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    Last Updated: 10/30/2025

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    MediFind found 69 doctor with experience in Nemaline Myopathy near The United Kingdom. Of these, 56 are Experienced, 10 are Advanced, 2 are Elite and 1 are Distinguished.

    Location
    LocationClose
    69 providers found
      Elite in Nemaline Myopathy

      Federica Montanaro
      Elite in Nemaline Myopathy

      Federica Montanaro
      UCL Great Ormond Street Institute Of Child Health, 
      London, ENG, GB 

      Federica Montanaro practices in London, United Kingdom. Ms. Montanaro is rated as an Elite expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Elite in Nemaline Myopathy

      Francesco Muntoni
      Elite in Nemaline Myopathy

      Francesco Muntoni
      Great Ormond Street Hospital Biomedical Research Centre, 
      London, ENG, GB 

      Francesco Muntoni practices in London, United Kingdom. Mr. Muntoni is rated as an Elite expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Gastrostomy.

      Distinguished in Nemaline Myopathy

      Caroline A. Sewry
      Distinguished in Nemaline Myopathy

      Caroline A. Sewry
      Oswestry, ENG, GB 

      Caroline Sewry practices in Oswestry, United Kingdom. Ms. Sewry is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

      Learn about our expert tiers
      Advanced in Nemaline Myopathy

      Jacob A. Ross
      Advanced in Nemaline Myopathy

      Jacob A. Ross
      125 Coldharbour Lane, 
      London, ENG, GB 

      Jacob Ross practices in London, United Kingdom. Mr. Ross is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Nemaline Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in Nemaline Myopathy

      Giovanni Baranello
      Advanced in Nemaline Myopathy

      Giovanni Baranello
      Great Ormond Street Hospital Biomedical Research Centre, 
      London, ENG, GB 

      Giovanni Baranello practices in London, United Kingdom. Mr. Baranello is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Spinal Muscular Atrophy Type 1, Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, and Muscle Atrophy.

      Advanced in Nemaline Myopathy

      Heinz J. Jungbluth
      Advanced in Nemaline Myopathy

      Heinz J. Jungbluth
      Guy's And St. Thomas' Hospitals, 
      London, ENG, GB 

      Heinz Jungbluth practices in London, United Kingdom. Mr. Jungbluth is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Vici Syndrome, Centronuclear Myopathy, Tubular Aggregate Myopathy, Rhabdomyolysis, and Heart Transplant.

      Advanced in Nemaline Myopathy

      Ros M. Quinlivan
      Advanced in Nemaline Myopathy

      Ros M. Quinlivan
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Ros Quinlivan practices in London, United Kingdom. Quinlivan is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Myoglobinuria Recurrent, Glycogen Storage Disease Type 13, Rhabdomyolysis, and Glycogen Storage Disease Type 5.

      Advanced in Nemaline Myopathy

      Stephanie A. Robb
      Advanced in Nemaline Myopathy

      Stephanie A. Robb
      Great Ormond Street Hospital, 
      London, ENG, GB 

      Stephanie Robb practices in London, United Kingdom. Ms. Robb is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Congenital Myasthenic Syndrome, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in Nemaline Myopathy

      Pinki Munot
      Advanced in Nemaline Myopathy

      Pinki Munot
      Great Ormond Street Hospital, 
      London, ENG, GB 

      Pinki Munot practices in London, United Kingdom. Munot is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Familial Periodic Paralysis, Hypokalemic Periodic Paralysis, Primary Lateral Sclerosis, and Spinal Muscular Atrophy (SMA).

      Advanced in Nemaline Myopathy

      Adnan Y. Manzur
      Advanced in Nemaline Myopathy

      Adnan Y. Manzur
      Great Ormond Street Hospital Biomedical Research Centre, 
      London, ENG, GB 

      Adnan Manzur practices in London, United Kingdom. Manzur is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Primary Lateral Sclerosis, Congenital Myasthenic Syndrome, and Gastrostomy.

      Advanced in Nemaline Myopathy

      Madoka Yoshimura-Mori
      Advanced in Nemaline Myopathy

      Madoka Yoshimura-Mori
      Central Parkway, 
      Newcastle Upon Tyne, ENG, GB 

      Madoka Yoshimura-Mori practices in Newcastle Upon Tyne, United Kingdom. Ms. Yoshimura-Mori is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Inclusion Body Myositis, Inclusion Body Myopathy 2, Dysferlinopathy, and Becker Muscular Dystrophy.

      Advanced in Nemaline Myopathy

      Anna Sarkozy
      Advanced in Nemaline Myopathy

      Anna Sarkozy
      Dubowitz Neuromuscular Centre Great Ormond Street Hospital, 
      London, ENG, GB 

      Anna Sarkozy practices in London, United Kingdom. Ms. Sarkozy is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Hypotonia, Arthrogryposis Multiplex Congenita, Myotonia Congenita, Amyotonia Congenita, and Gastrostomy.

      Advanced in Nemaline Myopathy

      Charles S. Redwood
      Advanced in Nemaline Myopathy

      Charles S. Redwood
      Oxford, ENG, GB 

      Charles Redwood practices in Oxford, United Kingdom. Mr. Redwood is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Nemaline Myopathy, and Tubular Aggregate Myopathy.

      Experienced in Nemaline Myopathy

      Mariacristina C. Scoto
      Experienced in Nemaline Myopathy

      Mariacristina C. Scoto
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Mariacristina Scoto practices in London, United Kingdom. Ms. Scoto is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Muscle Atrophy, Spinal Muscular Atrophy Type 1, and Gastrostomy.

      Experienced in Nemaline Myopathy

      Christopher F. Brewer
      Experienced in Nemaline Myopathy

      Christopher F. Brewer
      Cambridge, ENG, GB 

      Christopher Brewer practices in Cambridge, United Kingdom. Mr. Brewer is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Abdominal Wall Surgery.

      Experienced in Nemaline Myopathy

      Gemma M. Fisher
      Experienced in Nemaline Myopathy

      Gemma M. Fisher
      London, ENG, GB 

      Gemma Fisher practices in London, United Kingdom. Ms. Fisher is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Nemaline Myopathy, Primary Lateral Sclerosis, Central Core Disease, and Tubular Aggregate Myopathy.

      Experienced in Nemaline Myopathy

      Robert E. Seaborne
      Experienced in Nemaline Myopathy

      Robert E. Seaborne
      London, ENG, GB 

      Robert Seaborne practices in London, United Kingdom. Mr. Seaborne is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in Nemaline Myopathy

      Hanns Lochmuller
      Experienced in Nemaline Myopathy

      Hanns Lochmuller
      Central Parkway, 
      Newcastle Upon Tyne, ENG, GB 

      Hanns Lochmuller practices in Newcastle Upon Tyne, United Kingdom. Mr. Lochmuller is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Congenital Myasthenic Syndrome, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Paramyotonia Congenita.

      Experienced in Nemaline Myopathy

      Yotam Levy
      Experienced in Nemaline Myopathy

      Yotam Levy
      London, ENG, GB 

      Yotam Levy practices in London, United Kingdom. Mr. Levy is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Nemaline Myopathy.

      Experienced in Nemaline Myopathy

      Pierre G. Carlier
      Experienced in Nemaline Myopathy

      Pierre G. Carlier
      Central Parkway, 
      Newcastle Upon Tyne, ENG, GB 

      Pierre Carlier practices in Newcastle Upon Tyne, United Kingdom. Mr. Carlier is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Miyoshi Myopathy, Dysferlinopathy, Duchenne Muscular Dystrophy, and Limb-Girdle Muscular Dystrophy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 69

      Last Updated: 10/30/2025

      What is the definition of Nemaline Myopathy?

      Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.

      When should I see a Nemaline Myopathy doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Nemaline Myopathy doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Nemaline Myopathy doctor in The United Kingdom?

      You can find a Nemaline Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

      Nemaline Myopathy doctor near New York, NY
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      How does MediFind rank Nemaline Myopathy doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Nemaline Myopathy doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Nemaline Myopathy doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Nemaline Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different Nemaline Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Nemaline Myopathy doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Nemaline Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Nemaline Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Nemaline Myopathy doctors in The United Kingdom?

      Look for the filter feature on the left side of the Nemaline Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Nemaline Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Nemaline Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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