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    Last Updated: 10/30/2025

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    MediFind found 11 doctor with experience in CACH Syndrome near Rochester, NY. Of these, 8 are Experienced and 3 are Advanced.

    Location
    LocationClose
    11 providers found
      Advanced in CACH Syndrome
      Advanced in CACH Syndrome

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Matthew Bellizzi is a Neurologist in Rochester, New York. Dr. Bellizzi is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Neuromyelitis Optica, Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), and Optic Neuritis.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome
      601 Elmwood Ave, Box 278984, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Steven Goldman is a Neurologist in Rochester, New York. Dr. Goldman is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Pelizaeus-Merzbacher Disease, Huntington Disease, CACH Syndrome, and Movement Disorders.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in CACH Syndrome
      Pediatric Neurology
      Advanced in CACH Syndrome
      Pediatric Neurology
      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Harris Gelbard is a Pediatric Neurologist in Rochester, New York. Dr. Gelbard is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Primary Lateral Sclerosis, Seizures, and Generalized Tonic-Clonic Seizure.

      Learn about our expert tiers
      Experienced in CACH Syndrome
      Pediatrics | Internal Medicine
      Experienced in CACH Syndrome
      Pediatrics | Internal Medicine

      Highland Hospital Of Rochester

      913 Culver Rd, 
      Rochester, NY 
       (2.2 miles away)
      Languages Spoken:
      English

      Karen Nead is a primary care provider, practicing in Pediatrics and Internal Medicine in Rochester, New York. Dr. Nead is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Sickle Cell Disease, Headache, Type 1 Diabetes (T1D), and Alexander Disease.

      Experienced in CACH Syndrome
      Neurology | Palliative Medicine
      Experienced in CACH Syndrome
      Neurology | Palliative Medicine

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Robert Holloway is a Neurologist and a Palliative Medicine provider in Rochester, New York. Dr. Holloway is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Stroke, PEPCK 1 Deficiency, Dihydrolipoamide Dehydrogenase Deficiency, Gastrostomy, and Thrombectomy.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Radiologists Of Univ Of Rochester

      601 Elmwood Ave, Box 278911, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Michael Potchen is a Radiologist in Rochester, New York. Dr. Potchen is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Primary Amebic Meningoencephalitis, CACH Syndrome, Brain Herniation, and Headache.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      University Of Rochester

      601 Elmwood Ave, Box 684, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Gretchen Birbeck is a Neurologist in Rochester, New York. Dr. Birbeck is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Primary Amebic Meningoencephalitis, Seizures, Epilepsy, and Generalized Tonic-Clonic Seizure.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Adam Kelly is a Neurologist in Rochester, New York. Dr. Kelly is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Stroke, Transient Ischemic Attack (TIA), Apoplexy, Thrombectomy, and Gastrostomy.

      Experienced in CACH Syndrome
      Pediatric Neurology | Neurology
      Experienced in CACH Syndrome
      Pediatric Neurology | Neurology
      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Robert Thompson-Stone is a Pediatric Neurologist and a Neurologist in Rochester, New York. Dr. Thompson-Stone is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Krabbe Disease and CACH Syndrome.

      Experienced in CACH Syndrome
      Pediatric Neurology
      Experienced in CACH Syndrome
      Pediatric Neurology
      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Maria Osorio is a Pediatric Neurologist in Rochester, New York. Dr. Osorio is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Pelizaeus-Merzbacher Disease and CACH Syndrome.

      Experienced in CACH Syndrome
      Internal Medicine
      Experienced in CACH Syndrome
      Internal Medicine
      989 Blossom Rd, 
      Rochester, NY 
       (3.3 miles away)
      Languages Spoken:
      English

      Shamsun Nahar is a primary care provider, practicing in Internal Medicine in Rochester, New York. Dr. Nahar is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Mitral Stenosis, Diarrhea, Peptic Ulcer, and Urinary Tract Infection (UTI).

      Showing 1-11 of 11

      Last Updated: 10/30/2025

      What is the definition of CACH Syndrome?

      Leukoencephalopathy with vanishing white matter is a progressive disorder that mainly affects the brain and spinal cord (central nervous system). This disorder causes deterioration of the central nervous system's white matter, which consists of nerve fibers covered by myelin. Myelin is the fatty substance that insulates and protects nerves.

      When should I see a CACH Syndrome doctor near Rochester, NY?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CACH Syndrome doctor near Rochester, NY?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank CACH Syndrome doctors near Rochester, NY?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CACH Syndrome doctors near Rochester, NY?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CACH Syndrome doctor near Rochester, NY?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CACH Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different CACH Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CACH Syndrome doctor near Rochester, NY?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CACH Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CACH Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CACH Syndrome doctors near Rochester, NY?

      Look for the filter feature on the left side of the CACH Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CACH Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the CACH Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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