The 20 Best Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy Doctors Near Me in Ohio, US

Find the Top Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 34 doctor with experience in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy near Ohio, US. Of these, 26 are Experienced and 8 are Advanced.

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34 providers found
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    N Building - Education Building And Lerner Research Institute

    9620 Carnegie Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English, French, German, Spanish
    Offers Telehealth

    Angelika Erwin is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Erwin is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Megalencephalic Leukoencephalopathy with Subcortical Cysts, Multiple Sulfatase Deficiency, Gaucher Disease Type 3, and Gaucher Disease Type 1. Dr. Erwin is board certified in American Board Of Medical Genetics And Genomics, 2013.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    32+ years
    Languages Spoken:
    English
    Offers Telehealth

    Sumit Parikh is a Pediatric Neurologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 32 years. Dr. Parikh is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 168 other conditions, according to our data. His clinical expertise encompasses Kearns-Sayre Syndrome, Maternally Inherited Leigh Syndrome, Leigh Syndrome, and MELAS Syndrome. Dr. Parikh is board certified in American Board Of Psychiatry And Neurology, 2006.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English

    John Carl is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Carl is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Croup, Primary Ciliary Dyskinesia (PCD), Ciliary Dyskinesia-Bronchiectasis, Adenoidectomy, and Myringotomy. Dr. Carl is board certified in American Board Of Pediatrics, 2000.

    Learn about our expert tiers
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Neurology
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    21+ years
    Languages Spoken:
    English
    Offers Telehealth

    James Liao is a Neurologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 21 years. Dr. Liao is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Chorea, Movement Disorders, Parkinson's Disease, Drug Induced Dyskinesia, and Deep Brain Stimulation. Dr. Liao is board certified in American Board Of Psychiatry And Neurology, 2020.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Manish Patel is a Radiologist practicing medicine in Cincinnati, Ohio. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Congenital Athymia, Blue Rubber Bleb Nevus Syndrome, Aberrant Subclavian Artery, and Congenital Arteriovenous Shunt.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati,, OH 
    Languages Spoken:
    English

    Alexander Opotowsky is a Cardiologist practicing medicine in Cincinnati,, Ohio. Dr. Opotowsky is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Coarctation of the Aorta, Transposition of the Great Arteries, Tetralogy of Fallot, and Heart Transplant.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Ranjit Chima is a Pediatrics provider practicing medicine in Cincinnati, Ohio. Dr. Chima is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His clinical expertise encompasses Hepatoblastoma, Multiple Epiphyseal Dysplasia, Niemann-Pick Disease, and Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Radiology
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Radiology

    Office

    3333 Burnet Ave # 5031, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Neil Johnson is a Pediatric Radiologist practicing medicine in Cincinnati, Ohio. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His clinical expertise encompasses Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Neurofibromatosis Type 1 (NF1), Lithotripsy, and Thrombectomy.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Cardiology
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Cardiology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati,, OH 
    Languages Spoken:
    English

    Sean Lang is a Pediatric Cardiologist practicing medicine in Cincinnati,, Ohio. Dr. Lang is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Multisystem Inflammatory Syndrome in Children (MIS-C), Kawasaki Disease, Coronary Artery Aneurysm, Tetralogy of Fallot, and Heart Transplant.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics | Pediatrics
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics | Pediatrics

    Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Robert Hopkin is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Cincinnati, Ohio. Dr. Hopkin is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 207 other conditions, according to our data. His clinical expertise encompasses Fabry Disease, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Microcephaly, and Orchiectomy.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Pulmonology
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Pulmonology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Nathan Pajor is a Pediatric Pulmonologist practicing medicine in Cincinnati, Ohio. Dr. Pajor is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Long Haul COVID, Acid Sphingomyelinase Deficiency (ASMD), Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, and Congenital Unilateral Pulmonary Hypoplasia.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics

    Office

    9560 Children Dr Ste A, 
    Mason, OH 
    Languages Spoken:
    English
    Offers Telehealth

    David Neal is a Pediatrics provider practicing medicine in Mason, Ohio. Dr. Neal is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 160 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Seizures.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Barbara Hallinan is a Pediatric Neurologist practicing medicine in Cincinnati, Ohio. Dr. Hallinan is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 79 other conditions, according to our data. Her clinical expertise encompasses West Syndrome, Lennox-Gastaut Syndrome (LGS), Seizures, and Athetosis.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Kristen Arnold is a Pediatrics provider practicing medicine in Cincinnati, Ohio. Dr. Arnold is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, and Delayed Growth.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Breann Butts is a Pediatrics provider practicing medicine in Cincinnati, Ohio. Dr. Butts is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Orofaciodigital Syndrome 6, Hydranencephaly, Coach Syndrome, and Lissencephaly 1.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics | Pediatrics
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics | Pediatrics
    3333 Burnet Ave # Mlc4006, 
    Cincinnati, OH 
    Languages Spoken:
    English
    Accepting New Patients

    Loren Pena is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Cincinnati, Ohio. Dr. Pena is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Danon Disease, Pompe Disease, Chromosome 6 Uniparental Disomy, and Chromosome 11 Uniparental Disomy. Dr. Pena is currently accepting new patients.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    Mercy Health — Anderson Neurology

    7495 State Road, Suite 200, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Gregory Kuhlman is a Neurologist practicing medicine in Cincinnati, Ohio. Dr. Kuhlman is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Parkinson's Disease, Movement Disorders, Drug Induced Dyskinesia, and Focal Dystonia. Dr. Kuhlman is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Pulmonology
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Pulmonology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Gregory Burg is a Pediatric Pulmonologist practicing medicine in Cincinnati, Ohio. Dr. Burg is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Infantile Pneumothorax, Laryngomalacia, Tracheal Agenesis, PIK3CA-Related Overgrowth Spectrum, and Endoscopy.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Palliative Medicine
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Palliative Medicine

    Children's Medical Services Inc

    3333 Burnet Ave # 2001, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Brittney Whitford is a Palliative Medicine provider practicing medicine in Cincinnati, Ohio. Dr. Whitford is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her clinical expertise encompasses Agyria Pachygyria Polymicrogyria, Lissencephaly 1, Hydranencephaly, and VLDLR-Associated Cerebellar Hypoplasia.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics | Pediatrics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics | Pediatrics

    Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Experience:
    17+ years
    Languages Spoken:
    English

    Kathryn Weaver is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Cincinnati, Ohio. She has been practicing medicine for over 17 years. Dr. Weaver is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 101 other conditions, according to our data. Her clinical expertise encompasses Cardiofaciocutaneous Syndrome, Noonan Syndrome, Cardiomyopathic Lentiginosis, and Bosma Arhinia Microphthalmia Syndrome.

    Showing 1-20 of 34

    Last Updated: 04/28/2026

    What is the definition of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy?

    Polycystic lipomembranous osteodysplasia with sclerosing leukoencephalopathy, commonly known as PLOSL, is a progressive disorder that affects the bones and brain.  "Polycystic lipomembranous osteodysplasia" refers to cyst-like bone changes that can be seen on x-rays.  "Sclerosing leukoencephalopathy" describes specific changes in the brain that are found in people with this disorder.

    When should I see a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Ohio, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Ohio, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in Ohio, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in Ohio, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Ohio, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. 

    Why is it important to get a second opinion from a different Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Ohio, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in Ohio, US?

    Look for the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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