The 20 Best Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy Doctors Near Me in Pennsylvania, US

Find the Top Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 11 doctor with experience in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy near Pennsylvania, US. Of these, 8 are Experienced and 3 are Advanced.

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11 providers found
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Orthopedics | Orthopedics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Orthopedics | Orthopedics

    Pediatric Orthopaedics In Lawrenceville

    4401 Penn Avenue, 
    Pittsburgh, PA 
    Languages Spoken:
    English, Turkish
    Accepting New Patients

    Ozgur Dede, MD, is a double fellowship trained, board-certified pediatric orthopaedic and spine surgeon at UPMC Children’s Hospital of Pittsburgh.Dr. Dede earned his medical degree from Hacettepe University in Ankara, Turkey where he also completed his orthopaedic surgery residency training. He pursued subspecialty training in pediatric orthopaedic surgery and spine surgery in the United States and completed 4 years of surgical fellowship training at Cincinnati Children's Hospital Medical Center, the University of Pittsburgh School of Medicine, Alfred I duPont Hospital for Children, and the UCSF Spine Center.His clinical interests include treatment of spinal problems in children including scoliosis, spondylolysis, spondylolisthesis, cervical instability, disc herniation and spinal stenosis. He also treats neuromuscular conditions including cerebral palsy and spina bifida, arthrogryposis and other syndromic afflictions.  His research interests include the non-operative and operative management of all types of pediatric scoliosis as well as management of hip and lower extremity deformities in children with spasticity.View Dr. Dede’s full list of publications from PubMed. Dr. Dede is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, Osteotomy, and Spinal Fusion. Dr. Dede is board certified in American Board Of Orthopaedic Surgery. Dr. Dede is currently accepting new patients.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    Penn Neurology Pennsylvania Hospital

    330 South 9th Street, 3rd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Meredith Spindler is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Spindler is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Movement Disorders, Parkinson's Disease, Drug Induced Dyskinesia, Dopa-Responsive Dystonia, and Deep Brain Stimulation. Dr. Spindler is board certified in Neurology, 2010. Dr. Spindler is currently accepting new patients.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    Penn Neurology Pennsylvania Hospital

    330 South 9th Street, 3rd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Ali Hamedani is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Hamedani is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Charles Bonnet Syndrome, Pseudotumor Cerebri Syndrome, Increased Intracranial Pressure, Thymectomy, and Thrombectomy. Dr. Hamedani is board certified in Neurology, 2017. Dr. Hamedani is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    Penn Neuroscience Center - Neurology

    3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    David Lynch is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Lynch is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Friedreich Ataxia, Hereditary Ataxia, Spinocerebellar Degeneration and Corneal Dystrophy, and Harding Ataxia. Dr. Lynch is board certified in Neurology, 1993. Dr. Lynch is currently accepting new patients.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology

    Office

    3500 Civic Center Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Mariko Bennett is a Pediatric Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Bennett is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Aicardi-Goutieres Syndrome, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, TORCH Syndrome, Leukodystrophy, and Gastrostomy.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics | Pediatrics | Physiatry
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics | Pediatrics | Physiatry

    Childrens Health Care Associates Inc

    3401 Civic Ctr Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Can Ficicioglu is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Ficicioglu is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Classic Galactosemia, Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Urea Cycle Disorders (UCD), and Homocystinuria.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Family Medicine
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Family Medicine

    St. Luke's Saucon Valley Family Practice

    255 Front St, 
    Hellertown, PA 
    Languages Spoken:
    English

    Yulia Aleksandrova is a primary care provider, practicing in Family Medicine in Hellertown, Pennsylvania. Dr. Aleksandrova is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Richter Syndrome, Chronic B-Cell Leukemia (CBCL), Chronic Lymphocytic Leukemia (CLL), and Familial Hypertension.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Family Medicine
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Family Medicine

    Pshmg-Lime Spring

    2221 Noll Dr, 
    Lancaster, PA 
    Languages Spoken:
    English

    Thomas Scott is a primary care provider, practicing in Family Medicine in Lancaster, Pennsylvania. Dr. Scott is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Sitosterolemia, High Cholesterol, Maturity Onset Diabetes of the Young, and Hypertension.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Family Medicine
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Family Medicine

    Penn Family Care

    3737 Market Street, 9th Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Offers Telehealth

    Amanda Swain is a primary care provider, practicing in Family Medicine in Philadelphia, Pennsylvania. Dr. Swain is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Togaviridae Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Insomnia, and Subacute Sclerosing Panencephalitis. Dr. Swain is board certified in Family Medicine, 2005.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Physician Assistant
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Physician Assistant
    1645 W 8th St, 
    Erie, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Christine Betancourt is a Physician Assistant practicing medicine in Erie, Pennsylvania. Ms. Betancourt is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her clinical expertise encompasses PIK3CA-Related Overgrowth Spectrum, Cantu Syndrome, Megalencephaly-Capillary Malformation Syndrome, and Simpson-Golabi-Behmel Syndrome. Ms. Betancourt is currently accepting new patients.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics

    Penn Translational Medicine And Human Genetics

    3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Offers Telehealth

    Staci Kallish is a Medical Genetics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Kallish is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 103 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Gaucher Disease Type 1, Fabry Disease, and Neurofibromatosis. Dr. Kallish is board certified in Clinical Genetics And Genomics, 2022 and Med Genetics/Clinical Biochem (AMA)Pediatrics, 2008.

    Showing 1-11 of 11

    Last Updated: 04/28/2026

    What is the definition of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy?

    Polycystic lipomembranous osteodysplasia with sclerosing leukoencephalopathy, commonly known as PLOSL, is a progressive disorder that affects the bones and brain.  "Polycystic lipomembranous osteodysplasia" refers to cyst-like bone changes that can be seen on x-rays.  "Sclerosing leukoencephalopathy" describes specific changes in the brain that are found in people with this disorder.

    When should I see a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Pennsylvania, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Pennsylvania, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in Pennsylvania, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in Pennsylvania, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Pennsylvania, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. 

    Why is it important to get a second opinion from a different Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in Pennsylvania, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in Pennsylvania, US?

    Look for the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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