Synovial Sarcoma Registry and Biospecimen Repository
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing. Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.
Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: f
View:
• Males or females of any age
• Reported diagnosis of synovial sarcoma
• Informed consent from subject (aged ≥18 years) or parent/guardian
Locations
United States
Pennsylvania
Children's Hospital of Philadelphia
RECRUITING
Philadelphia
Contact Information
Primary
Lauren Gutstein
gutsteinl1@chop.edu
267-425-2029
Backup
James Robinson
robinsonj9@chop.edu
215-590-2053
Time Frame
Start Date: 2023-06-12
Estimated Completion Date: 2033-06
Participants
Target number of participants: 1000
Related Therapeutic Areas
Sponsors
Leads: Children's Hospital of Philadelphia