Learn About RASopathies
Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome
Mount Sinai
Bruce Gelb is a Pediatric Cardiologist in New York, New York. Dr. Gelb is rated as an Elite provider by MediFind in the treatment of RASopathies. His top areas of expertise are RASopathies, Congenital Heart Disease (CHD), Cardiomyopathic Lentiginosis, Noonan Syndrome, and Heart Transplant.
Boston Childrens Health Physicians LLP
Alicia Romano is a Pediatrics provider in Sleepy Hollow, New York. Dr. Romano is rated as an Elite provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, RASopathies, Short Stature (Growth Disorders), and Familial Short Stature (FSS).
Martin Zenker practices in Magdeburg, Germany. Mr. Zenker is rated as an Elite expert by MediFind in the treatment of RASopathies. His top areas of expertise are Noonan Syndrome, RASopathies, Syndactyly, and Acromicric Dysplasia.
Background: RASopathies are a group of conditions caused by a genetic change. People with a RASopathy may have developmental issues, cognitive disability, poor growth, and birth defects. They may also have an increased risk for developing cancer. Researchers want to learn more.
Background: RASopathies are a group of genetic diseases that affect a child s development. They cause physical, cognitive, and behavioral symptoms. Caring for a child with a RASopathy can be stressful. Acceptance and Commitment Therapy (ACT) is a therapy that helps people become more aware and accepting of difficult thoughts and feelings. ACT has been found to be helpful for parents with high parenting stress...