The 20 Best Nemaline Myopathy Doctors Near Me in Boston, MA

Find the Top Nemaline Myopathy Experts and Specialists

The 20 Best Nemaline Myopathy Doctors near Boston, MA

Last Updated: 02/22/2026

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MediFind found 11 doctor with experience in Nemaline Myopathy near Boston, MA. Of these, 8 are Experienced and 3 are Advanced.

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11 providers found
    Anthony Amato
    Advanced in Nemaline Myopathy
    Advanced in Nemaline Myopathy

    Hale Building For Transformative Medicine On BWH Main Campus

    60 Fenwood Rd, 
    Boston, MA 
     (3.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Anthony Amato is a Neurologist in Boston, Massachusetts. Dr. Amato is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Inclusion Body Myositis, Polymyositis, Myositis, Thymectomy, and Gastrostomy.

    Advanced in Nemaline Myopathy
    Internal Medicine
    Advanced in Nemaline Myopathy
    Internal Medicine

    Tufts Medical Center

    800 Washington St, 
    Boston, MA 
     (0.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Elisabeth Wilder is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Wilder is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Lung Metastases, Gallstones, Gallbladder Disease, and Rigid Spine Syndrome.

    Advanced in Nemaline Myopathy
    Internal Medicine
    Advanced in Nemaline Myopathy
    Internal Medicine

    Massachusetts General Hospital

    151 Everett Ave, 
    Chelsea, MA 
     (2.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Dean Xerras is a primary care provider, practicing in Internal Medicine in Chelsea, Massachusetts. Dr. Xerras is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Syphilis, Diabetic Neuropathy, Congenital Fiber-Type Disproportion, and Rigid Spine Syndrome.

    Learn about our expert tiers
    Experienced in Nemaline Myopathy
    Pediatric Neurology
    Experienced in Nemaline Myopathy
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Leslie Hayes is a Pediatric Neurologist in Boston, Massachusetts. Dr. Hayes has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are X-Linked Infantile Spinal Muscular Atrophy, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, Spinal Muscular Atrophy Type 1, and Gastrostomy.

    Experienced in Nemaline Myopathy
    Pediatric Neurology
    Experienced in Nemaline Myopathy
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Basil Darras is a Pediatric Neurologist in Boston, Massachusetts. Dr. Darras is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy Type 1, and Gastrostomy.

    Experienced in Nemaline Myopathy
    Experienced in Nemaline Myopathy

    Hale Building For Transformative Medicine On BWH Main Campus

    60 Fenwood Rd, 
    Boston, MA 
     (3.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Christopher Doughty is a Neurologist in Boston, Massachusetts. Dr. Doughty is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Myasthenia Gravis, Peripheral Neuropathy, Andersen-Tawil Syndrome, Transmyocardial Revascularization, and Stent Placement.

    Experienced in Nemaline Myopathy
    Neurology
    Experienced in Nemaline Myopathy
    Neurology

    Boston VAMC

    150 S Huntington Ave, 
    Boston, MA 
     (3.4 miles away)
    Languages Spoken:
    English

    Orly Moshe is a Neurologist in Boston, Massachusetts. Dr. Moshe is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Primary Lateral Sclerosis, Primary Amyloidosis, Necrotizing Myopathy (NM), Spinal Muscular Atrophy (SMA), and Laminectomy.

    Experienced in Nemaline Myopathy
    Geriatrics
    Experienced in Nemaline Myopathy
    Geriatrics

    Melrosewakefield Healthcare Inc.

    170 Governors Ave, 
    Medford, MA 
     (5.6 miles away)
    Languages Spoken:
    English

    Saeid Elmi is a primary care provider, practicing in Geriatrics in Medford, Massachusetts. Dr. Elmi is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Dementia, Alzheimer's Disease, Schizoaffective Disorder, and Dysgraphia.

    Experienced in Nemaline Myopathy
    Internal Medicine
    Experienced in Nemaline Myopathy
    Internal Medicine

    Mass General Waltham Pharmacy

    52 Second Ave, 
    Waltham, MA 
     (10.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Daniel Gaposchkin is a primary care provider, practicing in Internal Medicine in Waltham, Massachusetts. Dr. Gaposchkin is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Type 2 Diabetes (T2D), Hypothyroidism, Sitosterolemia, and Glucocorticoid-Remediable Aldosteronism.

    Experienced in Nemaline Myopathy
    Internal Medicine
    Experienced in Nemaline Myopathy
    Internal Medicine

    MDVIP - Needham, MA

    105 Chestnut St Ste 26, 
    Needham, MA 
     (11.1 miles away)
    Languages Spoken:
    English

    Jacqueline Feuer is a primary care provider, practicing in Internal Medicine in Needham, Massachusetts. Dr. Feuer is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Polymyalgia Rheumatica, Rhizomelic Pseudopolyarthritis, Temporal Arteritis, and Giant Cell Arteritis (GCA).

    Experienced in Nemaline Myopathy
    Experienced in Nemaline Myopathy

    Shani Kumarasena MD PC

    332 Washington St Ste 260, 
    Wellesley Hills, MA 
     (11.6 miles away)
    Languages Spoken:
    English

    Chiawen Liang is a Physiatrist in Wellesley Hills, Massachusetts. Dr. Liang is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Distal Median Nerve Dysfunction, Central Core Disease, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

    Showing 1-11 of 11

    Last Updated: 02/22/2026

    What is the definition of Nemaline Myopathy?

    Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.

    When should I see a Nemaline Myopathy doctor near Boston, MA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Nemaline Myopathy doctor near Boston, MA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Nemaline Myopathy doctors near Boston, MA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Nemaline Myopathy doctors near Boston, MA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Nemaline Myopathy doctor near Boston, MA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Nemaline Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Nemaline Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Nemaline Myopathy doctor near Boston, MA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Nemaline Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Nemaline Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Nemaline Myopathy doctors near Boston, MA?

    Look for the filter feature on the left side of the Nemaline Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Nemaline Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Nemaline Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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