Learn About RASopathies
Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome
Bruce Gelb is a Pediatric Cardiologist and a Pediatrics provider in New York, New York. Dr. Gelb and is rated as an Elite provider by MediFind in the treatment of RASopathies. His top areas of expertise are RASopathies, Congenital Heart Disease (CHD), Cardiomyopathic Lentiginosis, Noonan Syndrome, and Heart Transplant.
Martin Zenker practices in Magdeburg, Germany. Zenker and is rated as an Elite expert by MediFind in the treatment of RASopathies. His top areas of expertise are Neu Laxova Syndrome, RASopathies, Noonan Syndrome, and Syndactyly.
Karen Gripp is a Medical Genetics provider in Wilmington, Delaware. Dr. Gripp and is rated as an Elite provider by MediFind in the treatment of RASopathies. Her top areas of expertise are RASopathies, Costello Syndrome, Gingival Fibromatosis with Hypertrichosis, and Noonan Syndrome. Dr. Gripp is currently accepting new patients.
Background: RASopathies are a group of genetic diseases that affect a child s development. They cause physical, cognitive, and behavioral symptoms. Caring for a child with a RASopathy can be stressful. Acceptance and Commitment Therapy (ACT) is a therapy that helps people become more aware and accepting of difficult thoughts and feelings. ACT has been found to be helpful for parents with high parenting stress...
Background: RASopathies are a group of conditions caused by a genetic change. People with a RASopathy may have developmental issues, cognitive disability, poor growth, and birth defects. They may also have an increased risk for developing cancer. Researchers want to learn more.