The 20 Best Proteus-Like Syndrome Doctors Near Me

Find the Top Proteus-Like Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 423 doctor with experience in Proteus-Like Syndrome. Of these, 388 are Experienced, 30 are Advanced, 4 are Distinguished and 1 are Elite.

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423 providers found
    Elite in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Elite in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    49 Convent Dr Rm 4a56, 
    Bethesda, MD 
    Languages Spoken:
    English

    Leslie Biesecker is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Bethesda, Maryland. Dr. Biesecker is rated as an Elite provider by MediFind in the treatment of Proteus-Like Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Proteus Syndrome, Proteus-Like Syndrome, Acromicric Dysplasia, and Lenz Microphthalmia Syndrome.

    Experienced in Proteus-Like Syndrome
    Experienced in Proteus-Like Syndrome

    ETSU Physicians & Associates- Pediatrics

    325 N State Of Franklin Rd, 
    Johnson City, TN 
    Languages Spoken:
    English

    . Dr. Russi is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. He is also highly rated in 125 other conditions, according to our data. His clinical expertise encompasses Increased Head Circumference, Ehlers-Danlos Syndrome (EDS), Chromosome 8p Deletion, and Chromosome 6q Duplication. Dr. Russi is board certified in American Board Of Pediatrics and American Board Of Medical Genetics.

    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    26901 76th Avenue, 
    New Hyde Park, NY 
    Languages Spoken:
    English

    Erica Fernandes is a Medical Genetics specialist and a Pediatrics provider practicing medicine in New Hyde Park, New York. Dr. Fernandes is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. She is also highly rated in 153 other conditions, according to our data. Her clinical expertise encompasses Microcephaly, Chromosome 13q Deletion, Hennekam Syndrome, and Acrodermatitis Enteropathica.

    Learn about our expert tiers
    Advanced in Proteus-Like Syndrome
    Medical Genetics
    Advanced in Proteus-Like Syndrome
    Medical Genetics

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    30+ years
    Languages Spoken:
    English
    Offers Telehealth

    Nina Powell is a Medical Genetics provider practicing medicine in Wilmington, Delaware. She has been practicing medicine for over 30 years. Dr. Powell is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. She is also highly rated in 45 other conditions, according to our data. Her clinical expertise encompasses Microcephaly, PIK3CA-Related Overgrowth Spectrum, Chromosome 13q Deletion, and Increased Head Circumference. Dr. Powell is board certified in American Board Of Medical Genetics And Genomics.

    Experienced in Proteus-Like Syndrome
    Experienced in Proteus-Like Syndrome

    St. Christopher's Pediatric Associates Genetics - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Narumanchi is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Urea Cycle Disorders (UCD), Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, and Dihydropteridine Reductase Deficiency. Dr. Narumanchi is board certified in American Board Of Medical Genetics And Genomics.

    Distinguished in Proteus-Like Syndrome
    Distinguished in Proteus-Like Syndrome
    Rome, IT 

    Giuseppe Zampino practices practicing medicine in Rome, Italy. Mr. Zampino is rated as a Distinguished expert by MediFind in the treatment of Proteus-Like Syndrome. He is also highly rated in 45 other conditions, according to our data. His clinical expertise encompasses Proteus Syndrome, Proteus-Like Syndrome, RASopathies, and Costello Syndrome.

    Distinguished in Proteus-Like Syndrome
    Distinguished in Proteus-Like Syndrome
    Rome, IT 

    Chiara Leoni practices practicing medicine in Rome, Italy. Ms. Leoni is rated as a Distinguished expert by MediFind in the treatment of Proteus-Like Syndrome. She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses RASopathies, Cardiofaciocutaneous Syndrome, Costello Syndrome, and Ectodermal Dysplasias.

    Distinguished in Proteus-Like Syndrome
    Distinguished in Proteus-Like Syndrome
    Nahariyya, Z, IL 

    Joshua Manor practices practicing medicine in Nahariyya, Israel. Mr. Manor is rated as a Distinguished expert by MediFind in the treatment of Proteus-Like Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Proteus-Like Syndrome, Proteus Syndrome, Dihydrolipoamide Dehydrogenase Deficiency, and Chromosome 16q Duplication.

    Distinguished in Proteus-Like Syndrome
    Distinguished in Proteus-Like Syndrome
    Bari, IT 

    Nicoletta Resta practices practicing medicine in Bari, Italy. Ms. Resta is rated as a Distinguished expert by MediFind in the treatment of Proteus-Like Syndrome. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Hemihyperplasia, Macrodactyly of the Foot, Proteus-Like Syndrome, Salpingo-Oophorectomy, and Heart Transplant.

    Advanced in Proteus-Like Syndrome
    Medical Genetics
    Advanced in Proteus-Like Syndrome
    Medical Genetics

    Nemours DuPont Hospital For Children

    1600 Rockland Road, Department Of General Pediatrics, 
    Wilmington, DE 
    Languages Spoken:
    English

    Karen Gripp is a Medical Genetics provider practicing medicine in Wilmington, Delaware. Dr. Gripp is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. She is also highly rated in 122 other conditions, according to our data. Her clinical expertise encompasses Costello Syndrome, RASopathies, Noonan Syndrome, and Gingival Fibromatosis with Hypertrichosis.

    Experienced in Proteus-Like Syndrome
    Pediatrics
    Experienced in Proteus-Like Syndrome
    Pediatrics

    Cleveland Clinic Main Campus

    10524 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    29+ years
    Languages Spoken:
    English

    Julie Kaplan is a Pediatrics provider practicing medicine in Cleveland, Ohio. She has been practicing medicine for over 29 years. Dr. Kaplan is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Mosaicism, Gingival Fibromatosis with Hypertrichosis, Mixed Gonadal Dysgenesis, and Turner Syndrome. Dr. Kaplan is board certified in American Board Of Medical Genetics And Genomics, 2020.

    Experienced in Proteus-Like Syndrome
    Experienced in Proteus-Like Syndrome

    Corewell Health William Beaumont University Hospital Pediatric Genetics

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
    Experience:
    10+ years
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Campbell is a Pediatrics provider practicing medicine in Royal Oak, Michigan. She has been practicing medicine for over 10 years. Dr. Campbell is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Increased Head Circumference, Delayed Growth, Congenital Athymia, and Acromesomelic Dysplasia Campailla Martinelli Type. Dr. Campbell is board certified in American Board Of Pediatrics. Dr. Campbell is currently accepting new patients.

    Experienced in Proteus-Like Syndrome
    Experienced in Proteus-Like Syndrome

    Phoenix Children's Hospital - Genetics

    1919 E Thomas Rd, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients

    Theresa Grebe is a Pediatrics provider practicing medicine in Phoenix, Arizona. Dr. Grebe is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. She is also highly rated in 96 other conditions, according to our data. Her clinical expertise encompasses Chromosome 6 Uniparental Disomy, Temple Syndrome, Congenital Bowing of Long Bones, and DiGeorge Syndrome. Dr. Grebe is board certified in Medical Genetics And Genomics Clin Genetics & Genomic. Dr. Grebe is currently accepting new patients.

    Experienced in Proteus-Like Syndrome
    Pediatrics | Medical Genetics
    Experienced in Proteus-Like Syndrome
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
    Experience:
    8+ years
    Languages Spoken:
    English
    Offers Telehealth

    Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 8 years. Dr. Priestley is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Fabry Disease, Biotinidase Deficiency, Ornithine Transcarbamylase Deficiency, and Multiple Sulfatase Deficiency. Dr. Priestley is board certified in American Board Of Medical Genetics And Genomics, American Board Of Medical Genetics And Genomics, and American Board Of Pediatrics.

    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Mark Hannibal is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Hannibal is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. He is also highly rated in 166 other conditions, according to our data. His clinical expertise encompasses Aase Syndrome, CHARGE Syndrome, Cockayne Syndrome Type 2, and Hennekam Syndrome. Dr. Hannibal is board certified in Clinical Genetics & Genomics.

    Advanced in Proteus-Like Syndrome
    Advanced in Proteus-Like Syndrome
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Knut Brockmann practices practicing medicine in Goettingen, Germany. Mr. Brockmann is rated as an Advanced expert by MediFind in the treatment of Proteus-Like Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Oculomotor Apraxia Cogan Type, Distal Arthrogryposis Type 6, Distal Arthrogryposis, and Charlie M Syndrome.

    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Dr. Pritchard is a Michigan native who returned to the University of Michigan to join the faculty here in 2019 after completing her pediatrics and genetics residencies and biochemical genetics fellowship. She enjoys care of complex patients with rare genetic diseases. Dr. Pritchard is active in medical education as Program Director for the Medical Biochemical Genetics Fellowship program and Associate Program Director for the Medical Genetics and Genomics training programs.Outside of work, Dr. Pritchard enjoys cooking, reading, hiking, and spending time with her husband and two daughters. Dr. Pritchard is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. She is also highly rated in 149 other conditions, according to our data. Her clinical expertise encompasses Microcephaly Deafness Syndrome, Propionic Acidemia, Delayed Growth, and Cohen Syndrome.

    Experienced in Proteus-Like Syndrome
    Medical Genetics
    Experienced in Proteus-Like Syndrome
    Medical Genetics

    UT Southwestern - Pediatric Genetics

    1935 Medical District Dr, 
    Dallas, TX 
    Languages Spoken:
    English, Spanish

    Laura Mackay is a Medical Genetics provider practicing medicine in Dallas, Texas. Dr. Mackay is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. She is also highly rated in 132 other conditions, according to our data. Her clinical expertise encompasses Isovaleric Acidemia, Beta-Ketothiolase Deficiency, Biotinidase Deficiency, and Adrenoleukodystrophy (ALD).

    Experienced in Proteus-Like Syndrome
    Internal Medicine | Endocrinology
    Experienced in Proteus-Like Syndrome
    Internal Medicine | Endocrinology

    UT Southwestern - Internal Medicine Subspecialties

    2001 Inwood Rd, 8th Fl, 
    Dallas, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Markey Mcnutt is an Internal Medicine specialist and an Endocrinologist practicing medicine in Dallas, Texas. Dr. Mcnutt is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. He is also highly rated in 122 other conditions, according to our data. His clinical expertise encompasses Ornithine Transcarbamylase Deficiency, Ornithine Translocase Deficiency, Phenylketonuria (PKU), and Megalencephalic Leukoencephalopathy with Subcortical Cysts.

    Experienced in Proteus-Like Syndrome
    Pediatrics | Medical Genetics
    Experienced in Proteus-Like Syndrome
    Pediatrics | Medical Genetics

    Cook Children's Genetics

    750 8th Ave, Ste 200, 
    Fort Worth, TX 
    Languages Spoken:
    English

    Ryan Gates is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Fort Worth, Texas. Dr. Gates is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Micrognathia, Von Gierke Disease, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and PIK3CA-Related Overgrowth Spectrum.

    Showing 1-20 of 423

    Last Updated: 04/28/2026

    What is the definition of Proteus-Like Syndrome?

    Proteus-like syndrome describes people who do not meet the diagnostic criteria for Proteus syndrome but who share many of the characteristic signs and symptoms associated with the condition. Affected people may experience some of the following features: overgrowth of the bones, skin, and other tissues; hamartomas; abnormalities of the skin, blood vessels (vascular tissue) and fat (adipose tissue); and distinctive facial features. Approximately 50% of people with Proteus-like syndrome are found to have changes in the PTEN gene. In these cases, the inheritance is autosomal dominant.

    When should I see a Proteus-Like Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Proteus-Like Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Proteus-Like Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Proteus-Like Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Proteus-Like Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Proteus-Like Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Proteus-Like Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Proteus-Like Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Proteus-Like Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Proteus-Like Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Proteus-Like Syndrome doctors near me?

    Look for the filter feature on the left side of the Proteus-Like Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Proteus-Like Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Proteus-Like Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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