Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 10/30/2025

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 425 doctor with experience in Proteus-Like Syndrome. Of these, 341 are Experienced, 79 are Advanced, 4 are Distinguished and 1 are Elite.

    Location
    LocationClose
    425 providers found
      Elite in Proteus-Like Syndrome
      Medical Genetics | Pediatrics
      Elite in Proteus-Like Syndrome
      Medical Genetics | Pediatrics
      49 Convent Dr Rm 4a56, 
      Bethesda, MD 
      Languages Spoken:
      English

      Leslie Biesecker is a Medical Genetics specialist and a Pediatrics provider in Bethesda, Maryland. Dr. Biesecker is rated as an Elite provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Proteus Syndrome, Proteus-Like Syndrome, Acromicric Dysplasia, and Lenz Microphthalmia Syndrome.

      Distinguished in Proteus-Like Syndrome
      Distinguished in Proteus-Like Syndrome
      Rome, IT 

      Giuseppe Zampino practices in Rome, Italy. Mr. Zampino is rated as a Distinguished expert by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Proteus Syndrome, Proteus-Like Syndrome, RASopathies, and Cardiofaciocutaneous Syndrome.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Proteus-Like Syndrome
      Distinguished in Proteus-Like Syndrome
      Rome, IT 

      Chiara Leoni practices in Rome, Italy. Ms. Leoni is rated as a Distinguished expert by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are RASopathies, Cardiofaciocutaneous Syndrome, Costello Syndrome, and Ectodermal Dysplasias.

      Learn about our expert tiers
      Distinguished in Proteus-Like Syndrome
      Distinguished in Proteus-Like Syndrome
      Tel Aviv, TA, IL 

      Joshua Manor practices in Tel Aviv, Israel. Mr. Manor is rated as a Distinguished expert by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Proteus-Like Syndrome, Proteus Syndrome, Chromosome 16q Duplication, and Dihydrolipoamide Dehydrogenase Deficiency.

      Distinguished in Proteus-Like Syndrome
      Distinguished in Proteus-Like Syndrome
      Bari, IT 

      Nicoletta Resta practices in Bari, Italy. Ms. Resta is rated as a Distinguished expert by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Hemihyperplasia, Macrodactyly of the Foot, Proteus-Like Syndrome, Salpingo-Oophorectomy, and Heart Transplant.

      Knut Brockmann
      Advanced in Proteus-Like Syndrome
      Advanced in Proteus-Like Syndrome
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Knut Brockmann practices in Goettingen, Germany. Mr. Brockmann is rated as an Advanced expert by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Oculomotor Apraxia Cogan Type, Distal Arthrogryposis Type 6, Distal Arthrogryposis, and Charlie M Syndrome.

      Advanced in Proteus-Like Syndrome
      Advanced in Proteus-Like Syndrome
      Chandigarh, CH, IN 

      Suresh Angurana practices in Chandigarh, India. Mr. Angurana is rated as an Advanced expert by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Vitamin D Deficiency, Proteus Syndrome, Proteus-Like Syndrome, and Croup.

      Advanced in Proteus-Like Syndrome
      Medical Genetics | Pediatrics
      Advanced in Proteus-Like Syndrome
      Medical Genetics | Pediatrics
      3333 Burnet Ave, Ml 4006, 
      Cincinnati, OH 
      Languages Spoken:
      English

      Howard Saal is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Saal is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Achondroplasia, Acrofacial Dysostosis Rodriguez Type, Treacher Collins Syndrome, and Acrofacial Dysostosis Catania Type.

      Advanced in Proteus-Like Syndrome
      Advanced in Proteus-Like Syndrome
      Athens, ESYE31, GR 

      Alexander Delides practices in Athens, Greece. Delides is rated as an Advanced expert by MediFind in the treatment of Proteus-Like Syndrome. Their top areas of expertise are Malignant Otitis Externa, Proteus Syndrome, Proteus-Like Syndrome, Thyroidectomy, and Laryngectomy.

      Advanced in Proteus-Like Syndrome
      Medical Genetics | Pediatrics
      Advanced in Proteus-Like Syndrome
      Medical Genetics | Pediatrics

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English

      Robert Hopkin is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Hopkin is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Fabry Disease, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Micrognathia, and Orchiectomy.

      Advanced in Proteus-Like Syndrome
      Medical Genetics | Pediatrics
      Advanced in Proteus-Like Syndrome
      Medical Genetics | Pediatrics
      6701 Fannin St, 
      Houston, TX 
      Languages Spoken:
      English, Urdu
      Accepting New Patients

      Seema Lalani is a Medical Genetics specialist and a Pediatrics provider in Houston, Texas. Dr. Lalani is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are GABA-Transaminase Deficiency, Hypotonia, VACTERL Association, and 1p36 Deletion Syndrome. Dr. Lalani is currently accepting new patients.

      Advanced in Proteus-Like Syndrome
      Advanced in Proteus-Like Syndrome
      30 Guilford Street, 
      London, ENG, GB 

      Neil Sebire practices in London, United Kingdom. Mr. Sebire is rated as an Advanced expert by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Giant Congenital Melanocytic Nevus, Gestational Trophoblastic Disease, Trophoblastic Tumor Placental Site, Kidney Transplant, and Tissue Biopsy.

      Advanced in Proteus-Like Syndrome
      Medical Genetics
      Advanced in Proteus-Like Syndrome
      Medical Genetics
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Genetics, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Jennifer Kalish is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Kalish is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Beckwith-Wiedemann Syndrome, Macroglossia, Hemi 3 Syndrome, Hemihyperplasia, and Glossectomy.

      Advanced in Proteus-Like Syndrome
      Advanced in Proteus-Like Syndrome
      Rome, IT 

      Roberta Onesimo practices in Rome, Italy. Ms. Onesimo is rated as an Advanced expert by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Cardiofaciocutaneous Syndrome, Smith-Magenis Syndrome, RASopathies, and Costello Syndrome.

      Advanced in Proteus-Like Syndrome
      Advanced in Proteus-Like Syndrome
      Brussels, BRU, BE 

      Laurence Boon practices in Brussels, Belgium. Mr. Boon is rated as an Advanced expert by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Blue Rubber Bleb Nevus Syndrome, Klippel-Trenaunay Syndrome, Hemangioma, and Skeletal-Extraskeletal Angiomatosis.

      Advanced in Proteus-Like Syndrome
      Advanced in Proteus-Like Syndrome
      London, ENG, GB 

      Veronica Kinsler practices in London, United Kingdom. Ms. Kinsler is rated as an Advanced expert by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Mosaicism, Phacomatosis Pigmentovascularis, and Ectodermal Dysplasias.

      Advanced in Proteus-Like Syndrome
      Medical Genetics | Pediatrics
      Advanced in Proteus-Like Syndrome
      Medical Genetics | Pediatrics

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Amelle Shillington is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Shillington is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Chromosome 13q Deletion, Van Maldergem Syndrome, Polysyndactyly Cardiac Malformation, and Bardet-Biedl Syndrome. Dr. Shillington is currently accepting new patients.

      Advanced in Proteus-Like Syndrome
      Medical Genetics
      Advanced in Proteus-Like Syndrome
      Medical Genetics
      3100 Sw 62nd Ave, 1st Floor, 
      Miami, FL 
      Languages Spoken:
      English, Dutch, Flemish, Hindi, Spanish
      Accepting New Patients
      Offers Telehealth

      Mislen Bauer is a Medical Genetics provider in Miami, Florida. Dr. Bauer is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Triple X Syndrome, Neurofibromatosis, and Neurofibromatosis Type 1 (NF1). Dr. Bauer is currently accepting new patients.

      Advanced in Proteus-Like Syndrome
      Medical Genetics | Pediatrics | Pediatric Hematology Oncology
      Advanced in Proteus-Like Syndrome
      Medical Genetics | Pediatrics | Pediatric Hematology Oncology

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Experience:
      16+ years
      Languages Spoken:
      English

      Sun Kim is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Kim has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Chromosome 13q Deletion, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Cat Eye Syndrome.

      Advanced in Proteus-Like Syndrome
      Medical Genetics | Pediatrics
      Advanced in Proteus-Like Syndrome
      Medical Genetics | Pediatrics
      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Erica Fernandes is a Medical Genetics specialist and a Pediatrics provider in Wilmington, Delaware. Dr. Fernandes is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Microcephaly, Chromosome 13q Deletion, Acrodermatitis Enteropathica, and CHARGE Syndrome. Dr. Fernandes is currently accepting new patients.

      Showing 1-20 of 425

      Last Updated: 10/30/2025

      What is the definition of Proteus-Like Syndrome?

      Proteus-like syndrome describes people who do not meet the diagnostic criteria for Proteus syndrome but who share many of the characteristic signs and symptoms associated with the condition. Affected people may experience some of the following features: overgrowth of the bones, skin, and other tissues; hamartomas; abnormalities of the skin, blood vessels (vascular tissue) and fat (adipose tissue); and distinctive facial features. Approximately 50% of people with Proteus-like syndrome are found to have changes in the PTEN gene. In these cases, the inheritance is autosomal dominant.

      When should I see a Proteus-Like Syndrome doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Proteus-Like Syndrome doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Proteus-Like Syndrome doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Proteus-Like Syndrome doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Proteus-Like Syndrome doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Proteus-Like Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Proteus-Like Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Proteus-Like Syndrome doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Proteus-Like Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Proteus-Like Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Proteus-Like Syndrome doctors near me?

      Look for the filter feature on the left side of the Proteus-Like Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Proteus-Like Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Proteus-Like Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy

      More Proteus-Like Syndrome Doctors by state