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    Last Updated: 10/30/2025

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    MediFind found 220 doctor with experience in Odontotrichomelic Syndrome near The United States. Of these, 203 are Experienced and 17 are Advanced.

    Location
    LocationClose
    220 providers found
      Experienced in Odontotrichomelic Syndrome
      Pediatrics | Internal Medicine
      Experienced in Odontotrichomelic Syndrome
      Pediatrics | Internal Medicine

      Christus Trinity Clinic

      630 S Fleishel Ave, 
      Tyler, TX 
      Languages Spoken:
      English
      Accepting New Patients

      Autumn Whitlock-Morales is a primary care provider, practicing in Pediatrics and Internal Medicine in Tyler, Texas. Dr. Whitlock-Morales is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Vitamin D Deficiency, Polycystic Ovary Syndrome, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Whitlock-Morales is currently accepting new patients.

      Robert C. Ward
      Advanced in Odontotrichomelic Syndrome
      Advanced in Odontotrichomelic Syndrome

      Corewell Health Lakeland Hospitals Neurology Royalton

      3950 Hollywood Road, Suite 230, 
      Saint Joseph, MI 
      Experience:
      40+ years
      Languages Spoken:
      English
      Accepting New Patients

      Robert Ward is a Neurologist in Saint Joseph, Michigan. Dr. Ward has been practicing medicine for over 40 years and is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Autosomal Dominant Partial Epilepsy with Auditory Features, Axillary Nerve Dysfunction, Seizures, and Memory Loss. Dr. Ward is currently accepting new patients.

      Ashley P. Gaines
      Advanced in Odontotrichomelic Syndrome
      Internal Medicine
      Advanced in Odontotrichomelic Syndrome
      Internal Medicine

      Atrium Health Primary Care Ardsley Internal Medicine

      5427 Hwy 49 S., Suite 102, 
      Harrisburg, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Ashley Gaines is a primary care provider, practicing in Internal Medicine in Harrisburg, North Carolina. Dr. Gaines is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Macroamylasemia, Childhood Iron Deficiency Anemia, Chronic Cough, and Anemia. Dr. Gaines is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Johns Hopkins University

      600 N Wolfe St, Blalock 266, 
      Baltimore, MD 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Jacqueline Harris is a Pediatric Neurologist and a Pediatrics provider in Baltimore, Maryland. Dr. Harris is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Stickler Syndrome, 3MC Syndrome, Galactosialidosis, and Odontotrichomelic Syndrome. Dr. Harris is currently accepting new patients.

      Advanced in Odontotrichomelic Syndrome
      Family Medicine
      Advanced in Odontotrichomelic Syndrome
      Family Medicine
      3854 E Lk Sammamish Pkwy Ne, 
      Sammamish, WA 
      Languages Spoken:
      English

      Donald Stewart is a primary care provider, practicing in Family Medicine in Sammamish, Washington. Dr. Stewart is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are 3MC Syndrome, Coffin-Lowry Syndrome, Galactosialidosis, and Borjeson-Forssman-Lehmann Syndrome.

      Advanced in Odontotrichomelic Syndrome
      Advanced in Odontotrichomelic Syndrome

      Rush University Medical Group

      1725 W Harrison St, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Deborah Hall is a Neurologist in Chicago, Illinois. Dr. Hall is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Fragile X Syndrome, Fragile XE Syndrome, Parkinson's Disease, and Movement Disorders. Dr. Hall is currently accepting new patients.

      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      2300 Childrens Plaza, Childrens Memorial Hospital, 
      Chicago, IL 
      Languages Spoken:
      English

      Leon Epstein is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Epstein is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Stickler Syndrome, Kabuki Syndrome, 3MC Syndrome, and Galactosialidosis.

      Advanced in Odontotrichomelic Syndrome
      Neurology | Sleep Medicine
      Advanced in Odontotrichomelic Syndrome
      Neurology | Sleep Medicine

      Palma Sola Neurology Associates

      Bradenton, FL 
      Languages Spoken:
      English, Kannada, Sanskrit, Spanish
      Accepting New Patients
      Offers Telehealth

      Sanjay Yathiraj is a Neurologist and a Sleep Medicine provider in Bradenton, Florida. Dr. Yathiraj is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Obstructive Sleep Apnea, Cerebellar Degeneration, Multifocal Motor Neuropathy, and Vascular Dementia. Dr. Yathiraj is currently accepting new patients.

      Advanced in Odontotrichomelic Syndrome
      Internal Medicine
      Advanced in Odontotrichomelic Syndrome
      Internal Medicine

      Sciometrix Inc

      1060 Broadway, Suite 100, 
      Menands, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Himanshu Patel is a primary care provider, practicing in Internal Medicine in Menands, New York. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Kabuki Syndrome, Galactosialidosis, Borjeson-Forssman-Lehmann Syndrome, and Stickler Syndrome.

      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English

      John Taylor is a Pediatric Neurologist and a Pediatrics provider in Cincinnati, Ohio. Dr. Taylor is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Cavernous Sinus Thrombosis, Moyamoya Disease, Arteriovenous Malformation, and Wyburn-Mason Syndrome.

      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      University Of Texas Southwestern Medical Center At Dallas

      2350n Stemmons Fwy 4300, 
      Dallas, TX 
      Languages Spoken:
      English

      Michael Dowling is a Pediatric Neurologist and a Pediatrics provider in Dallas, Texas. Dr. Dowling is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Cavernous Sinus Thrombosis, GAPO Syndrome, Moyamoya Disease, and Bacterial Meningitis.

      Advanced in Odontotrichomelic Syndrome
      Family Medicine
      Advanced in Odontotrichomelic Syndrome
      Family Medicine

      Cedar Point Health LLC

      3330 S Rio Grande Ave, 
      Montrose, CO 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kevin Pulsipher is a primary care provider, practicing in Family Medicine in Montrose, Colorado. Dr. Pulsipher is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Bacterial Prostatitis, Nonbacterial Prostatitis, Asthma in Children, and Asthma. Dr. Pulsipher is currently accepting new patients.

      Advanced in Odontotrichomelic Syndrome
      Advanced in Odontotrichomelic Syndrome

      Allegheny Clinic

      320 E N Ave, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Meghan Piccinin is a Neurologist in Pittsburgh, Pennsylvania. Dr. Piccinin is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Odontotrichomelic Syndrome, GAPO Syndrome, Hip Replacement, and Knee Replacement.

      Advanced in Odontotrichomelic Syndrome
      Family Medicine
      Advanced in Odontotrichomelic Syndrome
      Family Medicine

      Atrius Health Inc

      1250 Hancock St, 
      Quincy, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Tu-mai Tran is a primary care provider, practicing in Family Medicine in Quincy, Massachusetts. Dr. Tran is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Coffin-Lowry Syndrome, Kabuki Syndrome, Galactosialidosis, and Odontotrichomelic Syndrome.

      Advanced in Odontotrichomelic Syndrome
      Family Medicine
      Advanced in Odontotrichomelic Syndrome
      Family Medicine

      Texas Aandm University System Health Science Center

      2900 E 29th St, Suite 200, 
      Bryan, TX 
      Languages Spoken:
      English
      Accepting New Patients

      David Vaughan is a primary care provider, practicing in Family Medicine in Bryan, Texas. Dr. Vaughan is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Type 2 Diabetes (T2D). Dr. Vaughan is currently accepting new patients.

      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Urion is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Urion is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Agyria Pachygyria Polymicrogyria, VLDLR-Associated Cerebellar Hypoplasia, Lissencephaly 1, Joubert Syndrome, and Gastrostomy. Dr. Urion is currently accepting new patients.

      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      University Of Texas Southwestern Medical Center At Dallas

      1935 Medical District Dr, 
      Dallas, TX 
      Languages Spoken:
      English

      Saima Kayani is a Pediatric Neurologist and a Pediatrics provider in Dallas, Texas. Dr. Kayani is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Leigh Syndrome, CLN2 Disease, Batten Disease, and CLN3 Disease.

      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English

      Eileen Broomall is a Pediatric Neurologist and a Neurologist in Cincinnati, Ohio. Dr. Broomall is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Seizures, Epilepsy in Children, Memory Loss, and Athetosis.

      Steven T. Deroos
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      32+ years
      Languages Spoken:
      English
      Accepting New Patients

      Steven Deroos is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Deroos has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Dandy-Walker Syndrome. Dr. Deroos is currently accepting new patients.

      Sumit Parikh
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
      Experience:
      32+ years
      Languages Spoken:
      English

      Sumit Parikh is a Pediatric Neurologist in Cleveland, Ohio. Dr. Parikh has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Leigh Syndrome, Kearns-Sayre Syndrome, Maternally Inherited Leigh Syndrome, and MELAS Syndrome.

      Showing 1-20 of 220

      Last Updated: 10/30/2025

      What is the definition of Odontotrichomelic Syndrome?

      Odontotrichomelic syndrome is a very rare ectodermal dysplasia affecting the hair, teeth, and nails and all four extremities. The main problems are malformations of all the extremities including absence of several bones in the hands and feet, abnormal teeth, and sparse hair (hypotrichosis). Other signs and symptoms may include: very small or undeveloped (hypoplastic) nails; abnormalities of the ear; excessive sweating (hyperhidrosis); an unusual facial appearance with malformed ears, large nose, high forehead, and protruding lips; as well as a flat head, long neck, and sloping shoulders with dimples on top. The cause is unknown. Inheritance is autosomal recessive.

      When should I see an Odontotrichomelic Syndrome doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Odontotrichomelic Syndrome doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Odontotrichomelic Syndrome doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Odontotrichomelic Syndrome doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Odontotrichomelic Syndrome doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Odontotrichomelic Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Odontotrichomelic Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Odontotrichomelic Syndrome doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Odontotrichomelic Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Odontotrichomelic Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Odontotrichomelic Syndrome doctors in The United States?

      Look for the filter feature on the left side of the Odontotrichomelic Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Odontotrichomelic Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Odontotrichomelic Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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