The 20 Best Schwannomatosis Doctors in The United States

Find the Top Schwannomatosis Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 423 doctor with experience in Schwannomatosis near The United States. Of these, 334 are Experienced, 60 are Advanced, 21 are Elite and 8 are Distinguished.

Location
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423 providers found
    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Referral may be required

    Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville

    10753 Falls Road, Pavilion II STE 115, 
    Lutherville, MD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jaishri Blakeley is a Neurologist practicing medicine in Lutherville, Maryland. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy. Dr. Blakeley is board certified in American Board Of Psychiatry And Neurology. Dr. Blakeley is currently accepting new patients.

    Elite in Schwannomatosis
    General Surgery | Neurosurgery
    Elite in Schwannomatosis
    General Surgery | Neurosurgery
    Referral may be required

    Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville

    10753 Falls Road, Pavilion II, Suite 115, 
    Lutherville, MD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Allan Belzberg is a General Surgeon and a Neurosurgery provider practicing medicine in Lutherville, Maryland. Dr. Belzberg is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Schwannoma, Rhizotomy, and Laminectomy. Dr. Belzberg is board certified in American Board Of Neurological Surgery. Dr. Belzberg is currently accepting new patients.

    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Referral may be required

    The Johns Hopkins Hospital

    1800 Orleans Street, 
    Baltimore, MD 
    Languages Spoken:
    English, Hindi
    Accepting New Patients

    Shivani Ahlawat is a Radiologist practicing medicine in Baltimore, Maryland. Dr. Ahlawat is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2). Dr. Ahlawat is board certified in American Board Of Radiology. Dr. Ahlawat is currently accepting new patients.

    Learn about our expert tiers
    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Carlos Romo is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Romo is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Neurofibromatosis Type 2 (NF2). Dr. Romo is board certified in American Board Of Psychiatry And Neurology. Dr. Romo is currently accepting new patients.

    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Referral may be required

    Office

    55 Fruit St # 9, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Scott Plotkin is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Plotkin is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma. Dr. Plotkin is currently accepting new patients.

    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Referral may be required

    University Of Texas Southwestern Medical Center

    5323 Harry Hines Blvd, 
    Dallas, TX 
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Justin Jordan is a Neurologist practicing medicine in Dallas, Texas. He has been practicing medicine for over 17 years. Dr. Jordan is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Tissue Biopsy. Dr. Jordan is currently accepting new patients.

    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Referral may be required

    NYU Langone Hospitals

    550 1st Ave, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients

    Miriam Bredella is a Radiologist practicing medicine in New York, New York. Dr. Bredella is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Sleeve Gastrectomy, and Gastric Bypass. Dr. Bredella is currently accepting new patients.

    Advanced in Schwannomatosis
    Advanced in Schwannomatosis
    Referral may be required

    Memorial Sloan Kettering Cancer Center

    1275 York Ave, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr Mark-Bilsky is a Neurosurgery provider practicing medicine in New York, New York. Dr. Mark-Bilsky is rated as an Advanced provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Chordoma, Bone Tumor, Hemangioblastoma, Bone Graft, and Vertebroplasty. Dr. Mark-Bilsky is currently accepting new patients.

    Experienced in Schwannomatosis
    Neurosurgery
    Experienced in Schwannomatosis
    Neurosurgery
    Referral required

    Aurora Neuroscience Innovation

    2801 W Kinnickinnic River Pkwy, Ste 680, 
    Milwaukee, WI 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Aaron Plitt is a Neurosurgery provider practicing medicine in Milwaukee, Wisconsin. Dr. Plitt is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Schwannoma, Acoustic Neuroma, Hydrocephalus, Neuroendocrine Tumor, and Endoscopy. Dr. Plitt is board certified in  . Dr. Plitt is currently accepting new patients.

    Experienced in Schwannomatosis
    Internal Medicine
    Experienced in Schwannomatosis
    Internal Medicine

    BHMA Family Medicine And Internal Medicine- Elizabethton

    1505 W Elk Ave, Ste 2, 
    Elizabethton, TN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Robert Walter is a primary care provider, practicing in Internal Medicine in Elizabethton, Tennessee. Dr. Walter is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. His clinical expertise encompasses Hypertension, Schwannomatosis, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Walter is board certified in American Board Of Internal Medicine. Dr. Walter is currently accepting new patients.

    Experienced in Schwannomatosis
    Radiation Oncology | Pediatrics
    Experienced in Schwannomatosis
    Radiation Oncology | Pediatrics
    Referral may be required

    Orlando Health Cancer Institute – Dr. Phillips

    7472 Docs Grove Cir., 
    Orlando, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Naren Ramakrishna is a Radiation Oncologist and a Pediatrics provider practicing medicine in Orlando, Florida. Dr. Ramakrishna is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Primitive Neuroectodermal Tumor (PNET), Posterior Fossa Tumor, Metastatic Brain Tumor, and Glioblastoma. Dr. Ramakrishna is board certified in Radiation Oncology. Dr. Ramakrishna is currently accepting new patients.

    Experienced in Schwannomatosis
    Otolaryngology
    Experienced in Schwannomatosis
    Otolaryngology
    Referral may be required

    Atlantic Head And Neck Surgery

    100 Madison Avenue, Floor 1, 
    Morristown, NJ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Erik Cohen is an Otolaryngologist practicing medicine in Morristown, New Jersey. Dr. Cohen is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Acinic Cell Carcinoma of Salivary Glands, Salivary Gland Tumors, Laryngeal Cancer, Thyroidectomy, and Gastrostomy. Dr. Cohen is board certified in American Board Of Otolaryngology - Head And Neck Surgery. Dr. Cohen is currently accepting new patients.

    Experienced in Schwannomatosis
    Experienced in Schwannomatosis
    Referral may be required
    259 E Erie St Ste 1450, Lavin Family Pavilion, 
    Chicago, IL 
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Jean-paul Wolinsky is a Neurosurgery provider practicing medicine in Chicago, Illinois. Dr. Wolinsky is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Chordoma, Bone Tumor, Spinal Tumor, Spinal Fusion, and Laminectomy. Dr. Wolinsky is board certified in American Board Of Neurological Surgery - Neurological Surgery (Certified). Dr. Wolinsky is currently accepting new patients.

    Experienced in Schwannomatosis
    Otolaryngology
    Experienced in Schwannomatosis
    Otolaryngology
    Referral may be required
    5555 Ponce De Leon Boulevard, Floor 4, 
    Coral Gables, FL 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Fred Telischi is an Otolaryngologist practicing medicine in Coral Gables, Florida. Dr. Telischi is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Schwannoma, Acoustic Neuroma, Neurofibromatosis Type 2 (NF2), Mastoidectomy, and Vagotomy. Dr. Telischi is currently accepting new patients.

    Experienced in Schwannomatosis
    Neurosurgery
    Experienced in Schwannomatosis
    Neurosurgery
    Referral may be required
    1295 Northwest 14th Street, 
    Miami, FL 
    Languages Spoken:
    English, French, Italian, Spanish
    Accepting New Patients
    Offers Telehealth

    Allan Levi is a Neurosurgery provider practicing medicine in Miami, Florida. Dr. Levi is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Meningocele, Cervical Spondylosis, Spondylolisthesis, Laminectomy, and Spinal Fusion. Dr. Levi is currently accepting new patients.

    Neurosurgery
    Neurosurgery
    Referral required
    550 17th Avenue, Suite 500, 
    Seattle, WA 
    Languages Spoken:
    English, Castilian, Farsi, Korean, Spanish
    Accepting New Patients
    Offers Telehealth

    Rod Oskouian is a Neurosurgery provider practicing medicine in Seattle, Washington. Dr. Oskouian is rated as undefined provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Epidural Hematoma, Spondylolisthesis, Scoliosis, Laminectomy, and Spinal Fusion. Dr. Oskouian is board certified in American Board Of Neurological Surgery. Dr. Oskouian is currently accepting new patients.

    Distinguished in Schwannomatosis
    Distinguished in Schwannomatosis
    Referral may be required

    The Johns Hopkins Hospital

    1800 Orleans Street, 
    Baltimore, MD 
    Languages Spoken:
    English, Arabic, French
    Accepting New Patients

    Laura Fayad is a Radiologist practicing medicine in Baltimore, Maryland. Dr. Fayad is rated as a Distinguished provider by MediFind in the treatment of Schwannomatosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Liposarcoma, and Neurofibromatosis Type 2 (NF2). Dr. Fayad is board certified in American Board Of Radiology. Dr. Fayad is currently accepting new patients.

    Distinguished in Schwannomatosis
    Pediatric Neurology | Neurology
    Distinguished in Schwannomatosis
    Pediatric Neurology | Neurology
    Referral may be required

    Comer Children's Hospital - Hyde Park

    5721 S. Maryland Ave., 
    Chicago, IL 
    Languages Spoken:
    English, Italian
    Accepting New Patients
    Offers Telehealth

    James Tonsgard is a Pediatric Neurologist and a Neurologist practicing medicine in Chicago, Illinois. Dr. Tonsgard is rated as a Distinguished provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and RASopathies. Dr. Tonsgard is board certified in Pediatrics and Practicing Since1978. Dr. Tonsgard is currently accepting new patients.

    Experienced in Schwannomatosis
    Neurosurgery
    Experienced in Schwannomatosis
    Neurosurgery
    Referral may be required

    Duarte Cancer Center

    1500 Duarte Rd, 
    Duarte, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Mike Chen is a Neurosurgery provider practicing medicine in Duarte, California. Dr. Chen is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Chordoma, Bone Tumor, Posterior Fossa Tumor, Awake Craniotomy, and Laminectomy.

    Experienced in Schwannomatosis
    Experienced in Schwannomatosis
    Referral may be required

    Rhode Island Hospital

    593 Eddy St, 
    Providence, RI 
    Languages Spoken:
    English
    Offers Telehealth

    Heinrich Elinzano is a Neurologist practicing medicine in Providence, Rhode Island. Dr. Elinzano is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Subependymoma, Brain Stem Cancer, Primitive Neuroectodermal Tumor (PNET), and Posterior Fossa Tumor.

    Showing 1-20 of 423

    Last Updated: 09/26/2026

    What is the definition of Schwannomatosis?

    Schwannomatosis is a disorder characterized by multiple noncancerous (benign) tumors called schwannomas, which are a type of tumor that grows on nerves. Schwannomas develop when Schwann cells, which are specialized cells that normally form an insulating layer around the nerve, grow uncontrollably to form a tumor.

    When should I see a Schwannomatosis doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Schwannomatosis doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Schwannomatosis doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Schwannomatosis doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Schwannomatosis doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Schwannomatosis doctor search results page. 

    Why is it important to get a second opinion from a different Schwannomatosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Schwannomatosis doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Schwannomatosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Schwannomatosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Schwannomatosis doctors in The United States?

    Look for the filter feature on the left side of the Schwannomatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Schwannomatosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Schwannomatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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