The 20 Best Nemaline Myopathy Doctors Near Me in North Rhine-Westphalia, DE

Find the Top Nemaline Myopathy Experts and Specialists

Last Updated: 06/30/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 16 doctor with experience in Nemaline Myopathy near North Rhine-Westphalia, DE. Of these, 16 are Experienced.

Location
LocationClose
16 providers found
    Experienced in Nemaline Myopathy

    Raphael J. Schneider
    Experienced in Nemaline Myopathy

    Raphael J. Schneider
    Referral may be required
    St Josef Hospital, 
    Bochum, NW, DE 

    Raphael Schneider practices practicing medicine in Bochum, Germany. Schneider is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 7 other conditions, according to our data. Their clinical expertise encompasses Multiple Sclerosis (MS), Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Experienced in Nemaline Myopathy

    Jens Reimann
    Experienced in Nemaline Myopathy

    Jens Reimann
    Referral may be required
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Jens Reimann practices practicing medicine in Bonn, Germany. Mr. Reimann is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Congenital Contractures, Arthrogryposis Multiplex Congenita, Triple A Syndrome, and Inclusion Body Myositis.

    Experienced in Nemaline Myopathy

    Gilbert Wunderlich
    Experienced in Nemaline Myopathy

    Gilbert Wunderlich
    Referral may be required
    Kerpener Str. 32, 
    Koeln, NW, DE 

    Gilbert Wunderlich practices practicing medicine in Koeln, Germany. Mr. Wunderlich is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Camptocormism, Spinocerebellar Ataxia Type 10, and Deep Brain Stimulation.

    Learn about our expert tiers
    Experienced in Nemaline Myopathy

    Thorsten Wagner
    Experienced in Nemaline Myopathy

    Thorsten Wagner
    Referral may be required
    Warburger Str. 100, 
    Paderborn, NW, DE 

    Thorsten Wagner practices practicing medicine in Paderborn, Germany. Mr. Wagner is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Experienced in Nemaline Myopathy

    Stefan Raunser
    Experienced in Nemaline Myopathy

    Stefan Raunser
    Referral may be required
    Otto Hahn Str. 11, 
    Dortmund, NW, DE 

    Stefan Raunser practices practicing medicine in Dortmund, Germany. Mr. Raunser is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Bardet-Biedl Syndrome, Nemaline Myopathy, Anthrax Infection, and Congenital Fiber-Type Disproportion.

    Experienced in Nemaline Myopathy

    Helmar C. Lehmann
    Experienced in Nemaline Myopathy

    Helmar C. Lehmann
    Referral may be required
    Kerpener Str. 32, 
    Koeln, NW, DE 

    Helmar Lehmann practices practicing medicine in Koeln, Germany. Mr. Lehmann is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Peripheral Neuropathy, Guillain-Barre Syndrome, Chronic Polyradiculoneuritis, and Chronic Inflammatory Demyelinating Polyneuropathy.

    Experienced in Nemaline Myopathy

    Sebahattin Cirak
    Experienced in Nemaline Myopathy

    Sebahattin Cirak
    Referral may be required
    Kerpener Str. 34, 
    Koeln, NW, DE 

    Sebahattin Cirak practices practicing medicine in Koeln, Germany. Cirak is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 25 other conditions, according to our data. Their clinical expertise encompasses Marden-Walker Syndrome, Horizontal Gaze Palsy with Progressive Scoliosis, Arthrogryposis Multiplex Congenita Neurogenic Type, Arthrogryposis Multiplex Congenita, and Deep Brain Stimulation.

    Experienced in Nemaline Myopathy

    Michael Grange
    Experienced in Nemaline Myopathy

    Michael Grange
    Referral may be required
    Otto Hahn Str. 11, 
    Dortmund, NW, DE 

    Michael Grange practices practicing medicine in Dortmund, Germany. Mr. Grange is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Experienced in Nemaline Myopathy

    Ulrike Schara
    Experienced in Nemaline Myopathy

    Ulrike Schara
    Referral may be required
    Duisburg, NW, DE 

    Ulrike Schara practices practicing medicine in Duisburg, Germany. Ms. Schara is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Cramp-Fasciculation Syndrome, Gastrostomy, and Thymectomy.

    Experienced in Nemaline Myopathy

    Anthony L. Hessel
    Experienced in Nemaline Myopathy

    Anthony L. Hessel
    Referral may be required
    Muenster, NW, DE 

    Anthony Hessel practices practicing medicine in Muenster, Germany. Mr. Hessel is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Myositis, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

    Experienced in Nemaline Myopathy

    Gereon R. Fink
    Experienced in Nemaline Myopathy

    Gereon R. Fink
    Referral may be required
    Leo Brandt St. 5, 
    Juelich, NW, DE 

    Gereon Fink practices practicing medicine in Juelich, Germany. Fink is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 25 other conditions, according to our data. Their clinical expertise encompasses Movement Disorders, Parkinson's Disease, Apraxia, Deep Brain Stimulation, and Thrombectomy.

    Experienced in Nemaline Myopathy

    Sabrina Pospich
    Experienced in Nemaline Myopathy

    Sabrina Pospich
    Referral may be required
    Otto Hahn Str. 11, 
    Dortmund, NW, DE 

    Sabrina Pospich practices practicing medicine in Dortmund, Germany. Ms. Pospich is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Her clinical expertise encompasses Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Experienced in Nemaline Myopathy

    Hulya-sevcan Daimaguler
    Experienced in Nemaline Myopathy

    Hulya-sevcan Daimaguler
    Referral may be required
    Robert Koch Str. 21, 
    Koeln, NW, DE 

    Hulya-sevcan Daimaguler practices practicing medicine in Koeln, Germany. Daimaguler is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Their clinical expertise encompasses Dysarthria, Congenital Contractures, Arthrogryposis Multiplex Congenita, and Primary Lateral Sclerosis.

    Experienced in Nemaline Myopathy

    Anna Brunn
    Experienced in Nemaline Myopathy

    Anna Brunn
    Referral may be required
    Kerpener St. 62, 
    Koeln, NW, DE 

    Anna Brunn practices practicing medicine in Koeln, Germany. Ms. Brunn is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Her clinical expertise encompasses Inclusion Body Myositis, Brain Tumor, Myositis, and Centronuclear Myopathy.

    Experienced in Nemaline Myopathy

    Boris Zernikow
    Experienced in Nemaline Myopathy

    Boris Zernikow
    Referral may be required
    Dr. Friedrich Steiner Str. 5, 
    Datteln, NW, DE 

    Boris Zernikow practices practicing medicine in Datteln, Germany. Mr. Zernikow is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Chronic Pain, Acute Pain, Headache, and Complex Regional Pain Syndrome.

    Experienced in Nemaline Myopathy

    Jorg B. Schulz-Schroder
    Experienced in Nemaline Myopathy

    Jorg B. Schulz-Schroder
    Referral may be required
    Aachen, NW, DE 

    Jorg Schulz-Schroder practices practicing medicine in Aachen, Germany. Schulz-Schroder is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 22 other conditions, according to our data. Their clinical expertise encompasses Friedreich Ataxia, Spinocerebellar Ataxia, Movement Disorders, Thrombectomy, and Deep Brain Stimulation.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-16 of 16

    Last Updated: 06/30/2026

    What is the definition of Nemaline Myopathy?

    Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.

    When should I see a Nemaline Myopathy doctor in North Rhine-Westphalia, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Nemaline Myopathy doctor in North Rhine-Westphalia, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Nemaline Myopathy doctor in North Rhine-Westphalia, DE?

    You can find a Nemaline Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

    Nemaline Myopathy doctor near New York, NY
    Nemaline Myopathy doctor near Los Angeles, CA
    Nemaline Myopathy doctor near Chicago, IL
    Nemaline Myopathy doctor near Houston, TX
    Nemaline Myopathy doctor near Phoenix, AZ
    Nemaline Myopathy doctor near Philadelphia, PA
    Nemaline Myopathy doctor near Atlanta, GA
    Nemaline Myopathy doctor near Boston, MA
    Nemaline Myopathy doctor near Dallas, TX
    Nemaline Myopathy doctor near San Jose, CA

    How does MediFind rank Nemaline Myopathy doctors in North Rhine-Westphalia, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Nemaline Myopathy doctors in North Rhine-Westphalia, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Nemaline Myopathy doctor in North Rhine-Westphalia, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Nemaline Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Nemaline Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Nemaline Myopathy doctor in North Rhine-Westphalia, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Nemaline Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Nemaline Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Nemaline Myopathy doctors in North Rhine-Westphalia, DE?

    Look for the filter feature on the left side of the Nemaline Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Nemaline Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Nemaline Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

    Recommended has been selected.