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    Last Updated: 10/30/2025

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    MediFind found 33 doctor with experience in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy near Ohio, US. Of these, 25 are Experienced and 8 are Advanced.

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    33 providers found
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Pulmonology | Pediatrics
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Pulmonology | Pediatrics

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Gary Mcphail is a Pediatric Pulmonologist and a Pediatrics provider in Cincinnati, Ohio. Dr. Mcphail is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Cystic Fibrosis, Sleepwalking (Somnambulism), Congenital Unilateral Pulmonary Hypoplasia, and Exocrine Pancreatic Insufficiency. Dr. Mcphail is currently accepting new patients.

      Angelika Erwin
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

      N Building - Education Building And Lerner Research Institute

      9620 Carnegie Avenue, 
      Cleveland, OH 
      Languages Spoken:
      English, French, German, Spanish
      Offers Telehealth

      Angelika Erwin is a Pediatrics provider in Cleveland, Ohio. Dr. Erwin is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Gaucher Disease Type 3, and Gaucher Disease.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics | Pediatrics
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics | Pediatrics

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English

      Robert Hopkin is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Hopkin is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Fabry Disease, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Micrognathia, and Orchiectomy.

      Learn about our expert tiers
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Pulmonology | Pulmonary Medicine
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Pulmonology | Pulmonary Medicine

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Nathan Pajor is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Cincinnati, Ohio. Dr. Pajor is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Long Haul COVID, Acid Sphingomyelinase Deficiency (ASMD), Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, and Congenital Unilateral Pulmonary Hypoplasia. Dr. Pajor is currently accepting new patients.

      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Neurology | Pediatrics | Neurology

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      David Franz is a Pediatric Neurologist and a Pediatrics provider in Cincinnati, Ohio. Dr. Franz is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Seizures. Dr. Franz is currently accepting new patients.

      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Neurology | Neurology
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Neurology | Neurology
      3333 Burnet Avenue, Ml 2015, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Barbara Hallinan is a Pediatric Neurologist and a Neurologist in Cincinnati, Ohio. Dr. Hallinan is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are West Syndrome, Lennox-Gastaut Syndrome (LGS), Seizures, and Athetosis. Dr. Hallinan is currently accepting new patients.

      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      3333 Burnet Ave # Mlc9016, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Kristen Arnold is a Pediatrics provider in Cincinnati, Ohio. Dr. Arnold is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, and Delayed Growth. Dr. Arnold is currently accepting new patients.

      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics | Pediatrics
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics | Pediatrics
      3333 Burnet Ave # Mlc4006, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Loren Pena is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Pena is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Danon Disease, Pompe Disease, Tetrasomy 9p, and Chromosome 11 Uniparental Disomy. Dr. Pena is currently accepting new patients.

      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Breann Butts is a Pediatrics provider in Cincinnati, Ohio. Dr. Butts is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Hydranencephaly, Lissencephaly 1, Coach Syndrome, and Bilateral Perisylvian Polymicrogyria. Dr. Butts is currently accepting new patients.

      Sumit Parikh
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Neurology
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Neurology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
      Experience:
      31+ years
      Languages Spoken:
      English

      Sumit Parikh is a Pediatric Neurologist in Cleveland, Ohio. Dr. Parikh has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Leigh Syndrome, Kearns-Sayre Syndrome, Maternally Inherited Leigh Syndrome, and MELAS Syndrome.

      John Carl
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatrics
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatrics

      Cleveland Clinic Children's Outpatient Center

      8950 Euclid Avenue, 
      Cleveland, OH 
      Languages Spoken:
      English

      John Carl is a Pediatrics provider in Cleveland, Ohio. Dr. Carl is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Croup, Ciliary Dyskinesia-Bronchiectasis, Kartagener Syndrome, Adenoidectomy, and Myringotomy.

      James Liao
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Neurology
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Neurology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
      Experience:
      20+ years
      Languages Spoken:
      English
      Offers Telehealth

      James Liao is a Neurologist in Cleveland, Ohio. Dr. Liao has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Chorea, Movement Disorders, Drug Induced Dyskinesia, Primary Orthostatic Tremor, and Deep Brain Stimulation.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Pulmonology | Pediatrics
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Pediatric Pulmonology | Pediatrics

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English

      Gregory Burg is a Pediatric Pulmonologist and a Pediatrics provider in Cincinnati, Ohio. Dr. Burg is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Infantile Pneumothorax, Laryngomalacia, Tracheal Agenesis, Velopharyngeal Insufficiency, and Endoscopy.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Anesthesiology | Pediatrics
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Anesthesiology | Pediatrics

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Brittney Whitford is an Anesthesiologist and a Pediatrics provider in Cincinnati, Ohio. Dr. Whitford is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Lissencephaly 2, Lissencephaly 1, Coach Syndrome, and VLDLR-Associated Cerebellar Hypoplasia. Dr. Whitford is currently accepting new patients.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics | Pediatrics
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Medical Genetics | Pediatrics
      3333 Burnet Ave, Ml 4006, 
      Cincinnati, OH 
      Languages Spoken:
      English

      Kathryn Weaver is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Weaver is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Acrofacial Dysostosis Catania Type, RASopathies, Costello Syndrome, and Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Nurse Practitioner
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Nurse Practitioner
      3333 Burnet Ave # Mlc11006, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Kaila Niehaus is a Nurse Practitioner in Cincinnati, Ohio. Ms. Niehaus is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy and Chinese Restaurant Syndrome. Ms. Niehaus is currently accepting new patients.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Nurse Practitioner
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Nurse Practitioner

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Lisa Kramer is a Nurse Practitioner in Cincinnati, Ohio. Ms. Kramer is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Koolen De Vries Syndrome, Cri-Du-Chat Syndrome, Orofaciodigital Syndrome 6, and Lissencephaly 2. Ms. Kramer is currently accepting new patients.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Ophthalmology
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Ophthalmology
      3333 Burnet Ave, Ml 4008, 
      Cincinnati, OH 
      Languages Spoken:
      English

      Virginia Miraldi is an Ophthalmologist in Cincinnati, Ohio. Dr. Miraldi is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Neuroretinitis, Uveitis, Hyperferritinemia-Cataract Syndrome, and Blue Cone Monochromatism.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Alexander Opotowsky is a Cardiologist in Cincinnati, Ohio. Dr. Opotowsky is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Congenital Heart Disease (CHD), Coarctation of the Aorta, Transposition of the Great Arteries, Tetralogy of Fallot, and Heart Transplant. Dr. Opotowsky is currently accepting new patients.

      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Nurse Practitioner
      Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
      Nurse Practitioner
      3333 Burnet Ave, Ml 2015, 
      Cincinnati, OH 
      Languages Spoken:
      English

      Gabrielle Stires is a Nurse Practitioner in Cincinnati, Ohio. Ms. Stires is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top area of expertise is Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy.

      Showing 1-20 of 33

      Last Updated: 10/30/2025

      What is the definition of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy?

      Polycystic lipomembranous osteodysplasia with sclerosing leukoencephalopathy, commonly known as PLOSL, is a progressive disorder that affects the bones and brain.  "Polycystic lipomembranous osteodysplasia" refers to cyst-like bone changes that can be seen on x-rays.  "Sclerosing leukoencephalopathy" describes specific changes in the brain that are found in people with this disorder.

      When should I see a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Ohio, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Ohio, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in Ohio, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in Ohio, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Ohio, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. 

      Why is it important to get a second opinion from a different Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Ohio, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in Ohio, US?

      Look for the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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