The 20 Best Schwannomatosis Doctors Near Me

Find the Top Schwannomatosis Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 1410 doctor with experience in Schwannomatosis. Of these, 1097 are Experienced, 250 are Advanced, 43 are Distinguished and 16 are Elite.

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1,410 providers found
    Elite in Schwannomatosis
    Elite in Schwannomatosis

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English

    Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy. Dr. Blakeley is board certified in American Board Of Psychiatry And Neurology.

    Elite in Schwannomatosis
    General Surgery | Neurosurgery
    Elite in Schwannomatosis
    General Surgery | Neurosurgery

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, Floor 5, 
    Baltimore, MD 
    Experience:
    44+ years
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Allan Belzberg is a neurosurgeon specializing in surgery of the peripheral nervous system. As Director of Peripheral Nerve Surgery at Johns Hopkins in Baltimore, he treats tumors including schwannoma, neurofibroma and nerve sheath tumor. Dr. Belzberg performs surgical repair of nerve damage caused by trauma as well as neurosurgery on carpal tunnel, peroneal nerve and other peripheral nerve conditions. Dr. Belzberg also directs the Brachial Plexus and Peripheral Nerve Clinic at the Kennedy Krieger Institute and co-directs the Neurosurgery Pain Research Institute at Johns Hopkins Hospital. Dr. Belzberg currently sees patients at the Johns Hopkins Outpatient Center located in Baltimore on Wednesdays and the Green Spring Station location on Fridays. Dr. Belzberg is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Thoracic Outlet Syndrome, Rhizotomy, and Laminectomy. Dr. Belzberg is board certified in American Board Of Neurological Surgery.

    Elite in Schwannomatosis
    Elite in Schwannomatosis

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Miriam Bredella is a Radiologist practicing medicine in Boston, Massachusetts. Dr. Bredella is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Sleeve Gastrectomy, and Gastric Bypass.

    Learn about our expert tiers
    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Wilmslow Road, 
    Manchester, ENG, GB 

    Dafydd Evans practices practicing medicine in Manchester, United Kingdom. Evans is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. They are also highly rated in 39 other conditions, according to our data. Their clinical expertise encompasses Schwannomatosis, Neurofibromatosis Type 2 (NF2), Acoustic Neuroma, Oophorectomy, and Salpingo-Oophorectomy.

    Elite in Schwannomatosis
    Elite in Schwannomatosis

    Office

    55 Fruit St # 9, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Scott Plotkin is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Plotkin is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma.

    Elite in Schwannomatosis
    Elite in Schwannomatosis

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Justin Jordan is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Jordan is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Tissue Biopsy.

    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Hamburg, HH, DE 

    Victor-felix Mautner practices practicing medicine in Hamburg, Germany. Mautner is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. They are also highly rated in 15 other conditions, according to our data. Their clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 2 (NF2), and Neurofibromatosis Type 1 (NF1).

    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Manchester, ENG, GB 

    Miriam Smith practices practicing medicine in Manchester, United Kingdom. Ms. Smith is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Schwannomatosis, Nevoid Basal Cell Carcinoma Syndrome, Schwannoma, and Neurofibromatosis Type 2 (NF2).

    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Paris, FR 

    Michel Kalamarides practices practicing medicine in Paris, France. Mr. Kalamarides is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Schwannomatosis, Neurofibromatosis Type 2 (NF2), Acoustic Neuroma, Thrombectomy, and Gamma Knife Radiosurgery.

    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Florence, IT 

    Laura Papi practices practicing medicine in Florence, Italy. Ms. Papi is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Schwannoma, and Ring Chromosome 12.

    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Hamburg, HH, DE 

    Said Farschtschi practices practicing medicine in Hamburg, Germany. Mr. Farschtschi is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 2 (NF2), and Neurofibromatosis Type 1 (NF1).

    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Albert Einstein Allee 11, 
    Ulm, BW, DE 

    Hildegard Sawatzki-Kehrer practices practicing medicine in Ulm, Germany. Ms. Sawatzki-Kehrer is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Cafe-Au-Lait Spots.

    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Wilmslow Road, 
    Manchester, ENG, GB 

    D Evans-Gareth practices practicing medicine in Manchester, United Kingdom. Evans-Gareth is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. They are also highly rated in 16 other conditions, according to our data. Their clinical expertise encompasses Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, Oophorectomy, and Mastectomy.

    Elite in Schwannomatosis
    Pediatric Neurology
    Elite in Schwannomatosis
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Nicole Ullrich is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Ullrich is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Optic Glioma, and Schwannomatosis.

    Elite in Schwannomatosis
    Elite in Schwannomatosis

    Guy's And St. Thomas' NHS Trust

    London, ENG, GB 

    Rosalie Ferner practices practicing medicine in London, United Kingdom. Ms. Ferner is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2).

    Elite in Schwannomatosis
    Elite in Schwannomatosis
    Paris, FR 

    Matthieu Peyre practices practicing medicine in Paris, France. Mr. Peyre is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Meningioma, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Schwannoma, and Gamma Knife Radiosurgery.

    Experienced in Schwannomatosis
    Neurosurgery
    Experienced in Schwannomatosis
    Neurosurgery

    Aurora Neuroscience Innovation

    2801 W Kinnickinnic River Pkwy, Ste 680, 
    Milwaukee, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Aaron Plitt is a Neurosurgery provider practicing medicine in Milwaukee, Wisconsin. Dr. Plitt is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Schwannoma, Acoustic Neuroma, Hydrocephalus, Neuroendocrine Tumor, and Endoscopy. Dr. Plitt is board certified in  .

    Experienced in Schwannomatosis
    Hospital Medicine
    Experienced in Schwannomatosis
    Hospital Medicine

    Bassett Medical Center

    1 Atwell Road, 
    Cooperstown, NY 
    Languages Spoken:
    English

    . Dr. Lacava is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Diabetic Nephropathy, Muscle Invasive Bladder Cancer, Dementia, Endoscopy, and Hip Replacement.

    Distinguished in Schwannomatosis
    Distinguished in Schwannomatosis

    The Johns Hopkins Hospital

    1800 Orleans Street, 
    Baltimore, MD 
    Languages Spoken:
    English, Hindi

    Dr. Ahlawat earned a Bachelor of Arts with magna cum laude at New York University. She completed both her Medical Degree as well as residency training in diagnostic radiology at Rutgers University’s Robert Wood Johnson Medical School in New Brunswick, NJ. Dr. Ahlawat completed her Pediatric Radiology Fellowship at the Children’s National Medical Center in Washington, DC and went on to Johns Hopkins University in Baltimore, MD to do a Fellowship in musculoskeletal radiology. After completion of her fellowship, Dr. Ahlawat joined as faculty in the Diagnostic Division of the department of Radiology at the Johns Hopkins University. Currently, she is an Assistant Professor in the Johns Hopkins University Department of Radiology and Radiological Science. Dr. Ahlawat’s expertise is Diagnostic Radiology with additional training in pediatric and musculoskeletal radiology. Dr. Ahlawat specializes in high resolution magnetic resonance (MR) imaging of peripheral nerves, specifically detection and characterization of peripheral nerve injury; MR imaging of peripheral nerve tumors and peripheral nerve tumor syndromes; whole body MR imaging in the setting of peripheral nerve tumor syndromes; and advanced MR techniques such as quantitative diffusion weighted imaging and apparent diffusion coefficient mapping in characterization of bone and soft tissue tumors. Dr. Shivani Ahlawat also serves as the Director of the Musculoskeletal Fellowship Program. Dr. Ahlawat is rated as a Distinguished provider by MediFind in the treatment of Schwannomatosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Undifferentiated Pleomorphic Sarcoma. Dr. Ahlawat is board certified in American Board Of Radiology.

    Distinguished in Schwannomatosis
    Neurology
    Distinguished in Schwannomatosis
    Neurology

    Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville

    Lutherville, MD 
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Carlos Romo, M.D., is a neuro-oncologist in Baltimore, Maryland. Dr. Romo specializes in the diagnosis and treatment of brain tumors, including glioblastoma, astrocytomas, oligodendrogliomas, neurofibromas, and schwannomas among others. Dr. Romo earned his medical degree from the School of Medicine and Health Sciences at Tecnológico de Monterrey in Mexico and completed his Neurology residency at the University of Arkansas for Medical Sciences, where he served as chief resident. He then completed a Neuro-oncology clinical and research fellowship in a joint program between The Johns Hopkins University and the National Institutes of Health. Dr. Romo additionally trained as a clinical pharmacology fellow at The Johns Hopkins University and completed training on clinical cancer research at the University of Texas MD Anderson Cancer Center. In his research, Dr. Romo studies drug pharmacokinetics and the blood-brain barrier, and investigates better ways to reach tumors in the central nervous system. Dr. Romo also studies treatments for patient with neurofibromatosis. In addition to patient care and research, Dr. Romo teaches and mentors medical and undergraduate students to help develop a future generation of neurologists. Dr. Romo is rated as a Distinguished provider by MediFind in the treatment of Schwannomatosis. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Astrocytoma. Dr. Romo is board certified in American Board Of Psychiatry And Neurology.

    Showing 1-20 of 1,410

    Last Updated: 04/28/2026

    What is the definition of Schwannomatosis?

    Schwannomatosis is a disorder characterized by multiple noncancerous (benign) tumors called schwannomas, which are a type of tumor that grows on nerves. Schwannomas develop when Schwann cells, which are specialized cells that normally form an insulating layer around the nerve, grow uncontrollably to form a tumor.

    When should I see a Schwannomatosis doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Schwannomatosis doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Schwannomatosis doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Schwannomatosis doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Schwannomatosis doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Schwannomatosis doctor search results page. 

    Why is it important to get a second opinion from a different Schwannomatosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Schwannomatosis doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Schwannomatosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Schwannomatosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Schwannomatosis doctors near me?

    Look for the filter feature on the left side of the Schwannomatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Schwannomatosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Schwannomatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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