The 20 Best Susac Syndrome Doctors Near Me in Rochester, NY

Find the Top Susac Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 21 doctor with experience in Susac Syndrome near Rochester, NY. Of these, 13 are Experienced and 8 are Advanced.

Location
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21 providers found
    Advanced in Susac Syndrome
    Neurology
    Advanced in Susac Syndrome
    Neurology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Deana Bonno is a Neurologist practicing medicine in Rochester, New York. She has been practicing medicine for over 17 years. Dr. Bonno is rated as an Advanced provider by MediFind in the treatment of Susac Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Seizures, Memory Loss, Partial Seizure, and Partial Familial Epilepsy.

    Advanced in Susac Syndrome
    Neurology
    Advanced in Susac Syndrome
    Neurology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Michel Berg is a Neurologist practicing medicine in Rochester, New York. Dr. Berg is rated as an Advanced provider by MediFind in the treatment of Susac Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Seizures, Epilepsy, Memory Loss, and Generalized Tonic-Clonic Seizure.

    Advanced in Susac Syndrome
    Advanced in Susac Syndrome

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Trenton Tollefson is a Neurologist practicing medicine in Rochester, New York. Dr. Tollefson is rated as an Advanced provider by MediFind in the treatment of Susac Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Seizures, Lennox-Gastaut Syndrome (LGS), Memory Loss, and Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE).

    Learn about our expert tiers
    Advanced in Susac Syndrome
    Advanced in Susac Syndrome

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Michael Chilungu is a Neurologist practicing medicine in Rochester, New York. Dr. Chilungu is rated as an Advanced provider by MediFind in the treatment of Susac Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Stroke, Susac Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Gastrostomy.

    Experienced in Susac Syndrome
    Experienced in Susac Syndrome

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Thomas Wychowski is a Neurologist practicing medicine in Rochester, New York. Dr. Wychowski is rated as an Experienced provider by MediFind in the treatment of Susac Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Seizures, Memory Loss, Generalized Tonic-Clonic Seizure, and Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE).

    Experienced in Susac Syndrome
    Experienced in Susac Syndrome

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Albert Fessler is a Neurologist practicing medicine in Rochester, New York. Dr. Fessler is rated as an Experienced provider by MediFind in the treatment of Susac Syndrome. His clinical expertise encompasses Conversion Disorder, Susac Syndrome, Seizures, and Generalized Tonic-Clonic Seizure.

    Experienced in Susac Syndrome
    Neurology
    Experienced in Susac Syndrome
    Neurology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Derek Bauer is a Neurologist practicing medicine in Rochester, New York. Dr. Bauer is rated as an Experienced provider by MediFind in the treatment of Susac Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Seizures, Memory Loss, Partial Seizure, and Partial Familial Epilepsy.

    Experienced in Susac Syndrome
    Experienced in Susac Syndrome

    Office

    2101 Lac De Ville Blvd Ste 1, 
    Rochester, NY 
     (4.0 miles away)
    Languages Spoken:
    English

    Allen Pettee is a Neurologist practicing medicine in Rochester, New York. Dr. Pettee is rated as an Experienced provider by MediFind in the treatment of Susac Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Migraine, Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), and Peripheral Neuropathy.

    Experienced in Susac Syndrome
    Neurology
    Experienced in Susac Syndrome
    Neurology

    Office

    919 Westfall Rd Bldg C, 
    Rochester, NY 
     (4.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Andy Lin is a Neurologist practicing medicine in Rochester, New York. Dr. Lin is rated as an Experienced provider by MediFind in the treatment of Susac Syndrome. His clinical expertise encompasses Susac Syndrome and Seizures.

    Advanced in Susac Syndrome
    Neurology
    Advanced in Susac Syndrome
    Neurology

    Office

    601 Elmwood Ave # 631, 
    Rochester, NY 
     (0.4 miles away)
    Languages Spoken:
    English

    Emily Walsh is a Neurologist practicing medicine in Rochester, New York. Dr. Walsh is rated as an Advanced provider by MediFind in the treatment of Susac Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Susac Syndrome.

    Advanced in Susac Syndrome
    Neurology
    Advanced in Susac Syndrome
    Neurology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Inna Hughes is a Neurologist practicing medicine in Rochester, New York. Dr. Hughes is rated as an Advanced provider by MediFind in the treatment of Susac Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Susac Syndrome, and Epilepsy.

    Advanced in Susac Syndrome
    Internal Medicine
    Advanced in Susac Syndrome
    Internal Medicine

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Laurie Seltzer is an Internal Medicine provider practicing medicine in Rochester, New York. Dr. Seltzer is rated as an Advanced provider by MediFind in the treatment of Susac Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses West Syndrome, Spasmus Nutans, Myoclonic Epilepsy, and Seizures.

    Advanced in Susac Syndrome
    Advanced in Susac Syndrome

    Imaging-East River Road

    200 E River Rd, 
    Rochester, NY 
     (3.2 miles away)
    Languages Spoken:
    English

    Evelyn Berman is a Neurologist practicing medicine in Rochester, New York. Dr. Berman is rated as an Advanced provider by MediFind in the treatment of Susac Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Susac Syndrome, Generalized Tonic-Clonic Seizure, and Seizures.

    Experienced in Susac Syndrome
    Experienced in Susac Syndrome

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Patrick Rooney is a Neurologist practicing medicine in Rochester, New York. Dr. Rooney is rated as an Experienced provider by MediFind in the treatment of Susac Syndrome. His clinical expertise encompasses Susac Syndrome, Seizures, Partial Seizure, and Partial Familial Epilepsy.

    Experienced in Susac Syndrome
    Pediatric Neurology
    Experienced in Susac Syndrome
    Pediatric Neurology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Yoshimi Hisamoto is a Pediatric Neurologist practicing medicine in Rochester, New York. Dr. Hisamoto is rated as an Experienced provider by MediFind in the treatment of Susac Syndrome. Her clinical expertise encompasses Sturge-Weber Syndrome, Susac Syndrome, Lennox-Gastaut Syndrome (LGS), and Necrotizing Myopathy (NM).

    Experienced in Susac Syndrome
    Experienced in Susac Syndrome

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Lawrence Samkoff is a Neurologist practicing medicine in Rochester, New York. Dr. Samkoff is rated as an Experienced provider by MediFind in the treatment of Susac Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Encephalitis, Anti-NMDA Receptor Encephalitis, and Rasmussen Encephalitis.

    Experienced in Susac Syndrome
    Experienced in Susac Syndrome

    Office

    265 Crittenden Way, 
    Rochester, NY 
     (3.9 miles away)
    Languages Spoken:
    English

    Gretchen Birbeck is a Neurologist practicing medicine in Rochester, New York. Dr. Birbeck is rated as an Experienced provider by MediFind in the treatment of Susac Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Primary Amebic Meningoencephalitis, Seizures, Epilepsy, and Generalized Tonic-Clonic Seizure.

    Experienced in Susac Syndrome
    Experienced in Susac Syndrome

    Department Of Neurology-Westfall Road Clinic At Clinton Crossings

    919 Westfall Rd Ste 220, 
    Rochester, NY 
     (4.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Olga Selioutski is a Neurologist practicing medicine in Rochester, New York. Dr. Selioutski is rated as an Experienced provider by MediFind in the treatment of Susac Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Epilepsy.

    Experienced in Susac Syndrome
    Experienced in Susac Syndrome

    Department Of Neurology-Westfall Road Clinic At Clinton Crossings

    919 Westfall Rd Ste 220, 
    Rochester, NY 
     (4.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Frederick Marshall is a Neurologist practicing medicine in Rochester, New York. Dr. Marshall is rated as an Experienced provider by MediFind in the treatment of Susac Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Batten Disease, CLN3 Disease, CLN1 Disease, CLN5 Disease, and Deep Brain Stimulation.

    Experienced in Susac Syndrome
    Neurology
    Experienced in Susac Syndrome
    Neurology

    Office

    919 Westfall Rd Bldg C, 
    Rochester, NY 
     (4.0 miles away)
    Languages Spoken:
    English

    Seth Kolkin is a Neurologist practicing medicine in Rochester, New York. Dr. Kolkin is rated as an Experienced provider by MediFind in the treatment of Susac Syndrome. His clinical expertise encompasses Seizures, Partial Familial Epilepsy, Memory Loss, and Essential Tremor.

    Showing 1-20 of 21

    Last Updated: 04/28/2026

    What is the definition of Susac Syndrome?

    Susac syndrome is an autoimmune condition that affects the very small blood vessels in the brain, retina, and inner ear (cochlea). The condition is characterized by three main symptoms: brain disease (encephalopathy), hearing loss, and vision loss. Some people may not have all signs of Susac syndrome, but instead develop only specific combinations of the symptoms. Susac syndrome affects women more than men. The cause of Susac syndrome is still unknown. Diagnosis is based on a clinical exam and imaging tests to look for the specific signs of Susac syndrome.

    When should I see a Susac Syndrome doctor near Rochester, NY?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Susac Syndrome doctor near Rochester, NY?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Susac Syndrome doctors near Rochester, NY?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Susac Syndrome doctors near Rochester, NY?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Susac Syndrome doctor near Rochester, NY?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Susac Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Susac Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Susac Syndrome doctor near Rochester, NY?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Susac Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Susac Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Susac Syndrome doctors near Rochester, NY?

    Look for the filter feature on the left side of the Susac Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Susac Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Susac Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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