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    Last Updated: 10/30/2025

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    MediFind found 9581 doctor with experience in RASopathies. Of these, 8756 are Experienced, 693 are Advanced, 103 are Distinguished and 29 are Elite.

    Location
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    9,581 providers found
      Bruce D. Gelb
      Elite in RASopathies
      Pediatric Cardiology | Pediatrics
      Elite in RASopathies
      Pediatric Cardiology | Pediatrics

      Icahn School Of Medicine At Mount Sinai

      1 Gustave L Levy Pl, 
      New York, NY 
      Languages Spoken:
      English

      Bruce Gelb is a Pediatric Cardiologist and a Pediatrics provider in New York, New York. Dr. Gelb is rated as an Elite provider by MediFind in the treatment of RASopathies. His top areas of expertise are RASopathies, Congenital Heart Disease (CHD), Cardiomyopathic Lentiginosis, Noonan Syndrome, and Heart Transplant.

      Elite in RASopathies
      Elite in RASopathies
      Leipziger Str. 44, 
      Magdeburg, ST, DE 

      Martin Zenker practices in Magdeburg, Germany. Mr. Zenker is rated as an Elite expert by MediFind in the treatment of RASopathies. His top areas of expertise are Noonan Syndrome, RASopathies, Syndactyly, and Acromicric Dysplasia.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in RASopathies
      Medical Genetics
      Elite in RASopathies
      Medical Genetics
      A.i. Dupont Hospital For Children, 1600 Rockland Road, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Karen Gripp is a Medical Genetics provider in Wilmington, Delaware. Dr. Gripp is rated as an Elite provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Costello Syndrome, RASopathies, Noonan Syndrome, and Cardiofaciocutaneous Syndrome. Dr. Gripp is currently accepting new patients.

      Are you looking for a specific type of RASopathies?

      Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

      Learn about our expert tiers
      Elite in RASopathies
      Internal Medicine
      Elite in RASopathies
      Internal Medicine
      20 Watsessing Ave, 
      Bloomfield, NJ 
      Languages Spoken:
      English

      Marco Tartaglia is a primary care provider, practicing in Internal Medicine in Bloomfield, New Jersey. Dr. Tartaglia is rated as an Elite provider by MediFind in the treatment of RASopathies. His top areas of expertise are RASopathies, Noonan Syndrome, Cardiomyopathic Lentiginosis, and Rommen Mueller Sybert Syndrome.

      Elite in RASopathies
      Elite in RASopathies
      Matão Street 277 Room 350, 
      Sao Paulo, SP, BR 

      Debora Bertola practices in Sao Paulo, Brazil. Ms. Bertola is rated as an Elite expert by MediFind in the treatment of RASopathies. Her top areas of expertise are RASopathies, Noonan Syndrome, Acrofacial Dysostosis Catania Type, Spondyloepimetaphyseal Dysplasia Strudwick Type, and Osteotomy.

      Elite in RASopathies
      Elite in RASopathies
      Paris, FR 

      Helene Cave practices in Paris, France. Ms. Cave is rated as an Elite expert by MediFind in the treatment of RASopathies. Her top areas of expertise are RASopathies, Noonan Syndrome, Juvenile Myelomonocytic Leukemia (JMML), and Transient Neonatal Diabetes Mellitus.

      Elite in RASopathies
      Elite in RASopathies
      Paris, FR 

      Alain Verloes practices in Paris, France. Mr. Verloes is rated as an Elite expert by MediFind in the treatment of RASopathies. His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Noonan Syndrome, and RASopathies.

      Elite in RASopathies
      Elite in RASopathies
      Sao Paulo, SP, BR 

      Alexander Jorge practices in Sao Paulo, Brazil. Jorge is rated as an Elite expert by MediFind in the treatment of RASopathies. Their top areas of expertise are Familial Hypopituitarism, Noonan Syndrome, RASopathies, Short Stature (Growth Disorders), and Hormone Replacement Therapy (HRT).

      Elite in RASopathies
      Elite in RASopathies
      Osaka, JP 

      Yoichi Matsubara practices in Osaka, Japan. Mr. Matsubara is rated as an Elite expert by MediFind in the treatment of RASopathies. His top areas of expertise are Costello Syndrome, RASopathies, Noonan Syndrome, Rommen Mueller Sybert Syndrome, and Trabeculectomy.

      Elite in RASopathies
      Elite in RASopathies

      KU Leuven

      Leuven, VLG, BE 

      Eric Legius practices in Leuven, Belgium. Mr. Legius is rated as an Elite expert by MediFind in the treatment of RASopathies. His top areas of expertise are Legius Syndrome, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and RASopathies.

      Elite in RASopathies
      Medical Genetics | Pediatrics
      Elite in RASopathies
      Medical Genetics | Pediatrics
      225 E Chicago Ave # 59, 
      Chicago, IL 
      Languages Spoken:
      English

      Carlos Prada is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Prada is rated as an Elite provider by MediFind in the treatment of RASopathies. His top areas of expertise are RASopathies, Gaucher Disease, Achondroplasia, and Gaucher Disease Type 1.

      Elite in RASopathies
      Elite in RASopathies
      Sao Paulo, SP, BR 

      Alexsandra Malaquias practices in Sao Paulo, Brazil. Ms. Malaquias is rated as an Elite expert by MediFind in the treatment of RASopathies. Her top areas of expertise are RASopathies, Noonan Syndrome, Short Stature (Growth Disorders), and Idiopathic Short Stature (ISS).

      Elite in RASopathies
      Medical Genetics | Pediatrics
      Elite in RASopathies
      Medical Genetics | Pediatrics
      3333 Burnet Ave, Ml 4006, 
      Cincinnati, OH 
      Languages Spoken:
      English

      Kathryn Weaver is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Weaver is rated as an Elite provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Acrofacial Dysostosis Catania Type, RASopathies, Costello Syndrome, and Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant.

      Elite in RASopathies
      Elite in RASopathies
      JP 

      Tetsuya Niihori practices in Japan. Mr. Niihori is rated as an Elite expert by MediFind in the treatment of RASopathies. His top areas of expertise are Costello Syndrome, RASopathies, Linear Nevus Sebaceous Syndrome, and Noonan Syndrome.

      Elite in RASopathies
      Elite in RASopathies
      Goeteborg, O, SE 

      Jovanna Dahlgren practices in Goeteborg, Sweden. Ms. Dahlgren is rated as an Elite expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, RASopathies, Russell-Silver Dwarfism, Gastric Bypass, and Hormone Replacement Therapy (HRT).

      Elite in RASopathies
      Pediatric Endocrinology | Pediatrics
      Elite in RASopathies
      Pediatric Endocrinology | Pediatrics

      Bradhurst Avenue Specialty Office

      19 Bradhurst Avenue, Suite 1400, 
      Hawthorne, NY 
      Languages Spoken:
      English

      Alicia Romano is a Pediatric Endocrinologist and a Pediatrics provider in Hawthorne, New York. Dr. Romano is rated as an Elite provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, RASopathies, Short Stature (Growth Disorders), and Idiopathic Short Stature (ISS).

      Elite in RASopathies
      Elite in RASopathies
      Nijmegen, GE, NL 

      Ineke Van Der Burgt practices in Nijmegen, Netherlands. Ms. Van Der Burgt is rated as an Elite expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, RASopathies, Cardiomyopathic Lentiginosis, and Coffin-Siris Syndrome.

      Elite in RASopathies
      Medical Genetics | Pediatrics
      Elite in RASopathies
      Medical Genetics | Pediatrics
      2825 50th St Rm 2284, Uc Davis Mind Institute, 
      Sacramento, CA 
      Languages Spoken:
      English

      Katherine Rauen is a Medical Genetics specialist and a Pediatrics provider in Sacramento, California. Dr. Rauen is rated as an Elite provider by MediFind in the treatment of RASopathies. Her top areas of expertise are RASopathies, Costello Syndrome, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

      Elite in RASopathies
      Elite in RASopathies
      Leipziger Str. 44, 
      Magdeburg, ST, DE 

      Christina Lissewski practices in Magdeburg, Germany. Ms. Lissewski is rated as an Elite expert by MediFind in the treatment of RASopathies. Her top areas of expertise are RASopathies, Noonan Syndrome, Cardiofaciocutaneous Syndrome, and Costello Syndrome.

      Elite in RASopathies
      Medical Genetics | Pediatrics
      Elite in RASopathies
      Medical Genetics | Pediatrics

      Lpch Medical Group Div Of Lucile

      725 Welch Rd, 
      Palo Alto, CA 
      Languages Spoken:
      English

      David Stevenson is a Medical Genetics specialist and a Pediatrics provider in Palo Alto, California. Dr. Stevenson is rated as an Elite provider by MediFind in the treatment of RASopathies. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, RASopathies, Costello Syndrome, and Deep Brain Stimulation.

      Showing 1-20 of 9,581

      Last Updated: 10/30/2025

      What is the definition of RASopathies?

      RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

      When should I see a RASopathies doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a RASopathies doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank RASopathies doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by RASopathies doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a RASopathies doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

      Why is it important to get a second opinion from a different RASopathies doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a RASopathies doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my RASopathies doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female RASopathies doctors near me?

      Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a RASopathies doctor that offers video calls?

      Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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