The 20 Best Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy Doctors Near Me in Minnesota, US

Find the Top Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 15 doctor with experience in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy near Minnesota, US. Of these, 12 are Experienced, 2 are Advanced and 1 are Distinguished.

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15 providers found
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Marc Patterson is a Pediatric Neurologist practicing medicine in Rochester, Minnesota. Dr. Patterson is rated as a Distinguished provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Leukodystrophy, and CACH Syndrome.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Tori Bahr is a primary care provider, practicing in Pediatrics in Saint Paul, Minnesota. Dr. Bahr is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 50 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Moebius Syndrome, Temple Syndrome, and Tetrasomy 9p.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Neurology
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Neurology

    Bloomington/Edina Clinic

    3601 Minnesota Dr Ste 200, 
    Edina, MN 
    Languages Spoken:
    English

    Tim Feyma is a Neurologist practicing medicine in Edina, Minnesota. Dr. Feyma is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 123 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Cerebral Palsy, Focal Dystonia, Partial Familial Epilepsy, and Microvascular Decompression.

    Learn about our expert tiers
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    U Of M Health Clinics And Surgery Center Inc.

    909 Fulton St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    James Langland is a primary care provider, practicing in Geriatrics in Minneapolis, Minnesota. Dr. Langland is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Hemophilia B, Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, and Hepatitis C.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics

    Gillette Children's-Phalen Clinic

    435 Phalen Blvd, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Heidi Davis is a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Davis is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her clinical expertise encompasses Orofaciodigital Syndrome 6, Coach Syndrome, Bilateral Perisylvian Polymicrogyria, and Lissencephaly 1.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Orthopedics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Orthopedics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Tom Novacheck is a Pediatric Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. Novacheck is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Spastic Diplegia Infantile Type, Beukes Familial Hip Dysplasia, Trisomy 3 Mosaicism, Rhizotomy, and Osteotomy.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Orthopedics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Orthopedics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Tenner Guillaume is a Pediatric Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. Guillaume is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Scoliosis, CHARGE Syndrome, Wildervanck Syndrome, Spinal Fusion, and Gastrostomy.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Neuromusculoskeletal Medicine
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Neuromusculoskeletal Medicine

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Randal Richardson is a Neuromusculoskeletal Medicine provider practicing medicine in Saint Paul, Minnesota. Dr. Richardson is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 62 other conditions, according to our data. His clinical expertise encompasses Miyoshi Myopathy, Emery-Dreifuss Muscular Dystrophy, Oculopharyngeal Muscular Dystrophy, and Delta-Sarcoglycanopathy.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics | Pediatrics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics | Pediatrics

    Mayo Clinic

    Rochester, MN 
    Languages Spoken:
    English, Mandarin
    Accepting New Patients

    Khoon Tan is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Rochester, Minnesota. Dr. Tan is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her clinical expertise encompasses Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Chromosome 7p Deletion, and Chromosome 6q Deletion. Dr. Tan is currently accepting new patients.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Internal Medicine
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Internal Medicine

    Abbott Northwestern Hospital

    800 E 28th St, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Erin Wise is an Internal Medicine provider practicing medicine in Minneapolis, Minnesota. Dr. Wise is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her clinical expertise encompasses Multiple Epiphyseal Dysplasia, Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, and Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome).

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Family Medicine
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Family Medicine

    Bluestone VBC MN PC

    270 Main St N Ste 300, 
    Stillwater, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Heather Pett is a primary care provider, practicing in Family Medicine in Stillwater, Minnesota. Dr. Pett is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Down Syndrome, Epilepsy, and Moebius Syndrome.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics | Medical Genetics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics | Medical Genetics

    Fairview Express Care

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Chester Whitley is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Minneapolis, Minnesota. Dr. Whitley is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A), and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Whitley is currently accepting new patients.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    Gillette Children's-Phalen Clinic

    435 Phalen Blvd, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Deana Thomasson is a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Thomasson is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Koolen De Vries Syndrome, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, PIK3CA-Related Overgrowth Spectrum, and Neurogenic Bowel.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Nurse Practitioner
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Nurse Practitioner

    Gillette Children's-Phalen Clinic

    435 Phalen Blvd, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Katherine Nelson is a Nurse Practitioner practicing medicine in Saint Paul, Minnesota. Ms. Nelson is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Neurogenic Bowel, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Boils, and Folliculitis.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Anthony Fine is a Pediatric Neurologist practicing medicine in Rochester, Minnesota. Dr. Fine is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Lafora Disease.

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    Last Updated: 04/28/2026

    What is the definition of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy?

    Polycystic lipomembranous osteodysplasia with sclerosing leukoencephalopathy, commonly known as PLOSL, is a progressive disorder that affects the bones and brain.  "Polycystic lipomembranous osteodysplasia" refers to cyst-like bone changes that can be seen on x-rays.  "Sclerosing leukoencephalopathy" describes specific changes in the brain that are found in people with this disorder.

    When should I see a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Minnesota, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Minnesota, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in Minnesota, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in Minnesota, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Minnesota, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. 

    Why is it important to get a second opinion from a different Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Minnesota, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in Minnesota, US?

    Look for the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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