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    Last Updated: 10/30/2025

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    MediFind found 15 doctor with experience in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy near Boston, MA. Of these, 13 are Experienced and 2 are Advanced.

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    15 providers found
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Melinda Peters is a Medical Genetics provider in Boston, Massachusetts. Dr. Peters is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are N-Acetyl-Alpha-D-Galactosaminidase Deficiency Type 3, Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), and Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome).

      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Olaf Bodamer is a Medical Genetics provider in Boston, Massachusetts. Dr. Bodamer is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Kabuki Syndrome, Classic Galactosemia, Niemann-Pick Disease, and Mucopolysaccharidoses (MPS). Dr. Bodamer is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amel Karaa is a Medical Genetics provider in Boston, Massachusetts. Dr. Karaa is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are MELAS Syndrome, Progressive External Ophthalmoplegia, Fabry Disease, and Multiple Sulfatase Deficiency. Dr. Karaa is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Internal Medicine | Hospital Medicine
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Internal Medicine | Hospital Medicine

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      David Lucier is a Hospital Medicine provider in Boston, Massachusetts. Dr. Lucier is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top area of expertise is Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics | Pediatrics | Pediatric Hematology Oncology
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics | Pediatrics | Pediatric Hematology Oncology

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      David Sweetser is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sweetser is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Hypotonia, Ornithine Transcarbamylase Deficiency, Ornithine Translocase Deficiency, and Propionic Acidemia. Dr. Sweetser is currently accepting new patients.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Intensive Care Medicine | Pediatrics
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Intensive Care Medicine | Pediatrics
      333 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Catherine Ross is an Intensive Care Medicine specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Ross is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are GM1 Gangliosidosis, Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, and Distal 18q Deletion Syndrome.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Physiatry | Orthopedics
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Physiatry | Orthopedics

      Children's Orthopaedic Surgery Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      David Fogelman is a Physiatrist and an Orthopedics provider in Boston, Massachusetts. Dr. Fogelman has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Spastic Diplegia Infantile Type, Cerebral Palsy, Spasticity, and Moebius Syndrome. Dr. Fogelman is currently accepting new patients.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Alicia Casey is a Pediatric Pulmonologist and a Pediatrics provider in Boston, Massachusetts. Dr. Casey is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Interstitial Lung Disease, Acute Interstitial Pneumonia, Bronchiolitis Obliterans, and Chronic Graft Versus Host Disease (cGvHD). Dr. Casey is currently accepting new patients.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Neurology | Neurology | Sleep Medicine
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Neurology | Neurology | Sleep Medicine

      C H Neurology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Kiran Maski is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Maski is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Drowsiness, Narcolepsy, Excessive Daytime Sleepiness, and Idiopathic Hypersomnia.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Nurse Practitioner
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Nurse Practitioner
      300 Longwood Ave, 9nw, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Danielle Friedman is a Nurse Practitioner in Boston, Massachusetts. Ms. Friedman is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top area of expertise is Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Ophthalmology
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Ophthalmology

      Childrens Hospital Ophthalmology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Anne Fulton is an Ophthalmologist in Boston, Massachusetts. Dr. Fulton is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Retinopathy of Prematurity, X-Linked Congenital Stationary Night Blindness, Retinopathy Pigmentary Mental Retardation, and X-Linked Juvenile Retinoschisis. Dr. Fulton is currently accepting new patients.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatrics
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Joan Li is a Pediatrics provider in Boston, Massachusetts. Dr. Li is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Niemann-Pick Disease and Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics | Pediatrics
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Amy Kritzer is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Kritzer is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Maternal Hyperphenylalaninemia, Phenylketonuria (PKU), Biotinidase Deficiency, and Smith-Lemli-Opitz Syndrome. Dr. Kritzer is currently accepting new patients.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Juliana Mariani is a Pediatrics provider in Boston, Massachusetts. Dr. Mariani is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Coach Syndrome, Lissencephaly 2, Bilateral Perisylvian Polymicrogyria, Myringotomy, and Adenoidectomy.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      300 Longwood Ave, Children's Hospital Boston, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Danielle Kaplan is a Pediatrics provider in Boston, Massachusetts. Dr. Kaplan is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Lissencephaly 1, Bilateral Perisylvian Polymicrogyria, Lissencephaly 2, and Coach Syndrome.

      Showing 1-15 of 15

      Last Updated: 10/30/2025

      What is the definition of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy?

      Polycystic lipomembranous osteodysplasia with sclerosing leukoencephalopathy, commonly known as PLOSL, is a progressive disorder that affects the bones and brain.  "Polycystic lipomembranous osteodysplasia" refers to cyst-like bone changes that can be seen on x-rays.  "Sclerosing leukoencephalopathy" describes specific changes in the brain that are found in people with this disorder.

      When should I see a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. 

      Why is it important to get a second opinion from a different Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors near Boston, MA?

      Look for the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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