The 20 Best Nemaline Myopathy Doctors Near Me in New York, NY

Find the Top Nemaline Myopathy Experts and Specialists

Last Updated: 09/19/2026

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MediFind found 21 doctor with experience in Nemaline Myopathy near New York, NY. Of these, 13 are Experienced and 8 are Advanced.

Location
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21 providers found
    Advanced in Nemaline Myopathy
    Advanced in Nemaline Myopathy
    Referral required

    Amc

    47 New Scotland Ave, 
    Albany, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Murnane is a Neurologist practicing medicine in Albany, New York. Dr. Murnane is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 66 other conditions, according to our data. His clinical expertise encompasses Hereditary Sensory Neuropathy Type 1 (HSN1), Andermann Syndrome, Septic Arthritis, and Charcot-Marie-Tooth Disease. Dr. Murnane is currently accepting new patients.

    Advanced in Nemaline Myopathy
    Advanced in Nemaline Myopathy
    Referral may be required

    CUIMC/Neurological Institute Of New York

    710 W 168th St, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michio Hirano is a Neurologist practicing medicine in New York, New York. Dr. Hirano is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Mitochondrial Neurogastrointestinal Encephalopathy Disease, MELAS Syndrome, Progressive External Ophthalmoplegia, and Acute Cerebellar Ataxia. Dr. Hirano is currently accepting new patients.

    Advanced in Nemaline Myopathy
    Advanced in Nemaline Myopathy
    Referral may be required

    Office

    601 Elmwood Ave # 673, 
    Rochester, NY 
    Languages Spoken:
    English

    Rabi Tawil is a Neurologist practicing medicine in Rochester, New York. Dr. Tawil is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 55 other conditions, according to our data. His clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Andersen-Tawil Syndrome, Paramyotonia Congenita, and Hyperkalemic Periodic Paralysis.

    Learn about our expert tiers
    Advanced in Nemaline Myopathy
    Advanced in Nemaline Myopathy
    Referral may be required

    SUNY Upstate

    90 Presidential Plz, 
    Syracuse, NY 
    Languages Spoken:
    English

    Deborah Bradshaw is a Neurologist practicing medicine in Syracuse, New York. Dr. Bradshaw is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 55 other conditions, according to our data. Her clinical expertise encompasses Duchenne Muscular Dystrophy, Dysferlinopathy, Myasthenia Gravis, Charcot-Marie-Tooth Disease, and Thrombectomy.

    Advanced in Nemaline Myopathy
    Advanced in Nemaline Myopathy
    Referral may be required

    Rochester General Hospital

    1425 Portland Ave, 
    Rochester, NY 
    Languages Spoken:
    English

    Anne Moss is a Neurologist practicing medicine in Rochester, New York. Dr. Moss is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Central Core Disease, Congenital Muscular Dystrophy Type 1A, Collagen VI-Related Myopathy, and X-Linked Myotubular Myopathy.

    Advanced in Nemaline Myopathy
    Advanced in Nemaline Myopathy
    Referral may be required

    Montefiore Greene Medical Arts Pavilion

    3400 Bainbridge Avenue, 
    Bronx, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Swerdlow is a Neurologist practicing medicine in Bronx, New York. Dr. Swerdlow is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Myasthenia Gravis, Relapsing Multiple Sclerosis (RMS), and Neuromyelitis Optica. Dr. Swerdlow is currently accepting new patients.

    Advanced in Nemaline Myopathy
    Advanced in Nemaline Myopathy
    Referral may be required

    Office

    1101 Nott St # B6, 
    Schenectady, NY 
    Languages Spoken:
    English

    Konstantin Timofeev is a Neurologist practicing medicine in Schenectady, New York. Dr. Timofeev is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Seizures, Memory Loss, Epilepsy, and Migraine.

    Advanced in Nemaline Myopathy
    Pediatric Neurology
    Advanced in Nemaline Myopathy
    Pediatric Neurology
    Referral may be required

    Trustees Of Columbia University In The City Of New York

    710 W 168th St, 
    New York, NY 
    Languages Spoken:
    English

    Jahannaz Dastgir is a Pediatric Neurologist practicing medicine in New York, New York. Dr. Dastgir is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Nemaline Myopathy.

    Experienced in Nemaline Myopathy
    Experienced in Nemaline Myopathy
    Referral may be required

    CUIMC/Harkness Pavilion

    180 Fort Washington Avenue, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Akinpelu Beckley is a Physiatrist practicing medicine in New York, New York. Dr. Beckley is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Paraplegia, Hemiplegia, Foot Drop, Syringomyelia, and Gamma Knife Radiosurgery. Dr. Beckley is board certified in Physical Medicine And Rehabilitation. Dr. Beckley is currently accepting new patients.

    Experienced in Nemaline Myopathy
    Experienced in Nemaline Myopathy

    Ellis Hospital

    1101 Nott St, 
    Schenecctady, NY 
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Murphy is a primary care provider, practicing in Family Medicine in Schenecctady, New York. Dr. Murphy is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Rigid Spine Syndrome, Congenital Fiber-Type Disproportion, Benign Autosomal Dominant Myopathy, and Tubular Aggregate Myopathy. Dr. Murphy is currently accepting new patients.

    Experienced in Nemaline Myopathy
    Family Medicine
    Experienced in Nemaline Myopathy
    Family Medicine

    Ticonderoga Health Center

    102 Race Track Rd # 1, 
    Ticonderoga, NY 
    Languages Spoken:
    English

    Glen Chapman is a primary care provider, practicing in Family Medicine in Ticonderoga, New York. Dr. Chapman is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Maturity Onset Diabetes of the Young, Dementia, Hyperlipidemia Type 3, and Familial Hypertension.

    Experienced in Nemaline Myopathy
    Experienced in Nemaline Myopathy
    Referral may be required

    Office

    201 Dates Dr Ste 201, 
    Ithaca, NY 
    Languages Spoken:
    English

    Andrew Morpurgo is a Physiatrist practicing medicine in Ithaca, New York. Dr. Morpurgo is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Complex Regional Pain Syndrome, X-Linked Myotubular Myopathy, Nemaline Myopathy, and Tubular Aggregate Myopathy.

    Experienced in Nemaline Myopathy
    Experienced in Nemaline Myopathy
    Referral may be required

    Nyc Health Hospitals / Kings County

    451 Clarkson Ave, 
    Brooklyn,, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Yaacov Anziska is a Neurologist practicing medicine in Brooklyn,, New York. Dr. Anziska is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Neuromyelitis Optica, Necrotizing Myopathy (NM), and HTLV-1 Associated Myelopathy. Dr. Anziska is currently accepting new patients.

    Experienced in Nemaline Myopathy
    Experienced in Nemaline Myopathy
    Referral required

    Community General Hospital

    4900 Broad Rd, 
    Syracuse,, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Anuradha Duleep is a Neurologist practicing medicine in Syracuse,, New York. Dr. Duleep is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Seizures, Partial Familial Epilepsy, Peripheral Neuropathy, Memory Loss, and Gastrostomy. Dr. Duleep is currently accepting new patients.

    Experienced in Nemaline Myopathy
    Internal Medicine
    Experienced in Nemaline Myopathy
    Internal Medicine

    CUIMC/Herbert Irving Pavilion

    161 Fort Washington Ave, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Divaya Bhutani is a primary care provider, practicing in Internal Medicine in New York, New York. Dr. Bhutani is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Multiple Myeloma, Smoldering Multiple Myeloma, Primary Amyloidosis, Relapsed Refractory Multiple Myeloma (RRMM), and Bone Marrow Aspiration. Dr. Bhutani is currently accepting new patients.

    Experienced in Nemaline Myopathy
    Internal Medicine
    Experienced in Nemaline Myopathy
    Internal Medicine

    Myers Campus Laboratory

    6692 Middle Rd, 
    Sodus, NY 
    Languages Spoken:
    English

    Arif Choudhury is a primary care provider, practicing in Internal Medicine in Sodus, New York. Dr. Choudhury is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Maturity Onset Diabetes of the Young, Chronic Cough, High Cholesterol, Chronic Obstructive Pulmonary Disease (COPD), and Endoscopy.

    Experienced in Nemaline Myopathy
    Internal Medicine
    Experienced in Nemaline Myopathy
    Internal Medicine

    Office

    333 E 34th St, 
    New York, NY 
    Languages Spoken:
    English

    David Younger is a primary care provider, practicing in Internal Medicine in New York, New York. Dr. Younger is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Chronic Inflammatory Demyelinating Polyneuropathy, Vasculitis, Lyme Disease, Primary Lateral Sclerosis, and Kidney Transplant.

    Experienced in Nemaline Myopathy
    Experienced in Nemaline Myopathy
    Referral required

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
    Languages Spoken:
    English
    Accepting New Patients

    David Herrmann is a Neurologist practicing medicine in Rochester, New York. Dr. Herrmann is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Charcot-Marie-Tooth Disease, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, and Tomaculous Neuropathy. Dr. Herrmann is currently accepting new patients.

    Experienced in Nemaline Myopathy
    Internal Medicine
    Experienced in Nemaline Myopathy
    Internal Medicine

    Genadij Sienkiewicz MD PC

    507 Main St, 
    Johnson City, NY 
    Languages Spoken:
    English

    Marianne Soden is a primary care provider, practicing in Internal Medicine in Johnson City, New York. Dr. Soden is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. Her clinical expertise encompasses Congenital Fiber-Type Disproportion, Collagen VI-Related Myopathy, Tubular Aggregate Myopathy, and Benign Autosomal Dominant Myopathy.

    Experienced in Nemaline Myopathy
    Pediatric Neurology
    Experienced in Nemaline Myopathy
    Pediatric Neurology
    Referral may be required

    Montefiore At 1250 Waters Place

    1250 Waters Place, 
    Bronx, NY 
    Languages Spoken:
    English
    Accepting New Patients

    Leslie Delfiner is a Pediatric Neurologist practicing medicine in Bronx, New York. Dr. Delfiner is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Congenital Myasthenic Syndrome, Primary Lateral Sclerosis, Hypotonia, and X-Linked Myotubular Myopathy. Dr. Delfiner is currently accepting new patients.

    Showing 1-20 of 21

    Last Updated: 09/19/2026

    What is the definition of Nemaline Myopathy?

    Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.

    When should I see a Nemaline Myopathy doctor near New York, NY?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Nemaline Myopathy doctor near New York, NY?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Nemaline Myopathy doctors near New York, NY?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Nemaline Myopathy doctors near New York, NY?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Nemaline Myopathy doctor near New York, NY?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Nemaline Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Nemaline Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Nemaline Myopathy doctor near New York, NY?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Nemaline Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Nemaline Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Nemaline Myopathy doctors near New York, NY?

    Look for the filter feature on the left side of the Nemaline Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Nemaline Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Nemaline Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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