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    Last Updated: 01/09/2026

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    MediFind found 37 doctor with experience in Nemaline Myopathy near Strasbourg, 44. Of these, 26 are Experienced, 9 are Advanced and 2 are Elite.

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    37 providers found
      Elite in Nemaline Myopathy

      Edoardo Malfatti
      Elite in Nemaline Myopathy

      Edoardo Malfatti
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 
       (10.4 km away)

      Edoardo Malfatti practices in Estonia. Mr. Malfatti is rated as an Elite expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Nemaline Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

      Elite in Nemaline Myopathy

      Norma B. Romero
      Elite in Nemaline Myopathy

      Norma B. Romero
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 
       (10.4 km away)

      Norma Romero practices in Estonia. Ms. Romero is rated as an Elite expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Nemaline Myopathy.

      Advanced in Nemaline Myopathy

      Bruno Eymard
      Advanced in Nemaline Myopathy

      Bruno Eymard
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 
       (10.4 km away)

      Bruno Eymard practices in Estonia. Mr. Eymard is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Paramyotonia Congenita, Congenital Myasthenic Syndrome, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Thymectomy.

      Learn about our expert tiers
      Advanced in Nemaline Myopathy

      John Vissing
      Advanced in Nemaline Myopathy

      John Vissing
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 
       (10.4 km away)

      John Vissing practices in Estonia. Mr. Vissing is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy, Myasthenia Gravis, Limb-Girdle Muscular Dystrophy Type 2I, and Myoglobinuria Recurrent.

      Advanced in Nemaline Myopathy

      Angeline Madelaine
      Advanced in Nemaline Myopathy

      Angeline Madelaine
      Paris, FR 
       (11.1 km away)

      Angeline Madelaine practices in Paris, France. Ms. Madelaine is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in Nemaline Myopathy

      Guy Brochier
      Advanced in Nemaline Myopathy

      Guy Brochier
      Paris, FR 
       (11.1 km away)

      Guy Brochier practices in Paris, France. Mr. Brochier is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Centronuclear Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Advanced in Nemaline Myopathy

      Emmanuelle Lacene
      Advanced in Nemaline Myopathy

      Emmanuelle Lacene
      Paris, FR 
       (11.1 km away)

      Emmanuelle Lacene practices in Paris, France. Ms. Lacene is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Nemaline Myopathy, and Bone Marrow Aspiration.

      Advanced in Nemaline Myopathy

      Clemence Labasse
      Advanced in Nemaline Myopathy

      Clemence Labasse
      Paris, FR 
       (11.1 km away)

      Clemence Labasse practices in Paris, France. Labasse is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Centronuclear Myopathy, Nemaline Myopathy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Advanced in Nemaline Myopathy

      Teresinha Evangelista
      Advanced in Nemaline Myopathy

      Teresinha Evangelista
      Paris, FR 
       (11.1 km away)

      Teresinha Evangelista practices in Paris, France. Evangelista is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Cramp-Fasciculation Syndrome, Congenital Myasthenic Syndrome, Limb-Girdle Muscular Dystrophy, and Bone Marrow Aspiration.

      Advanced in Nemaline Myopathy

      Olivier Benveniste
      Advanced in Nemaline Myopathy

      Olivier Benveniste
      Paris, FR 
       (11.1 km away)

      Olivier Benveniste practices in Paris, France. Mr. Benveniste is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Necrotizing Myopathy (NM), Antisynthetase Syndrome, Myositis, Inclusion Body Myositis, and Kidney Transplant.

      Advanced in Nemaline Myopathy

      Michel Fardeau
      Advanced in Nemaline Myopathy

      Michel Fardeau
      Paris, FR 
       (11.1 km away)

      Michel Fardeau practices in Paris, France. Mr. Fardeau is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

      Experienced in Nemaline Myopathy

      Dehbia Menouche
      Experienced in Nemaline Myopathy

      Dehbia Menouche
      Creteil, FR 
       (8.6 km away)

      Dehbia Menouche practices in Creteil, France. Menouche is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Sickle Cell Disease, Hemoglobinopathy, Hemolytic Anemia, Congenital Hemolytic Anemia, and Bone Marrow Transplant.

      Experienced in Nemaline Myopathy

      Baptiste Periou
      Experienced in Nemaline Myopathy

      Baptiste Periou
      Creteil, FR 
       (8.6 km away)

      Baptiste Periou practices in Creteil, France. Mr. Periou is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Myositis, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Dermatomyositis.

      Experienced in Nemaline Myopathy

      Gianmarco Severa
      Experienced in Nemaline Myopathy

      Gianmarco Severa
      Creteil, FR 
       (8.6 km away)

      Gianmarco Severa practices in Creteil, France. Mr. Severa is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Centronuclear Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in Nemaline Myopathy

      Rabah Redjoul
      Experienced in Nemaline Myopathy

      Rabah Redjoul
      Creteil, FR 
       (8.6 km away)

      Rabah Redjoul practices in Creteil, France. Redjoul is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Pneumocystis Jiroveci Pneumonia, Graft Versus Host Disease (GvHD), Cytomegalic Inclusion Disease, Severe Acute Respiratory Syndrome (SARS), and Bone Marrow Transplant.

      Experienced in Nemaline Myopathy

      Emmanuele Lechapt
      Experienced in Nemaline Myopathy

      Emmanuele Lechapt
      Université Paris Est, 
      Creteil, FR 
       (9.6 km away)

      Emmanuele Lechapt practices in Creteil, France. Lechapt is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Brain Tumor, Gliomatosis Cerebri, Angiomyoma, and Posterior Fossa Tumor.

      Experienced in Nemaline Myopathy

      Anissa Moktefi
      Experienced in Nemaline Myopathy

      Anissa Moktefi
      Université Paris Est, 
      Creteil, FR 
       (9.6 km away)

      Anissa Moktefi practices in Creteil, France. Ms. Moktefi is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Minimal Change Disease, Primary Amyloidosis, Glomerulonephritis, Cardiac Amyloidosis, and Kidney Transplant.

      Experienced in Nemaline Myopathy

      Francois-jerome J. Authier
      Experienced in Nemaline Myopathy

      Francois-jerome J. Authier
      Université Paris Est, 
      Creteil, FR 
       (9.6 km away)

      Francois-jerome Authier practices in Creteil, France. Authier is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Macrophagic Myofasciitis, Myositis, Juvenile Dermatomyositis, and Dermatomyositis.

      Experienced in Nemaline Myopathy

      Pascal Laforet
      Experienced in Nemaline Myopathy

      Pascal Laforet
      4 Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      Paris, FR 
       (10.3 km away)

      Pascal Laforet practices in Paris, France. Mr. Laforet is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Pompe Disease, Glycogen Storage Disease Type 3, Rhabdomyolysis, Myotonic Dystrophy Type 2, and Thymectomy.

      Experienced in Nemaline Myopathy

      Maud Beuvin
      Experienced in Nemaline Myopathy

      Maud Beuvin
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 
       (10.4 km away)

      Maud Beuvin practices in Estonia. Ms. Beuvin is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 37

      Last Updated: 01/09/2026

      What is the definition of Nemaline Myopathy?

      Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.

      When should I see a Nemaline Myopathy doctor near Strasbourg, 44?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Nemaline Myopathy doctor near Strasbourg, 44?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Nemaline Myopathy doctor near Strasbourg, 44?

      You can find a Nemaline Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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      Nemaline Myopathy doctor near Atlanta, GA
      Nemaline Myopathy doctor near Boston, MA
      Nemaline Myopathy doctor near Dallas, TX
      Nemaline Myopathy doctor near San Jose, CA

      How does MediFind rank Nemaline Myopathy doctors near Strasbourg, 44?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Nemaline Myopathy doctors near Strasbourg, 44?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Nemaline Myopathy doctor near Strasbourg, 44?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Nemaline Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different Nemaline Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Nemaline Myopathy doctor near Strasbourg, 44?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Nemaline Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Nemaline Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Nemaline Myopathy doctors near Strasbourg, 44?

      Look for the filter feature on the left side of the Nemaline Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Nemaline Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Nemaline Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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