The 20 Best Leukodystrophy Doctors Near Me in Minneapolis, MN

Find the Top Leukodystrophy Experts and Specialists

The 20 Best Leukodystrophy Doctors near Minneapolis, MN

Last Updated: 02/22/2026

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MediFind found 10 doctor with experience in Leukodystrophy near Minneapolis, MN. Of these, 7 are Experienced, 2 are Advanced and 1 are Distinguished.

Location
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10 providers found
    Paul Orchard
    Distinguished in Leukodystrophy
    Hematology | Oncology
    Distinguished in Leukodystrophy
    Hematology | Oncology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
     (1.6 miles away)
    Languages Spoken:
    English

    Paul Orchard is a Hematologist and an Oncologist in Minneapolis, Minnesota. Dr. Orchard is rated as a Distinguished provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Bone Marrow Transplant, and Osteotomy.

    Experienced in Leukodystrophy
    Neuroradiology
    Experienced in Leukodystrophy
    Neuroradiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
     (1.6 miles away)
    Languages Spoken:
    English

    David Nascene is a Neuroradiologist in Minneapolis, Minnesota. Dr. Nascene is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are CACH Syndrome, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, Posterior Fossa Decompression, and Osteotomy.

    Advanced in Leukodystrophy
    Hematology | Oncology
    Advanced in Leukodystrophy
    Hematology | Oncology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
     (1.6 miles away)
    Languages Spoken:
    English

    Troy Lund is a Hematologist and an Oncologist in Minneapolis, Minnesota. Dr. Lund is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Adrenoleukodystrophy (ALD), Alpha Mannosidosis, Aspartylglucosaminuria, Glucose-6-Phosphate Dehydrogenase Deficiency, and Bone Marrow Transplant.

    Learn about our expert tiers
    Experienced in Leukodystrophy
    Hematology | Oncology
    Experienced in Leukodystrophy
    Hematology | Oncology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
     (1.6 miles away)
    Languages Spoken:
    English

    Jakub Tolar is a Hematologist and an Oncologist in Minneapolis, Minnesota. Dr. Tolar is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Dyskeratosis Congenita, Fanconi Anemia, Congenital Aplastic Anemia, Bone Marrow Transplant, and Osteotomy.

    Experienced in Leukodystrophy
    Neurology
    Experienced in Leukodystrophy
    Neurology

    Abbott Northwestern Hospital

    800 E 28th St, 
    Minneapolis, MN 
     (1.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Nathan Sit is a Neurologist in Minneapolis, Minnesota. Dr. Sit is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy (SMA), and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Experienced in Leukodystrophy
    Internal Medicine
    Experienced in Leukodystrophy
    Internal Medicine

    Office

    6401 France Ave S, 
    Minneapolis, MN 
     (7.0 miles away)
    Languages Spoken:
    English

    Melissa White is a primary care provider, practicing in Internal Medicine in Minneapolis, Minnesota. Dr. White is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, Sepsis, Apoplexy, and Pacemaker Implantation.

    Experienced in Leukodystrophy
    Neuromusculoskeletal Medicine
    Experienced in Leukodystrophy
    Neuromusculoskeletal Medicine

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (8.4 miles away)
    Languages Spoken:
    English

    Randal Richardson is a Neuromusculoskeletal Medicine provider in Saint Paul, Minnesota. Dr. Richardson is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Miyoshi Myopathy, Emery-Dreifuss Muscular Dystrophy, Fukuyama Type Muscular Dystrophy, and X-Linked Dominant Scapuloperoneal Myopathy.

    Experienced in Leukodystrophy
    Experienced in Leukodystrophy

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (8.4 miles away)
    Languages Spoken:
    English

    Galen Breningstall is a Neurologist in Saint Paul, Minnesota. Dr. Breningstall is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Epilepsy, Seizures, Orofaciodigital Syndrome 6, and Agyria Pachygyria Polymicrogyria.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy

    Gillette Children's-Maple Grove Clinic

    9550 Upland Ln N, 
    Maple Grove, MN 
     (14.7 miles away)
    Languages Spoken:
    English

    Nicole Williams is a Neurologist in Maple Grove, Minnesota. Dr. Williams is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Lennox-Gastaut Syndrome (LGS), Moebius Syndrome, Hydranencephaly, and Orofaciodigital Syndrome 6.

    Experienced in Leukodystrophy
    Family Medicine
    Experienced in Leukodystrophy
    Family Medicine

    Allina Health System

    150 Emerson Ave E, 
    Saint Paul, MN 
     (10.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Alexis Vosooney is a primary care provider, practicing in Family Medicine in Saint Paul, Minnesota. Dr. Vosooney is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Meniere Disease, Farber Lipogranulomatosis, Pelizaeus-Merzbacher Disease, and Leukodystrophy.

    Showing 1-10 of 10

    Last Updated: 02/22/2026

    What is the definition of Leukodystrophy?

    A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

    When should I see a Leukodystrophy doctor near Minneapolis, MN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Leukodystrophy doctor near Minneapolis, MN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Leukodystrophy doctors near Minneapolis, MN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Leukodystrophy doctors near Minneapolis, MN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Leukodystrophy doctor near Minneapolis, MN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Leukodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Leukodystrophy doctor near Minneapolis, MN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Leukodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Leukodystrophy doctors near Minneapolis, MN?

    Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Leukodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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