The 20 Best Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy Doctors Near Me

Find the Top Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 476 doctor with experience in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Of these, 364 are Experienced, 97 are Advanced, 14 are Distinguished and 1 are Elite.

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476 providers found
    Elite in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Elite in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Tokyo, JP 

    Jun-ichi Satoh practices practicing medicine in Tokyo, Japan. Mr. Satoh is rated as an Elite expert by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Subacute Sclerosing Panencephalitis, Schwartz-Jampel Syndrome, and Chondrodystrophy.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Milan, IT 

    Daniela Galimberti practices practicing medicine in Milan, Italy. Ms. Galimberti is rated as a Distinguished expert by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Frontotemporal Dementia, Dementia, Alzheimer's Disease, and Primary Progressive Aphasia.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English

    Raymond Wang is a Medical Genetics provider practicing medicine in Orange, California. Dr. Wang is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Pompe Disease, and Adenoidectomy.

    Learn about our expert tiers
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    N Building - Education Building And Lerner Research Institute

    9620 Carnegie Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English, French, German, Spanish
    Offers Telehealth

    Angelika Erwin is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Erwin is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Megalencephalic Leukoencephalopathy with Subcortical Cysts, Multiple Sulfatase Deficiency, Gaucher Disease Type 3, and Gaucher Disease Type 1. Dr. Erwin is board certified in American Board Of Medical Genetics And Genomics, 2013.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    London, ENG, GB 

    Rita Guerreiro practices practicing medicine in London, United Kingdom. Ms. Guerreiro is rated as a Distinguished expert by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Dementia, Lewy Body Dementia (LBD), and Alzheimer's Disease.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Jose Bras practices practicing medicine in London, United Kingdom. Mr. Bras is rated as a Distinguished expert by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Dementia, Lewy Body Dementia (LBD), and Alzheimer's Disease.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Internal Medicine
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Internal Medicine

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Wendy Raskind is an Internal Medicine provider practicing medicine in Seattle, Washington. Dr. Raskind is rated as a Distinguished provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Cowden Syndrome, Phacomatosis Pigmentovascularis, and Peutz-Jeghers Syndrome.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Neurology
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Neurology

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Marie Davis is a Neurologist practicing medicine in Seattle, Washington. Dr. Davis is rated as a Distinguished provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Niemann-Pick Disease, Spastic Paraplegia Type 7, and Huntington Disease.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Sanda, JP 

    Kenji Jinnai practices practicing medicine in Sanda, Japan. Mr. Jinnai is rated as a Distinguished expert by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Paramyotonia Congenita.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Tokyo, JP 

    Nobutaka Arai practices practicing medicine in Tokyo, Japan. Arai is rated as a Distinguished expert by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Subacute Sclerosing Panencephalitis, Schwartz-Jampel Syndrome, and Corticobasal Degeneration.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Marc Patterson is a Pediatric Neurologist practicing medicine in Rochester, Minnesota. Dr. Patterson is rated as a Distinguished provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Leukodystrophy, and CACH Syndrome.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Istanbul, TR 

    Hakan Gurvit practices practicing medicine in Istanbul, Turkey. Mr. Gurvit is rated as a Distinguished expert by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Movement Disorders, Dementia, Anti-NMDA Receptor Encephalitis, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, and Heart Bypass Surgery.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Istanbul, TR 

    Basar Bilgic practices practicing medicine in Istanbul, Turkey. Bilgic is rated as a Distinguished expert by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. They are also highly rated in 14 other conditions, according to our data. Their clinical expertise encompasses Movement Disorders, Anti-NMDA Receptor Encephalitis, Parkinson's Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, and Deep Brain Stimulation.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Warsaw, MZ, PL 

    Mariusz Berdynski practices practicing medicine in Warsaw, Poland. Mr. Berdynski is rated as a Distinguished expert by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Subacute Sclerosing Panencephalitis, Frontotemporal Dementia, and Schwartz-Jampel Syndrome.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Larisa, ESYE14, GR 

    Efthimios Dardiotis practices practicing medicine in Larisa, Greece. Dardiotis is rated as a Distinguished expert by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. They are also highly rated in 23 other conditions, according to our data. Their clinical expertise encompasses Dementia, Transient Global Amnesia, Parkinson's Disease, Thrombectomy, and Pacemaker Implantation.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Warsaw, MZ, PL 

    Anna Barczak practices practicing medicine in Warsaw, Poland. Ms. Barczak is rated as a Distinguished expert by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Subacute Sclerosing Panencephalitis, Dysgraphia, and Dementia.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Nurse Practitioner
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Nurse Practitioner

    Baptist Health Medical Group Family Medicine

    1919 State St Ste 446, 
    New Albany, IN 
    Languages Spoken:
    English
    Offers Telehealth

    Janet Hollis is a Nurse Practitioner practicing medicine in New Albany, Indiana. Ms. Hollis is rated as a Distinguished provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Vitamin D Deficiency, Opioid Induced Constipation, and Emphysema.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pulmonary Medicine | Intensive Care Medicine | Internal Medicine
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pulmonary Medicine | Intensive Care Medicine | Internal Medicine

    Taubman Center

    1500 E Medical Center Dr, Floor 3 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Benjamin Singer is an Assistant Professor in Pulmonary and Critical Care Medicine in the Department of Internal Medicine at the University of Michigan. He received his undergraduate degree in mathematics at the University of Michigan in 2002. Dr. Singer completed his medical training and PhD in Neuroscience through the Medical Scientist Training Program, and subsequently completed residency in Internal Medicine and fellowship training in Pulmonary and Critical Care Medicine, all at the University of Michigan.Approximately half of patients who survive an episode of critical illness experience long term brain dysfunction, in the form of anxiety, depression, post traumatic stress, or cognitive impairment. Dr. Singer’s research focuses on basic and translational studies of long-term brain injury after critical illness, with a focus on sepsis. These studies utilize animal models of sepsis and patient autopsy specimens to examine the immune and vascular responses to sepsis in the brain that persist for weeks to months after the outward signs of illness have resolved. In collaboration with Dr. Bob Dickson, he also examines the role of the gut microbiome in initiation of brain injury and multiorgan failure during sepsis. The goal of this work is to identify strategies to minimize and rehabilitate ongoing brain injury in sepsis survivors. Areas of special clinical focus include the care of patients with advance neuromuscular disease requiring chronic assisted ventilation. Dr. Singer is supported by a National Institute of Neurological Disorders and Stroke Career Development Award, MICHR, and University of Michigan Depression Center. Dr. Singer is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Lung Metastases, Acute Interstitial Pneumonia, Obesity Hypoventilation Syndrome (OHS), and Interstitial Lung Disease. Dr. Singer is board certified in Internal Medicine, Pulmonary Disease, and Critical Care Medicine.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    32+ years
    Languages Spoken:
    English
    Offers Telehealth

    Sumit Parikh is a Pediatric Neurologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 32 years. Dr. Parikh is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 168 other conditions, according to our data. His clinical expertise encompasses Kearns-Sayre Syndrome, Maternally Inherited Leigh Syndrome, Leigh Syndrome, and MELAS Syndrome. Dr. Parikh is board certified in American Board Of Psychiatry And Neurology, 2006.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics | Pediatric Pulmonology
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics | Pediatric Pulmonology

    Children's - Pulmonology Clinic

    333 N. Santa Rosa St., 2nd Floor, Floor 2, 
    San Antonio, TX 
    Languages Spoken:
    English

    Kelly Smith is a Pediatrics specialist and a Pediatric Pulmonologist practicing medicine in San Antonio, Texas. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His clinical expertise encompasses Cerebral Hypoxia, Congenital Unilateral Pulmonary Hypoplasia, Short Rib-Polydactyly Syndrome Type 1, and Bronchogenic Cyst. Dr. Smith is board certified in American Board Of Pediatrics and American Board Of Internal Medicine.

    Showing 1-20 of 476

    Last Updated: 04/28/2026

    What is the definition of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy?

    Polycystic lipomembranous osteodysplasia with sclerosing leukoencephalopathy, commonly known as PLOSL, is a progressive disorder that affects the bones and brain.  "Polycystic lipomembranous osteodysplasia" refers to cyst-like bone changes that can be seen on x-rays.  "Sclerosing leukoencephalopathy" describes specific changes in the brain that are found in people with this disorder.

    When should I see a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. 

    Why is it important to get a second opinion from a different Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors near me?

    Look for the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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