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    Last Updated: 01/09/2026

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    MediFind found 1043 doctor with experience in Sturge-Weber Syndrome near The United States. Of these, 876 are Experienced, 148 are Advanced, 14 are Distinguished and 4 are Elite.

    Location
    LocationClose
    1,043 providers found
      Anne M. Comi
      Elite in Sturge-Weber Syndrome
      Pediatric Neurology
      Elite in Sturge-Weber Syndrome
      Pediatric Neurology

      The Kennedy Krieger Institute

      801 North Broadway, Room 553, Room 553, 
      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Comi graduated from SUNY Buffalo School of Medicine and received her training in pediatrics at the Children's Hospital of Buffalo and her child neurology training at Johns Hopkins Medicine. Her clinical specialization is in the treatment of the neurological aspects of Sturge-Weber syndrome and other disorders related to capillary malformation. Dr. Comi's clinical research interests focus on improving the early diagnosis and treatment of brain involvement in Sturge-Weber syndrome in order to prevent ischemic brain injury in affected infants and young children, and on studies to understand what causes Sturge-Weber syndrome. Her laboratory research work deals with the pathogenesis of Sturge-Weber syndrome, recently shown to be caused by a somatic mutation, and on developing new drug targets, screening assays, models and therapeutic strategies for Sturge-Weber syndrome. Her lab group also works on developing better neuroprotective and neuroregenerative responses to brain injury resulting from impaired blood flow to the brain. Dr. Comi is rated as an Elite provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Parkes Weber Syndrome, Stork Bite, Epilepsy in Children, and Endovascular Embolization.

      Sharon F. Freedman
      Advanced in Sturge-Weber Syndrome
      Ophthalmology | Pediatrics
      Advanced in Sturge-Weber Syndrome
      Ophthalmology | Pediatrics

      Duke Eye Center

      2351 Erwin Rd, 
      Durham, NC 
      Languages Spoken:
      English, French
      Accepting New Patients
      Offers Telehealth

      Sharon Freedman is an Ophthalmologist and a Pediatrics provider in Durham, North Carolina. Dr. Freedman is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Retinopathy of Prematurity, Strabismus, Brown Syndrome, Trabeculectomy, and Cataract Removal. Dr. Freedman is currently accepting new patients.

      Miguel A. Materin
      Advanced in Sturge-Weber Syndrome
      Ophthalmology
      Advanced in Sturge-Weber Syndrome
      Ophthalmology

      Duke Eye Center

      2351 Erwin Rd, 
      Durham, NC 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Miguel Materin is an Ophthalmologist in Durham, North Carolina. Dr. Materin is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Melanoma of the Eye, Metastatic Uveal Melanoma, Uveal Melanoma, and Choroid Plexus Carcinoma. Dr. Materin is currently accepting new patients.

      Learn about our expert tiers
      Elite in Sturge-Weber Syndrome
      Pediatric Neurology | Neurology
      Elite in Sturge-Weber Syndrome
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Masanori Takeoka is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Takeoka is rated as an Elite provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Sturge-Weber Syndrome, Seizures, Epilepsy, and West Syndrome. Dr. Takeoka is currently accepting new patients.

      Elite in Sturge-Weber Syndrome
      Pediatric Neurology | Neurology
      Elite in Sturge-Weber Syndrome
      Pediatric Neurology | Neurology
      300 Longwood Ave, Fegan 11, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Mustafa Sahin is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Sahin is rated as an Elite provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Spastic Paraplegia Type 7. Dr. Sahin is currently accepting new patients.

      Elite in Sturge-Weber Syndrome
      Pediatrics | Pediatric Neurology | Neurology
      Elite in Sturge-Weber Syndrome
      Pediatrics | Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Anna Pinto is a Pediatrics specialist and a Pediatric Neurologist in Boston, Massachusetts. Dr. Pinto is rated as an Elite provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Parkes Weber Syndrome, Seizures, and Epilepsy in Children.

      Allan H. Friedman
      Experienced in Sturge-Weber Syndrome
      Experienced in Sturge-Weber Syndrome

      Duke Cancer Center Brain Tumor Clinic

      20 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      Allan Friedman is a Neurosurgery provider in Durham, North Carolina. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Glioma, Astrocytoma, Glioblastoma, Awake Craniotomy, and Laminectomy. Dr. Friedman is currently accepting new patients.

      Eric H. Kossoff
      Distinguished in Sturge-Weber Syndrome
      Pediatrics | Neurology | Pediatric Neurology
      Distinguished in Sturge-Weber Syndrome
      Pediatrics | Neurology | Pediatric Neurology

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Eric Kossoff focuses on the diagnosis and treatment of childhood seizures and epilepsy, particularly treatments other than medications such as diet and neurostimulation. He is one of the world experts on dietary treatment for epilepsy (ketogenic diet) and lectures around the world about this therapy. His specific interests include the ketogenic diet, the modified Atkins diet for children and adults, infantile spasms, benign rolandic epilepsy, the interaction of migraine headaches with epilepsy, and Sturge-Weber syndrome. Dr. Eric Kossoff is also very involved in teaching and is the Director of the Pediatric Neurology Residency Program. He is a professor of neurology and pediatrics at the Johns Hopkins University School of Medicine. He is a co-author of Treatment of Pediatric Neurologic Disorders and the 7th edition of Ketogenic Diet Therapies. Dr. Kossoff sees patients in the Johns Hopkins Outpatient Center (5th floor) in Baltimore on Tuesday afternoons and Thursday mornings. He sees patients at Green Spring Station on Wednesday afternoons. He also participates in telemedicine. Dr. Kossoff received his medical degree from SUNY at Buffalo School of Medicine in New York. He went on to complete a residency in pediatrics at Eastern Virginia Medical School in Norfolk, Virginia. He completed a second residency in child neurology and a fellowship in pediatric epilepsy and clinical neurophysiology at The Johns Hopkins Hospital in Baltimore. Dr. Kossoff is rated as a Distinguished provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Epilepsy, Epilepsy in Children, Seizures, Endovascular Embolization, and Gastrostomy.

      Aditya Sreenivasan
      Distinguished in Sturge-Weber Syndrome
      Gastroenterology
      Distinguished in Sturge-Weber Syndrome
      Gastroenterology

      Northwell Health Physician Partners Medicine Specialties At East 85th Street

      178 East 85th Street, 4th Floor, 
      New York, NY 
      Experience:
      10+ years
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Aditya Sreenivasan is a Gastroenterologist in New York, New York. Dr. Sreenivasan has been practicing medicine for over 10 years and is rated as a Distinguished provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Sturge-Weber Syndrome, Gastrointestinal Bleeding, Gastroesophageal Reflux Disease (GERD), Bacterial Gastroenteritis, and Colonoscopy.

      Doris Lin
      Distinguished in Sturge-Weber Syndrome
      Neuroradiology
      Distinguished in Sturge-Weber Syndrome
      Neuroradiology

      The Johns Hopkins Hospital

      1800 Orleans Street, 
      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Doris Da May Lin is an Associate Professor in the Johns Hopkins Medicine Department of Radiology and Radiological Science. She specializes in neuroradiology. Dr. Lin received her B.A. in chemistry from the University of Pennsylvania, and then pursued a joint M.D./Ph.D. degree at the Yale University School of Medicine, with graduate training in the neurosciences. She completed a medical internship at the University of Pennsylvania Hospital and a diagnostic radiology residency at New York Presbyterian Hospital-Cornell. After a two-year neuroradiology fellowship, she joined the faculty at Johns Hopkins. Dr. Lin is rated as a Distinguished provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Parkes Weber Syndrome, Sturge-Weber Syndrome, Subdural Effusion, CACH Syndrome, and Endovascular Embolization.

      Distinguished in Sturge-Weber Syndrome
      Neurology
      Distinguished in Sturge-Weber Syndrome
      Neurology

      Ann & Robert H. Lurie Children's Hospital Of Chicago

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Joshua Ewen is a Neurologist in Chicago, Illinois. Dr. Ewen is rated as a Distinguished provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Sturge-Weber Syndrome, Smith-Lemli-Opitz Syndrome, Parkes Weber Syndrome, and Epilepsy in Children.

      Advanced in Sturge-Weber Syndrome
      Advanced in Sturge-Weber Syndrome

      Eyeone Plc

      17 N Medical Park Dr, 
      Fishersville, VA 
      Languages Spoken:
      English, Russian, Spanish
      Accepting New Patients
      Offers Telehealth

      Yevgeniy Shildkrot is an Ophthalmologist in Fishersville, Virginia. Dr. Shildkrot is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Retinal Detachment, Choroid Plexus Carcinoma, Melanoma of the Eye, Vitrectomy, and Cataract Removal. Dr. Shildkrot is currently accepting new patients.

      Advanced in Sturge-Weber Syndrome
      Advanced in Sturge-Weber Syndrome

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English

      Prithvi Mruthyunjaya is an Ophthalmologist in Stanford, California. Dr. Mruthyunjaya is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Melanoma of the Eye, Uveal Melanoma, Retinal Detachment, Vitrectomy, and Trabeculectomy.

      Advanced in Sturge-Weber Syndrome
      Urology | General Surgery
      Advanced in Sturge-Weber Syndrome
      Urology | General Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Benjamin Chung is an Urologist and a General Surgeon in Stanford, California. Dr. Chung is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Ureterocele, WT1-Related Wilms Tumor Syndromes, Chromophobe Renal Cell Carcinoma, Reconstructive Urology Surgery, and Nephrectomy.

      Advanced in Sturge-Weber Syndrome
      Neurosurgery | General Surgery
      Advanced in Sturge-Weber Syndrome
      Neurosurgery | General Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Lawrence Shuer is a Neurosurgery specialist and a General Surgeon in Stanford, California. Dr. Shuer is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Meningioma, Choroid Plexus Papilloma, Pallister-Hall Syndrome, Awake Craniotomy, and Thrombectomy.

      Gopal N. Gupta
      Experienced in Sturge-Weber Syndrome
      Experienced in Sturge-Weber Syndrome

      Loyola University Medical Center

      719 W N Ave, 
      Melrose Park, IL 
      Languages Spoken:
      English, Hindi
      Accepting New Patients
      Offers Telehealth

      Gopal Gupta is an Urologist in Melrose Park, Illinois. Dr. Gupta is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Chromophobe Renal Cell Carcinoma, Renal Cell Carcinoma (RCC), Prostate Cancer, Nephrectomy, and Cystectomy. Dr. Gupta is currently accepting new patients.

      Ann M. Maguire
      Experienced in Sturge-Weber Syndrome
      Internal Medicine
      Experienced in Sturge-Weber Syndrome
      Internal Medicine

      The Medical College Of Wisconsin Inc

      8701 Watertown Plank Rd, Room 4041 Mfrc, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ann Maguire is a primary care provider, practicing in Internal Medicine in Milwaukee, Wisconsin. Dr. Maguire is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Chronic Lymphocytic Leukemia (CLL), Richter Syndrome, Chronic B-Cell Leukemia (CBCL), Addison's Disease, and Intrauterine Device Insertion. Dr. Maguire is currently accepting new patients.

      David S. Walton
      Distinguished in Sturge-Weber Syndrome
      Ophthalmology | Pediatrics
      Distinguished in Sturge-Weber Syndrome
      Ophthalmology | Pediatrics
      2 Longfellow Place, Suite 201, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      David Walton is an Ophthalmologist and a Pediatrics provider in Boston, Massachusetts. Dr. Walton is rated as a Distinguished provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Aniridia, Walker Dyson Syndrome, Sturge-Weber Syndrome, Trabeculectomy, and Cataract Removal. Dr. Walton is currently accepting new patients.

      Pratap R. Challa
      Advanced in Sturge-Weber Syndrome
      Ophthalmology
      Advanced in Sturge-Weber Syndrome
      Ophthalmology

      Duke Eye Center South Durham

      234 Crooked Creek Pkwy, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Pratap Challa is an Ophthalmologist in Durham, North Carolina. Dr. Challa is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Pigment-Dispersion Syndrome, Iridectomy, and Cataract Removal. Dr. Challa is currently accepting new patients.

      Henry D. Jampel
      Advanced in Sturge-Weber Syndrome
      Ophthalmology
      Advanced in Sturge-Weber Syndrome
      Ophthalmology

      Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville

      10753 Falls Road, Pavilion II STE 455, Pavilion II STE 455, 
      Lutherville, MD 
      Languages Spoken:
      English

      Henry D. Jampel, M.D., M.H.S., is the Odd Fellows Professor of Ophthalmology at the Wilmer Eye Institute. He specializes in glaucoma and serves as the medical director of Wilmer's Green Spring Station location. His research interests include evaluation of medical vs. surgical treatment of glaucoma in newly diagnosed patients and on imaging devices for the detection of glaucoma and its progression. Dr. Jampel received his M.D. degree from Yale University and his M.H.S. in health finance and management from the Johns Hopkins Bloomberg School of Public Health. He completed an internship in internal medicine at Sinai Hospital and his residency in ophthalmology at the Wilmer Eye Institute. After completing a glaucoma fellowship in glaucoma at Wilmer, Dr. Jampel joined the faculty in 1988. Dr. Jampel is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Sturge-Weber Syndrome, Trabeculectomy, and Cataract Removal.

      Showing 1-20 of 1,043

      Last Updated: 01/09/2026

      What is the definition of Sturge-Weber Syndrome?

      Sturge-Weber syndrome (SWS) is a rare disorder that is present at birth. A child with this condition will have a port-wine stain birthmark (usually on the face) and may have nervous system problems.

      When should I see a Sturge-Weber Syndrome doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Sturge-Weber Syndrome doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Sturge-Weber Syndrome doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Sturge-Weber Syndrome doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Sturge-Weber Syndrome doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sturge-Weber Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Sturge-Weber Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Sturge-Weber Syndrome doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Sturge-Weber Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Sturge-Weber Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Sturge-Weber Syndrome doctors in The United States?

      Look for the filter feature on the left side of the Sturge-Weber Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Sturge-Weber Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Sturge-Weber Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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