Sickle Cell Disease Transplant Using a Nonmyeloablative Approach: Adding Daratumumab for Patients With Anti-donor Red Cell AntibodY

Status: Recruiting
Location: See location...
Intervention Type: Drug, Radiation
Study Type: Interventional
Study Phase: Phase 2
SUMMARY

This multicenter prospective study seeks to determine if daratumumab given, prior to HLA-identical sibling donor transplantation using alemtuzumab, low dose total-body irradiation, and sirolimus, can prevent pure red blood cell aplasia with an acceptable safety profile in patients with anti-donor red blood cell antibodies, achieving an event-free survival similar to transplanted patients without such antibodies.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 2
Maximum Age: 25
Healthy Volunteers: f
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⁃ General:

• Patients with SCD age 2-24.99 years who have a healthy HLA-identical sibling donor with major ABO incompatibility OR patients with RBC alloantibodies against other donor RBC antigens.

• Patients must have an absolute neutrophil count of 1 x 109/L and a platelet count of 100 x 109/L.

• Lansky/Karnofsky score of, at least, 70.

⁃ Patients with genotypes hemoglobin SS and Sβ0 thalassemia must have at least one of the following:

• History of an abnormal transcranial Doppler measurement defined as TCD velocity ≥200 cm/sec by the non-imaging technique measured at a minimum of two separate occasions.

• Progression of CNS vasculopathy on MRA determined to be secondary to SCD.

• History of cerebral infarction on brain MRI (overt stroke, or silent stroke if ≥3 mm in one dimension, visible in two planes on fluid-attenuated inversion recovery T2-weighted images).

• History of two or more episodes of Acute Chest Syndrome (ACS) in lifetime.

• History of three or more SCD pain events requiring treatment with an opiate or IV pain medication in lifetime.

• History of any hospitalization for a complication secondary to SCD (does NOT include empiric hospitalizations for fever only).

• History of two or more episodes of priapism.

• Administration of regular RBC transfusions (≥8 transfusions episodes in the previous 12 months).

• At least two episodes of splenic sequestration requiring red blood cell transfusion or splenectomy after at least one episode of splenic sequestration.

⁃ Patients with all other sickle genotypes (e.g. hemoglobin SC, Sβ+ thalassemia, etc.) must have at least one of the following:

• Clinically significant neurologic event (overt stroke).

• History of two or more episodes of ACS in the 2-year period preceding enrollment.

• History of three or more SCD pain events requiring treatment with an opiate or IV pain medication (inpatient or outpatient) in the 1-year period preceding enrollment.

• History of any hospitalization for SCD pain or ACS while receiving hydroxyurea treatment.

• History of two or more episodes of priapism (erection lasting ≥4 hours or requiring emergent medical care).

• Administration of regular RBC transfusions (≥8 transfusions in the previous 12 months)

• At least two episodes of splenic sequestration requiring red blood cell transfusion or splenectomy after at least one episode of splenic sequestration.

Locations
United States
Washington, D.c.
Children's National Hospital
RECRUITING
Washington D.c.
Contact Information
Primary
Robert Nickel, MD
rnickel@childrensnational.org
202-476-3122
Backup
Maryanne Odinakachukwu
modinakach@childrensnational.org
202-476-2957
Time Frame
Start Date: 2024-04-03
Estimated Completion Date: 2054-09
Participants
Target number of participants: 12
Treatments
Experimental: Recipients with a major ABO incompatible donor
Patients in this cohort are treated pre-HCT with Daratumumab, intravenously, on days -49, -42, -35 and -28. The conditioning regimen will consist of alemtuzumab, given subcutaneously, daily for 5 days (days -7 to -3) and low dose total body irradiation (TBI) 300 cGY on day -2 with gonadal shielding. Sirolimus will be given as GVHD prophylaxis for the first year with weaning thereafter based on donor T-cell chimerism. G-CSF, at 5 mcg/kg/day, will be given post stem cell infusion until neutrophil engraftment is achieved.
Experimental: Recipients with red cell alloantibodies (non-ABO) against donor antigens
Patients in this cohort are treated pre-HCT with Daratumumab, intravenously, on days -49, -42, -35 and -28. The conditioning regimen will consist of alemtuzumab, given subcutaneously, daily for 5 days (days -7 to -3) and low dose total body irradiation (TBI) 300 cGY on day -2 with gonadal shielding. Sirolimus will be given as GVHD prophylaxis for the first year with weaning thereafter based on donor T-cell chimerism. G-CSF, at 5 mcg/kg/day, will be given post stem cell infusion until neutrophil engraftment is achieved.
Sponsors
Collaborators: Nationwide Children's Hospital, Doris Duke Charitable Foundation, Levine Children's Hospital, Children's Hospital at Montefiore, Janssen Pharmaceuticals, Ann & Robert H Lurie Children's Hospital of Chicago, Alberta Children's Hospital, The Hospital for Sick Children
Leads: Children's National Research Institute

This content was sourced from clinicaltrials.gov

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