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    Last Updated: 10/30/2025

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    MediFind found 66 doctor with experience in Neurofibromatosis Type 1 (NF1) near Baltimore, MD. Of these, 14 are Experienced, 6 are Advanced, 3 are Elite and 2 are Distinguished.

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    66 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Johns Hopkins University

      601 N Caroline St, 
      Baltimore, MD 
       (0.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jaishri Blakeley is a Neurologist in Baltimore, Maryland. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Johns Hopkins University

      600 N Wolf St, 
      Baltimore, MD 
       (1.1 miles away)
      Languages Spoken:
      English

      Christine Pratilas is a Pediatric Hematologist Oncology provider in Baltimore, Maryland. Dr. Pratilas is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Adult Soft Tissue Sarcoma, and Osteotomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Neurofibromatosis Type 1 (NF1)
      Neurology
      Elite in Neurofibromatosis Type 1 (NF1)
      Neurology

      Johns Hopkins University

      600 N Wolfe St, Blalock 266, 
      Baltimore, MD 
       (1.1 miles away)
      Languages Spoken:
      English

      Carlos Romo is a Neurologist in Baltimore, Maryland. Dr. Romo is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Astrocytoma.

      Learn about our expert tiers
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurosurgery
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurosurgery

      Johns Hopkins University

      600 N Wolf St, 
      Baltimore, MD 
       (1.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Allan Belzberg is a Neurosurgery provider in Baltimore, Maryland. Dr. Belzberg is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Schwannomatosis, Neurofibromatosis, Thoracic Outlet Syndrome, Osteotomy, and Rhizotomy.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)

      Johns Hopkins University

      600 N Wolfe St, Blalock 266, 
      Baltimore, MD 
       (1.1 miles away)
      Languages Spoken:
      English

      Shivani Ahlawat is a Radiologist in Baltimore, Maryland. Dr. Ahlawat is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2).

      Advanced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner
      Advanced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner
      601 N Caroline St, 5th Floor-neurology Department, 
      Baltimore, MD 
       (0.9 miles away)
      Languages Spoken:
      English

      Shannon Langmead is a Nurse Practitioner in Baltimore, Maryland. Ms. Langmead is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, RASopathies, Neurofibromatosis Type 1 (NF1), and Legius Syndrome.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)
      1800 Orleans St, 
      Baltimore, MD 
       (1.1 miles away)
      Languages Spoken:
      English

      Archis Bhandarkar is a Neurosurgery provider in Baltimore, Maryland. Dr. Bhandarkar is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Schwannoma, Osteotomy, and Craniectomy.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Neurology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Neurology
      600 N Wolfe St, Woods Science Bldg, 461, 
      Baltimore, MD 
       (1.1 miles away)
      Languages Spoken:
      English

      Thomas Bosley is an Ophthalmologist and a Neurologist in Baltimore, Maryland. Dr. Bosley is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Duane-Radial Ray Syndrome, Sulfite Oxidase Deficiency, Isolated Duane Retraction Syndrome, and Brown Syndrome.

      Advanced in Neurofibromatosis Type 1 (NF1)
      General Surgery | Neurosurgery
      Advanced in Neurofibromatosis Type 1 (NF1)
      General Surgery | Neurosurgery
      600 N Wolfe St, Tower 110, 
      Baltimore, MD 
       (1.1 miles away)
      Languages Spoken:
      English

      Jignesh Tailor is a General Surgeon and a Neurosurgery provider in Baltimore, Maryland. Dr. Tailor is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Choroid Plexus Cyst, Hydrocephalus, Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, Rhizotomy, and Awake Craniotomy.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Johns Hopkins University

      600 N Wolfe St, Blalock 266, 
      Baltimore, MD 
       (1.1 miles away)
      Languages Spoken:
      English

      Kathryn Lemberg is a Pediatric Hematologist Oncology provider in Baltimore, Maryland. Dr. Lemberg is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Adult Soft Tissue Sarcoma.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurosurgery
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurosurgery
      250 W Pratt St, Suite 900, 
      Balitmore, MD 
       (0.7 miles away)
      Languages Spoken:
      English

      Ross Puffer is a Neurosurgery provider in Balitmore, Maryland. Dr. Puffer is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Traumatic Brain Injury, Femoral Nerve Dysfunction, Spinal Fusion, and Posterior Fossa Decompression.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics | Neurology

      University Of Maryland Pediatric Associates, PA

      22 S Green St, 
      Baltimore, MD 
       (0.8 miles away)
      Languages Spoken:
      English

      Stephen Thompson is a Pediatric Neurologist and a Pediatrics provider in Baltimore, Maryland. Dr. Thompson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Migraine with Brainstem Aura, Migraine, Seizures, and Generalized Tonic-Clonic Seizure.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics

      University Of Maryland Pediatric Associates, PA

      22 S Green St, 
      Baltimore, MD 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sofia Saenz-Ayala is a Medical Genetics specialist and a Pediatrics provider in Baltimore, Maryland. Dr. Saenz-Ayala is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Carnitine Palmitoyltransferase 2 Deficiency, and Carnitine Palmitoyltransferase 1 Deficiency. Dr. Saenz-Ayala is currently accepting new patients.

      University Of Maryland Neurology Associates PA

      22 S Green St, 
      Baltimore, MD 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Haroon Ahmad is a Neurologist in Baltimore, Maryland. Dr. Ahmad is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Oligodendroglioma, Astrocytoma, Glioma, and Glioblastoma.

      Medical Genetics | Pediatrics
      Medical Genetics | Pediatrics

      University Of Maryland Pediatric Associates, PA

      22 S Green St, 
      Baltimore, MD 
       (0.8 miles away)
      Languages Spoken:
      English

      Carol Greene is a Medical Genetics specialist and a Pediatrics provider in Baltimore, Maryland. Dr. Greene is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Phenylketonuria (PKU), Increased Head Circumference, and MELAS Syndrome.

      University Of Maryland Diagnostic Imaging Specialists, P A

      22 S Green St, 
      Baltimore, MD 
       (0.8 miles away)
      Languages Spoken:
      English

      Noushin Yahyavi is a Radiologist in Baltimore, Maryland. Dr. Yahyavi is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Hepatocerebral Degeneration, Cerebellar Multiple System Atrophy, Cerebellar Degeneration, and Cerebellum Agenesis Hydrocephaly.

      Pediatric Radiology | Radiology
      Pediatric Radiology | Radiology
      22 S Green St, 
      Baltimore, MD 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Esperanza Pacheco is a Pediatric Radiologist and a Radiologist in Baltimore, Maryland. Dr. Pacheco is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Spinal Tumor and Neurofibromatosis Type 1 (NF1).

      Experienced in Neurofibromatosis Type 1 (NF1)
      Orthopedics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Orthopedics

      Johns Hopkins University

      601 N Caroline St, 
      Baltimore, MD 
       (0.9 miles away)
      Languages Spoken:
      English

      Adam Levin is an Orthopedics provider in Baltimore, Maryland. Dr. Levin is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Adult Soft Tissue Sarcoma, Osteosarcoma, Ollier Disease, Hip Replacement, and Osteotomy.

      Orthopedics
      Orthopedics

      Johns Hopkins University

      601 N Caroline St, 
      Baltimore, MD 
       (0.9 miles away)
      Languages Spoken:
      English

      Brock Lindsey is an Orthopedics provider in Baltimore, Maryland. Dr. Lindsey is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Bone Tumor, Adult Soft Tissue Sarcoma, Osteosarcoma, Hip Replacement, and Knee Replacement.

      Plastic Surgery
      Plastic Surgery

      Johns Hopkins University

      601 N Caroline St, 
      Baltimore, MD 
       (0.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Michele Manahan is a Plastic Surgeon in Baltimore, Maryland. Dr. Manahan is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Legius Syndrome, RASopathies, Neurofibromatosis, Breast Enlargement In Males, and Lymphadenectomy.

      Showing 1-20 of 66

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near Baltimore, MD?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Baltimore, MD?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Baltimore, MD?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Baltimore, MD?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Baltimore, MD?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Baltimore, MD?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Baltimore, MD?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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