The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Bethesda, MD

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 85 doctor with experience in Neurofibromatosis Type 1 (NF1) near Bethesda, MD. Of these, 22 are Experienced, 6 are Advanced, 3 are Distinguished and 2 are Elite.

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85 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    Office

    8906 Bradmoor Dr, 
    Bethesda, MD 
     (1.9 miles away)
    Languages Spoken:
    English

    Brigitte Widemann is a Hematologist and an Oncologist practicing medicine in Bethesda, Maryland. Dr. Widemann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.

    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (3.3 miles away)
    Languages Spoken:
    English

    Miriam Bornhorst is a Hematologist and an Oncologist practicing medicine in Silver Spring, Maryland. Dr. Bornhorst is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Optic Glioma, and Glioma.

    Ophthalmology
    Ophthalmology

    Johns Hopkins Health Care & Surgery Center — Bethesda

    6430 Rockledge Drive, Building 6, Building 6, 
    Bethesda, MD 
     (3.2 miles away)
    Languages Spoken:
    English

    Andrew R. Carey, MD is a the Neil R. Miller Rising Professor of Ophthalmology in the division of Neuro-Ophthalmology at the Wilmer Eye Institute. He specializes in neuro-ophthalmic disorders such as optic neuritis, uveitis related papillitis, ischemic & hereditary optic neuropathies as well as diseases of the retina, including age-related macular degeneration, diabetic retinopathy, toxic retinopathies and inherited disorders of the retina such as retinitis pigmentosa. Dr. Carey’s clinical and research interests include comparative effectiveness and cost-benefit of intravitreal medications, long-term outcome of treatments for choroidal neovascularization, novel treatments for papillitis, and the use of novel imaging modalities to better diagnose and understand optic nerve and retinal diseases. Dr. Carey received his bachelor's from Davidson College in mathematics in 2006. In 2010, he received his medical degree from the University of South Florida. He completed his ophthalmology residency as Chief Resident in 2014 at the University of South Florida. He then went on to complete his fellowship in neuro-ophthalmology at Bascom Palmer Eye Institute in 2015 and his fellowship in medical retina at the University of Iowa in 2016. Videos Dr. Andrew R. CareyNeuro-Ophthalmology. Dr. Carey is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Papilledema, Increased Intracranial Pressure, Optic Nerve Atrophy, and Optic Neuritis. Dr. Carey is board certified in American Board Of Ophthalmology.

    Learn about our expert tiers
    Surgical Oncology
    Surgical Oncology

    Sibley Memorial Hospital

    5255 Loughboro Road Northwest, Building B, Building B, 
    Washington, DC 
     (3.3 miles away)
    Languages Spoken:
    English, Greek

    Dr. Michail Mavros, a surgical oncologist specializing in complex cancers, is deeply committed to offering his patients personalized, advanced care. Originally from Athens, Greece, Dr. Mavros's passion for oncology was sparked during medical school after losing a close friend to cancer. This life-changing event inspired him to dedicate his career to improving the lives of cancer patients. Dr. Mavros is one of few surgeons with accredited subspecialty training in both complex surgical oncology and hepato-pancreato-biliary (HPB) surgery, making him highly qualified to treat cancers of the liver, pancreas, and bile ducts. He is also skilled in minimally invasive techniques, including laparoscopic and robotic-assisted surgery, which offer benefits such as faster recovery, reduced pain, and improved outcomes. At the heart of Dr. Mavros' approach is his belief in individualized care. He works closely with a multidisciplinary team of experts, including medical oncologists, radiation oncologists, and pathologists, to ensure each patient receives a thorough evaluation. This collaborative approach results in comprehensive, personalized treatment plans. By leveraging the latest advances in precision medicine, Dr. Mavros tailors his treatments to meet the unique needs of each patient, guided by the most current scientific research and evidence-based practices. Dr. Mavros is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Neuroendocrine Tumor, Familial Pancreatic Cancer, Pancreatic Cancer, Pancreaticoduodenectomy, and Pancreatectomy. Dr. Mavros is board certified in American Board Of Surgery.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (3.3 miles away)
    Languages Spoken:
    English

    Aerang Kim is a Hematologist and an Oncologist practicing medicine in Silver Spring, Maryland. Dr. Kim is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Adult Soft Tissue Sarcoma.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)

    Office

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (3.3 miles away)
    Languages Spoken:
    English

    Dominique Pichard is a Dermatologist practicing medicine in Silver Spring, Maryland. Dr. Pichard is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Graft Versus Host Disease (GvHD), and DRESS Syndrome.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurology

    National Institutes Of Health

    10 Center Dr Bldg 10CRC, 
    Bethesda, MD 
     (0.4 miles away)
    Languages Spoken:
    English

    Tanya Lehky is a Neurologist practicing medicine in Bethesda, Maryland. Dr. Lehky is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Giant Axonal Neuropathy, Peripheral Neuropathy, Chediak-Higashi Syndrome, and Sandhoff Disease.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Gastroenterology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Gastroenterology
    9000 Rockville Pike, 
    Bethesda, MD 
     (1.3 miles away)
    Languages Spoken:
    English

    Constantine Stratakis is a Medical Genetics specialist and a Gastroenterologist practicing medicine in Bethesda, Maryland. Dr. Stratakis is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Cushing's disease, Neuroendocrine Tumor, Gastrointestinal Stromal Tumor, Hormone Replacement Therapy (HRT), and Orchiectomy.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (3.3 miles away)
    Languages Spoken:
    English

    Ramon Sanchez is a Pediatric Radiologist practicing medicine in Silver Spring, Maryland. Dr. Sanchez is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Hirschsprung Disease, Scoliosis, Spondylocarpotarsal Synostosis Syndrome, and Caudal Regression Syndrome.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (3.3 miles away)
    Languages Spoken:
    English

    Harutyun Haroyan is a Neuroradiologist practicing medicine in Silver Spring, Maryland. Dr. Haroyan is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Hirschsprung Disease, Cerebral Hypoxia, Atresia of Small Intestine, and Situs Inversus.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Radiology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (3.3 miles away)
    Languages Spoken:
    English

    Jonathan Zember is a Pediatric Radiologist practicing medicine in Silver Spring, Maryland. Dr. Zember is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Cantu Syndrome, Simpson-Golabi-Behmel Syndrome, Megalencephaly-Capillary Malformation Syndrome, and Hemi 3 Syndrome.

    Pediatric Radiology
    Pediatric Radiology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (3.3 miles away)
    Languages Spoken:
    English

    Sobia Mirza is a Pediatric Radiologist practicing medicine in Silver Spring, Maryland. Dr. Mirza is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Scoliosis, Atresia of Small Intestine, Spondylocarpotarsal Synostosis Syndrome, and Caudal Regression Syndrome.

    Pediatric Radiology
    Pediatric Radiology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (3.3 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Judyta Loomis is a Pediatric Radiologist practicing medicine in Silver Spring, Maryland. She has been practicing medicine for over 17 years. Dr. Loomis is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1).

    Neuroradiology
    Neuroradiology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (3.3 miles away)
    Languages Spoken:
    English

    Jonathan Murnick is a Neuroradiologist practicing medicine in Silver Spring, Maryland. Dr. Murnick is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Premature Infant, Cortical Dysplasia, Schizencephaly, and Intraventricular Hemorrhage of the Newborn.

    Pediatric Radiology
    Pediatric Radiology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (3.3 miles away)
    Languages Spoken:
    English

    Jane Kim is a Pediatric Radiologist practicing medicine in Silver Spring, Maryland. Dr. Kim is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1).

    Neuroradiology
    Neuroradiology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (3.3 miles away)
    Languages Spoken:
    English

    Gilbert Vezina is a Neuroradiologist practicing medicine in Silver Spring, Maryland. Dr. Vezina is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis Type 1 (NF1).

    Dermatology
    Dermatology
    111 Michigan Ave Nw # 3w-618, 
    Washington, DC 
     (4.9 miles away)
    Languages Spoken:
    English

    Anna Kirkorian is a Dermatologist practicing medicine in Washington, Washington, D.c.. Dr. Kirkorian is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Familial Multiple Nevi Flammei, Vascular Birthmark, Linear Hamartoma Syndrome, and Stork Bite.

    Pediatric Cardiology
    Pediatric Cardiology

    CNMC Cardiology Dept

    111 Michigan Avenue Northwest, Suite 200, Suite 200, 
    Washington, DC 
     (4.9 miles away)
    Languages Spoken:
    English

    Ian Hovis is a Pediatric Cardiologist practicing medicine in Washington, Washington, D.c.. Dr. Hovis is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Heart Murmurs, Congenital Heart Block, Ventricular Septal Defects, and Scarlet Fever. Dr. Hovis is board certified in American Board Of Pediatrics.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    Office

    9609 Rockville Pike Rm 5-W414, 
    Bethesda, MD 
     (0.4 miles away)
    Languages Spoken:
    English

    Malcolm Smith is a Hematologist and an Oncologist practicing medicine in Bethesda, Maryland. Dr. Smith is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Rhabdomyosarcoma, Neuroblastoma, Ewing Sarcoma, and Embryonal Tumor with Multilayered Rosettes.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (3.3 miles away)
    Languages Spoken:
    English

    Lindsay Kilburn is a Hematologist and an Oncologist practicing medicine in Silver Spring, Maryland. Dr. Kilburn is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Diffuse Midline Glioma H3 K27M-Mutant, Brain Stem Cancer, Glioma, and Optic Glioma.

    Showing 1-20 of 85

    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor near Bethesda, MD?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Bethesda, MD?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Bethesda, MD?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Bethesda, MD?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Bethesda, MD?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Bethesda, MD?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Bethesda, MD?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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