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    Last Updated: 10/30/2025

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    MediFind found 15 doctor with experience in Leukodystrophy near Orange, CA. Of these, 13 are Experienced and 2 are Advanced.

    Location
    LocationClose
    15 providers found
      Advanced in Leukodystrophy
      Neurology | Pediatric Neurology
      Advanced in Leukodystrophy
      Neurology | Pediatric Neurology
      1201 West La Veta Avenue, 
      Orange, CA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Maija-riikka Steenari is a Neurologist and a Pediatric Neurologist in Orange, California. Dr. Steenari is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are PEPCK 1 Deficiency, Pyruvate Carboxylase Deficiency, Autosomal Recessive Congenital Methemoglobinemia, and Dihydrolipoamide Dehydrogenase Deficiency. Dr. Steenari is currently accepting new patients.

      Advanced in Leukodystrophy
      Medical Genetics
      Advanced in Leukodystrophy
      Medical Genetics
      1201 West La Veta Avenue, 
      Orange, CA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Richard Chang is a Medical Genetics provider in Orange, California. Dr. Chang is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Adrenoleukodystrophy (ALD), and Citrullinemia. Dr. Chang is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Leukodystrophy
      Medical Genetics
      Experienced in Leukodystrophy
      Medical Genetics
      1201 West La Veta Avenue, 
      Orange, CA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Changrui Xiao is a Medical Genetics provider in Orange, California. Dr. Xiao is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Glutaric Acidemia Type 2, Retinopathy Pigmentary Mental Retardation, Adrenoleukodystrophy (ALD), and X-Linked Creatine Deficiency. Dr. Xiao is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Leukodystrophy
      Pediatric Neurology
      Experienced in Leukodystrophy
      Pediatric Neurology
      1201 West La Veta Avenue, 
      Orange, CA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Allison Przekop is a Pediatric Neurologist in Orange, California. Dr. Przekop is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Transient Tic Disorder, Spasmus Nutans, Aphantasia, and Hydranencephaly. Dr. Przekop is currently accepting new patients.

      Experienced in Leukodystrophy
      Neurology | Pediatric Neurology
      Experienced in Leukodystrophy
      Neurology | Pediatric Neurology
      1201 West La Veta Avenue, 
      Orange, CA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Minodora Totoiu is a Neurologist and a Pediatric Neurologist in Orange, California. Dr. Totoiu is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Down Syndrome, Seizures, Autism Spectrum Disorder, and Generalized Tonic-Clonic Seizure. Dr. Totoiu is currently accepting new patients.

      Experienced in Leukodystrophy
      Pediatric Hematology Oncology
      Experienced in Leukodystrophy
      Pediatric Hematology Oncology
      1201 West La Veta Avenue, 
      Orange, CA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Geetha Puthenveetil is a Pediatric Hematologist Oncology provider in Orange, California. Dr. Puthenveetil is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Alpha Thalassemia, Thalassemia, Hemolytic Anemia, and Congenital Hemolytic Anemia. Dr. Puthenveetil is currently accepting new patients.

      Experienced in Leukodystrophy
      Neurology | Pediatric Neurology
      Experienced in Leukodystrophy
      Neurology | Pediatric Neurology
      1201 West La Veta Avenue, 
      Orange, CA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Amanda Fernandez is a Neurologist and a Pediatric Neurologist in Orange, California. Dr. Fernandez is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Seizures, Dysferlinopathy, Memory Loss, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Fernandez is currently accepting new patients.

      Experienced in Leukodystrophy
      Neurology | Pediatric Neurology
      Experienced in Leukodystrophy
      Neurology | Pediatric Neurology
      1201 West La Veta Avenue, 
      Orange, CA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Anjalee Galion is a Neurologist and a Pediatric Neurologist in Orange, California. Dr. Galion is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Autism Spectrum Disorder, Periodic Limb Movement Disorder, Down Syndrome, and Memory Loss. Dr. Galion is currently accepting new patients.

      Experienced in Leukodystrophy
      Medical Genetics
      Experienced in Leukodystrophy
      Medical Genetics
      1201 West La Veta Avenue, 
      Orange, CA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jose Abdenur is a Medical Genetics provider in Orange, California. Dr. Abdenur is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Adrenoleukodystrophy (ALD), Von Gierke Disease, Glycogen Storage Disease Type 3, and Hyperlysinemia. Dr. Abdenur is currently accepting new patients.

      Experienced in Leukodystrophy
      Radiology | Pediatric Radiology
      Experienced in Leukodystrophy
      Radiology | Pediatric Radiology
      1201 W La Veta Ave, 
      Orange, CA 
       (0.8 miles away)
      Languages Spoken:
      English

      Kristen Launier is a Radiologist and a Pediatric Radiologist in Orange, California. Dr. Launier is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Tracheoesophageal Fistula, Acropectoral Syndrome, Acro-Pectoro-Renal Field Defect, and Adams-Oliver Syndrome.

      Experienced in Leukodystrophy
      Pediatric Radiology | Radiology
      Experienced in Leukodystrophy
      Pediatric Radiology | Radiology
      1201 W La Veta Ave, 
      Orange, CA 
       (0.8 miles away)
      Languages Spoken:
      English

      Rahul Nikam is a Pediatric Radiologist and a Radiologist in Orange, California. Dr. Nikam is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Aplasia Cutis Congenita, Clouston Syndrome, and Gastrostomy.

      Experienced in Leukodystrophy
      Pediatric Neurology
      Experienced in Leukodystrophy
      Pediatric Neurology
      170 South Main Street, 
      Orange, CA 
       (1.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Aram Kim is a Pediatric Neurologist in Orange, California. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Autism Spectrum Disorder, Aphantasia, Adrenoleukodystrophy (ALD), and X-Linked Creatine Deficiency. Dr. Kim is currently accepting new patients.

      Experienced in Leukodystrophy
      Neonatology | Neurology | Pediatrics
      Experienced in Leukodystrophy
      Neonatology | Neurology | Pediatrics
      101 The City Dr S, 
      Orange, CA 
       (2.0 miles away)
      Languages Spoken:
      English

      Shelley Bose is a Neonatologist and a Neurologist in Orange, California. Dr. Bose is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Epilepsy, Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Memory Loss.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      100 Laguna Rd, Suite 208, 
      Fullerton, CA 
       (8.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jack Florin is a Neurologist in Fullerton, California. Dr. Florin is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are New Daily Persistent Headache (NDPH), Cerebellar Degeneration, Multiple Sclerosis (MS), and Relapsing Multiple Sclerosis (RMS).

      Experienced in Leukodystrophy
      Family Medicine
      Experienced in Leukodystrophy
      Family Medicine

      Memorialcare Medical Foundation

      5977 E Spring St, 
      Long Beach, CA 
       (15.0 miles away)
      Languages Spoken:
      English

      Victoria Ho is a primary care provider, practicing in Family Medicine in Long Beach, California. Dr. Ho is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Leukodystrophy, Heavy Metal Poisoning, and Epilepsy.

      Showing 1-15 of 15

      Last Updated: 10/30/2025

      What is the definition of Leukodystrophy?

      A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

      When should I see a Leukodystrophy doctor near Orange, CA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Leukodystrophy doctor near Orange, CA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Leukodystrophy doctors near Orange, CA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Leukodystrophy doctors near Orange, CA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Leukodystrophy doctor near Orange, CA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Leukodystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Leukodystrophy doctor near Orange, CA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Leukodystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Leukodystrophy doctors near Orange, CA?

      Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Leukodystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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