The 20 Best Nemaline Myopathy Doctors Near Me in Gelderland, NL

Find the Top Nemaline Myopathy Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 14 doctor with experience in Nemaline Myopathy near Gelderland, NL. Of these, 7 are Experienced, 4 are Distinguished and 3 are Advanced.

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14 providers found
    Distinguished in Nemaline Myopathy

    Esmee B. Van Kleef
    Distinguished in Nemaline Myopathy

    Esmee B. Van Kleef
    Referral may be required
    Nijmegen, GE, NL 

    Esmee Van Kleef practices practicing medicine in Nijmegen, Netherlands. Ms. Van Kleef is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Distinguished in Nemaline Myopathy

    Nicol C. Voermans
    Distinguished in Nemaline Myopathy

    Nicol C. Voermans
    Referral may be required
    Nijmegen, GE, NL 

    Nicol Voermans practices practicing medicine in Nijmegen, Netherlands. Ms. Voermans is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Rhabdomyolysis, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

    Distinguished in Nemaline Myopathy

    Jonne Doorduin
    Distinguished in Nemaline Myopathy

    Jonne Doorduin
    Referral may be required

    Radboudumc

    Nijmegen, GE, NL 

    Jonne Doorduin practices practicing medicine in Nijmegen, Netherlands. Ms. Doorduin is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Cramp-Fasciculation Syndrome, Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and Deep Brain Stimulation.

    Learn about our expert tiers
    Distinguished in Nemaline Myopathy

    Baziel M. Van Engelen
    Distinguished in Nemaline Myopathy

    Baziel M. Van Engelen
    Referral may be required
    Nijmegen, GE, NL 

    Baziel Van Engelen practices practicing medicine in Nijmegen, Netherlands. Van Engelen is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 22 other conditions, according to our data. Their clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Oculopharyngeal Muscular Dystrophy, Paramyotonia Congenita, and Myotonic Dystrophy.

    Advanced in Nemaline Myopathy

    Benno Kusters
    Advanced in Nemaline Myopathy

    Benno Kusters
    Referral may be required

    Radboudumc

    Nijmegen, GE, NL 

    Benno Kusters practices practicing medicine in Nijmegen, Netherlands. Mr. Kusters is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Pheochromocytoma, Nemaline Myopathy, X-Linked Myotubular Myopathy, Bone Marrow Aspiration, and Gastrostomy.

    Advanced in Nemaline Myopathy

    Karlijn Bouman
    Advanced in Nemaline Myopathy

    Karlijn Bouman
    Referral may be required
    Nijmegen, GE, NL 

    Karlijn Bouman practices practicing medicine in Nijmegen, Netherlands. Bouman is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Rigid Spine Syndrome, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Advanced in Nemaline Myopathy

    Erik-jan J. Kamsteeg
    Advanced in Nemaline Myopathy

    Erik-jan J. Kamsteeg
    Referral may be required

    Radboud UMC

    Nijmegen, GE, NL 

    Erik-jan Kamsteeg practices practicing medicine in Nijmegen, Netherlands. Kamsteeg is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 40 other conditions, according to our data. Their clinical expertise encompasses Spastic Paraplegia Type 7, Spasticity, Paraplegia, and Rhabdomyolysis.

    Experienced in Nemaline Myopathy

    Jan T. Groothuis
    Experienced in Nemaline Myopathy

    Jan T. Groothuis
    Referral may be required
    Nijmegen, GE, NL 

    Jan Groothuis practices practicing medicine in Nijmegen, Netherlands. Groothuis is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 11 other conditions, according to our data. Their clinical expertise encompasses Hereditary Neuralgic Amyotrophy, Brachial Plexopathy, Cramp-Fasciculation Syndrome, and Rigid Spine Syndrome.

    Experienced in Nemaline Myopathy

    Baziel G. Van Engelen
    Experienced in Nemaline Myopathy

    Baziel G. Van Engelen
    Referral may be required
    Nijmegen, GE, NL 

    Baziel Van Engelen practices practicing medicine in Nijmegen, Netherlands. Van Engelen is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 10 other conditions, according to our data. Their clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Paramyotonia Congenita, Myotonic Dystrophy Type 2, and Myotonic Dystrophy.

    Experienced in Nemaline Myopathy

    Jeroen M. Van Doorn
    Experienced in Nemaline Myopathy

    Jeroen M. Van Doorn
    Referral may be required
    Nijmegen, GE, NL 

    Jeroen Van Doorn practices practicing medicine in Nijmegen, Netherlands. Mr. Van Doorn is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Cramp-Fasciculation Syndrome, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

    Experienced in Nemaline Myopathy

    Corrie E. Erasmus
    Experienced in Nemaline Myopathy

    Corrie E. Erasmus
    Referral may be required
    Nijmegen, GE, NL 

    Corrie Erasmus practices practicing medicine in Nijmegen, Netherlands. Ms. Erasmus is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Rigid Spine Syndrome, Dysarthria, and Cerebral Palsy.

    Experienced in Nemaline Myopathy

    Richard J. Rodenburg
    Experienced in Nemaline Myopathy

    Richard J. Rodenburg
    Referral may be required
    Nijmegen, GE, NL 

    Richard Rodenburg practices practicing medicine in Nijmegen, Netherlands. Mr. Rodenburg is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Mitochondrial Complex 1 Deficiency, Lactic Acidosis, Cytochrome C Oxidase Deficiency, Leigh Syndrome, and Gamma Knife Radiosurgery.

    Experienced in Nemaline Myopathy

    Meyke I. Schouten
    Experienced in Nemaline Myopathy

    Meyke I. Schouten
    Referral may be required

    Radboudumc

    Nijmegen, GE, NL 

    Meyke Schouten practices practicing medicine in Nijmegen, Netherlands. Schouten is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Rhabdomyolysis, Ring Chromosome 6, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

    Experienced in Nemaline Myopathy

    Joery P. Molenaar
    Experienced in Nemaline Myopathy

    Joery P. Molenaar
    Referral may be required
    Nijmegen, GE, NL 

    Joery Molenaar practices practicing medicine in Nijmegen, Netherlands. Molenaar is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Amyotonia Congenita, Myotonia Congenita, Paramyotonia Congenita, and Nemaline Myopathy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-14 of 14

    Last Updated: 06/30/2026

    What is the definition of Nemaline Myopathy?

    Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.

    When should I see a Nemaline Myopathy doctor in Gelderland, NL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Nemaline Myopathy doctor in Gelderland, NL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Nemaline Myopathy doctor in Gelderland, NL?

    You can find a Nemaline Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Nemaline Myopathy doctors in Gelderland, NL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Nemaline Myopathy doctors in Gelderland, NL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Nemaline Myopathy doctor in Gelderland, NL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Nemaline Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Nemaline Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Nemaline Myopathy doctor in Gelderland, NL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Nemaline Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Nemaline Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Nemaline Myopathy doctors in Gelderland, NL?

    Look for the filter feature on the left side of the Nemaline Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Nemaline Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Nemaline Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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