in Lafora Disease
      Advanced in Lafora Disease

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Derek Bauer is a Neurologist in Rochester, New York. Dr. Bauer is rated as an Advanced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Memory Loss, Partial Seizure, and Partial Familial Epilepsy.

      Advanced in Lafora Disease
      Advanced in Lafora Disease

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Anthony Maroldo is a Neurologist in Rochester, New York. Dr. Maroldo is rated as an Advanced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Memory Loss, Seizures, Unverricht-Lundborg Syndrome, and Lafora Disease.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Lafora Disease
      Experienced in Lafora Disease

      The Unity Hospital Of Rochester

      158 Orchard St, 
      Rochester, NY 
       (1.2 miles away)
      Languages Spoken:
      English

      Natan Khishchenko is a Neurologist in Rochester, New York. Dr. Khishchenko is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Distal Median Nerve Dysfunction, Generalized Tonic-Clonic Seizure, Seizures, and Stroke.

      Learn about our expert tiers
      Experienced in Lafora Disease
      Experienced in Lafora Disease

      University Of Rochester

      738 Library Rd, 
      Rochester, NY 
       (2.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Trenton Tollefson is a Neurologist in Rochester, New York. Dr. Tollefson is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Lennox-Gastaut Syndrome (LGS), Memory Loss, and Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE).

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      U Of R Neurology Department

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      James Gugger is a Neurologist in Rochester, New York. Dr. Gugger is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Landau-Kleffner Syndrome.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Experience:
      46+ years
      Languages Spoken:
      English

      Ralph Jozefowicz is a Neurologist in Rochester, New York. Dr. Jozefowicz has been practicing medicine for over 46 years and is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Memory Loss, Epilepsy, and Partial Familial Epilepsy.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Lawrence Samkoff is a Neurologist in Rochester, New York. Dr. Samkoff is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Multiple Sclerosis (MS), Encephalitis, Relapsing Multiple Sclerosis (RMS), and Anti-NMDA Receptor Encephalitis.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      University Of Rochester

      601 Elmwood Ave, Box 684, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Michael Stanton is a Neurologist in Rochester, New York. Dr. Stanton is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Partial Familial Epilepsy, Infantile Axonal Neuropathy, Gastrostomy, and Endoscopy.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Colleen Tomcik is a Neurologist in Rochester, New York. Dr. Tomcik is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Seizures, Migraine, Memory Loss, and Epilepsy.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      U Of R Neurology Department

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Michel Berg is a Neurologist in Rochester, New York. Dr. Berg is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Epilepsy, Memory Loss, and Generalized Tonic-Clonic Seizure.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      University Of Rochester

      601 Elmwood Ave, Box 684, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Michael Chilungu is a Neurologist in Rochester, New York. Dr. Chilungu is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Stroke, Susac Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Gastrostomy.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      University Of Rochester

      601 Elmwood Ave, Box 684, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Heidi Schwarz is a Neurologist in Rochester, New York. Dr. Schwarz is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Migraine, Cluster Headache, Headache, and Seizures.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Maria Vivino is a Neurologist in Rochester, New York. Dr. Vivino is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Memory Loss, Partial Familial Epilepsy, Partial Seizure, and Seizures.

      Experienced in Lafora Disease
      Experienced in Lafora Disease
      2101 Lac De Ville Blvd, 
      Rochester, NY 
       (2.6 miles away)
      Languages Spoken:
      English

      Allen Pettee is a Neurologist in Rochester, New York. Dr. Pettee is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Migraine, Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), and Peripheral Neuropathy.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      Rochester General Hospital

      1425 Portland Ave, 
      Rochester, NY 
       (2.7 miles away)
      Languages Spoken:
      English

      James Azurin is a Neurologist in Rochester, New York. Dr. Azurin is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Migraine, Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Pseudotumor Cerebri Syndrome, and Increased Intracranial Pressure.

      Experienced in Lafora Disease
      Neurology
      Experienced in Lafora Disease
      Neurology
      919 Westfall Road, Bldg C220, 
      Rochester, NY 
       (3.0 miles away)
      Languages Spoken:
      English

      Seth Kolkin is a Neurologist in Rochester, New York. Dr. Kolkin is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Partial Familial Epilepsy, Memory Loss, and Essential Tremor.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      University Of Rochester

      919 Westfall Rd, Bldg C, 
      Rochester, NY 
       (3.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Irene Richard is a Neurologist in Rochester, New York. Dr. Richard is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Parkinson's Disease, Movement Disorders, Tourette Syndrome, Seizures, and Gastrostomy.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      University Of Rochester

      919 Westfall Rd, Suite C220, 
      Rochester, NY 
       (3.0 miles away)
      Languages Spoken:
      English

      Raissa Villanueva is a Neurologist in Rochester, New York. Dr. Villanueva is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Migraine, Cluster Headache, Migraine with Brainstem Aura, and Restless Legs Syndrome.

      Experienced in Lafora Disease
      Neurology | Nurse Practitioner
      Experienced in Lafora Disease
      Neurology | Nurse Practitioner

      University Of Rochester

      4901 Lac De Ville Blvd, 
      Rochester, NY 
       (3.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Patricia Rogers is a Neurologist and a Nurse Practitioner in Rochester, New York. Ms. Rogers is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Lennox-Gastaut Syndrome (LGS), Memory Loss, Seizures, and West Syndrome.

      Advanced in Lafora Disease
      Advanced in Lafora Disease

      Ontario Neurology Associates

      30 Hagen Dr, Suite 230, 
      Rochester, NY 
       (5.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Lawrence Pardee is a Neurologist in Rochester, New York. Dr. Pardee is rated as an Advanced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Lafora Disease, Unverricht-Lundborg Syndrome, Progressive Myoclonic Epilepsy, and Dravet Syndrome.

      Showing 1-20 of 23

      Last Updated: 10/30/2025

      What is the definition of Lafora Disease?

      Lafora disease is an inherited, severe form of progressive myoclonus epilepsy. The condition most commonly begins with epileptic seizures in late childhood or adolescence. Other signs and symptoms include difficulty walking, muscle spasms (myoclonus) and dementia. Affected people also experience rapid cognitive deterioration that begins around the same time as the seizures. Most cases are caused by changes in either the EPM2A gene or the NHLRC1 gene and are inherited in an autosomal recessive manner.

      When should I see a Lafora Disease doctor near Rochester, NY?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Lafora Disease doctor near Rochester, NY?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Lafora Disease doctors near Rochester, NY?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Lafora Disease doctors near Rochester, NY?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Lafora Disease doctor near Rochester, NY?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Lafora Disease doctor search results page. 

      Why is it important to get a second opinion from a different Lafora Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Lafora Disease doctor near Rochester, NY?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Lafora Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Lafora Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Lafora Disease doctors near Rochester, NY?

      Look for the filter feature on the left side of the Lafora Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Lafora Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Lafora Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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