The 20 Best Schwannomatosis Doctors in The United States

Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy.

Dr. Allan Belzberg is a neurosurgeon specializing in surgery of the peripheral nervous system. As Director of Peripheral Nerve Surgery at Johns Hopkins in Baltimore, he treats tumors including schwannoma, neurofibroma and nerve sheath tumor. Dr. Belzberg performs surgical repair of nerve damage caused by trauma as well as neurosurgery on carpal tunnel, peroneal nerve and other peripheral nerve conditions. Dr. Belzberg also directs the Brachial Plexus and Peripheral Nerve Clinic at the Kennedy Krieger Institute and co-directs the Neurosurgery Pain Research Institute at Johns Hopkins Hospital. Dr. Belzberg currently sees patients at the Johns Hopkins Outpatient Center located in Baltimore on Wednesdays and the Green Spring Station location on Fridays. Dr. Belzberg is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannomatosis, Neurofibromatosis, Thoracic Outlet Syndrome, Rhizotomy, and Laminectomy.

Miriam Bredella is a Radiologist in Boston, Massachusetts. Dr. Bredella is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Sleeve Gastrectomy, and Gastric Bypass.

Scott Plotkin is a Neurologist in Boston, Massachusetts. Dr. Plotkin is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma.

Justin Jordan is a Neurologist in Boston, Massachusetts. Dr. Jordan is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Tissue Biopsy.

Nicole Ullrich is a Pediatric Neurologist in Boston, Massachusetts. Dr. Ullrich is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Optic Glioma, and Schwannomatosis.

Aaron Plitt is a Neurosurgery provider in Milwaukee, Wisconsin. Dr. Plitt is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannoma, Acoustic Neuroma, Hydrocephalus, Neuroendocrine Tumor, and Endoscopy.

. Dr. Lacava is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Diabetic Nephropathy, Muscle Invasive Bladder Cancer, Dementia, Endoscopy, and Hip Replacement.

Dr. Ahlawat earned a Bachelor of Arts with magna cum laude at New York University. She completed both her Medical Degree as well as residency training in diagnostic radiology at Rutgers University’s Robert Wood Johnson Medical School in New Brunswick, NJ. Dr. Ahlawat completed her Pediatric Radiology Fellowship at the Children’s National Medical Center in Washington, DC and went on to Johns Hopkins University in Baltimore, MD to do a Fellowship in musculoskeletal radiology. After completion of her fellowship, Dr. Ahlawat joined as faculty in the Diagnostic Division of the department of Radiology at the Johns Hopkins University. Currently, she is an Assistant Professor in the Johns Hopkins University Department of Radiology and Radiological Science. Dr. Ahlawat’s expertise is Diagnostic Radiology with additional training in pediatric and musculoskeletal radiology. Dr. Ahlawat specializes in high resolution magnetic resonance (MR) imaging of peripheral nerves, specifically detection and characterization of peripheral nerve injury; MR imaging of peripheral nerve tumors and peripheral nerve tumor syndromes; whole body MR imaging in the setting of peripheral nerve tumor syndromes; and advanced MR techniques such as quantitative diffusion weighted imaging and apparent diffusion coefficient mapping in characterization of bone and soft tissue tumors. Dr. Shivani Ahlawat also serves as the Director of the Musculoskeletal Fellowship Program. Dr. Ahlawat is rated as a Distinguished provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Undifferentiated Pleomorphic Sarcoma.

Carlos Romo, M.D., is a neuro-oncologist in Baltimore, Maryland. Dr. Romo specializes in the diagnosis and treatment of brain tumors, including glioblastoma, astrocytomas, oligodendrogliomas, neurofibromas, and schwannomas among others. Dr. Romo earned his medical degree from the School of Medicine and Health Sciences at Tecnológico de Monterrey in Mexico and completed his Neurology residency at the University of Arkansas for Medical Sciences, where he served as chief resident. He then completed a Neuro-oncology clinical and research fellowship in a joint program between The Johns Hopkins University and the National Institutes of Health. Dr. Romo additionally trained as a clinical pharmacology fellow at The Johns Hopkins University and completed training on clinical cancer research at the University of Texas MD Anderson Cancer Center. In his research, Dr. Romo studies drug pharmacokinetics and the blood-brain barrier, and investigates better ways to reach tumors in the central nervous system. Dr. Romo also studies treatments for patient with neurofibromatosis. In addition to patient care and research, Dr. Romo teaches and mentors medical and undergraduate students to help develop a future generation of neurologists. Dr. Romo is rated as a Distinguished provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Astrocytoma.

Dr. Laura M. Fayad serves as the Chief of Musculoskeletal Imaging. She is a Professor in the Johns Hopkins University Department of Radiology and Radiological Science, Department of Oncology, and Department of Orthopaedic Surgery. Dr. Fayad is also the Director of the Translational Research Program in the Department of Radiology. Dr. Fayad earned a Bachelor of Science at the Massachusetts Institute of Technology, a Master of Science at Stanford University, and M.D. C.M. degrees at the McGill University Faculty of Medicine. She completed residency training at Columbia University and MRI Fellowship at Thomas Jefferson University. She specializes in diagnostic and interventional musculoskeletal radiology. In addition to routine sports medicine and spine applications, Dr. Fayad protocols and interprets specialized examinations in the areas of peripheral nerve imaging, tumor imaging, and rheumatology. Her primary area of research focuses on novel imaging techniques for musculoskeletal tumors, with her work including well over 100 publications that have been cited more than 1,500 times. Dr. Fayad is rated as a Distinguished provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Liposarcoma, and Neurofibromatosis Type 2 (NF2).

Eric Zager is a Neurosurgery provider in Philadelphia, Pennsylvania. Dr. Zager is rated as a Distinguished provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Thoracic Outlet Syndrome, Hydrocephalus, Neurofibromatosis, Awake Craniotomy, and Gastrostomy. Dr. Zager is currently accepting new patients.

Mina Lobbous is a Neurologist in Cleveland, Ohio. Dr. Lobbous is rated as an Advanced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Glioma, Glioblastoma, Astrocytoma, and Brain Tumor.

Chetan Bettegowda is the director of the Johns Hopkins Department of Neurosurgery. He offers comprehensive treatments for adult patients with benign and malignant brain tumors, specializing in the treatment of patients with primary brain tumors such as gliomas, meningiomas and pituitary tumors. He performs both open surgery and stereotactic radiosurgery for patients with metastatic tumors to the brain, and also provides stereotactic radiosurgery for other neurological disorders, including spinal tumors, trigeminal neuralgia and skull-base tumors. Dr. Bettegowda is rated as an Advanced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Trigeminal Neuralgia, Astrocytoma, Glioblastoma, Rhizotomy, and Microvascular Decompression.

Pawan Rastogi is a Neurosurgery provider in Newark, Delaware. Dr. Rastogi has been practicing medicine for over 37 years and is rated as an Advanced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Chronic Subdural Hematoma, Spondylolisthesis, Radiation Induced Meningioma, Microdiscectomy, and Herniated Disc Surgery.

Dr. Ahmet Hoke is Professor of Neurology and Neuroscience, W. W. Smith Charitable Trust Professor of Neuroimmunology at Johns Hopkins School of Medicine, Director of the Daniel B. Drachman Division of Neuromuscular Diseases and Director of the Merkin Peripheral Neuropathy and Nerve Regeneration Center at Johns Hopkins University School of Medicine. He completed his medical training at Hacettepe University School of Medicine in Ankara, Turkey followed by his PhD studies in developmental neuroscience at Case Western Reserve University in Cleveland, Ohio, and neurology residency at Johns Hopkins Hospital. After completing his neuromuscular training at University of Calgary, Canada, he returned to Johns Hopkins University as faculty and rose through the ranks. He is the recipient of several awards including Derek Denny Brown Young Neurological Scholar Award (2005) and Wolfe Neuropathy Research prize (2018) given by the American Neurological Association, Myung Memorial Lecture Award (2017) by the Korean Neurological Association, Nejat Eczacibasi Medical Scientist Award (2019) by the Eczacibasi Foundation, Turkey, and Alan J. Gebhart Prize in Excellence in Neuropathy Research (2022) by the Peripheral Nerve Society. He is an Ex-Officio member of the Board of Directors of the American Neurological Association, and Vice-President of the Toxic Neuropathy Consortium. He serves on several editorial boards and is the Editor-in-Chief of Annals of Clinical and Translational Neurology. Dr. Hoke is rated as an Advanced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Wallerian Degeneration, Peripheral Neuropathy, Tomaculous Neuropathy, Spinal Muscular Atrophy with Arthrogryposis, and Prostatectomy.

Erik Uhlmann is a Neurologist in Boston, Massachusetts. Dr. Uhlmann is rated as an Advanced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Metastatic Brain Tumor, Brain Tumor, Astrocytoma, Glioblastoma, and Gamma Knife Radiosurgery.

Patricia Greenstein is a Neurologist in Boston, Massachusetts. Dr. Greenstein is rated as an Advanced provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Spinocerebellar Ataxia, Cervical Myelopathy, Harding Ataxia, and Infantile-Onset Spinocerebellar Ataxia (IOSCA).

Dr. Zimering is a fellowship-trained spine neurosurgeon in the Department of Neurosurgery at Lenox Hill Hospital. A native of Basking Ridge, New Jersey, he attended the prestigious Pingry School and graduated as an Edward J. Bloustein Distinguished Scholar. He earned his BA, Magna Cum Laude from Cornell University's College of Arts and Sciences, and was inducted into Phi Beta Kappa in his junior year as a testament to his exceptional academic achievements.He earned his medical degree with distinction in research from the University of Rochester School of Medicine and Dentistry. Between his second and third years of medical school, he was awarded a renowned Howard Hughes Medical Institute (HHMI) Medical Research Fellowship to conduct translational neuroscience research at Harvard Medical School.Dr. Zimering completed his neurological surgery residency training at The Mount Sinai Hospital in New York City and served as Chief Resident in his final year. After residency, he further pursued subspecialized fellowship training in complex spine surgery at Northwell Health.An accomplished researcher, Dr. Zimering has a particular interest in studying the pathophysiologic mechanisms of spinal pain. His research work has been published in top scientific and medical journals including Science Translational Medicine, Science Signaling, PAIN, Neurosurgery, and Journal of Neurosurgery. His confocal microscopy image of a dorsal root ganglion underlying chronic pain, Hope in a Sea of Pain, was featured in Scientists Reveal the Art of the Brain in The Lancet.His academic and research achievements are matched by his dedication to compassionate, individualized patient care and functional recovery. Known for his patient-first philosophy and clear communication, he tailors each treatment plan based on the individual's goals and needs. He understands his responsibility to his patients to deliver informed, quality care in a shared environment that is honest, thorough, and respectful of patient autonomy. Dr. Zimering is rated as an Advanced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Chronic Pain, Rhizotomy, and Laminectomy.

Line Jacques is a General Surgeon and a Neurosurgery provider in San Francisco, California. Dr. Jacques is rated as an Advanced provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Thoracic Outlet Syndrome, Schwannoma, Neurofibromatosis, Chiari Malformation Type 2, and Sacral Nerve Stimulation. Dr. Jacques is currently accepting new patients.