MediFind found 1369 doctor with experience in Schwannomatosis. Of these, 1051 are Experienced, 258 are Advanced, 43 are Distinguished and 17 are Elite.
Johns Hopkins Outpatient Center
Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy.
Johns Hopkins Outpatient Center
Dr. Allan Belzberg is a neurosurgeon specializing in surgery of the peripheral nervous system. As Director of Peripheral Nerve Surgery at Johns Hopkins in Baltimore, he treats tumors including schwannoma, neurofibroma and nerve sheath tumor. Dr. Belzberg performs surgical repair of nerve damage caused by trauma as well as neurosurgery on carpal tunnel, peroneal nerve and other peripheral nerve conditions. Dr. Belzberg also directs the Brachial Plexus and Peripheral Nerve Clinic at the Kennedy Krieger Institute and co-directs the Neurosurgery Pain Research Institute at Johns Hopkins Hospital. Dr. Belzberg currently sees patients at the Johns Hopkins Outpatient Center located in Baltimore on Wednesdays and the Green Spring Station location on Fridays. Dr. Belzberg is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannomatosis, Neurofibromatosis, Thoracic Outlet Syndrome, Osteotomy, and Rhizotomy.
The Johns Hopkins Hospital
Dr. Ahlawat earned a Bachelor of Arts with magna cum laude at New York University. She completed both her Medical Degree as well as residency training in diagnostic radiology at Rutgers University’s Robert Wood Johnson Medical School in New Brunswick, NJ. Dr. Ahlawat completed her Pediatric Radiology Fellowship at the Children’s National Medical Center in Washington, DC and went on to Johns Hopkins University in Baltimore, MD to do a Fellowship in musculoskeletal radiology. After completion of her fellowship, Dr. Ahlawat joined as faculty in the Diagnostic Division of the department of Radiology at the Johns Hopkins University. Currently, she is an Assistant Professor in the Johns Hopkins University Department of Radiology and Radiological Science. Dr. Ahlawat’s expertise is Diagnostic Radiology with additional training in pediatric and musculoskeletal radiology. Dr. Ahlawat specializes in high resolution magnetic resonance (MR) imaging of peripheral nerves, specifically detection and characterization of peripheral nerve injury; MR imaging of peripheral nerve tumors and peripheral nerve tumor syndromes; whole body MR imaging in the setting of peripheral nerve tumor syndromes; and advanced MR techniques such as quantitative diffusion weighted imaging and apparent diffusion coefficient mapping in characterization of bone and soft tissue tumors. Dr. Shivani Ahlawat also serves as the Director of the Musculoskeletal Fellowship Program. Dr. Ahlawat is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2).
Dafydd Evans practices in Manchester, United Kingdom. Evans is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Their top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Acoustic Neuroma, Oophorectomy, and Salpingo-Oophorectomy.
Mass General Brigham Cancer Institute: Neuro-Oncology
Scott Plotkin is a Neurologist in Boston, Massachusetts. Dr. Plotkin is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma. Dr. Plotkin is currently accepting new patients.
University Of Texas Southwestern Medical Center At Dallas
Justin Jordan is a Neurologist in Dallas, Texas. Dr. Jordan is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Tissue Biopsy.
Victor-felix Mautner practices in Hamburg, Germany. Mautner is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Their top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 2 (NF2), and Neurofibromatosis Type 1 (NF1).
Miriam Smith practices in Manchester, United Kingdom. Ms. Smith is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Schwannoma, Nevoid Basal Cell Carcinoma Syndrome, and Neurofibromatosis Type 2 (NF2).
Michel Kalamarides practices in Paris, France. Mr. Kalamarides is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Acoustic Neuroma, Thrombectomy, and Gamma Knife Radiosurgery.
Laura Papi practices in Florence, Italy. Ms. Papi is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Schwannoma, Neurofibromatosis, and Ring Chromosome 12.
Said Farschtschi practices in Hamburg, Germany. Mr. Farschtschi is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 2 (NF2), and Neurofibromatosis Type 1 (NF1).
Hildegard Sawatzki-Kehrer practices in Ulm, Germany. Ms. Sawatzki-Kehrer is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Cafe-Au-Lait Spots.
D Evans-Gareth practices in Manchester, United Kingdom. Evans-Gareth is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Their top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, Oophorectomy, and Mastectomy.
Dana-Farber Cancer Institute, Inc.
Nicole Ullrich is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Ullrich is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Optic Glioma.
New York University
Miriam Bredella is a Radiologist in New York, New York. Dr. Bredella is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Sleeve Gastrectomy, and Gastric Bypass.
Guy's And St. Thomas' NHS Trust
Rosalie Ferner practices in London, United Kingdom. Ms. Ferner is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2).
Barbara Rivera practices in Montreal, Canada. Ms. Rivera is rated as an Elite expert by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Choroid Plexus Papilloma, Familial Adenomatous Polyposis, and Choroid Plexus Carcinoma.
Aurora Neuroscience Innovation
Aaron Plitt is a Neurosurgery provider in Milwaukee, Wisconsin. Dr. Plitt is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannoma, Acoustic Neuroma, Hydrocephalus, Neuroendocrine Tumor, and Endoscopy.
Bassett Medical Center
. Dr. Lacava is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Diabetic Nephropathy, Muscle Invasive Bladder Cancer, Dementia, Endoscopy, and Hip Replacement.
The Johns Hopkins Hospital
Dr. Laura M. Fayad serves as the Chief of Musculoskeletal Imaging. She is a Professor in the Johns Hopkins University Department of Radiology and Radiological Science, Department of Oncology, and Department of Orthopaedic Surgery. Dr. Fayad is also the Director of the Translational Research Program in the Department of Radiology. Dr. Fayad earned a Bachelor of Science at the Massachusetts Institute of Technology, a Master of Science at Stanford University, and M.D. C.M. degrees at the McGill University Faculty of Medicine. She completed residency training at Columbia University and MRI Fellowship at Thomas Jefferson University. She specializes in diagnostic and interventional musculoskeletal radiology. In addition to routine sports medicine and spine applications, Dr. Fayad protocols and interprets specialized examinations in the areas of peripheral nerve imaging, tumor imaging, and rheumatology. Her primary area of research focuses on novel imaging techniques for musculoskeletal tumors, with her work including well over 100 publications that have been cited more than 1,500 times. Dr. Fayad is rated as a Distinguished provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Liposarcoma, and Neurofibromatosis Type 2 (NF2).
Last Updated: 01/09/2026






