Bassel Shneker is a Neurologist in Columbia, Maryland. Dr. Shneker is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. His top areas of expertise are Cervical Myelopathy, Hemangioblastoma, Dysembryoplastic Neuroepithelial Tumors (DNET), and Brain Stem Cancer.

Vijay Maggio is a Neurologist in Columbia, Maryland. Dr. Maggio is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are Cervical Myelopathy, Spinal Tumor, Subependymoma, and Brain Stem Cancer.

Liliana Robles is a Neurologist in Columbia, Maryland. Dr. Robles is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are Cervical Myelopathy, Dysembryoplastic Neuroepithelial Tumors (DNET), Brain Stem Cancer, and Hemangioblastoma.

Sonia Krish is a Neurologist in Columbia, Maryland. Dr. Krish has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are Cervical Myelopathy, Hemangioblastoma, Invertebral Disc Disease, and Spinal Tumor.

Evgeny Tsimerinov is a Neurologist in Columbia, Maryland. Dr. Tsimerinov is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. His top areas of expertise are Cervical Myelopathy, Dysembryoplastic Neuroepithelial Tumors (DNET), Invertebral Disc Disease, and Brain Stem Cancer.

Sushma Jani is a Psychiatrist and a Child and Adolescent Psychiatrist in Columbia, Maryland. Dr. Jani is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are Bipolar Disorder (BPD), Seasonal Affective Disorder (SAD), Major Depression, and Generalized Anxiety Disorder (GAD).

Meghan Meghpara is a Pediatrics provider in Columbia, Maryland. Dr. Meghpara is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Microcephaly, Asthma in Children, and Delayed Growth.

Ronald Luethke is a Plastic Surgeon in Columbia, Maryland. Dr. Luethke is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. His top areas of expertise are Keloids, Breast Enlargement In Males, Squamous Cell Skin Carcinoma, and Basal Cell Skin Cancer.

Suni Jani is a Child and Adolescent Psychiatrist and a Psychiatrist in Columbia, Maryland. Dr. Jani is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are Oppositional Defiant Disorder (ODD), Seasonal Affective Disorder (SAD), Major Depression, and Bipolar Disorder (BPD). Dr. Jani is currently accepting new patients.

Lisa Carroll is a Physician Assistant and a Dermatologist in Columbia, Maryland. Ms. Carroll is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are Warts, Actinic Keratosis, Seborrheic Keratosis, and Fetal Cystic Hygroma. Ms. Carroll is currently accepting new patients.

Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as an Advanced provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy.

Chad Gordon is a Plastic Surgeon in Baltimore, Maryland. Dr. Gordon is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. His top areas of expertise are Neurofibromatosis, Legius Syndrome, Neurofibromatosis Type 1 (NF1), Osteotomy, and Bone Graft.

Nurse practitioner Shannon Langmead specializes in neurofibromatosis and is the clinic coordinator of the Johns Hopkins Comprehensive Neurofibromatosis (NF) Center. She evaluates and manages patients with NF1, NF2 and Schwannomatosis. Her special interests include pain management and developing social support networks for patients who have NF. Shannon earned bachelor’s degrees in Spanish and nursing from Saint Francis University in Pennsylvania and Villa Julie College in Maryland, and completed her master’s degree in nursing at The Johns Hopkins University School of Nursing. She has worked as a bedside nurse in neurology and neurosurgery at The Johns Hopkins Hospital and as a part-time clinical faculty member for The Johns Hopkins University School of Nursing. Ms. Langmead is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are Neurofibromatosis, RASopathies, Neurofibromatosis Type 1 (NF1), and Legius Syndrome.

Dr. Allan Belzberg is a neurosurgeon specializing in surgery of the peripheral nervous system. As Director of Peripheral Nerve Surgery at Johns Hopkins in Baltimore, he treats tumors including schwannoma, neurofibroma and nerve sheath tumor. Dr. Belzberg performs surgical repair of nerve damage caused by trauma as well as neurosurgery on carpal tunnel, peroneal nerve and other peripheral nerve conditions. Dr. Belzberg also directs the Brachial Plexus and Peripheral Nerve Clinic at the Kennedy Krieger Institute and co-directs the Neurosurgery Pain Research Institute at Johns Hopkins Hospital. Dr. Belzberg currently sees patients at the Johns Hopkins Outpatient Center located in Baltimore on Wednesdays and the Green Spring Station location on Fridays. Dr. Belzberg is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. His top areas of expertise are Schwannomatosis, Neurofibromatosis, Thoracic Outlet Syndrome, Osteotomy, and Rhizotomy.

Dr. Barañano earned her M.D. and Ph.D. degrees from the Johns Hopkins University School of Medicine, where she also completed residencies in pediatrics and neurology, along with a fellowship in neurogenetics at the Kennedy Krieger Institute. Dr. Barañano is an Associate Professor of Clinical Neurology. She specializes in the diagnosis and management of rare neurogenetic disorders. She has a particular interest in the genetic control and function of the cerebellum and expertise in childhood-onset and inherited ataxias. She is a member of the multidisciplinary Fetal Management group and is available for prenatal consultations. Dr. Barañano's research includes collaborative efforts with the Johns Hopkins Department of Genetic Medicine and the Division of Neurogenetics at the Kennedy Krieger Institute. Dr. Baranano is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are Hypotonia, Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, Focal or Multifocal Malformations in Neuronal Migration, and Hereditary Ataxia.

Mari Groves is a Johns Hopkins pediatric neurosurgeon who cares for children with brain and spinal cord tumors (benign and cancerous), skeletal dysplasia, and spinal deformities such as neuromuscular and early scoliosis. She also sees patients diagnosed with Chiari malformations, spasticity and epilepsy. She specializes in treating patients with all types of spina bifida, including myelomeningocele. As part of the Johns Hopkins Center for Fetal Therapy, she is an expert in prenatal closure techniques such as minimally invasive fetoscopic repair of myelomeningocele (when the spina bifida defect is repaired before birth). Offering a transitional practice model of care, she follows patients diagnosed with spina bifida from birth to adulthood. Dr. Groves chose to pursue neurosurgery because it allows her to treat patients with complex conditions and help improve the quality of children’s lives. Her research interests focus on pediatric spinal disease and how surgical intervention can impact growth and neurological function during a child’s life. She is committed to building programs that support patients with congenital disorders as they age. Pediatric patients often age out of existing programs and have difficulty locating physicians and treating teams that understand their conditions. At Johns Hopkins, we have a unique ability to provide this type of comprehensive care. Dr. Groves earned her medical degree from the Vanderbilt University School of Medicine in 2007. She completed residency training in 2014 at The Johns Hopkins Hospital, where she remained for a neurosurgery fellowship, which she finished in 2015. She also completed a spinal deformity fellowship at Shriners Hospitals for Children in Philadelphia. Dr. Groves is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are Spinal Tumor, Myelomeningocele, Tethered Cord Syndrome, Osteotomy, and Laminectomy.

Seth Eaton is a primary care provider, practicing in Family Medicine and Internal Medicine in Laurel, Maryland. Dr. Eaton is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. His top areas of expertise are Obesity in Children, Food Allergy, Multisystem Inflammatory Syndrome in Children (MIS-C), and COVID-19. Dr. Eaton is currently accepting new patients.

Kashif Ali is a Hematologist Oncology specialist and a Hematologist in Laurel, Maryland. Dr. Ali is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. His top areas of expertise are Iron Deficiency Anemia, Agranulocytosis, Chronic Familial Neutropenia, and Childhood Iron Deficiency Anemia. Dr. Ali is currently accepting new patients.

Jennifer Powers is a Plastic Surgeon and a Dermatologist in Baltimore, Maryland. Dr. Powers is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are Basal Cell Skin Cancer, Actinic Keratosis, Pityriasis Rubra Pilaris, and Squamous Cell Skin Carcinoma.

Dr. Berger is Associate Professor in the Johns Hopkins Division of General Internal Medicine and Core Faculty at the Johns Hopkins Berman Institute of Bioethics, with joint appointment in the Johns Hopkins Bloomberg School of Public Health. With an active practice in primary care internal medicine at Johns Hopkins, Dr. Berger focuses his clinical, educational, and research work, as well as his widely read publications for the lay public, on the ways in which shared decision making in the doctor-patient encounter might be in conflict with medical evidence and the political, social, and psychological realities of the patient. Dr. Berger teaches residents in their internal medicine clinic and medical students on the wards at Johns Hopkins Hospital, and is part of a Berman faculty team which teaches bioethics to residents in a number of Johns Hopkins specialty programs. He is also staff physician at the Esperanza Clinic Health Center, a free clinic serving undocumented Spanish-speaking immigrants. Dr. Berger is the author of two books for the lay public on doctor-patient communication and on patient preference in the context of medical evidence. Dr. Berger is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. His top areas of expertise are Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Severe Acute Respiratory Syndrome (SARS), and Nontuberculous Mycobacterial Lung Disease.