Longitudinal Study of Neurodegenerative Disorders
Status: Recruiting
Location: See location...
Intervention Type: Biological, Other
Study Type: Observational
SUMMARY
The purpose of this study is to understand the course of rare genetic disorders that affect the brain. This data is being analyzed to gain a better understanding of the progression of the rare neurodegenerative disorders and the effects of interventions.
Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: f
View:
• Any patient with a genetic neurodegenerative disorder
Locations
United States
Pennsylvania
UPMC Children's Hospital of Pittsburgh
RECRUITING
Pittsburgh
Contact Information
Primary
Deepa Rajan, MD
rajands@upmc.edu
412-692-8388
Time Frame
Start Date: 2012-01-11
Estimated Completion Date: 2035-01
Participants
Target number of participants: 1500
Authors
Michele D. Poe, Maria L Escolar
Related Therapeutic Areas
Sponsors
Leads: University of Pittsburgh