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    Last Updated: 01/09/2026

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    MediFind found 1369 doctor with experience in Schwannomatosis. Of these, 1051 are Experienced, 258 are Advanced, 43 are Distinguished and 17 are Elite.

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    1,369 providers found
      Jaishri Blakeley
      Elite in Schwannomatosis
      Elite in Schwannomatosis

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy.

      Allan J. Belzberg
      Elite in Schwannomatosis
      General Surgery | Neurosurgery
      Elite in Schwannomatosis
      General Surgery | Neurosurgery

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
      Experience:
      44+ years
      Languages Spoken:
      English
      Offers Telehealth

      Dr. Allan Belzberg is a neurosurgeon specializing in surgery of the peripheral nervous system. As Director of Peripheral Nerve Surgery at Johns Hopkins in Baltimore, he treats tumors including schwannoma, neurofibroma and nerve sheath tumor. Dr. Belzberg performs surgical repair of nerve damage caused by trauma as well as neurosurgery on carpal tunnel, peroneal nerve and other peripheral nerve conditions. Dr. Belzberg also directs the Brachial Plexus and Peripheral Nerve Clinic at the Kennedy Krieger Institute and co-directs the Neurosurgery Pain Research Institute at Johns Hopkins Hospital. Dr. Belzberg currently sees patients at the Johns Hopkins Outpatient Center located in Baltimore on Wednesdays and the Green Spring Station location on Fridays. Dr. Belzberg is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannomatosis, Neurofibromatosis, Thoracic Outlet Syndrome, Osteotomy, and Rhizotomy.

      Shivani Ahlawat
      Elite in Schwannomatosis
      Elite in Schwannomatosis

      The Johns Hopkins Hospital

      1800 Orleans Street, 
      Baltimore, MD 
      Languages Spoken:
      English, Hindi

      Dr. Ahlawat earned a Bachelor of Arts with magna cum laude at New York University. She completed both her Medical Degree as well as residency training in diagnostic radiology at Rutgers University’s Robert Wood Johnson Medical School in New Brunswick, NJ. Dr. Ahlawat completed her Pediatric Radiology Fellowship at the Children’s National Medical Center in Washington, DC and went on to Johns Hopkins University in Baltimore, MD to do a Fellowship in musculoskeletal radiology. After completion of her fellowship, Dr. Ahlawat joined as faculty in the Diagnostic Division of the department of Radiology at the Johns Hopkins University. Currently, she is an Assistant Professor in the Johns Hopkins University Department of Radiology and Radiological Science. Dr. Ahlawat’s expertise is Diagnostic Radiology with additional training in pediatric and musculoskeletal radiology. Dr. Ahlawat specializes in high resolution magnetic resonance (MR) imaging of peripheral nerves, specifically detection and characterization of peripheral nerve injury; MR imaging of peripheral nerve tumors and peripheral nerve tumor syndromes; whole body MR imaging in the setting of peripheral nerve tumor syndromes; and advanced MR techniques such as quantitative diffusion weighted imaging and apparent diffusion coefficient mapping in characterization of bone and soft tissue tumors. Dr. Shivani Ahlawat also serves as the Director of the Musculoskeletal Fellowship Program. Dr. Ahlawat is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2).

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      Dafydd G. Evans
      Elite in Schwannomatosis
      Elite in Schwannomatosis
      Wilmslow Road, 
      Manchester, ENG, GB 

      Dafydd Evans practices in Manchester, United Kingdom. Evans is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Their top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Acoustic Neuroma, Oophorectomy, and Salpingo-Oophorectomy.

      Elite in Schwannomatosis
      Elite in Schwannomatosis

      Mass General Brigham Cancer Institute: Neuro-Oncology

      55 Fruit Street, Yawkey Center For Outpatient Care, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Scott Plotkin is a Neurologist in Boston, Massachusetts. Dr. Plotkin is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma. Dr. Plotkin is currently accepting new patients.

      Elite in Schwannomatosis
      Elite in Schwannomatosis

      University Of Texas Southwestern Medical Center At Dallas

      2201 Inwood Rd, 
      Dallas, TX 
      Languages Spoken:
      English

      Justin Jordan is a Neurologist in Dallas, Texas. Dr. Jordan is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Tissue Biopsy.

      Elite in Schwannomatosis
      Elite in Schwannomatosis
      Hamburg, HH, DE 

      Victor-felix Mautner practices in Hamburg, Germany. Mautner is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Their top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 2 (NF2), and Neurofibromatosis Type 1 (NF1).

      Elite in Schwannomatosis
      Elite in Schwannomatosis
      Manchester, ENG, GB 

      Miriam Smith practices in Manchester, United Kingdom. Ms. Smith is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Schwannoma, Nevoid Basal Cell Carcinoma Syndrome, and Neurofibromatosis Type 2 (NF2).

      Elite in Schwannomatosis
      Elite in Schwannomatosis
      Paris, FR 

      Michel Kalamarides practices in Paris, France. Mr. Kalamarides is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Acoustic Neuroma, Thrombectomy, and Gamma Knife Radiosurgery.

      Elite in Schwannomatosis
      Elite in Schwannomatosis
      Florence, IT 

      Laura Papi practices in Florence, Italy. Ms. Papi is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Schwannoma, Neurofibromatosis, and Ring Chromosome 12.

      Elite in Schwannomatosis
      Elite in Schwannomatosis
      Hamburg, HH, DE 

      Said Farschtschi practices in Hamburg, Germany. Mr. Farschtschi is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 2 (NF2), and Neurofibromatosis Type 1 (NF1).

      Elite in Schwannomatosis
      Elite in Schwannomatosis
      Albert Einstein Allee 11, 
      Ulm, BW, DE 

      Hildegard Sawatzki-Kehrer practices in Ulm, Germany. Ms. Sawatzki-Kehrer is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Cafe-Au-Lait Spots.

      Elite in Schwannomatosis
      Elite in Schwannomatosis
      Wilmslow Road, 
      Manchester, ENG, GB 

      D Evans-Gareth practices in Manchester, United Kingdom. Evans-Gareth is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Their top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, Oophorectomy, and Mastectomy.

      Elite in Schwannomatosis
      Pediatric Neurology | Neurology
      Elite in Schwannomatosis
      Pediatric Neurology | Neurology

      Dana-Farber Cancer Institute, Inc.

      450 Brookline Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Nicole Ullrich is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Ullrich is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Optic Glioma.

      Elite in Schwannomatosis
      Elite in Schwannomatosis

      New York University

      333 E 38th St, 
      New York, NY 
      Languages Spoken:
      English

      Miriam Bredella is a Radiologist in New York, New York. Dr. Bredella is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Sleeve Gastrectomy, and Gastric Bypass.

      Elite in Schwannomatosis
      Elite in Schwannomatosis

      Guy's And St. Thomas' NHS Trust

      London, ENG, GB 

      Rosalie Ferner practices in London, United Kingdom. Ms. Ferner is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2).

      Elite in Schwannomatosis
      Elite in Schwannomatosis
      Montreal, QC, CA 

      Barbara Rivera practices in Montreal, Canada. Ms. Rivera is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Choroid Plexus Papilloma, Familial Adenomatous Polyposis, and Choroid Plexus Carcinoma.

      Aaron R. Plitt
      Experienced in Schwannomatosis
      Neurosurgery
      Experienced in Schwannomatosis
      Neurosurgery

      Aurora Neuroscience Innovation

      2801 W Kinnickinnic River Pkwy, Ste 680, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Offers Telehealth

      Aaron Plitt is a Neurosurgery provider in Milwaukee, Wisconsin. Dr. Plitt is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannoma, Acoustic Neuroma, Hydrocephalus, Neuroendocrine Tumor, and Endoscopy.

      James E. Lacava
      Experienced in Schwannomatosis
      Hospital Medicine
      Experienced in Schwannomatosis
      Hospital Medicine

      Bassett Medical Center

      1 Atwell Road, 
      Cooperstown, NY 
      Languages Spoken:
      English

      . Dr. Lacava is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Diabetic Nephropathy, Muscle Invasive Bladder Cancer, Dementia, Endoscopy, and Hip Replacement.

      Laura M. Fayad
      Distinguished in Schwannomatosis
      Distinguished in Schwannomatosis

      The Johns Hopkins Hospital

      1800 Orleans Street, 
      Baltimore, MD 
      Languages Spoken:
      English, Arabic, French

      Dr. Laura M. Fayad serves as the Chief of Musculoskeletal Imaging. She is a Professor in the Johns Hopkins University Department of Radiology and Radiological Science, Department of Oncology, and Department of Orthopaedic Surgery. Dr. Fayad is also the Director of the Translational Research Program in the Department of Radiology. Dr. Fayad earned a Bachelor of Science at the Massachusetts Institute of Technology, a Master of Science at Stanford University, and M.D. C.M. degrees at the McGill University Faculty of Medicine. She completed residency training at Columbia University and MRI Fellowship at Thomas Jefferson University. She specializes in diagnostic and interventional musculoskeletal radiology. In addition to routine sports medicine and spine applications, Dr. Fayad protocols and interprets specialized examinations in the areas of peripheral nerve imaging, tumor imaging, and rheumatology. Her primary area of research focuses on novel imaging techniques for musculoskeletal tumors, with her work including well over 100 publications that have been cited more than 1,500 times. Dr. Fayad is rated as a Distinguished provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Liposarcoma, and Neurofibromatosis Type 2 (NF2).

      Showing 1-20 of 1,369

      Last Updated: 01/09/2026

      What is the definition of Schwannomatosis?

      Schwannomatosis is a disorder characterized by multiple noncancerous (benign) tumors called schwannomas, which are a type of tumor that grows on nerves. Schwannomas develop when Schwann cells, which are specialized cells that normally form an insulating layer around the nerve, grow uncontrollably to form a tumor.

      When should I see a Schwannomatosis doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Schwannomatosis doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Schwannomatosis doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Schwannomatosis doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Schwannomatosis doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Schwannomatosis doctor search results page. 

      Why is it important to get a second opinion from a different Schwannomatosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Schwannomatosis doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Schwannomatosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Schwannomatosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Schwannomatosis doctors near me?

      Look for the filter feature on the left side of the Schwannomatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Schwannomatosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Schwannomatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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