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    Last Updated: 10/30/2025

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    MediFind found 98 doctor with experience in CACH Syndrome near Minnesota, US. Of these, 75 are Experienced, 22 are Advanced and 1 are Elite.

    Location
    LocationClose
    98 providers found
      Elite in CACH Syndrome
      Elite in CACH Syndrome

      Fairview Clinics

      14500 99th Ave N, Suite 100, 
      Maple Grove, MN 
      Languages Spoken:
      English

      David Nascene is a Radiologist in Maple Grove, Minnesota. Dr. Nascene is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, Posterior Fossa Decompression, and Osteotomy.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Sean Pittock is a Neurologist in Rochester, Minnesota. Dr. Pittock is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Optic Neuritis, Transverse Myelitis, Neuromyelitis Optica, and Encephalitis. Dr. Pittock is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in CACH Syndrome
      Neurology | Pediatric Neurology
      Advanced in CACH Syndrome
      Neurology | Pediatric Neurology
      2512 S 7th St, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Kenney-Jung is a Neurologist and a Pediatric Neurologist in Minneapolis, Minnesota. Dr. Kenney-Jung is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), Cardiofaciocutaneous Syndrome, CACH Syndrome, Seizures, and Thrombectomy. Dr. Kenney-Jung is currently accepting new patients.

      Learn about our expert tiers
      Advanced in CACH Syndrome
      Advanced in CACH Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English, Hindi
      Accepting New Patients

      Divyanshu Dubey is a Neurologist in Rochester, Minnesota. Dr. Dubey is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Encephalitis, Paraneoplastic Cerebellar Degeneration, Chronic Inflammatory Demyelinating Polyneuropathy, Stiff Person Syndrome, and Nephrectomy. Dr. Dubey is currently accepting new patients.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Claudia Lucchinetti is a Neurologist in Rochester, Minnesota. Dr. Lucchinetti is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Transverse Myelitis, Neuromyelitis Optica, Optic Neuritis, and Tumefactive Multiple Sclerosis.

      Advanced in CACH Syndrome
      Neurology | Pediatric Neurology
      Advanced in CACH Syndrome
      Neurology | Pediatric Neurology
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Deborah Renaud is a Neurologist and a Pediatric Neurologist in Rochester, Minnesota. Dr. Renaud is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Beta-Mannosidosis, Leukodystrophy, CACH Syndrome, and Alpha Mannosidosis. Dr. Renaud is currently accepting new patients.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Alejandro Rabinstein is a Neurologist in Rochester, Minnesota. Dr. Rabinstein is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Subarachnoid Hemorrhage, Stroke, Cerebral Amyloid Angiopathy, Embolectomy, and Thrombectomy. Dr. Rabinstein is currently accepting new patients.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Adrian Budhram is a Neurologist in Rochester, Minnesota. Dr. Budhram is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Encephalitis, Seizures, Meningitis, Thymectomy, and Stent Placement.

      Advanced in CACH Syndrome
      Medical Genetics | Neurology
      Advanced in CACH Syndrome
      Medical Genetics | Neurology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Ralitza Gavrilova is a Medical Genetics specialist and a Neurologist in Rochester, Minnesota. Dr. Gavrilova is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are MELAS Syndrome, Frontotemporal Dementia, Friedreich Ataxia, and Hypotonia.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Clifford Jack is a Radiologist in Rochester, Minnesota. Dr. Jack is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Hydrocephalus, Normal Pressure Hydrocephalus, Siderosis, CACH Syndrome, and Hormone Replacement Therapy (HRT).

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      David Knopman is a Neurologist in Rochester, Minnesota. Dr. Knopman is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Dementia, Alzheimer's Disease, Lewy Body Dementia (LBD), and Frontotemporal Dementia. Dr. Knopman is currently accepting new patients.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Jan-mendelt Tillema is a Neurologist in Rochester, Minnesota. Dr. Tillema is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Multiple Sclerosis (MS), Encephalitis, and Optic Neuritis. Dr. Tillema is currently accepting new patients.

      Advanced in CACH Syndrome
      Pediatric Neurology | Neurology
      Advanced in CACH Syndrome
      Pediatric Neurology | Neurology
      200 University Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Nicole Doonan is a Pediatric Neurologist and a Neurologist in Saint Paul, Minnesota. Dr. Doonan is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Lennox-Gastaut Syndrome (LGS), Moebius Syndrome, VLDLR-Associated Cerebellar Hypoplasia, and Polymicrogyria. Dr. Doonan is currently accepting new patients.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome

      Mayo Clinic

      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Fugate is a Neurologist in Rochester, Minnesota. Dr. Fugate is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Subarachnoid Hemorrhage, Increased Intracranial Pressure, Stroke, Vasoconstriction, and Embolectomy. Dr. Fugate is currently accepting new patients.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Patrick Luetmer is a Radiologist in Rochester, Minnesota. Dr. Luetmer is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Cerebrospinal Fluid Leak, Calvarial Hyperostosis, CACH Syndrome, Radiation Induced Meningioma, and Vertebroplasty.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      David Kallmes is a Radiologist in Rochester, Minnesota. Dr. Kallmes is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Brain Aneurysm, Fractured Spine, Pseudotumor Cerebri Syndrome, Thrombectomy, and Vertebroplasty.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome
      250 Thompson St, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Loes is a Radiologist in Saint Paul, Minnesota. Dr. Loes is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Headache, CACH Syndrome, Aseptic and Alopecic Nodules of Scalp (AANS), and CAPOS Syndrome. Dr. Loes is currently accepting new patients.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Nabeela Nathoo is a Neurologist in Rochester, Minnesota. Dr. Nathoo is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Multiple Sclerosis (MS), Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, CACH Syndrome, and Encephalitis.

      Advanced in CACH Syndrome
      Neuroradiology | Radiology
      Advanced in CACH Syndrome
      Neuroradiology | Radiology

      Fairview Express Care

      500 Harvard St Se, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Jeffrey Rykken is a Neuroradiologist and a Radiologist in Minneapolis, Minnesota. Dr. Rykken is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Optic Glioma, Spinal Tumor, CACH Syndrome, and Subarachnoid Hemorrhage.

      Advanced in CACH Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in CACH Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      University Of Minnesota Physicians, 516 Delaware Street Se, Pwb Fourth Floor, Room 4-100, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Galen Breningstall is a Pediatric Neurologist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Breningstall is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Epilepsy, Seizures, Lissencephaly, and Cerebellar Agenesis. Dr. Breningstall is currently accepting new patients.

      Showing 1-20 of 98

      Last Updated: 10/30/2025

      What is the definition of CACH Syndrome?

      Leukoencephalopathy with vanishing white matter is a progressive disorder that mainly affects the brain and spinal cord (central nervous system). This disorder causes deterioration of the central nervous system's white matter, which consists of nerve fibers covered by myelin. Myelin is the fatty substance that insulates and protects nerves.

      When should I see a CACH Syndrome doctor in Minnesota, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CACH Syndrome doctor in Minnesota, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank CACH Syndrome doctors in Minnesota, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CACH Syndrome doctors in Minnesota, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CACH Syndrome doctor in Minnesota, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CACH Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different CACH Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CACH Syndrome doctor in Minnesota, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CACH Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CACH Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CACH Syndrome doctors in Minnesota, US?

      Look for the filter feature on the left side of the CACH Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CACH Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the CACH Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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