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    Last Updated: 10/30/2025

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    MediFind found 33 doctor with experience in Nemaline Myopathy near Netherlands. Of these, 22 are Experienced, 8 are Advanced, 2 are Distinguished and 1 are Elite.

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    33 providers found
      Elite in Nemaline Myopathy

      Josine M. De Winter
      Elite in Nemaline Myopathy

      Josine M. De Winter

      Amsterdam UMC, Location VUmc

      Amsterdam, NH, NL 

      Josine De Winter practices in Amsterdam, Netherlands. Ms. De Winter is rated as an Elite expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Distinguished in Nemaline Myopathy

      Esmee B. Van Kleef
      Distinguished in Nemaline Myopathy

      Esmee B. Van Kleef
      Nijmegen, GE, NL 

      Esmee Van Kleef practices in Nijmegen, Netherlands. Ms. Van Kleef is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Nemaline Myopathy

      Nicol C. Voermans
      Distinguished in Nemaline Myopathy

      Nicol C. Voermans
      Nijmegen, GE, NL 

      Nicol Voermans practices in Nijmegen, Netherlands. Ms. Voermans is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Rhabdomyolysis, Facioscapulohumeral Muscular Dystrophy (FSHD), Ehlers-Danlos Syndrome (EDS), and Tubular Aggregate Myopathy.

      Learn about our expert tiers
      Advanced in Nemaline Myopathy

      Jonne Doorduin
      Advanced in Nemaline Myopathy

      Jonne Doorduin
      Nijmegen, GE, NL 

      Jonne Doorduin practices in Nijmegen, Netherlands. Ms. Doorduin is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Cramp-Fasciculation Syndrome, Nemaline Myopathy, Tubular Aggregate Myopathy, Hormone Replacement Therapy (HRT), and Deep Brain Stimulation.

      Advanced in Nemaline Myopathy

      Baziel M. Van Engelen
      Advanced in Nemaline Myopathy

      Baziel M. Van Engelen
      Nijmegen, GE, NL 

      Baziel Van Engelen practices in Nijmegen, Netherlands. Van Engelen is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Oculopharyngeal Muscular Dystrophy, Paramyotonia Congenita, and Myotonic Dystrophy.

      Advanced in Nemaline Myopathy

      Benno Kusters
      Advanced in Nemaline Myopathy

      Benno Kusters

      Radboudumc

      Nijmegen, GE, NL 

      Benno Kusters practices in Nijmegen, Netherlands. Mr. Kusters is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Pheochromocytoma, Amyotonia Congenita, Myotonia Congenita, Bone Marrow Aspiration, and Gastrostomy.

      Advanced in Nemaline Myopathy

      Karlijn Bouman
      Advanced in Nemaline Myopathy

      Karlijn Bouman
      Nijmegen, GE, NL 

      Karlijn Bouman practices in Nijmegen, Netherlands. Bouman is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Rigid Spine Syndrome, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in Nemaline Myopathy

      Erik-jan J. Kamsteeg
      Advanced in Nemaline Myopathy

      Erik-jan J. Kamsteeg

      Radboud UMC

      Nijmegen, GE, NL 

      Erik-jan Kamsteeg practices in Nijmegen, Netherlands. Kamsteeg is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Spastic Paraplegia Type 7, Spasticity, Drug Induced Dyskinesia, and Paraplegia.

      Advanced in Nemaline Myopathy

      Ger M. Stienen
      Advanced in Nemaline Myopathy

      Ger M. Stienen
      Amsterdam, NH, NL 

      Ger Stienen practices in Amsterdam, Netherlands. Mr. Stienen is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in Nemaline Myopathy

      Coen A. Ottenheijm
      Advanced in Nemaline Myopathy

      Coen A. Ottenheijm
      Amsterdam, NH, NL 

      Coen Ottenheijm practices in Amsterdam, Netherlands. Mr. Ottenheijm is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Nemaline Myopathy, Arthrogryposis Multiplex Congenita, Congenital Contractures, and Tubular Aggregate Myopathy.

      Advanced in Nemaline Myopathy

      Baziel G. Van Engelen
      Advanced in Nemaline Myopathy

      Baziel G. Van Engelen
      Nijmegen, GE, NL 

      Baziel Van Engelen practices in Nijmegen, Netherlands. Van Engelen is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Paramyotonia Congenita, Myotonic Dystrophy Type 2, and Myotonic Dystrophy.

      Experienced in Nemaline Myopathy

      Corien C. Bemelmans-Verschuuren
      Experienced in Nemaline Myopathy

      Corien C. Bemelmans-Verschuuren
      Groningen, GR, NL 

      Corien Bemelmans-Verschuuren practices in Groningen, Netherlands. Bemelmans-Verschuuren is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Spinocerebellar Ataxia Type 15, Drug Induced Dyskinesia, Spinocerebellar Ataxia, and Olivopontocerebellar Atrophy.

      Experienced in Nemaline Myopathy

      Stefan P. Conijn
      Experienced in Nemaline Myopathy

      Stefan P. Conijn
      Amsterdam, NH, NL 

      Stefan Conijn practices in Amsterdam, Netherlands. Mr. Conijn is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Myotonia Congenita, Amyotonia Congenita, Nemaline Myopathy, and Tubular Aggregate Myopathy.

      Experienced in Nemaline Myopathy

      Michael A. Gaytant
      Experienced in Nemaline Myopathy

      Michael A. Gaytant
      Utrecht, UT, NL 

      Michael Gaytant practices in Utrecht, Netherlands. Mr. Gaytant is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Primary Lateral Sclerosis, Cramp-Fasciculation Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Tubular Aggregate Myopathy.

      Experienced in Nemaline Myopathy

      Jan T. Groothuis
      Experienced in Nemaline Myopathy

      Jan T. Groothuis
      Nijmegen, GE, NL 

      Jan Groothuis practices in Nijmegen, Netherlands. Groothuis is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Hereditary Neuralgic Amyotrophy, Brachial Plexopathy, Rigid Spine Syndrome, and Cramp-Fasciculation Syndrome.

      Experienced in Nemaline Myopathy

      Bettine H. Vosse
      Experienced in Nemaline Myopathy

      Bettine H. Vosse
      Maastricht, LI, NL 

      Bettine Vosse practices in Maastricht, Netherlands. Vosse is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Myotonic Dystrophy, Paramyotonia Congenita, Myotonic Dystrophy Type 2, and Cerebral Hypoxia.

      Experienced in Nemaline Myopathy

      Richard J. Rodenburg
      Experienced in Nemaline Myopathy

      Richard J. Rodenburg
      Nijmegen, GE, NL 

      Richard Rodenburg practices in Nijmegen, Netherlands. Mr. Rodenburg is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Mitochondrial Complex 1 Deficiency, Lactic Acidosis, Cytochrome C Oxidase Deficiency, Leigh Syndrome, and Gamma Knife Radiosurgery.

      Experienced in Nemaline Myopathy

      Renske I. Wadman
      Experienced in Nemaline Myopathy

      Renske I. Wadman
      Utrecht, UT, NL 

      Renske Wadman practices in Utrecht, Netherlands. Wadman is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy Type 2, and Primary Lateral Sclerosis.

      Experienced in Nemaline Myopathy

      Igor Kovacevic
      Experienced in Nemaline Myopathy

      Igor Kovacevic
      Amsterdam, NH, NL 

      Igor Kovacevic practices in Amsterdam, Netherlands. Mr. Kovacevic is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in Nemaline Myopathy

      Andre L. Verbeek
      Experienced in Nemaline Myopathy

      Andre L. Verbeek
      Nijmegen, GE, NL 

      Andre Verbeek practices in Nijmegen, Netherlands. Mr. Verbeek is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Lambert-Eaton Syndrome, Nemaline Myopathy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 33

      Last Updated: 10/30/2025

      What is the definition of Nemaline Myopathy?

      Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.

      When should I see a Nemaline Myopathy doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Nemaline Myopathy doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Nemaline Myopathy doctor in Netherlands?

      You can find a Nemaline Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Nemaline Myopathy doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Nemaline Myopathy doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Nemaline Myopathy doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Nemaline Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different Nemaline Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Nemaline Myopathy doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Nemaline Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Nemaline Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Nemaline Myopathy doctors in Netherlands?

      Look for the filter feature on the left side of the Nemaline Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Nemaline Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Nemaline Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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