The 20 Best Porphyria Doctors Near Me

Find Doctors who have experience with Givosiran

Last Updated: 06/30/2026

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MediFind found 31 doctor with experience in Porphyria.

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31 providers found
    Elite in Porphyria

    Maria D. Cappellini-Domenica
    Elite in Porphyria

    Maria D. Cappellini-Domenica
    Referral may be required
    Milan, IT 

    Maria Cappellini-Domenica practices practicing medicine in Milan, Italy. Ms. Cappellini-Domenica is rated as an Elite expert by MediFind in the treatment of Porphyria. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses Anemia, Thalassemia, Congenital Hemolytic Anemia, Splenectomy, and Bone Marrow Transplant.

    Elite in Porphyria

    Jerzy Windyga
    Elite in Porphyria

    Jerzy Windyga
    Referral may be required
    Warsaw, MZ, PL 

    Jerzy Windyga practices practicing medicine in Warsaw, Poland. Windyga is rated as an Elite expert by MediFind in the treatment of Porphyria. They are also highly rated in 11 other conditions, according to our data. Their clinical expertise encompasses Blood Clots, Hemophilia A, Hemophilia B, Pacemaker Implantation, and Splenectomy.

    Elite in Porphyria

    Laurent Gouya
    Elite in Porphyria

    Laurent Gouya
    Referral may be required
    Paris, FR 

    Laurent Gouya practices practicing medicine in Paris, France. Mr. Gouya is rated as an Elite expert by MediFind in the treatment of Porphyria. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, Erythropoietic Protoporphyria, and Bone Marrow Transplant.

    Learn about our expert tiers
    Elite in Porphyria

    Bruce M. Wang
    Elite in Porphyria

    Bruce M. Wang
    Referral may be required
    Floor 2, No. 17-1, Lane 113, Xiamen Street, 
    TPQ, TW 

    Bruce Wang practices practicing medicine in Taiwan. Mr. Wang is rated as an Elite expert by MediFind in the treatment of Porphyria. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, Erythropoietic Protoporphyria, and Liver Transplant.

    Elite in Porphyria

    Dr. Sioban Keel
    Hematology
    Elite in Porphyria

    Dr. Sioban Keel
    Hematology
    Referral may be required

    Rachel Loschiavo PA-C

    825 Eastlake Ave E, 
    Seattle, WA 
    206-606-1209
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Sioban Keel is a Hematologist practicing medicine in Seattle, Washington. Dr. Keel is rated as an Elite provider by MediFind in the treatment of Porphyria. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Pure Red Cell Aplasia, Bone Marrow Aspiration, and Bone Marrow Transplant.

    Distinguished in Porphyria

    Janneke G. Langendonk
    Distinguished in Porphyria

    Janneke G. Langendonk
    Referral may be required
    Rotterdam, ZH, NL 

    Janneke Langendonk practices practicing medicine in Rotterdam, Netherlands. Langendonk is rated as a Distinguished expert by MediFind in the treatment of Porphyria. They are also highly rated in 17 other conditions, according to our data. Their clinical expertise encompasses Porphyria, Acute Intermittent Porphyria, Classic Galactosemia, and Protoporphyria.

    Distinguished in Porphyria

    Ulrich Stolzel
    Distinguished in Porphyria

    Ulrich Stolzel
    Referral may be required
    Chemnitz, SN, DE 

    Ulrich Stolzel practices practicing medicine in Chemnitz, Germany. Mr. Stolzel is rated as a Distinguished expert by MediFind in the treatment of Porphyria. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Acute Hepatic Porphyria (AHP), Porphyria, Acute Intermittent Porphyria, Hereditary Coproporphyria, and Liver Transplant.

    Distinguished in Porphyria

    Paolo Ventura
    Distinguished in Porphyria

    Paolo Ventura
    Referral may be required
    Aneta, IT 

    Paolo Ventura practices practicing medicine in Aneta, Italy. Mr. Ventura is rated as a Distinguished expert by MediFind in the treatment of Porphyria. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Acute Hepatic Porphyria (AHP), Porphyria, Acute Intermittent Porphyria, and Variegate Porphyria.

    Distinguished in Porphyria

    Raili Kauppinen
    Distinguished in Porphyria

    Raili Kauppinen
    Referral may be required
    Helsinki, FI 

    Raili Kauppinen practices practicing medicine in Helsinki, Finland. Kauppinen is rated as a Distinguished expert by MediFind in the treatment of Porphyria. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Acute Intermittent Porphyria, Porphyria, Acute Hepatic Porphyria (AHP), and Variegate Porphyria.

    Distinguished in Porphyria

    Elisabeth I. Minder
    Distinguished in Porphyria

    Elisabeth I. Minder
    Referral may be required
    Zurich, ZH, CH 

    Elisabeth Minder practices practicing medicine in Zurich, Switzerland. Ms. Minder is rated as a Distinguished expert by MediFind in the treatment of Porphyria. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Protoporphyria, Erythropoietic Protoporphyria, and Liver Transplant.

    Distinguished in Porphyria

    Antonello Pietrangelo
    Distinguished in Porphyria

    Antonello Pietrangelo
    Referral may be required
    Via Campi 103, 
    Modena, IT 

    Antonello Pietrangelo practices practicing medicine in Modena, Italy. Mr. Pietrangelo is rated as a Distinguished expert by MediFind in the treatment of Porphyria. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Hemochromatosis, Acute Intermittent Porphyria, Thalassemia, and Porphyria.

    Distinguished in Porphyria

    Pauline S. Harper
    Distinguished in Porphyria

    Pauline S. Harper
    Referral may be required

    Karolinska Institutet

    Stockholm, AB, SE 

    Pauline Harper practices practicing medicine in Stockholm, Sweden. Ms. Harper is rated as a Distinguished expert by MediFind in the treatment of Porphyria. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Acute Intermittent Porphyria, Porphyria, Acute Hepatic Porphyria (AHP), and Variegate Porphyria.

    Distinguished in Porphyria

    Penelope E. Stein
    Distinguished in Porphyria

    Penelope E. Stein
    Referral may be required
    London, ENG, GB 

    Penelope Stein practices practicing medicine in London, United Kingdom. Ms. Stein is rated as a Distinguished expert by MediFind in the treatment of Porphyria. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Acute Intermittent Porphyria, Porphyria, Acute Hepatic Porphyria (AHP), and Hereditary Coproporphyria.

    Distinguished in Porphyria

    Eliane Sardh
    Distinguished in Porphyria

    Eliane Sardh
    Referral may be required

    Karolinska Institutet

    Stockholm, AB, SE 

    Eliane Sardh practices practicing medicine in Stockholm, Sweden. Ms. Sardh is rated as a Distinguished expert by MediFind in the treatment of Porphyria. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Acute Intermittent Porphyria, Acute Hepatic Porphyria (AHP), Porphyria, and Variegate Porphyria.

    Distinguished in Porphyria

    Gayle Ross
    Distinguished in Porphyria

    Gayle Ross
    Referral may be required
    Melbourne, VIC, AU 

    Gayle Ross practices practicing medicine in Melbourne, Australia. Ms. Ross is rated as a Distinguished expert by MediFind in the treatment of Porphyria. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Porphyria Cutanea Tarda.

    Distinguished in Porphyria

    Dr. Karl Anderson
    Gastroenterology
    Distinguished in Porphyria

    Dr. Karl Anderson
    Gastroenterology
    Referral may be required

    University Of Texas Medical Branch

    301 University Blvd, 
    Galveston, TX 
    409-747-0890
    Languages Spoken:
    English
    See accepted insurances

    Karl Anderson is a Gastroenterologist practicing medicine in Galveston, Texas. Dr. Anderson is rated as a Distinguished provider by MediFind in the treatment of Porphyria. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Hepatitis C, and Hepatitis.

    Distinguished in Porphyria

    David M. Cassiman
    Distinguished in Porphyria

    David M. Cassiman
    Referral may be required

    UZ Leuven

    Leuven, VLG, BE 

    David Cassiman practices practicing medicine in Leuven, Belgium. Mr. Cassiman is rated as a Distinguished expert by MediFind in the treatment of Porphyria. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Enlarged Liver, Hereditary Fructose Intolerance, Hepatocerebral Degeneration, Liver Transplant, and Pancreaticoduodenectomy.

    Distinguished in Porphyria

    Bruce C. Ritchie
    Distinguished in Porphyria

    Bruce C. Ritchie
    Referral may be required
    Edmonton, AB, CA 

    Bruce Ritchie practices practicing medicine in Edmonton, Canada. Mr. Ritchie is rated as a Distinguished expert by MediFind in the treatment of Porphyria. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Hereditary Angioedema, Angioedema, Hives, and Acute Hepatic Porphyria (AHP).

    Distinguished in Porphyria

    Daphne Vassiliou
    Distinguished in Porphyria

    Daphne Vassiliou
    Referral may be required

    Karolinska Institutet

    Stockholm, AB, SE 

    Daphne Vassiliou practices practicing medicine in Stockholm, Sweden. Ms. Vassiliou is rated as a Distinguished expert by MediFind in the treatment of Porphyria. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Acute Hepatic Porphyria (AHP), Porphyria, Acute Intermittent Porphyria, and Variegate Porphyria.

    Distinguished in Porphyria

    Encarna Navarro-Guillen
    Distinguished in Porphyria

    Encarna Navarro-Guillen
    Referral may be required
    El Palmar, MU, ES 

    Encarna Navarro-Guillen practices practicing medicine in El Palmar, Spain. Navarro-Guillen is rated as a Distinguished expert by MediFind in the treatment of Porphyria. They are also highly rated in 13 other conditions, according to our data. Their clinical expertise encompasses Acute Hepatic Porphyria (AHP), Porphyria, Acute Intermittent Porphyria, and RASopathies.

    Showing 1-20 of 31

    Last Updated: 06/30/2026

    What is the definition of Porphyria?

    Porphyrias are a group of rare disorders in which an important part of hemoglobin, called heme, is not made properly. Hemoglobin is a protein in red blood cells that carries oxygen. Heme is also found in myoglobin, a protein found in certain muscles.

    When should I see a Porphyria doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Porphyria doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Porphyria doctor near me?

    You can find a Porphyria doctor in any of the 10 largest U.S. cities by clicking below:

    Porphyria doctor near New York, NY
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    Porphyria doctor near San Jose, CA

    How does MediFind rank Porphyria doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Porphyria doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Porphyria doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porphyria doctor search results page. 

    Why is it important to get a second opinion from a different Porphyria doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Porphyria doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Porphyria doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Porphyria doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Porphyria doctors near me?

    Look for the filter feature on the left side of the Porphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Porphyria doctor that offers video calls?

    Look for the filter feature on the left-side of the Porphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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