The 20 Best Porphyria Doctors in The United States

Find the Top Porphyria Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 2022 doctor with experience in Porphyria near The United States. Of these, 1822 are Experienced, 158 are Advanced, 28 are Elite and 8 are Distinguished.

Location
LocationClose
2,022 providers found
    Elite in Porphyria
    Gastroenterology
    Elite in Porphyria
    Gastroenterology
    Referral may be required

    Office

    1 S Hawthorne Rd, 
    Winston Salem, NC 
    Languages Spoken:
    English, German
    Accepting New Patients

    Herbert Bonkovsky is a Gastroenterologist practicing medicine in Winston Salem, North Carolina. Dr. Bonkovsky is rated as an Elite provider by MediFind in the treatment of Porphyria. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Hepatitis, Bile Duct Cysts, and Liver Transplant. Dr. Bonkovsky is currently accepting new patients.

    Elite in Porphyria
    Gastroenterology
    Elite in Porphyria
    Gastroenterology
    Referral may be required

    University Of Texas Medical Branch

    301 University Blvd, 
    Galveston, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Karl Anderson is a Gastroenterologist practicing medicine in Galveston, Texas. Dr. Anderson is rated as an Elite provider by MediFind in the treatment of Porphyria. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Hepatitis C, and Hepatitis. Dr. Anderson is currently accepting new patients.

    Elite in Porphyria
    Gastroenterology
    Elite in Porphyria
    Gastroenterology
    Referral may be required

    Liver Disease And Liver Transplant

    400 Parnassus Ave, 
    San Francisco, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Bruce Wang is a Gastroenterologist practicing medicine in San Francisco, California. Dr. Wang is rated as an Elite provider by MediFind in the treatment of Porphyria. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Primary Biliary Cholangitis, Reynolds Syndrome, and Liver Transplant.

    Learn about our expert tiers
    Elite in Porphyria
    Elite in Porphyria
    Referral may be required

    Rachel Loschiavo PA-C

    825 Eastlake Ave E, 
    Seattle, WA 
    Languages Spoken:
    English, French, German, Hindi, Russian, Spanish, Swedish
    Accepting New Patients
    Offers Telehealth

    Sioban Keel is a Hematologist practicing medicine in Seattle, Washington. Dr. Keel is rated as an Elite provider by MediFind in the treatment of Porphyria. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Pure Red Cell Aplasia, Bone Marrow Aspiration, and Bone Marrow Transplant. Dr. Keel is currently accepting new patients.

    Elite in Porphyria
    Elite in Porphyria
    Referral may be required

    Huntsman Cancer Institute Bmt

    1950 Circle Of Hope Dr, 
    Salt Lake City, UT 
    Languages Spoken:
    English
    Accepting New Patients

    Charles Parker is a Hematologist practicing medicine in Salt Lake City, Utah. Dr. Parker is rated as an Elite provider by MediFind in the treatment of Porphyria. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Acute Hepatic Porphyria (AHP), Porphyria, Acute Intermittent Porphyria, Paroxysmal Nocturnal Hemoglobinuria (PNH), and Bone Marrow Aspiration. Dr. Parker is board certified in American Board Of Internal Medicine. Dr. Parker is currently accepting new patients.

    Elite in Porphyria
    Gastroenterology
    Elite in Porphyria
    Gastroenterology
    Referral may be required

    Office

    1808 7th Ave S Ste 380, 
    Birmingham, AL 
    Languages Spoken:
    English
    Accepting New Patients

    Brendan Mcguire is a Gastroenterologist practicing medicine in Birmingham, Alabama. Dr. Mcguire is rated as an Elite provider by MediFind in the treatment of Porphyria. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Porphyria, Liver Failure, Watermelon Stomach, Liver Transplant, and Liver Embolization. Dr. Mcguire is currently accepting new patients.

    Experienced in Porphyria
    Internal Medicine
    Experienced in Porphyria
    Internal Medicine

    Bassett Prime Care Cooperstown

    1 Atwell Road, Clinic Building, 
    Cooperstown, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Susie Huffman is a primary care provider, practicing in Internal Medicine in Cooperstown, New York. Dr. Huffman is rated as an Experienced provider by MediFind in the treatment of Porphyria. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Psoriatic Arthritis, Type 1 Diabetes (T1D), Migraine, Viral Gastroenteritis, and Endoscopy. Dr. Huffman is board certified in Internal Medicine, American Board Of Internal Medicine. Dr. Huffman is currently accepting new patients.

    Experienced in Porphyria
    Internal Medicine
    Experienced in Porphyria
    Internal Medicine

    Johnson City Internal Medicine

    301 Med Tech Pkwy, Ste 240, 
    Johnson City, TN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kevin Sweet is a primary care provider, practicing in Internal Medicine in Johnson City, Tennessee. Dr. Sweet is rated as an Experienced provider by MediFind in the treatment of Porphyria. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Sitosterolemia, Type 2 Diabetes (T2D), Osteomyelitis in Children, and Glucocorticoid-Remediable Aldosteronism. Dr. Sweet is board certified in American Board Of Internal Medicine. Dr. Sweet is currently accepting new patients.

    Experienced in Porphyria
    Internal Medicine
    Experienced in Porphyria
    Internal Medicine

    Tower Health Medical Group Internal Medicine - Wyomissing 1st Floor

    950A N Wyomissing Blvd F1, 
    Wyomissing, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Maria Frank is a primary care provider, practicing in Internal Medicine in Wyomissing, Pennsylvania. Dr. Frank is rated as an Experienced provider by MediFind in the treatment of Porphyria. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses End-Stage Renal Disease (ESRD), Glucocorticoid-Remediable Aldosteronism, Hypertension, and Familial Hypertension. Dr. Frank is board certified in American Board Of Internal Medicine. Dr. Frank is currently accepting new patients.

    Dermatology
    Dermatology
    Referral required

    Swedish Dermatology - Issaquah

    751 Northeast Blakely Drive, Suite 4020, 
    Issaquah, WA 
    Languages Spoken:
    English, Korean, Vietnamese
    Accepting New Patients
    Offers Telehealth

    Young Choi is a Dermatologist practicing medicine in Issaquah, Washington. Dr. Choi is rated as undefined provider by MediFind in the treatment of Porphyria. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Acne, Psoriasis, Rosacea, and Melanoma. Dr. Choi is board certified in American Board Of Dermatology. Dr. Choi is currently accepting new patients.

    Advanced in Porphyria
    Advanced in Porphyria
    Referral required

    Duke Hematology Clinic - Clinic 1E

    40 Duke Medicine Cir, 
    Durham, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Thomas Ortel is a Hematologist practicing medicine in Durham, North Carolina. Dr. Ortel is rated as an Advanced provider by MediFind in the treatment of Porphyria. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Venous Thromboembolism (VTE), Antiphospholipid Syndrome, Thrombocytopenia, Thrombectomy, and Thalamotomy. Dr. Ortel is board certified in American Board Of Internal Med, Hematology and American Board Of Internal Med, Internal Medicine. Dr. Ortel is currently accepting new patients.

    Advanced in Porphyria
    Hematology | Oncology
    Advanced in Porphyria
    Hematology | Oncology
    Referral may be required

    Providence Regional Cancer System - Aberdeen

    954 Anderson Drive, Suite 102, 
    Aberdeen, WA 
    Languages Spoken:
    English, Filipino, French, Hindi, Japanese, Korean, Mandarin, Portuguese, Spanish
    Accepting New Patients
    Offers Telehealth

    Xingwei Sui is a Hematologist and an Oncologist practicing medicine in Aberdeen, Washington. Dr. Sui is rated as an Advanced provider by MediFind in the treatment of Porphyria. He is also highly rated in 60 other conditions, according to our data. His clinical expertise encompasses Chronic Lymphocytic Leukemia (CLL), Lung Cancer, Pleuropulmonary Blastoma, and Large-Cell Immunoblastic Lymphoma. Dr. Sui is board certified in American Board Of Internal Medicine. Dr. Sui is currently accepting new patients.

    Advanced in Porphyria
    Oncology | Hematology Oncology
    Advanced in Porphyria
    Oncology | Hematology Oncology
    Referral required

    Prisma Health Deep Vein Thrombosis Clinic

    200C Patewood Drive, Floor 3, 
    Greenville, SC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jay Walls is an Oncologist and a Hematologist Oncology provider practicing medicine in Greenville, South Carolina. Dr. Walls is rated as an Advanced provider by MediFind in the treatment of Porphyria. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Essential Thrombocythemia, Childhood Iron Deficiency Anemia, Sickle Cell Disease, Hemoglobin SC Disease, and Bone Marrow Aspiration. Dr. Walls is board certified in American Board Of Internal Medicine. Dr. Walls is currently accepting new patients.

    Advanced in Porphyria
    Hematology | Oncology
    Advanced in Porphyria
    Hematology | Oncology
    Referral may be required

    McGlinn Cancer Institute - Reading Hospital

    420 S 5th Ave, Bldg N, 
    West Reading, PA 
    Languages Spoken:
    English
    Offers Telehealth

    Andrew Rettew is a Hematologist and an Oncologist practicing medicine in West Reading, Pennsylvania. Dr. Rettew is rated as an Advanced provider by MediFind in the treatment of Porphyria. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Chronic Familial Neutropenia, Agranulocytosis, Large-Cell Immunoblastic Lymphoma, Diffuse Large B-Cell Lymphoma (DLBCL), and Bone Marrow Aspiration. Dr. Rettew is board certified in American Board Of Internal Medicine and American Osteopathic Board Of Internal Medicine.

    Advanced in Porphyria
    Advanced in Porphyria

    OSF HealthCare - Medical Group (Primary Care)

    3409 Ludington Street Suite 104, 
    Escanaba, MI 
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Anthony Kamerschen is a primary care provider, practicing in Family Medicine in Escanaba, Michigan. He has been practicing medicine for over 17 years. Dr. Kamerschen is rated as an Advanced provider by MediFind in the treatment of Porphyria. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Acute Intermittent Porphyria, Acute Hepatic Porphyria (AHP), Porphyria, and Chronic Cough. Dr. Kamerschen is board certified in American Board Of Family Medicine. Dr. Kamerschen is currently accepting new patients.

    Advanced in Porphyria
    Advanced in Porphyria
    Referral may be required

    Virginia Oncology Associates

    1950 Glenn Mitchell Drive, Suite 102, 
    Virginia Beach, VA 
    Languages Spoken:
    English
    Accepting New Patients

    Thomas Alberico is a Hematologist practicing medicine in Virginia Beach, Virginia. Dr. Alberico is rated as an Advanced provider by MediFind in the treatment of Porphyria. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Breast Cancer, Lung Cancer, Large-Cell Immunoblastic Lymphoma, Follicular Lymphoma, and Bone Marrow Aspiration. Dr. Alberico is board certified in American Board Of Internal Medicine - Hematology, American Board Of Internal Medicine - Medical Oncology, and American Board Of Internal Medicine - Internal Medicine. Dr. Alberico is currently accepting new patients.

    Advanced in Porphyria
    Hematology Oncology
    Advanced in Porphyria
    Hematology Oncology
    Referral may be required

    Northeast Georgia Diagnostic Associates And Clinic, LLC

    1485 Jesse Jewell Parkway, SE Suite 330, 
    Gainesville, GA 
    Languages Spoken:
    English, Telugu
    Accepting New Patients
    Offers Telehealth

    Padma Nadella is a Hematologist Oncology provider practicing medicine in Gainesville, Georgia. Dr. Nadella is rated as an Advanced provider by MediFind in the treatment of Porphyria. She is also highly rated in 71 other conditions, according to our data. Her clinical expertise encompasses Iron Deficiency Anemia, Childhood Iron Deficiency Anemia, Pleuropulmonary Blastoma, and Lung Cancer. Dr. Nadella is board certified in American Board Of Internal Medicine, Medical Oncology - 2001. Dr. Nadella is currently accepting new patients.

    Experienced in Porphyria
    Family Medicine
    Experienced in Porphyria
    Family Medicine

    UH Portage Medical Center

    6847 N Chestnut St, 
    Ravenna, OH 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jessica Bittence is a primary care provider, practicing in Family Medicine in Ravenna, Ohio. Dr. Bittence is rated as an Experienced provider by MediFind in the treatment of Porphyria. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Obesity, Obesity in Children, Familial Combined Hyperlipidemia, and Xanthoma. Dr. Bittence is currently accepting new patients.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required

    University Hospitals

    11100 Euclid Ave, 
    Cleveland, OH 
    Languages Spoken:
    English
    Accepting New Patients

    Kevin Cooper is a Dermatologist practicing medicine in Cleveland, Ohio. Dr. Cooper is rated as an Experienced provider by MediFind in the treatment of Porphyria. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Mycosis Fungoides, Cutaneous T-Cell Lymphoma (CTCL), T-Cell Lymphoma, and Sezary Syndrome. Dr. Cooper is currently accepting new patients.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required

    MCV Physicians At Stony Point

    9109 Stony Point Dr, 
    Richmond, VA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kimberly Salkey is a Dermatologist practicing medicine in Richmond, Virginia. Dr. Salkey is rated as an Experienced provider by MediFind in the treatment of Porphyria. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Hypotrichosis, Alopecia Areata, Graham-Little-Piccardi-Lassueur Syndrome, and Hirsutism in Women. Dr. Salkey is currently accepting new patients.

    Showing 1-20 of 2,022

    Last Updated: 09/26/2026

    What is the definition of Porphyria?

    Porphyrias are a group of rare disorders in which an important part of hemoglobin, called heme, is not made properly. Hemoglobin is a protein in red blood cells that carries oxygen. Heme is also found in myoglobin, a protein found in certain muscles.

    When should I see a Porphyria doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Porphyria doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Porphyria doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Porphyria doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Porphyria doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porphyria doctor search results page. 

    Why is it important to get a second opinion from a different Porphyria doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Porphyria doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Porphyria doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Porphyria doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Porphyria doctors in The United States?

    Look for the filter feature on the left side of the Porphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Porphyria doctor that offers video calls?

    Look for the filter feature on the left-side of the Porphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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