The 20 Best Nemaline Myopathy Doctors Near Me in Minnesota, US

Find the Top Nemaline Myopathy Experts and Specialists

The 20 Best Nemaline Myopathy Doctors in Minnesota, US

Last Updated: 02/22/2026

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MediFind found 15 doctor with experience in Nemaline Myopathy near Minnesota, US. Of these, 7 are Experienced, 6 are Advanced and 2 are Elite.

Location
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15 providers found
    Margherita Milone
    Elite in Nemaline Myopathy
    Elite in Nemaline Myopathy

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Margherita Milone is a Neurologist in Rochester, Minnesota. Dr. Milone is rated as an Elite provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Necrotizing Myopathy (NM), Progressive External Ophthalmoplegia, Nemaline Myopathy, and Congenital Fiber-Type Disproportion.

    Elite in Nemaline Myopathy
    Neurology
    Elite in Nemaline Myopathy
    Neurology

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Elie Naddaf is a Neurologist in Rochester, Minnesota. Dr. Naddaf is rated as an Elite provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Inclusion Body Myositis, Cytoplasmic Body Myopathy, Nemaline Myopathy, and Myositis.

    Advanced in Nemaline Myopathy
    Advanced in Nemaline Myopathy

    Gillette Childrens Specialty Healthcare

    435 Phalen Blvd, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Jill Gettings is a Physiatrist in Saint Paul, Minnesota. Dr. Gettings is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Cerebral Palsy, Delta-Sarcoglycanopathy, Emery-Dreifuss Muscular Dystrophy, and Miyoshi Myopathy. Dr. Gettings is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Nemaline Myopathy
    Advanced in Nemaline Myopathy

    U Of M Health Clinics And Surgery Center Inc.

    909 Fulton St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Georgios Manousakis is a Neurologist in Minneapolis, Minnesota. Dr. Manousakis is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Paramyotonia Congenita, Myotonic Dystrophy, and Myotonic Dystrophy Type 2.

    Advanced in Nemaline Myopathy
    Family Medicine
    Advanced in Nemaline Myopathy
    Family Medicine

    Family Healthservices Minnesota P.A.

    280 Snelling Ave N, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Denise Long is a primary care provider, practicing in Family Medicine in Saint Paul, Minnesota. Dr. Long is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Collagen VI-Related Myopathy, Tubular Aggregate Myopathy, Centronuclear Myopathy, and Congenital Muscular Dystrophy Type 1A.

    Advanced in Nemaline Myopathy
    Pediatric Neurology
    Advanced in Nemaline Myopathy
    Pediatric Neurology

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Duygu Selcen is a Pediatric Neurologist in Rochester, Minnesota. Dr. Selcen is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Congenital Myasthenic Syndrome, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Advanced in Nemaline Myopathy
    Advanced in Nemaline Myopathy

    Office

    400 E 3rd St, 
    Duluth, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Amber Erickson is a Neurologist in Duluth, Minnesota. Dr. Erickson is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy Type 2, and Spinal Muscular Atrophy with Arthrogryposis.

    Advanced in Nemaline Myopathy
    Pediatric Neurology
    Advanced in Nemaline Myopathy
    Pediatric Neurology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Peter Karachunski is a Pediatric Neurologist in Minneapolis, Minnesota. Dr. Karachunski is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Duchenne Muscular Dystrophy, Paramyotonia Congenita, Myotonic Dystrophy, and Myotonic Dystrophy Type 2.

    Experienced in Nemaline Myopathy
    Experienced in Nemaline Myopathy

    Mayo Clinic-Rochester

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Nicolas Madigan is a Psychiatrist in Rochester, Minnesota. Dr. Madigan is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy Type 3, Peripheral Neuropathy, and Nerve Decompression.

    Experienced in Nemaline Myopathy
    Neuromusculoskeletal Medicine
    Experienced in Nemaline Myopathy
    Neuromusculoskeletal Medicine

    Courage Kenny Rehabilitation Associates Minneapolis

    800 E 28th St Ste 1750, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Elizabeth Beck is a Neuromusculoskeletal Medicine provider in Minneapolis, Minnesota. Dr. Beck is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Spastic Paraplegia Type 2, Spastic Paraplegia Type 3A, Spastic Paraplegia Type 4, and L1 Syndrome.

    Experienced in Nemaline Myopathy
    Family Medicine
    Experienced in Nemaline Myopathy
    Family Medicine

    Mayo Clinic Health System Fairmont

    800 Medical Center Dr, 
    Fairmont, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Jeffrey Green is a primary care provider, practicing in Family Medicine in Fairmont, Minnesota. Dr. Green is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Lung Cancer, Maturity Onset Diabetes of the Young, Hypothyroidism, and Type 2 Diabetes (T2D).

    Experienced in Nemaline Myopathy
    Experienced in Nemaline Myopathy

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Michelle Mauermann is a Neurologist in Rochester, Minnesota. Dr. Mauermann is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, Transthyretin Amyloidosis, Primary Amyloidosis, and Tissue Biopsy.

    Experienced in Nemaline Myopathy
    Experienced in Nemaline Myopathy

    MN - Cancer Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Anthony Windebank is a Neurologist in Rochester, Minnesota. Dr. Windebank is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Neurotoxicity Syndromes, Peripheral Neuropathy, and Tissue Biopsy.

    Experienced in Nemaline Myopathy
    Experienced in Nemaline Myopathy

    Mayo Clinic-Rochester

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Brendan Putko is a Neurologist in Rochester, Minnesota. Dr. Putko is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Fabry Disease, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Centronuclear Myopathy.

    Experienced in Nemaline Myopathy
    Experienced in Nemaline Myopathy

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Christopher Klein is a Neurologist in Rochester, Minnesota. Dr. Klein is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Chronic Polyradiculoneuritis, Mononeuritis Multiplex, Nerve Decompression, and Tissue Biopsy.

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    Last Updated: 02/22/2026

    What is the definition of Nemaline Myopathy?

    Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.

    When should I see a Nemaline Myopathy doctor in Minnesota, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Nemaline Myopathy doctor in Minnesota, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Nemaline Myopathy doctors in Minnesota, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Nemaline Myopathy doctors in Minnesota, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Nemaline Myopathy doctor in Minnesota, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Nemaline Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Nemaline Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Nemaline Myopathy doctor in Minnesota, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Nemaline Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Nemaline Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Nemaline Myopathy doctors in Minnesota, US?

    Look for the filter feature on the left side of the Nemaline Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Nemaline Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Nemaline Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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