The 20 Best Proteus-Like Syndrome Doctors Near Me

Find the Top Proteus-Like Syndrome Experts and Specialists

The 20 Best Proteus-Like Syndrome Doctors Near Me

Last Updated: 02/22/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 416 doctor with experience in Proteus-Like Syndrome. Of these, 381 are Experienced, 30 are Advanced, 4 are Distinguished and 1 are Elite.

Location
LocationClose
416 providers found
    Elite in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Elite in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    49 Convent Dr Rm 4a56, 
    Bethesda, MD 
    Languages Spoken:
    English

    Leslie Biesecker is a Medical Genetics specialist and a Pediatrics provider in Bethesda, Maryland. Dr. Biesecker is rated as an Elite provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Proteus Syndrome, Proteus-Like Syndrome, Acromicric Dysplasia, and Lenz Microphthalmia Syndrome.

    Experienced in Proteus-Like Syndrome
    Experienced in Proteus-Like Syndrome

    ETSU Physicians & Associates- Pediatrics

    325 N State Of Franklin Rd, 
    Johnson City, TN 
    Languages Spoken:
    English

    . Dr. Russi is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Increased Head Circumference, Ehlers-Danlos Syndrome (EDS), Chromosome 8p Deletion, and Chromosome 6q Duplication.

    Experienced in Proteus-Like Syndrome
    Experienced in Proteus-Like Syndrome

    St. Christopher's Pediatric Associates Genetics - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Narumanchi is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Urea Cycle Disorders (UCD), Phenylketonuria (PKU), Dihydropteridine Reductase Deficiency, and Maternal Hyperphenylalaninemia.

    Learn about our expert tiers
    Distinguished in Proteus-Like Syndrome
    Distinguished in Proteus-Like Syndrome
    Rome, IT 

    Giuseppe Zampino practices in Rome, Italy. Mr. Zampino is rated as a Distinguished expert by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Proteus Syndrome, Proteus-Like Syndrome, RASopathies, and Costello Syndrome.

    Distinguished in Proteus-Like Syndrome
    Distinguished in Proteus-Like Syndrome
    Rome, IT 

    Chiara Leoni practices in Rome, Italy. Ms. Leoni is rated as a Distinguished expert by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are RASopathies, Cardiofaciocutaneous Syndrome, Costello Syndrome, and Clouston Syndrome.

    Distinguished in Proteus-Like Syndrome
    Distinguished in Proteus-Like Syndrome
    Tel Aviv, TA, IL 

    Joshua Manor practices in Tel Aviv, Israel. Mr. Manor is rated as a Distinguished expert by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Proteus-Like Syndrome, Proteus Syndrome, Chromosome 16q Duplication, and Dihydrolipoamide Dehydrogenase Deficiency.

    Distinguished in Proteus-Like Syndrome
    Distinguished in Proteus-Like Syndrome
    Bari, IT 

    Nicoletta Resta practices in Bari, Italy. Ms. Resta is rated as a Distinguished expert by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Hemihyperplasia, Macrodactyly of the Foot, Proteus-Like Syndrome, Salpingo-Oophorectomy, and Heart Transplant.

    Erica Fernandes
    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    26901 76th Avenue, 
    New Hyde Park, NY 
    Languages Spoken:
    English

    Erica Fernandes is a Medical Genetics specialist and a Pediatrics provider in New Hyde Park, New York. Dr. Fernandes is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Microcephaly, Chromosome 13q Deletion, Bowen-Conradi Syndrome, and Floating-Harbor Syndrome.

    Knut Brockmann
    Advanced in Proteus-Like Syndrome
    Advanced in Proteus-Like Syndrome
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Knut Brockmann practices in Goettingen, Germany. Mr. Brockmann is rated as an Advanced expert by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Oculomotor Apraxia Cogan Type, Distal Arthrogryposis, Distal Arthrogryposis Type 6, and Charlie M Syndrome.

    Experienced in Proteus-Like Syndrome
    Medical Genetics
    Experienced in Proteus-Like Syndrome
    Medical Genetics

    UT Southwestern - Pediatric Genetics

    1935 Medical District Dr, 
    Dallas, TX 
    Languages Spoken:
    English, Spanish

    Laura Mackay is a Medical Genetics provider in Dallas, Texas. Dr. Mackay is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Isovaleric Acidemia, Beta-Ketothiolase Deficiency, Biotinidase Deficiency, and Adrenoleukodystrophy (ALD).

    Experienced in Proteus-Like Syndrome
    Internal Medicine | Endocrinology
    Experienced in Proteus-Like Syndrome
    Internal Medicine | Endocrinology

    UT Southwestern - Internal Medicine Subspecialties

    2001 Inwood Rd, 8th Fl, 
    Dallas, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Markey Mcnutt is an Internal Medicine specialist and an Endocrinologist in Dallas, Texas. Dr. Mcnutt is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Ornithine Transcarbamylase Deficiency, Ornithine Translocase Deficiency, Phenylketonuria (PKU), and Megalencephalic Leukoencephalopathy with Subcortical Cysts.

    Experienced in Proteus-Like Syndrome
    Pediatrics | Medical Genetics
    Experienced in Proteus-Like Syndrome
    Pediatrics | Medical Genetics

    Cook Children's Genetics

    750 8th Ave, Ste 200, 
    Fort Worth, TX 
    Languages Spoken:
    English

    Ryan Gates is a Pediatrics specialist and a Medical Genetics provider in Fort Worth, Texas. Dr. Gates is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Micrognathia, Von Gierke Disease, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and PIK3CA-Related Overgrowth Spectrum.

    Experienced in Proteus-Like Syndrome
    Pediatrics | Medical Genetics
    Experienced in Proteus-Like Syndrome
    Pediatrics | Medical Genetics

    UT Southwestern - Pediatric Genetics

    1935 Medical District Dr, 
    Dallas, TX 
    Languages Spoken:
    English

    Angela Scheuerle is a Pediatrics specialist and a Medical Genetics provider in Dallas, Texas. Dr. Scheuerle is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Hennekam Syndrome, Fetal Akinesia Sequence, Hemihyperplasia, and Incontinentia Pigmenti.

    Experienced in Proteus-Like Syndrome
    Experienced in Proteus-Like Syndrome

    Hackensack University Medical Center

    30 Prospect Avenue, Pediatric Genetics & Genomics, Wfan, Room 210, 
    Hackensack, NJ 
    Languages Spoken:
    English, Hebrew

    Hayley Ron is a Pediatrics provider in Hackensack, New Jersey. Dr. Ron is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are 15q11.2 Microdeletion, Chromosome 12p Deletion, 3p Deletion Syndrome, and Jacobsen Syndrome. She is board certified in American Board Of Medical Genetics And Genomics and American Board Of Pediatrics.

    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics

    UT Southwestern - Pediatrics

    5323 Harry Hines Blvd, 
    Dallas, TX 
    Languages Spoken:
    English, Spanish

    Luis Umana is a Medical Genetics specialist and a Pediatrics provider in Dallas, Texas. Dr. Umana is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Classic Galactosemia, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, Biotinidase Deficiency, and Argininosuccinic Aciduria.

    Experienced in Proteus-Like Syndrome
    Experienced in Proteus-Like Syndrome

    Univ Of Maryland School Of Med

    737 West Lombard Street, Room 199, Room 199, 
    Baltimore, MD 
    Languages Spoken:
    English

    Carol Greene is a Pediatrics provider in Baltimore, Maryland. Dr. Greene is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), MELAS Syndrome, Ehlers-Danlos Syndrome (EDS), and Coenzyme Q Cytochrome C Reductase Deficiency.

    Experienced in Proteus-Like Syndrome
    Medical Genetics
    Experienced in Proteus-Like Syndrome
    Medical Genetics

    Emory Clinic At 1365 Clifton Road

    1365 Clifton Road Northeast, BldgB, 
    Atlanta, GA 
    Experience:
    32+ years
    Languages Spoken:
    English, Mandarin
    Offers Telehealth

    Hong Li is a Medical Genetics provider in Atlanta, Georgia. Dr. Li has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Dihydropteridine Reductase Deficiency, Maternal Hyperphenylalaninemia, and Beta-Ketothiolase Deficiency.

    Experienced in Proteus-Like Syndrome
    Experienced in Proteus-Like Syndrome

    Hackensack University Medical Center

    30 Prospect Avenue, Pediatric Genetics & Genomics, Wfan, Room 210, 
    Hackensack, NJ 
    Languages Spoken:
    English

    Reena Jethva is a Pediatrics provider in Hackensack, New Jersey. Dr. Jethva is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Sunken Fontanelles, HNRNPH2-Related Disorder, and Microcephaly.

    Experienced in Proteus-Like Syndrome
    Pediatric Endocrinology
    Experienced in Proteus-Like Syndrome
    Pediatric Endocrinology

    UT Physicians Pediatric Specialists - Texas Medical Center

    6410 Fannin St Ste 500, 
    Houston, TX 
    Languages Spoken:
    English

    David Rodriguez is a Pediatric Endocrinologist in Houston, Texas. Dr. Rodriguez is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Achondroplasia, Von Gierke Disease, Acanthosis Nigricans, Adenoidectomy, and Myringotomy.

    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    3333 Burnet Ave, Ml 4006, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Howard Saal is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Saal is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Achondroplasia, Acrofacial Dysostosis Rodriguez Type, Treacher Collins Syndrome, and Acrofacial Dysostosis Catania Type.

    Showing 1-20 of 416

    Last Updated: 02/22/2026

    What is the definition of Proteus-Like Syndrome?

    Proteus-like syndrome describes people who do not meet the diagnostic criteria for Proteus syndrome but who share many of the characteristic signs and symptoms associated with the condition. Affected people may experience some of the following features: overgrowth of the bones, skin, and other tissues; hamartomas; abnormalities of the skin, blood vessels (vascular tissue) and fat (adipose tissue); and distinctive facial features. Approximately 50% of people with Proteus-like syndrome are found to have changes in the PTEN gene. In these cases, the inheritance is autosomal dominant.

    When should I see a Proteus-Like Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Proteus-Like Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Proteus-Like Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Proteus-Like Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Proteus-Like Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Proteus-Like Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Proteus-Like Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Proteus-Like Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Proteus-Like Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Proteus-Like Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Proteus-Like Syndrome doctors near me?

    Look for the filter feature on the left side of the Proteus-Like Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Proteus-Like Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Proteus-Like Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Proteus-Like Syndrome Doctors by state