Mariko Bennett is a Pediatric Neurologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Bennett is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, TORCH Syndrome, Aicardi-Goutieres Syndrome, Leukodystrophy, and Gastrostomy.

Can Ficicioglu is a Medical Genetics specialist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Ficicioglu is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Classic Galactosemia, Urea Cycle Disorders (UCD), Galactose Epimerase Deficiency, and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome).

Yulia Aleksandrova is a primary care provider, practicing in Family Medicine in Bethlehem, Pennsylvania. Dr. Aleksandrova is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Chronic B-Cell Leukemia (CBCL), Chronic Lymphocytic Leukemia (CLL), Richter Syndrome, and Glucocorticoid-Remediable Aldosteronism.

Ozgur Dede, MD, is a double fellowship trained, board-certified pediatric orthopaedic and spine surgeon at UPMC Children’s Hospital of Pittsburgh. Dr. Dede earned his medical degree from Hacettepe University in Ankara, Turkey where he also completed his orthopaedic surgery residency training. He pursued subspecialty training in pediatric orthopaedic surgery and spine surgery in the United States and completed 4 years of surgical fellowship training at Cincinnati Children's Hospital Medical Center, the University of Pittsburgh School of Medicine, Alfred I duPont Hospital for Children, and the UCSF Spine Center. His clinical interests include treatment of spinal problems in children including scoliosis, spondylolysis, spondylolisthesis, cervical instability, disc herniation and spinal stenosis. He also treats neuromuscular conditions including cerebral palsy and spina bifida, arthrogryposis and other syndromic afflictions.  His research interests include the non-operative and operative management of all types of pediatric scoliosis as well as management of hip and lower extremity deformities in children with spasticity. View Dr. Dede’s full list of publications from PubMed. Dr. Dede is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Scoliosis, Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Osteotomy, and Spinal Fusion.

Thomas Scott is a primary care provider, practicing in Family Medicine in Hershey, Pennsylvania. Dr. Scott is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Sitosterolemia, High Cholesterol, Maturity Onset Diabetes of the Young, and Familial Hypertension.

Meredith Spindler is a Neurologist in Philadelphia, Pennsylvania. Dr. Spindler is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Movement Disorders, Parkinson's Disease, Drug Induced Dyskinesia, Dopa-Responsive Dystonia, and Deep Brain Stimulation. Dr. Spindler is currently accepting new patients.

Staci Kallish is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Kallish is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Gaucher Disease Type 1, Fabry Disease, and Neurofibromatosis. Dr. Kallish is currently accepting new patients.

Christine Betancourt is a Physician Assistant in Erie, Pennsylvania. Ms. Betancourt is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Megalencephaly-Capillary Malformation Syndrome, Marshall-Smith Syndrome, Hemi 3 Syndrome, and Perlman Syndrome. Ms. Betancourt is currently accepting new patients.

Ali Hamedani is a Neurologist in Philadelphia, Pennsylvania. Dr. Hamedani is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Charles Bonnet Syndrome, Pseudotumor Cerebri Syndrome, Increased Intracranial Pressure, Thymectomy, and Thrombectomy. Dr. Hamedani is currently accepting new patients.

Danna Tauber is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Philadelphia, Pennsylvania. Dr. Tauber is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. Her top areas of expertise are Wolf-Hirschhorn Syndrome, GM1 Gangliosidosis, Koolen De Vries Syndrome, and Birt-Hogg-Dube Syndrome.

David Lynch is a Neurologist in Philadelphia, Pennsylvania. Dr. Lynch is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His top areas of expertise are Friedreich Ataxia, Hereditary Ataxia, Spastic Ataxia Charlevoix-Saguenay Type, and Spinocerebellar Ataxia. Dr. Lynch is currently accepting new patients.