The 20 Best Nemaline Myopathy Doctors Near Me in Hesse, DE

Find the Top Nemaline Myopathy Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 14 doctor with experience in Nemaline Myopathy near Hesse, DE. Of these, 14 are Experienced.

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14 providers found
    Experienced in Nemaline Myopathy

    Hellen C. Ankerhold-Ishikawa
    Experienced in Nemaline Myopathy

    Hellen C. Ankerhold-Ishikawa
    Referral may be required
    Munich, BY, DE 

    Hellen Ankerhold-Ishikawa practices practicing medicine in Munich, Germany. Ms. Ankerhold-Ishikawa is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Her clinical expertise encompasses Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Experienced in Nemaline Myopathy

    Ulrich A. Schatz
    Experienced in Nemaline Myopathy

    Ulrich A. Schatz
    Referral may be required
    Munich, BY, DE 

    Ulrich Schatz practices practicing medicine in Munich, Germany. Mr. Schatz is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Ichthyosis Vulgaris, Yellow Nail Syndrome, Congenital Contractures, and Arthrogryposis Multiplex Congenita.

    Experienced in Nemaline Myopathy

    Matthias Turk
    Experienced in Nemaline Myopathy

    Matthias Turk
    Referral may be required
    Erlangen, BY, DE 

    Matthias Turk practices practicing medicine in Erlangen, Germany. Mr. Turk is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Myofibrillar Myopathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and SRD5A3-CDG.

    Learn about our expert tiers
    Experienced in Nemaline Myopathy

    Benedikt H. Schoser
    Experienced in Nemaline Myopathy

    Benedikt H. Schoser
    Referral may be required
    Munich, BY, DE 

    Benedikt Schoser practices practicing medicine in Munich, Germany. Mr. Schoser is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, Pompe Disease, and Thymectomy.

    Experienced in Nemaline Myopathy

    Rolf J. Schroder
    Experienced in Nemaline Myopathy

    Rolf J. Schroder
    Referral may be required
    Erlangen, BY, DE 

    Rolf Schroder practices practicing medicine in Erlangen, Germany. Mr. Schroder is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Experienced in Nemaline Myopathy

    Ursula Schrehardt-Schlotzer
    Experienced in Nemaline Myopathy

    Ursula Schrehardt-Schlotzer
    Referral may be required
    Erlangen, BY, DE 

    Ursula Schrehardt-Schlotzer practices practicing medicine in Erlangen, Germany. Ms. Schrehardt-Schlotzer is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Macular Corneal Dystrophy Type 1, Fuchs Dystrophy, Glaucoma, Corneal Transplant, and Cataract Removal.

    Experienced in Nemaline Myopathy

    Tarik Bozoglu
    Experienced in Nemaline Myopathy

    Tarik Bozoglu
    Referral may be required
    Munich, BY, DE 

    Tarik Bozoglu practices practicing medicine in Munich, Germany. Mr. Bozoglu is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Marfan Syndrome, Centronuclear Myopathy, Becker Muscular Dystrophy, and Duchenne Muscular Dystrophy.

    Experienced in Nemaline Myopathy

    Stephan Wenninger
    Experienced in Nemaline Myopathy

    Stephan Wenninger
    Referral may be required
    Munich, BY, DE 

    Stephan Wenninger practices practicing medicine in Munich, Germany. Mr. Wenninger is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Paramyotonia Congenita, Myotonic Dystrophy Type 2, and Myotonic Dystrophy.

    Experienced in Nemaline Myopathy

    Annette Taubenberger-Muller
    Experienced in Nemaline Myopathy

    Annette Taubenberger-Muller
    Referral may be required
    Großhaderner Str. 9, 
    Planegg, BY, DE 

    Annette Taubenberger-Muller practices practicing medicine in Planegg, Germany. Ms. Taubenberger-Muller is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Her clinical expertise encompasses Nemaline Myopathy, Bullae, Lennox-Gastaut Syndrome (LGS), and Tubular Aggregate Myopathy.

    Experienced in Nemaline Myopathy

    Christian T. Thiel
    Experienced in Nemaline Myopathy

    Christian T. Thiel
    Referral may be required
    Erlangen, BY, DE 

    Christian Thiel practices practicing medicine in Erlangen, Germany. Mr. Thiel is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Short Stature (Growth Disorders), Lenz Microphthalmia Syndrome, Myofibrillar Myopathy, and SRD5A3-CDG.

    Experienced in Nemaline Myopathy

    Erdmute Kunstmann
    Experienced in Nemaline Myopathy

    Erdmute Kunstmann
    Referral may be required
    Wuerzburg, BY, DE 

    Erdmute Kunstmann practices practicing medicine in Wuerzburg, Germany. Kunstmann is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Short Stature (Growth Disorders), Nevoid Basal Cell Carcinoma Syndrome, Russell-Silver Dwarfism, and Macroglossia.

    Experienced in Nemaline Myopathy

    Armin M. Nagel
    Experienced in Nemaline Myopathy

    Armin M. Nagel
    Referral may be required
    Rathsberger Str. 57, 
    Erlangen, BY, DE 

    Armin Nagel practices practicing medicine in Erlangen, Germany. Mr. Nagel is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Familial Periodic Paralysis, Hypokalemic Periodic Paralysis, Becker Muscular Dystrophy, and Duchenne Muscular Dystrophy.

    Experienced in Nemaline Myopathy

    Benjamin Englert
    Experienced in Nemaline Myopathy

    Benjamin Englert
    Referral may be required
    Munich, BY, DE 

    Benjamin Englert practices practicing medicine in Munich, Germany. Mr. Englert is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Dermatomyositis, Myositis, Polymyositis, and Lewy Body Dementia (LBD).

    Experienced in Nemaline Myopathy

    Martin Winterholler
    Experienced in Nemaline Myopathy

    Martin Winterholler
    Referral may be required
    Nuernberg, BY, DE 

    Martin Winterholler practices practicing medicine in Nuernberg, Germany. Mr. Winterholler is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Leukocytosis, Pompe Disease, Camptocormism, and Nemaline Myopathy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-14 of 14

    Last Updated: 06/30/2026

    What is the definition of Nemaline Myopathy?

    Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.

    When should I see a Nemaline Myopathy doctor in Hesse, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Nemaline Myopathy doctor in Hesse, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Nemaline Myopathy doctor in Hesse, DE?

    You can find a Nemaline Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Nemaline Myopathy doctors in Hesse, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Nemaline Myopathy doctors in Hesse, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Nemaline Myopathy doctor in Hesse, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Nemaline Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Nemaline Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Nemaline Myopathy doctor in Hesse, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Nemaline Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Nemaline Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Nemaline Myopathy doctors in Hesse, DE?

    Look for the filter feature on the left side of the Nemaline Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Nemaline Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Nemaline Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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