The 20 Best Leukodystrophy Doctors Near Me in Orange, CA

Find the Top Leukodystrophy Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 69 doctor with experience in Leukodystrophy near Orange, CA. Of these, 56 are Experienced, 12 are Advanced and 1 are Distinguished.

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69 providers found
    Distinguished in Leukodystrophy
    Distinguished in Leukodystrophy
    Referral may be required

    Outpatient Neurologic Rehabilitation Program

    213 Quarry Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Jacinda Sampson is a Neurologist practicing medicine in Palo Alto, California. Dr. Sampson is rated as a Distinguished provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 73 other conditions, according to our data. Her clinical expertise encompasses Myotonic Dystrophy Type 2, Paramyotonia Congenita, Myotonic Dystrophy, Oculodentodigital Dysplasia, and Thymectomy.

    Advanced in Leukodystrophy
    Neurology | Pediatric Neurology
    Advanced in Leukodystrophy
    Neurology | Pediatric Neurology
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Maija-riikka Steenari is a Neurologist and a Pediatric Neurologist practicing medicine in Orange, California. Dr. Steenari is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 157 other conditions, according to our data. Her clinical expertise encompasses Dihydrolipoamide Dehydrogenase Deficiency, Autosomal Recessive Congenital Methemoglobinemia, PEPCK 1 Deficiency, and Pyruvate Carboxylase Deficiency. Dr. Steenari is currently accepting new patients.

    Advanced in Leukodystrophy
    Medical Genetics
    Advanced in Leukodystrophy
    Medical Genetics
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Richard Chang is a Medical Genetics provider practicing medicine in Orange, California. Dr. Chang is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 155 other conditions, according to our data. His clinical expertise encompasses Citrullinemia, Beta-Ketothiolase Deficiency, Biotinidase Deficiency, and Adrenoleukodystrophy (ALD). Dr. Chang is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Leukodystrophy
    Radiology | Neuroradiology
    Experienced in Leukodystrophy
    Radiology | Neuroradiology
    Referral may be required

    Radiology At China Basin

    185 Berry St., Lobby 6, Suite 180 And 190, 
    San Francisco, CA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Dr. Javier Villanueva-Meyer is a neuroradiologist who specializes in brain tumor imaging. He is experienced in CT, MRI and X-ray imaging of the head and neck, brain, spine and peripheral nervous system. He also performs image-guided procedures to diagnose and treat conditions of the nervous system, with techniques including percutaneous biopsy (image-guided skin punctures to obtain samples for analysis), lumbar puncture, myelography (examining the spinal canal), cisternography (examining the fluid around the brain and spinal cord), epidural injection and selective nerve root injection. He has a special interest in improving the quality of care in the practice of radiology and biomedical imaging. Villanueva-Meyer's research focuses on the how best to use molecular imaging techniques for brain cancer patients. He works closely with colleagues in the UCSF Brain Tumor Center to evaluate emerging imaging and interpretation technologies. Villanueva-Meyer earned his medical degree from Baylor College of Medicine. At UCSF, he completed a residency in diagnostic radiology and a fellowship in neuroradiology. Also at UCSF, he completed a postdoctoral fellowship funded by the National Institutes of Health as part of a program that prepares doctors to conduct research in areas that will most serve the nation's needs. Dr. Villanueva is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Meningioma, Relapsing Multiple Sclerosis (RMS), Pediatric Low-Grade Glioma (pLGG), Craniectomy, and Orchiectomy. Dr. Villanueva is board certified in American Board Of Radiology, Neuroradiology and American Board Of Radiology, Diagnostic Radiology. Dr. Villanueva is currently accepting new patients.

    Experienced in Leukodystrophy
    Experienced in Leukodystrophy
    Referral required

    San Carlos Center

    301 Industrial Road, Level 1, 
    San Carlos, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Dominic Hovsepian is a Neurologist practicing medicine in San Carlos, California. Dr. Hovsepian is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Landau-Kleffner Syndrome, and Memory Loss. Dr. Hovsepian is board certified in Epilepsy Neurology.

    Experienced in Leukodystrophy
    Medical Genetics
    Experienced in Leukodystrophy
    Medical Genetics
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Changrui Xiao is a Medical Genetics provider practicing medicine in Orange, California. Dr. Xiao is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Glutaric Acidemia Type 2, Adrenoleukodystrophy (ALD), and X-Linked Creatine Deficiency. Dr. Xiao is currently accepting new patients.

    Experienced in Leukodystrophy
    Pediatric Neurology
    Experienced in Leukodystrophy
    Pediatric Neurology
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Allison Przekop is a Pediatric Neurologist practicing medicine in Orange, California. Dr. Przekop is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 41 other conditions, according to our data. Her clinical expertise encompasses Transient Tic Disorder, Tourette Syndrome, Spasmus Nutans, and Stereotypic Movement Disorder. Dr. Przekop is currently accepting new patients.

    Experienced in Leukodystrophy
    Neurology | Pediatric Neurology
    Experienced in Leukodystrophy
    Neurology | Pediatric Neurology
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Minodora Totoiu is a Neurologist and a Pediatric Neurologist practicing medicine in Orange, California. Dr. Totoiu is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Seizures, Autism Spectrum Disorder, Generalized Tonic-Clonic Seizure, and Microcephaly. Dr. Totoiu is currently accepting new patients.

    Experienced in Leukodystrophy
    Neurology
    Experienced in Leukodystrophy
    Neurology
    Referral may be required

    Outpatient Neurologic Rehabilitation Program

    213 Quarry Rd, 
    Palo Alto, CA 
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Lucas Kipp is a Neurologist practicing medicine in Palo Alto, California. He has been practicing medicine for over 17 years. Dr. Kipp is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Transverse Myelitis, Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, and Relapsing Multiple Sclerosis (RMS).

    Experienced in Leukodystrophy
    Pediatric Neurology
    Experienced in Leukodystrophy
    Pediatric Neurology
    Referral may be required
    4650 West Sunset Boulevard, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Nusrat Ahsan is a Pediatric Neurologist practicing medicine in Los Angeles, California. Dr. Ahsan is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Zika Virus Disease, Autism Spectrum Disorder, Microcephaly with Spastic Quadriplegia, and Microcephaly. Dr. Ahsan is currently accepting new patients.

    Experienced in Leukodystrophy
    Pediatric Hematology Oncology
    Experienced in Leukodystrophy
    Pediatric Hematology Oncology
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Geetha Puthenveetil is a Pediatric Hematologist Oncology provider practicing medicine in Orange, California. Dr. Puthenveetil is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Alpha Thalassemia, Thalassemia, Hemolytic Anemia, and Beta Thalassemia. Dr. Puthenveetil is currently accepting new patients.

    Experienced in Leukodystrophy
    Neuroradiology
    Experienced in Leukodystrophy
    Neuroradiology
    Referral may be required

    Bay Imaging Consultants Medical Group Inc.

    2125 Oak Grove Rd Ste 200, 
    Walnut Creek, CA 
    Languages Spoken:
    English

    Mohammad Fakhri is a Neuroradiologist practicing medicine in Walnut Creek, California. Dr. Fakhri is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses CAPOS Syndrome, Meningioma, Vertigo, and Cerebral Arteriovenous Malformation.

    Experienced in Leukodystrophy
    Palliative Medicine
    Experienced in Leukodystrophy
    Palliative Medicine
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Sarah Keating is a primary care provider, practicing in Palliative Medicine in Orange, California. Dr. Keating is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 89 other conditions, according to our data. Her clinical expertise encompasses Acrofacial Dysostosis Nager Type, Acrodysostosis, Acrofacial Dysostosis Weyers Type, and Retinopathy Pigmentary Mental Retardation. Dr. Keating is currently accepting new patients.

    Experienced in Leukodystrophy
    Neurology | Pediatric Neurology
    Experienced in Leukodystrophy
    Neurology | Pediatric Neurology
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Amanda Fernandez is a Neurologist and a Pediatric Neurologist practicing medicine in Orange, California. Dr. Fernandez is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 41 other conditions, according to our data. Her clinical expertise encompasses Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Aphantasia, and Microcephaly. Dr. Fernandez is currently accepting new patients.

    Experienced in Leukodystrophy
    Medical Genetics
    Experienced in Leukodystrophy
    Medical Genetics
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Jose Abdenur is a Medical Genetics provider practicing medicine in Orange, California. Dr. Abdenur is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Glycogen Storage Disease Type 9, Von Gierke Disease, Glycogen Storage Disease Type 3, and Malonyl-CoA Decarboxylase Deficiency. Dr. Abdenur is currently accepting new patients.

    Experienced in Leukodystrophy
    Pediatric Neurology
    Experienced in Leukodystrophy
    Pediatric Neurology
    Referral may be required
    170 South Main Street, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Aram Kim is a Pediatric Neurologist practicing medicine in Orange, California. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Autism Spectrum Disorder, Adrenoleukodystrophy (ALD), X-Linked Creatine Deficiency, and Malonyl-CoA Decarboxylase Deficiency. Dr. Kim is currently accepting new patients.

    Experienced in Leukodystrophy
    Neuroradiology
    Experienced in Leukodystrophy
    Neuroradiology
    Referral may be required

    CHOC Children's Hospital

    1201 W La Veta Ave, 
    Orange, CA 
    Languages Spoken:
    English

    Kristen Launier is a Neuroradiologist practicing medicine in Orange, California. Dr. Launier is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 49 other conditions, according to our data. Her clinical expertise encompasses Tracheoesophageal Fistula, Klippel-Trenaunay Syndrome, Collins Pope Syndrome, and Acropectoral Syndrome.

    Advanced in Leukodystrophy
    Neurology
    Advanced in Leukodystrophy
    Neurology
    Referral may be required

    Office

    300 Medical Plz Ste B200, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Brent Fogel is a Neurologist practicing medicine in Los Angeles, California. Dr. Fogel is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Hereditary Ataxia, Spinocerebellar Ataxia, and Deep Brain Stimulation.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required

    Shriners Children's-Northern California

    2425 Stockton Blvd, 
    Sacramento, CA 
    Languages Spoken:
    English

    David Pleasure is a Neurologist practicing medicine in Sacramento, California. Dr. Pleasure is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Canavan Disease, CACH Syndrome, Leukodystrophy, and Multiple Sclerosis (MS).

    Advanced in Leukodystrophy
    Pediatric Neurology
    Advanced in Leukodystrophy
    Pediatric Neurology
    Referral may be required

    Facial Reconstructive Surgical And Medical Center

    750 Welch Rd Ste 317, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Keith Van Haren is a Pediatric Neurologist practicing medicine in Palo Alto, California. Dr. Van Haren is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Rasmussen Encephalitis, Anti-NMDA Receptor Encephalitis, and Encephalitis.

    Showing 1-20 of 69

    Last Updated: 06/30/2026

    What is the definition of Leukodystrophy?

    A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

    When should I see a Leukodystrophy doctor near Orange, CA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Leukodystrophy doctor near Orange, CA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Leukodystrophy doctors near Orange, CA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Leukodystrophy doctors near Orange, CA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Leukodystrophy doctor near Orange, CA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Leukodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Leukodystrophy doctor near Orange, CA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Leukodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Leukodystrophy doctors near Orange, CA?

    Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Leukodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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