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    Last Updated: 10/30/2025

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    MediFind found 82 doctor with experience in Neurofibromatosis Type 1 (NF1) near Bethesda, MD. Of these, 24 are Experienced, 5 are Advanced, 2 are Distinguished and 1 are Elite.

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    82 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      8906 Bradmoor Dr, 
      Bethesda, MD 
       (1.9 miles away)
      Languages Spoken:
      English

      Brigitte Widemann is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Widemann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.

      Constantine A. Stratakis
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Gastroenterology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Gastroenterology
      9000 Rockville Pike, 
      Bethesda, MD 
       (1.3 miles away)
      Languages Spoken:
      English

      Constantine Stratakis is a Medical Genetics specialist and a Gastroenterologist in Bethesda, Maryland. Dr. Stratakis is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Cushing's disease, Neuroendocrine Tumor, Gastrointestinal Stromal Tumor, Orchiectomy, and Hormone Replacement Therapy (HRT).

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      9609 Medical Center Dr, Rm 5-w414, Msc 9737, 
      Bethesda, MD 
       (0.9 miles away)
      Languages Spoken:
      English

      Malcolm Smith is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Smith is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Childhood Acute Myeloid Leukemia, Rhabdomyosarcoma, Neuroblastoma, and Acute Lymphoblastic Leukemia (ALL).

      Learn about our expert tiers
      Michail Mavros
      Surgical Oncology
      Surgical Oncology

      Johns Hopkins Sibley Memorial Hospital

      5255 Loughboro Rd NW, Building B, 
      Washington, DC 
       (3.4 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English

      Dr. Michail "Mike" Mavros, a surgical oncologist specializing in complex cancers, is deeply committed to offering his patients personalized, advanced care. Originally from Athens, Greece, Dr. Mavros's passion for oncology was sparked during medical school after losing a close friend to cancer. This life-changing event inspired him to dedicate his career to improving the lives of cancer patients.Dr. Mavros is one of the few surgeons with accredited subspecialty training in both complex surgical oncology and hepato-pancreato-biliary (HPB) surgery, making him highly qualified to treat cancers of the liver, pancreas, and bile ducts. He is also an expert in minimally invasive surgery, including laparoscopic and robotic-assisted techniques, allowing for faster recovery, reduced pain, and better outcomes.At the heart of Dr. Mavros' approach is his belief in individualized care. Working closely with a dedicated group of multidisciplinary cancer experts, Dr. Mavros ensures that each patient is assessed thoroughly by specialists in medical oncology, radiation oncology, pathology, and more. This collaborative approach allows every patient to receive a well-rounded, comprehensive treatment plan. Using the latest advances in precision medicine, Dr. Mavros develops customized treatment plans tailored to the unique needs of each individual. Dr. Mavros is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Familial Pancreatic Cancer, Neuroendocrine Tumor, Pancreatic Cancer, Pancreaticoduodenectomy, and Pancreatectomy.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurology | Pediatrics
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurology | Pediatrics
      111 Michigan Ave Nw, 
      Washington, DC 
       (5.9 miles away)
      Languages Spoken:
      English

      Roger Packer is a Neurologist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Packer is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Brain Tumor, Diffuse Midline Glioma H3 K27M-Mutant, Medulloblastoma, and Gliomatosis Cerebri.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)
      111 Michigan Ave Nw, Dept Of Hematology/oncology, 
      Washington, DC 
       (5.9 miles away)
      Languages Spoken:
      English

      Srivandana Akshintala is a Pediatrics provider in Washington, Washington, D.c.. Dr. Akshintala is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neuroendocrine Tumor, Ectodermal Dysplasias, and Thyroidectomy.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      10 Center Drive, 
      Bethesda, MD 
       (1.4 miles away)
      Languages Spoken:
      English

      Javed Khan is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Rhabdomyosarcoma, Adult Soft Tissue Sarcoma, Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, and Angioplasty.

      Pediatric Hematology Oncology
      Pediatric Hematology Oncology
      10 Center Dr, Building 10, Crc, Rm 1-3872, 
      Bethesda, MD 
       (1.4 miles away)
      Languages Spoken:
      English

      Aerang Kim is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Osteosarcoma, Rhabdomyosarcoma, Rhabdoid Tumor, and Malignant Peripheral Nerve Sheath Tumor.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)
      10 Center Drive Nih, Building 10, Crc, Room 7-5680, 
      Bethesda, MD 
       (1.4 miles away)
      Languages Spoken:
      English

      Tanya Lehky is a Neurologist in Bethesda, Maryland. Dr. Lehky is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Giant Axonal Neuropathy, Peripheral Neuropathy, Chediak-Higashi Syndrome, and Sandhoff Disease.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics
      5131 Dudley Ln, 
      Bethesda, MD 
       (2.1 miles away)
      Languages Spoken:
      English

      Maximilian Muenke is a Medical Genetics provider in Bethesda, Maryland. Dr. Muenke is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Holoprosencephaly, Turner Syndrome, Micrognathia, and Craniosynostosis.

      Nurse Practitioner
      Nurse Practitioner
      5255 Loughboro Rd Nw, 
      Washington, DC 
       (3.4 miles away)
      Languages Spoken:
      English

      Christine Thomas is a Nurse Practitioner in Washington, Washington, D.c.. Her top area of expertise is Neurofibromatosis Type 1 (NF1).

      Radiology | Neuroradiology
      Radiology | Neuroradiology

      Johns Hopkins University

      5255 Loughboro Rd Nw, Sibley Memorial Hospital, 
      Washington, DC 
       (3.4 miles away)
      Languages Spoken:
      English

      Monica Watkins is a Radiologist and a Neuroradiologist in Washington, Washington, D.c.. Her top areas of expertise are Stroke, Subarachnoid Hemorrhage, Meningioma, and Craniopharyngioma.

      Neuroradiology | Radiology
      Neuroradiology | Radiology

      Johns Hopkins University

      5255 Loughboro Rd Nw, Sibley Memorial Hospital, 
      Washington, DC 
       (3.4 miles away)
      Languages Spoken:
      English

      Kyle Spagnolo is a Neuroradiologist and a Radiologist in Washington, Washington, D.c.. His top areas of expertise are Stroke, CAPOS Syndrome, Subarachnoid Hemorrhage, Increased Head Circumference, and Liver Embolization.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)
      111 Michigan Ave Nw, Children's National Medical Center, 
      Washington, DC 
       (5.9 miles away)
      Languages Spoken:
      English

      Dominique Pichard is a Dermatologist in Washington, Washington, D.c.. Dr. Pichard is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Livedo Reticularis, and Graft Versus Host Disease (GvHD).

      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      111 Michigan Ave Nw, 
      Washington, DC 
       (5.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kenneth Rosenbaum is a Medical Genetics specialist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Rosenbaum is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Triple X Syndrome, and Williams Syndrome. Dr. Rosenbaum is currently accepting new patients.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Internal Medicine
      Advanced in Neurofibromatosis Type 1 (NF1)
      Internal Medicine
      2102 Gallows Rd, 
      Vienna, VA 
       (8.8 miles away)
      Languages Spoken:
      English, Mandarin
      Accepting New Patients
      Offers Telehealth

      Xiaochun Zhang is a primary care provider, practicing in Internal Medicine in Vienna, Virginia. Dr. Zhang is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis, and Neurofibromatosis Type 1 (NF1). Dr. Zhang is currently accepting new patients.

      Anesthesiology
      Anesthesiology
      3800 Reservoir Rd Nw, Department Of Anesthesia, 
      Washington, DC 
       (5.2 miles away)
      Languages Spoken:
      English

      Nina Rawtani is an Anesthesiologist in Washington, Washington, D.c.. Dr. Rawtani is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top area of expertise is Neurofibromatosis Type 1 (NF1).

      Orthopedics
      Orthopedics

      Mgmc LLC

      3800 Reservoir Rd Nw, 
      Washington, DC 
       (5.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Robert Henshaw is an Orthopedics provider in Washington, Washington, D.c.. Dr. Henshaw is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Bone Tumor, Adult Soft Tissue Sarcoma, Rhabdomyosarcoma Embryonal, Bone Graft, and Hip Replacement.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Radiology | Pediatric Radiology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Radiology | Pediatric Radiology

      Children's Hospital

      111 Michigan Ave Nw, 
      Washington, DC 
       (5.9 miles away)
      Languages Spoken:
      English

      Narendra Shet is a Radiologist and a Pediatric Radiologist in Washington, Washington, D.c.. Dr. Shet is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Atresia of Small Intestine, Scoliosis, Short Stature (Growth Disorders), and Situs Inversus.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Radiology | Radiology | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Radiology | Radiology | Pediatrics

      Children's Hospital

      111 Michigan Ave Nw, 
      Washington, DC 
       (5.9 miles away)
      Languages Spoken:
      English

      Harutyun Haroyan is a Pediatric Radiologist and a Radiologist in Washington, Washington, D.c.. Dr. Haroyan is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Hirschsprung Disease, Cerebral Hypoxia, Atresia of Small Intestine, and Dextrocardia with Situs Inversus.

      Showing 1-20 of 82

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near Bethesda, MD?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Bethesda, MD?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Bethesda, MD?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Bethesda, MD?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Bethesda, MD?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Bethesda, MD?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Bethesda, MD?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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